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I have an appointment with Dr Goldmeier in about 6 weeks time.
http://poiscenter.com/forums/index.php?topic=316.0CAN YOU PLEASE COME OVER TO THIS SECTION TO SHARE HOW MANY YEARS YOU HAVE LOST AND WHAT YOU HAVE LOST IN THOSE YEARS AND HOW THOSE YEARS COULD HAVE GONE BETTER. COULD BE A GREAT STARTING POINT FOR REDDIT.
Hello All,I’ve read some of Demo’s and Daveman’s posts about the current survey that they’re asking everyone to fill out. I was interested in what this survey consisted of, so Daveman shared a link to it, just so that I could see it.I now understand the importance of this initial survey, and why each of you really will benefit by completing it. FYI, it consists of 21 very brief, general questions about the POIS experience, and should take no more than 10-15 minutes – at the most – to complete. All you need to do is check off the answers as they apply to you.Daveman has taken great care to assure anonymity in this survey. Only your screen name, a password (to access the survey) and the email address that you provided when registering for the forums are required. This initial, general survey will foster more specific surveys as time goes by. For example, Daveman is working on one specific to niacin usage right now. I'm under the impression that a very reputable researcher has expressed some interest in this!!!These upcoming surveys – which will likely each be brief -- will connect data about POIS in an orderly, organized fashion. The importance of this is MAJOR -- there is no other repository of data on POIS – anywhere! Between the NSF and SMF forums, there is a ton of information about POIS. But it needs to be organized. Researchers won’t be able to use your POIS data unless it’s organized and highly coherent. (The hope is that they will be able to formulate scientific data for POIS, based on your data. I think this is Daveman’s main point in asking you to complete these surveys). And -- YOU will be able to put some of the pieces of the POIS puzzle together more easily for yourselves.It is definitely worth filling out this initial survey -- even for those of you who generally don’t post, have never posted, or are extremely private about the POIS experience. I needed some clarification about some of the questions, and Daveman did answer my questions. Basically, for the few questions that ask you to rate a specific statement on a "1 – 5" basis – you need to check off each of the specific replies – even if they don’t apply to you. You’ll understand this when you fill out the survey! As far as a time/effort commitment from each of you – you’ll just be checking off boxes.FYI -- I will never be privy to your responses. Just letting you know! :-)So go do it! It really will be a gift to all of you. AND IT'S CONFIDENTIAL!! http://poiscenter.com/forums/index.php?topic=299.0(Also posted on SMF)
Quote from: CCconfucius on 07/02/2012 03:04:30http://poiscenter.com/forums/index.php?topic=316.0CAN YOU PLEASE COME OVER TO THIS SECTION TO SHARE HOW MANY YEARS YOU HAVE LOST AND WHAT YOU HAVE LOST IN THOSE YEARS AND HOW THOSE YEARS COULD HAVE GONE BETTER. COULD BE A GREAT STARTING POINT FOR REDDIT. I look at it this way. POIS took far too many years of my life. I made no progress for about 10 years, following the completion of a graduate degree. Anything I achieved before that was based on near total abstinence. That's really difficult to maintain in college and shows the kind of iron willpower I had. Then I fell off the wagon and I've been in a relationship for many years which has made abstinence impossible (and it was never terribly desirable anyway . In that time my brother who doesn't have POIS and started out with about equal intelligence based on IQ tests at the start of puberty (we both scored over 150) learned 3 languages and got 2 masters degrees. It's not that POIS has made me stupid but it's taken away the point of trying to learn new things as I've known that 1) I would forget the material quickly 2) I'm too tired to apply most of it. So I have a constant reminder of the effects of POIS on my life. I think I'm turning it around as I've said a few times through supplementation. Things are definitely improving but when you put a lost decade into perspective, it's difficult to not feel huge disappointment that my life stalled for so long. When you leave college you don't believe that the best and most productive years of your life will be written off but that's how it's worked out. Anyway, can't dwell. Onwards we march
Quote from: kurtosis on 07/02/2012 20:26:45Quote from: CCconfucius on 07/02/2012 03:04:30http://poiscenter.com/forums/index.php?topic=316.0CAN YOU PLEASE COME OVER TO THIS SECTION TO SHARE HOW MANY YEARS YOU HAVE LOST AND WHAT YOU HAVE LOST IN THOSE YEARS AND HOW THOSE YEARS COULD HAVE GONE BETTER. COULD BE A GREAT STARTING POINT FOR REDDIT. I look at it this way. POIS took far too many years of my life. I made no progress for about 10 years, following the completion of a graduate degree. Anything I achieved before that was based on near total abstinence. That's really difficult to maintain in college and shows the kind of iron willpower I had. Then I fell off the wagon and I've been in a relationship for many years which has made abstinence impossible (and it was never terribly desirable anyway . In that time my brother who doesn't have POIS and started out with about equal intelligence based on IQ tests at the start of puberty (we both scored over 150) learned 3 languages and got 2 masters degrees. It's not that POIS has made me stupid but it's taken away the point of trying to learn new things as I've known that 1) I would forget the material quickly 2) I'm too tired to apply most of it. So I have a constant reminder of the effects of POIS on my life. I think I'm turning it around as I've said a few times through supplementation. Things are definitely improving but when you put a lost decade into perspective, it's difficult to not feel huge disappointment that my life stalled for so long. When you leave college you don't believe that the best and most productive years of your life will be written off but that's how it's worked out. Anyway, can't dwell. Onwards we march Similar situation, exactly the same in the earlier years, it was only possible to achieve anything with total abstinence. I've been a bum for the past few years, whilst my younger brother who also doesn't have POIS has manage to successfully read a double degree. It's tough psychologically either way
Has anyone taken a supplement that has brought on feelings similar to what you get when your in POIS? I have been experimenting again with different supplements and yesterday I took Alpha Lipoic Acid. This stuff really sets me back which is strange as it was a low dose. The symptoms I get with it appear within the hour and last for about 24 hours. They are very similar symptoms to my POIS:Very poor co-ordinationDerealizationextremely poor lack of concentration / cognitiveJoint achesFacial Muscles pain which effect my facial expressions / talking etc (this is my most unbearable POIS symptom which comes around straight after an O)I thought it was strange how a supplement can bring on such similar symptoms and thought maybe there was a relationship between it. Other supplements do make me feel much better and so I convinced there must be a chemical/neuro imbalance that is extremely sensitive.
Finally, I got my urine test about neurotransmitters , 10 hours after an O : 3.54 creatinin dopamin 91.50 (170-256)0.4 dopac 0.4 (0.70-4)hva 1.90 (2.43-5.20)noradrenalin 10.30 (15-30)mhpg 1.5 (1.3-4.15)vma 1.60 (2.10-3.80)adrenalin 0.98 (1.27-6.10)serotonin 62.40 (61.50-116)hiaa 2.30 (2-4.20)hva/5htaa = 0.83 (1.25-2.56)We can notice that many standards are lower than the low average which means a lot for me !
Quote from: questforlife on 06/02/2012 23:00:18Has anyone taken a supplement that has brought on feelings similar to what you get when your in POIS? I have been experimenting again with different supplements and yesterday I took Alpha Lipoic Acid. This stuff really sets me back which is strange as it was a low dose. The symptoms I get with it appear within the hour and last for about 24 hours. They are very similar symptoms to my POIS:Very poor co-ordinationDerealizationextremely poor lack of concentration / cognitiveJoint achesFacial Muscles pain which effect my facial expressions / talking etc (this is my most unbearable POIS symptom which comes around straight after an O)I thought it was strange how a supplement can bring on such similar symptoms and thought maybe there was a relationship between it. Other supplements do make me feel much better and so I convinced there must be a chemical/neuro imbalance that is extremely sensitive. Are you taking an Alpho Lipoic acid/Acetyl-l- Carnitine Combo? If you are I would stick with Acetyl-l-carnitine as it is an awesome memory booster and cognitive enhancer for me. Alpha Lipoic acid was starting to make me very edgy so I dropped it. It could be that since Alpha Lipoic Acid is a strong antioxidant it is helping your body purge toxins out of your body at a pretty fast rate.I know not everyone believes being affected by toxins,but there's toxins everywhere,even in the air we breath which often contains pollutants from vehicles etc.
Finally, I got my urine test about neurotransmitters , 10 hours after an O : 3.54 creatinin dopamin 91.50 (170-256)0.4 dopac 0.4 (0.70-4)hva 1.90 (2.43-5.20)noradrenalin 10.30 (15-30)mhpg 1.5 (1.3-4.15)vma 1.60 (2.10-3.80)adrenalin 0.98 (1.27-6.10)serotonin 62.40 (61.50-116)hiaa 2.30 (2-4.20)hva/5htaa = 0.83 (1.25-2.56)We can notice that many standards are lower than the low average which means a lot for me ! As you can understand, I was very glad to discover so many abnormalities
How reliable are neurotransmitter tests? 2 years ago, my endocrinologist said they were not reliable. But maybe he is wrong? Maybe things have changed?