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Hi, I haven't checked in for many months, but I thought I'd pop in say that I've found my 90% cure. Maca root powder (shown to increase serum levels of testosterone)5-HTP, precursor to serotonin, decreases compulsion-based behavior,and finally, recently, the powerful kicker: Rhodiola Rosea. Makes a HUGE difference on my mood, mental stamina, and my way of seeing the world. I've stopped and started a few times so far, and I notice the difference right away. Also, they say it's good to cycle with it- i.e.- something like 7 days and 2 days off. I sincerely hope you all find your own cures! I wouldn't be surprised if Rhodiola Rosea made a difference for any of you. Recovery time has gone from over a month to just about 12 hours. And what I DO go through in those 12 hours is more tolerable.
I have had POIS since I was 16. I recognized it at 36, but was confused for 20 years. At 52, I stopped being orgasmically sexual and got a lot better for a couple of years, but not completely well. Two years ago I stopped being sexual and every symptom went away and has never comeback. I was curious about this experience so I wrote and asked Dr. Waldinger:"Could seminal fluid be "released towards and into the urethra" prior to orgasm, during arousal and non-orgasmic penetration? Hence triggering immunological reaction, to a lesser percentage, prior to orgasm? My experience is that not being orgasmic solves most of the problem, which I have abstained from for 4 years, but to have total relief from symptoms requires not activating the sexual process at all.This make procedural sense, as it is 100% successful, but does this make medical sense to you in your experience?"His response was:"Yes, seminal fluid can reach the urethra before orgasm occurs, during arousal and non-orgasmic penetration." With best regards, Prof. dr. Marcel D. WaldingerFreedom is good...
Quote from: RhythmSpring on 30/09/2011 16:44:17Hi, I haven't checked in for many months, but I thought I'd pop in say that I've found my 90% cure. Maca root powder (shown to increase serum levels of testosterone)5-HTP, precursor to serotonin, decreases compulsion-based behavior,and finally, recently, the powerful kicker: Rhodiola Rosea. Makes a HUGE difference on my mood, mental stamina, and my way of seeing the world. I've stopped and started a few times so far, and I notice the difference right away. Also, they say it's good to cycle with it- i.e.- something like 7 days and 2 days off. I sincerely hope you all find your own cures! I wouldn't be surprised if Rhodiola Rosea made a difference for any of you. Recovery time has gone from over a month to just about 12 hours. And what I DO go through in those 12 hours is more tolerable. RhythmSpring, I am very happy that this combination is working for you!I thought I would try Rohdiola Rosea since you think that is the "kicker" in your treatment. Unfortunately, I have not noticed much (if any) difference. I am taking 340mg twice a day, both in and out of POIS. The only thing that may be of note for me is I seem to sleep more soundly and definitely dream more (which is probably a good thing). I will continue my experiment with Rohdiola Rosea and see how it goes (thanks for your reporting).The only thing that seems to be of consistent help for me is Niacin. As mentioned before, I take 250mg about an hour before "O" and it lessens the impact and length of typical POIS symptoms. I follow up with 650mg of plain aspirin the next morning and repeat every 12 hours for 2-3 days.
Quote from: apostate801 on 02/10/2011 23:34:55I don't donate because even with all the hard core POIS advocates donating/knowing about it, we're only in about 10%. I also am wary of NORD and people asking me for money but I'm paranoid. If we were a lot closer I'd consider it. However if someone did come up with a cure and charged 20 grand for it, I'd sign up tomorrow. Apostate801,I think this is the cure of which you speak!And for a lot less than $20,000 out of your pocket!That is the great thing about this opportunity - we can collectively donate a fraction of that amount and have world class scientists working on OUR specific illness.WE MUST DO THIS!!This is our self test. Our moment in time. Our time to have some faith in people that are trained to help people like us.You know the old saying "It's time to stop talking and take action".I am not advocating that we stop talking, but certainly, it IS time to take action!!Also, if I remember correctly, NORD did not solicit money from us in the beginning... we asked them for help.I know there may be some of us that cannot afford to contribute, but looking at the list of professions, it seems to me that most of us are fairly well compensated and could spare $50 or more.Can we not forgo a dinner out, a sitting at a casino, one concert, one fishing trip, etc, (you get the point), to greatly improve our odds of managing this malady?It may be something very simple, but we will never know if we don't get professional help!Sorry for the rambling, but this seems like such a no brainer! A small sacrifice when approached collectively!I feel so strongly about this opportunity, I am willing to donate more than my original pledge of $1000 to help offset the few that truly cannot afford to give.Everyone here - please take a leap of faith and donate!!!!!
I don't donate because even with all the hard core POIS advocates donating/knowing about it, we're only in about 10%. I also am wary of NORD and people asking me for money but I'm paranoid. If we were a lot closer I'd consider it. However if someone did come up with a cure and charged 20 grand for it, I'd sign up tomorrow.
Quote from: EDS on 04/10/2011 14:34:27Quote from: RhythmSpring on 30/09/2011 16:44:17Hi, I haven't checked in for many months, but I thought I'd pop in say that I've found my 90% cure. Maca root powder (shown to increase serum levels of testosterone)5-HTP, precursor to serotonin, decreases compulsion-based behavior,and finally, recently, the powerful kicker: Rhodiola Rosea. Makes a HUGE difference on my mood, mental stamina, and my way of seeing the world. I've stopped and started a few times so far, and I notice the difference right away. Also, they say it's good to cycle with it- i.e.- something like 7 days and 2 days off. I sincerely hope you all find your own cures! I wouldn't be surprised if Rhodiola Rosea made a difference for any of you. Recovery time has gone from over a month to just about 12 hours. And what I DO go through in those 12 hours is more tolerable. RhythmSpring, I am very happy that this combination is working for you!I thought I would try Rohdiola Rosea since you think that is the "kicker" in your treatment. Unfortunately, I have not noticed much (if any) difference. I am taking 340mg twice a day, both in and out of POIS. The only thing that may be of note for me is I seem to sleep more soundly and definitely dream more (which is probably a good thing). I will continue my experiment with Rohdiola Rosea and see how it goes (thanks for your reporting).The only thing that seems to be of consistent help for me is Niacin. As mentioned before, I take 250mg about an hour before "O" and it lessens the impact and length of typical POIS symptoms. I follow up with 650mg of plain aspirin the next morning and repeat every 12 hours for 2-3 days.just curious testosterone + niacin equals how many days of pois for you now.
Can someone please explain Niacin is it just a B-complex vitamin being taken?
I spotted a case report in the BMJ - http://casereports.bmj.com/content/2010/bcr.10.2009.2359.abstract - about a guy whose sex headaches go away whenever his wife gets pregnant, so his doc gives him a progestogen pill & it works in between pregnancies. I start using progesterone cream - it seems to work, but I've been here before... I bought the full text, it makes very interesting reading. His headache relief matches up with typical female progesterone (P4) production during pregnancy, ie from 8 weeks after conception until delivery - so it seems it's definitely the P4 that's helping. in between two pregnancies, he persuades his doc to prescribe him P4 pills after trying 8% progesterone cream rubbed into the top lip and nostrils - which doesn't work - and another drug, the dopamine agonist bromocriptine, which also fails. The actual drug he gets is norethisterone, used in contraceptive pills. He takes one (5mg) about 30 mins before sex, and gets 95% relief from pain. Sometimes he waits, and takes 10mg a few minutes after sex, ie in the 20-minute window before the headache starts, and gets 100% relief! He took the oral norethisterone for about 9-10 months, seemed to tolerate it well, didn't seem to suffer side-effects and had relief from his other symptoms as well as the headaches. They tested his progesterone levels during his wife's second pregnancy - ie while he wasn't taking the pills - but didn't find them raised above the normal range for a male. I'm still working out the implications of this, but one thing seems clear: the cream doesn't necessarily work, at least not for everyone. But the finger of causation - or at least, a finger - is still pointed squarely at the body's endocrine functions.
Quote from: GoingCrazy on 06/10/2011 03:19:34Can someone please explain Niacin is it just a B-complex vitamin being taken?Niacin is a single b-vitamin. It is vitamin B3. It appears that there are various forms which have been working to reduce POIS symptoms and you can read this thread on the other forum for that information: http://poiscenter.com/forums/index.php?topic=174.0The bottle of pills that I bought is simply labeled "Niacin 100mg". Taking two of these pills does the trick for me.
I've recently been experimenting with melatonin, the chemical your brain naturally produces to help you fall asleep, and have had surprisingly good results.http://www.walmart.com/ip/Natrol-Melatonin-Fast-Dissolve-Flavor-5-Mg-Tablets-Dietary-Supplement-90-Ct/15136704^ the product I am usingAfter O'ing three times the previous night, I took just one pill of melatonin and had some deeply restful sleep. Usually I have nightmares on day 0 of POIS. Funny my last dream I had in POIS some guy was telling me that I should O 3 times per 2 weeks. Lol really weird. But today I could say I really haven't been in a better mood. Very productive at work (I work saturdays, college student). Also, I can say that I recently took two lexapro over two days that were prescribed to me a while ago by my doctor. All I can say is that didn't work at all and did not help sleep. This is definitely not depression. I thought it would help me sleep because I had good experience with nutmeg (not recommended and potentially harmful) known for it's "antidepressant" affects and help with sleep, I wouldn't be surprised if my post is edited for just bringing that up.
[B_Daniel is] going to put up $5,000, and Demografx, Daveman, Limejuice, Rock27, Green, EDS, Habibou, Counterpoints, Jivetalk, Ccconfucius, rjmlr, devastated, rob58, Observer, and Mellivora have also made large pledges to donate.
Quote from: apostate801 on 02/10/2011 23:34:55I don't donate because even with all the hard core POIS advocates donating/knowing about it, we're only in about 10%. I also am wary of NORD and people asking me for money but I'm paranoid. If we were a lot closer I'd consider it. However if someone did come up with a cure and charged 20 grand for it, I'd sign up tomorrow.If you're willing to pay $20K for a cure, what are you willing to pay for a chance for a cure, a guaranteed step towards the cure, and a significant increase in awareness about this syndrome in the medical community? Look, we're in a tough position. We've got to raise $33K and if we don't raise it by March we've got to wait another YEAR for the next grant cycle. It would be a tragedy to have to wait another year. Apostate, what if you were willing to donate, I was willing to donate, and another 75 people were willing to donate, but none of us did bc we all thought nobody else was going to. It'd be very unfortunate. We've got a lot of serious donators here. I'm going to put up $5,000 myself, and Demografx, Daveman, Limejuice, Rock27, Green, EDS, Habibou, Counterpoints, Jivetalk, Ccconfucius, rjmlr, devastated, rob58, Observer, and Mellivora have also made large pledges to donate. We've got some serious fire-power here, but we've got to get rid of this minor roadblock. What I would like is for everyone that would donate if not for the $33K roadblock to please search within yourself and put a price on what you think this research is worth to you in terms of what you can afford. And make a conditional pledge to the group for that amount. For instance, EDS has said he will pledge $100 for every $3350 that is donated (perhaps even more now). I've set a similar schedule for myself. Others have said that they will donate their pledge as soon as the total pledge amount reaches $33.5K. We can either work together to defeat pois, or we can waste away the rest of our lives struggling at work and at social events, and never living up to our full potential. I look at the great things that Steve Jobs did over his lifetime, and how he was the absolute master of his time here. We're simply not in control of our lives, and in many aspects we live lives of mediocrity. It sucks to be so blunt but saying it any other way is just beating around the bush. If you're not willing to make the leap of faith on the fund, atleast give the fund some faith, and make a conditional pledge. By now it should be clear that every individual pledge goes a long way. Thank you all.