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Thank you very much Mellivora. With people like you going out of your way and doing real and tremendous work in benefit of POIS we ARE going to get somewhere.Like both NORDs and HIHs database entry, it takes time to build up on additional information and references. As you say they have to check them out well. And that's why these sources are so respected.I had a look at the three expert sources listed, and didn't see any direct mention of POIS. But they are in related fields. Let's see if there are people there that actually will work directly with POIS.We hope to generate events this year that will be worthy of special mention in all of these referential databases.
We have a new TOY!
I'd like to pledge $100 before the end of March 2012
"Orgasm Research: Climax in an MRI Machine? Been There, Done That "http://www.huffingtonpost.com/kayt-sukel/orgasm_b_1193191.html?icid=maing-grid7%7Cmain5%7Cdl12%7Csec1_lnk2%26pLid%3D126089
Quote from: demografx on 11/01/2012 00:44:30"Orgasm Research: Climax in an MRI Machine? Been There, Done That "http://www.huffingtonpost.com/kayt-sukel/orgasm_b_1193191.html?icid=maing-grid7%7Cmain5%7Cdl12%7Csec1_lnk2%26pLid%3D126089demo, this is actually a really interesting article. Throughout the years, there has been talk in the forum about how beneficial it would be to get an MRI during O. The article indicates that there were many test subjects. Is it possible to get a copy of this study? It was conducted in Newark, NJ at Rutgers University. Is anyone living in the area? It would be extremely valuable to get an MRI of a POIS sufferer to compare it with the "normal people" in the study. It could be a huge breakthrough examining post-O chemical reactions of POIS sufferers.
Wow, I have been imagining something like this for quite some time and here it is. Lets find out more about this, It could be so useful.
Hi all,As I posted on a poiscenter.com thread a few months ago, encouraged by nordnurse I wrote to Orphanet, the European database of rare diseases in an effort to get POIS included in their database. I've made several follow-ups since then and today we finally have some good news!!Orphanet now list POIS on their website!!! Daveman and Demo got us listed in the National Institutes for Health Office of Rare Diseases Research database in the U.S. and now we have similar recognition in Europe through Orphanet. Hopefully this will prove a great step in getting POIS to be more acknowledged and recognised by medical professionals and helps give us more credibility than ever.The listing at this stage is not a huge amount more than the name of our condition. In time, a summary and more details of our condition should appear on the database. Here is a quote from the email I received from Orphanet:"The summary addition is a complicated process due to the many accuracy controls and it will take time, however, the addition of POIS on Orphanet is the most important part."The Orphanet listing can be seen here:http://www.orpha.net/consor/cgi-bin/Disease_Search.php?lng=EN&data_id=20421&Disease_Disease_Search_diseaseGroup=pois&Disease_Disease_Search_diseaseType=Pat&Disease%28s%29/group%20of%20diseases=Postorgasmic-illness-syndrome--POIS-&title=Postorgasmic-illness-syndrome--POIS-&search=Disease_Search_SimpleI'd like to emphasise that this would not have happened were it not for the advice and encouragement I received from nordnurse. It probably wouldn't have come about if Daveman and Demo hadn't taken the initiative and got us listed in the U.S. either as its that that set me thinking about European databases. And of course it wouldn't have happened without our forums! Our listing on Orphanet is further proof that everyone here can make a difference.
Request for all - Anyone who hasn't contributed/pledged yet, please do so as it is for our own benefit. The sooner we collect money, the sooner we can be POIS free. Yes, POIS freeeeeeeee!!!!!! (If you can donate either $5000 or $100, it doesn't matter. What does matter is that we are slowly and slowly reaching our goal. Please pledge/donate as soon as you read this note. Don't wait, otherwise you'll be waiting to cure yourself!)http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3
Guys, As many of you know I have a constant, extremely debilitating POIS, on bad days I freeze with no thoughts like a dementia patient. Paranoia, fog, and physical symptoms..I took Chlorella, Vitamin C, And ZMA afterwards to go with the niacin I had taken before the orgasm. I recovered much quicker than usual and within a few days I felt more alert and clear than I had felt in a while. I had a purpose in life again. I continued to cycle these products daily and this continued for over a week. My libido was back, Could smile, Got tons done. Have not had one orgasm since and int he past few days I have begun to feel the alertness leaving and as well as my energy. I was thinking maybe placebo but then again I was sustaining the good feelings for over a week. I believe that these medications effected some areas that are deficient and I'm just trying to figure out how to sustain the wellness. I fear that I'm slipping back.Fellow member, 'Kurtosis', actually was the one who suggested a few of the products to me as he has had consistent relief for a long period of time. I will be trying different herbs to try and sustain some sort of health. Hoping I can come up with a treatment regiment of some kind, the suffering is extensive as you all know first hand.Best,Jon.