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B.Daniel, I would listen to the docs on that issue, I wouldn't want to mess with T levels if everything appears normal. Have you tried fenugreeek? I have been having no symptoms from my NEs and fenugreek might be the reason why. I also often try to eat anti-inflammatory foods. I have been chaste for 3-4 years now so it is also possible that my body is better able to deal with whatever POIS is, but I suspect that this is not the most influential reason,
I wanted to try T-therapy, but to see an endocrinologist you've first got to see your primary and get lab work done. So I had some blood lab-work performed finally. The doc had me get a whole bunch of things tested but there were the only 3 i thought that matter to us. Here are my results:Testosterone, serum: 540 ng/dL Reference interval 249 - 836Free Testosterone (direct): 13.3 pg/mL Reference interval 9.3 - 26.5Vitamin D, 25-Hydroxy: 43.0 ng/mL Reference interval 32 - 100 So none are low. The Vitamin D may just be normal bc just 2 weeks prior I had been in the sun for 2 weeks straight. The testosterone though I was surprised about, given all the discussion we have on this site about pois closely correlating with low T - I had all but assumed mine was low. Anyway, so I asked my primary about putting me on T-therapy. He said NO given my normal levels. I then asked him to refer me to an endo to discuss this with. He was hesitant to do so bc he said he greatly advises I dont take an unnecessary risk with T-therapy (he thinks there's a 0% chance it'll help me), but begrudgingly agreed. I asked him to refer me to one of the best doctors in the area... the supervising physician in UCSF's endocrinology dept, whose name is Dr. Blake Tyrell. My doctor sent him an email, which he didn't let me see. But here is Dr. Tyrell's response: ... I have heard of this once (POIS) before but could find no evidence that it is an endocrine disorder.Given that his testosterone is 540, I would agree that androgen therapy is not indicated.So-we would not see him."I can't say I'm surprised by that. But I thought I'd share. I have found an internist who also has a phD in sexology - so I have an appt with that guy in a month. hopefully that yields better results
This morning, I applied 6 patches at POIS onset, way beyond the normal dose. It might not be the safest thing, but we are guinea pigs in POIS and I'm willing to grow a 3rd ear to help cure this damn stupid disorder!
Quote from: demografx on 26/08/2011 21:03:21This morning, I applied 6 patches at POIS onset, way beyond the normal dose. It might not be the safest thing, but we are guinea pigs in POIS and I'm willing to grow a 3rd ear to help cure this damn stupid disorder! Demo, it's true it may not be the safest thing. And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?I'm just saying that if this is the case then it may not be the best course of treatment for B_Daniel to take at this time in his life. (I'm not sure how old he is)
Quote from: Vincent Marcus on 26/08/2011 21:09:12Quote from: demografx on 26/08/2011 21:03:21This morning, I applied 6 patches at POIS onset, way beyond the normal dose. It might not be the safest thing, but we are guinea pigs in POIS and I'm willing to grow a 3rd ear to help cure this damn stupid disorder! Demo, it's true it may not be the safest thing. And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?I'm just saying that if this is the case then it may not be the best course of treatment for B_Daniel to take at this time in his life. (I'm not sure how old he is)I agree, and will go out on a limb and guess that Demo understands very well the drawbacks of a testosterone treatment and which POISers it might or might not be suitable for. I personally wish he would advocate his treatment even more, but it's tough knowing who might be a good candidate (I'm not, still young and plan on having more kids). Honestly, I want EVERYONE to strongly advocate for the treatments that they've found to work so we can build more cases and improve lives.
defsync's case shows the harm that pois can do. how much harm can T therapy do and will it be worth it? I guess that depends on how much of a benefit it is to me. Which I won't know until I try. It'll likely be a couple months before it begins - but assuming a doctor approves of me to try it, I'll certainly keep you all informed of how it works out. thank you all for your concern.
Quote from: B_Daniel on 26/08/2011 22:56:49defsync's case shows the harm that pois can do. how much harm can T therapy do and will it be worth it? I guess that depends on how much of a benefit it is to me. Which I won't know until I try. It'll likely be a couple months before it begins - but assuming a doctor approves of me to try it, I'll certainly keep you all informed of how it works out. thank you all for your concern.Defysnc you definately dont want to give up just yet, try some niacin seems to be helping alot and start looking for an allergist that can help with you immunotherapy. If you give up the deperession is definately going to drag you to beyond worse.
VM, your statement/question, "And it seems testosterone therapy may have helped you only because it possibly permanently stopped all sperm production in your body, correct?" is unlikely to be true. Why? I have no sperm, yet I still have POIS.We will never know if testosterone caused zero sperm count, unfortunately, because I did not do "before" and "after" sperm testing. Only 2+ years "after" starting TRT. I contacted both the manufacturer of my testosterone, Watson Pharma, and my endocrinologist, and neither believed testosterone caused my zero-sperm count.But even if we did have that information, we still do not know the role that non-sperm semen plays in my POIS. Semen still seems to be related to my POIS. Somehow. But could it be the ejaculatory mechanism itself that causes POIS instead? We are still facing a mystery!But yes, I have repeatedly stressed THE RISKS associated with TRT. I have done that deliberately and continuously here at the forum.I have pointed that out to B_Daniel, yet he seems to still be interested in pursuing it.I will send this to him by private message as well.