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Author Topic: What is scleroderma, how is it treated and what's the prognosis?  (Read 3051 times)

Offline Broca

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My friend has been diagnosed with Scleroderma. She was told it would kill her with in 10 to 15 years. What do you all know about this disease? I would really appreciate any insight into this that you can offer.
Thanks so much!
« Last Edit: 22/08/2008 13:13:31 by chris »


 

Offline RD

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This site has the latest news on scleroderma...
http://www.sclero.org/
 

Offline Broca

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Thanks, that seems to be  great site. I wondered if anyone had personal information. I did not realize it was so debilitating.
 

Offline RD

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I did not realize it was so debilitating.

Not necessarily...

Quote
Systemic sclerosis is highly variable in pace of development and severity of organ damage.
Many persons have very mild disease, whereas others have rapidly progressive and overwhelming difficulties.
No two people with scleroderma are alike...

Localized scleroderma means that the disease is restricted to involvement of the skin only.
The absence of organ involvement means that survival is normal, [i.e. normal life expectancy if restricted to skin].
http://www.sclero.org/isn/brochures/scleroderma/sd-01-en-pdf.pdf
« Last Edit: 19/08/2008 22:26:53 by RD »
 

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