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I want to thank everyone for the ongoing support of providing a community where we can discuss this topic.For what it's worth, I also want to raise my monitary contribution amount to $2,000 for organized POIS research (provided that I'm a test subject if we can find a reasonable professional.Thanks again!
I also want to raise my monitary contribution amount to $2,000 for organized POIS research (provided that I'm a test subject if we can find a reasonable professional.Thanks again!
I just remembered that a few months ago I've asked about my symptoms and added a link to that forum - in a medical forum run by a psychiatrist who is also a sexologist. Here's the link (It's in hebrew... If you want, you might be able to use Google Translate or something...):http://www.clalit.co.il/CommunityServer/forums/thread/567677.aspxWhat might be interesting is that he said that: "Just today this subject came up in the metting of the Israeli Society for Sexual Medicine" and that they didn't find one solution, "It's more a matter of trial and error". He said that "Solutions that were proposed are: Beta blockers, Testosterone, Anti-Inflammatories and more".I think that it's very likely that at least some of the doctors that disccused about that matter in that meeting have visited this site (before the meetings) and might base they're opinnion on this site.
So I must ask, do we have a database of all thats been tried? Something that could be added to John's first post ever to link to maybe? To where a person comes here, sees first page, then blammo they have a link to a database of all the cures that have been attempted and their results maybe?
[xx(](i can't delete posts !)
Bilberry extracts have demonstrated anti-inflammatory properties in animals, and thus may be useful in the treatment of conditions such as rheumatoid arthritis. (35) Additionally, women with dysmenorrhea were given bilberry extract (115 mg anthocyanosides per day) for three days before and during menstruation. A significant improvement in pelvic/lumbosacral pain, mammary tension, nausea, and lower-limb heaviness was noted. (36) Bilberry extracts have also been shown to have strong antiplatelet aggregating activity in humans when given at doses of 480 mg daily for 30-60 days. (37) The antiulcer activity of one of bilberry's anthocyanosides (IdB 1027) has been demonstrated in various experimental models. Magistretti et al demonstrated that IdB 1027 decreased the incidence and severity of numerous forms of experimentally induced ulcers in Sprague Dawley and Wistar rats. (38) Another significant property of bilberry extracts is the capability to exert potent protective action on LDL particles during copper-mediated oxidation. This was accomplished using only trace amounts of V. myrtillus extract (15 to 20 mcg/mL); therefore, the extract may be even more potent than ascorbic acid in protecting LDL from oxidative stress. (39)
Bilberry extracts improve microcirculation. Animal studies have shown it to be of benefit in decreasing vascular permeability and improving vascular tone and blood flow. (28,29) Clinical trials in humans have yielded similar results. Fifteen patients with polyneuritis due to peripheral vascular insufficiency were given 480 mg/day of bilberry extract and significant improvement was noted in microcirculation. (30) In another study, the same dosage of bilberry extract given to 47 patients with various venous diseases resulted in reduced capillary flow as well as an elimination of microstagnation and blood stasis of the foot. (31) A review of uncontrolled trials from 1979 to 1985 on a total of 568 patients with venous insufficiency of the lower limbs showed bilberry extract was effective in rapidly decreasing symptomology and improving both venous microcirculation and lymph drainage. (32)
Hi everyone. I wrote a few posts a long time ago, but I became so busy with work that I just didn't have the time to write anything. Just to summarize, I have pretty much the same symptoms as most people on here, and I've had them for a very long time now, starting around the age of 21 (though I can't tell the exact year... as they say, 'it's been a long time coming'). I'm 28 now. I also have an auto-immune disease called ITP (idiopathic thrombocytopenia), which affects the time it takes blood to clot after an injury. But since nobody else on here seems to have that kind of disease, I take it that it is a separate phenomenon.It seems to me that things have become much worse POIS-wise over the last couple of months. It all started around February last year. I was graduating from university, and I was experiencing a very hard time. I was going through a bad break-up, didn't get much help from my friends, and I guess the final examinations did the rest. I had a pretty good grip on myself when it came to controlling my libido and keeping my hands off myself, but after what I was going through, I kind of broke down. I masturbated four times to drown out the sorrow (I never was much of a drinker) over a bit more than one day, and I came to regret that very soon afterwards. This time around it wasn't just flu-like symptoms, it was a full-blown 'flu', and it kept me in bed for almost two weeks, which I take is a bit longer than the time it usually takes to recover.Symptoms didn't wear off properly, and I had a running nose, bad cough and a shot voice for around four weeks, after which I took to bed with something that felt a great deal like the flu once more. After that I was on three or four different kinds of antibiotics. They all killed the symptoms for a week or two, but all hell would break loose again after that. Things gradually became a little better, but I was suffering from a chronically sore throat up until September that the doctors couldn't quite explain. They said my throat looked like that of a chain smoker, only that I've never even touched a cigarette in my whole life. I got a bit unlucky after that - I got hit by swine flu and spent a whole week in hospital trying to get rid of that - the first two days were worst, things picked up againg quickly after that. But I think that over the last year I only masturbated around seven or eight times, just because I was so afraid of being hit by the flu again. I had only just started a new job, so not being able to concentrate and being off sick felt like a deadly mix to me.The main point is that now it seems that I'm really going into a state of the 'flu' or pseudo-flu whenever I'm sexually active. Has anybody else experienced aggravated symptoms? It feels like by doing it too often early last year, I made the whole situation even worse.
Quote from: Limejuice on 06/04/2010 16:16:36I also want to raise my monitary contribution amount to $2,000 for organized POIS research (provided that I'm a test subject if we can find a reasonable professional.Thanks again!Demo, to get an idea of the cost of this organised POIS research. Does the $30.000 or what ever it could end up costing, include the tests, or are those above and beyond the research costs? I have a reduced budget, so would need to know if I "pledged something", would I have to also reserve $$$ for the tests and doctors visits?I guess I am imagining that it it would be difficult that it includes the tests. How might the research go, we take the tests that they suggest and report the results. They analyze, and perhaps ask for another/or different sets of tests and so on and so on.It's obvious that it isn't going to be easy nor quick, but in the end, it almost HAS to be done. Reduced budget or no, if we want a cure (or come closer to one), we're going to have to pay.Even if there isn't a direct cure, it would be a second professional research program in a population of only two. That would have to contribute to a growing interest and greater incentive to do more.
John, this is my Scientific Reply to Bilberry Extract POIS Prognosis.Best wishes for continued success!!!
Quote from: daveman on 07/04/2010 15:43:38Quote from: Limejuice on 06/04/2010 16:16:36I also want to raise my monitary contribution amount to $2,000 for organized POIS research (provided that I'm a test subject if we can find a reasonable professional.Thanks again!Demo, to get an idea of the cost of this organised POIS research. Does the $30.000 or what ever it could end up costing, include the tests, or are those above and beyond the research costs? I have a reduced budget, so would need to know if I "pledged something", would I have to also reserve $$$ for the tests and doctors visits?I guess I am imagining that it it would be difficult that it includes the tests. How might the research go, we take the tests that they suggest and report the results. They analyze, and perhaps ask for another/or different sets of tests and so on and so on.It's obvious that it isn't going to be easy nor quick, but in the end, it almost HAS to be done. Reduced budget or no, if we want a cure (or come closer to one), we're going to have to pay.Even if there isn't a direct cure, it would be a second professional research program in a population of only two. That would have to contribute to a growing interest and greater incentive to do more.Excellent questions! Unfortunately, there are no solid answers. $30,000 is a NORD 'average' across a wide variety of illnesses. I think my pituitary MRI alone was $10,000, and revealed nothing! And researchers all use different approaches, inexpensive to cost-prohibitive testing procedures might be recommended, etc. We won't have a clear path because POIS is still brand-new in the medical community's eyes! Rest assured, that I would never recommend that anyone here spend a dime until we know EXACTLY where the money's going. NORD seems like a first-rate group, but since we don't know what the money will buy (NORD's fee is a MINIMUM, presumably because they aren't staffed to deal with every rare disorder in the world - they are a nonprofit, clearinghouse-type operation that would find us the researchers, administer the budgets, etc. as a Govt agency). - we could wind up with a 50 page set of recommendations to spend X more dollars to TEST a few hypotheses! I really don't know. who knows? Maybe we could wind up with a POIS cure for everyone!Because of all the uncertainty, I've posted my suggestion before: let's find our own researcher(s), pay them small fees for each stage of progress as WE define progress, and then slowly build up to a NORD- type situation. Two problems so far: (1) the feedback/response in the POIS Forum here has been...underwhelming : - ) and (2) the researchers we have approached so far (Waldinger and similar well-known people) have been unresponsive : - (Any ideas? Thoughts? Comments? Reactions?
QuoteJohn, this is my Scientific Reply to Bilberry Extract POIS Prognosis.Best wishes for continued success!!!Thanks Demo, crossed fingers indeed !
demo,do you monitor your PSA levels (with home kits?) now your on TRT?I guess that would be one of things Robb should look into if researching TRT?