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Author Topic: GBM Grade 4 Glioblastimo Multforme  (Read 3120 times)

Offline rcyawl

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GBM Grade 4 Glioblastimo Multforme
« on: 27/02/2005 12:43:58 »
To ALL.
I am writing to you from England in the hope that you can direct me to some treatment that may result in prolonging my brothers life.  You can see my dilemma that not being in Ireland I am at the excellent disposition of the medical care in Ireland.  

Very brief history:
He was diagnosed with a GBM(grade 4) in the spine last August and as a result was operated on immediately. Due to the location within the spine (12th vertebrae) this was purely a debulking exercise.
Most of the information to date on GBM is related to the brain. Fearing that this was secondary an MRI of the brain and  resulting biopsy showed that this was the primary tumour. A very rare case not only in Ireland but it seems elsewhere as well.

He commenced treatment Radiotherapy and Chemo. 30 Sessions of Radio and 4 supporting sessions of Chemo. from Oct to Dec 7.

From Dec 21st I have seen a deterioration of his well being with increasing bowel and bladder problems along with an increased lack of mobility.

Last week 21st he had another MRI(first since before intervention -Oct 1 ) which showed that the tumour had grown 2CM in length.

Since further Radiotherapy and debulking is ruled out, I fear that additional Chemotherapy will only interfere with his quality of life.    

Are you aware of any treatment or clinical trials that are being conducted or another expert in your field that could advise or assist?


I am desperate!!!!!

Yours
RCYAWL
« Last Edit: 27/02/2005 12:50:37 by rcyawl »


 

Kittycat

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Re: GBM Grade 4 Glioblastimo Multforme
« Reply #1 on: 28/02/2005 01:40:22 »
Hello RCYAWL,

Welcome to the forum. I am aware of two women who have had cancer on their spine and are now cancer free. One had GBM (grade four) on her spine. Most of the tumor was removed, however knowing the nature of GBM it was destined to come back. This lady did CRT treatment only and is now cancer free 16 yrs.
The other lady had Astrocytoma (grade 3) on her spine. She did glyconutrients and is now cancer free. Both ladies can walk; however, they have had cancer leave it's toll on their bodies.
I have been in contact with a man that had Astrocytoma/brain cancer. He did  CRT treatment (with no other traditional treatment) and there was no tumor remaining.
I am aware of at least four people (two that I am helping) who have GBM/brain cancer and all are still with us and improving. We are hoping for the big miracle and at the same time grateful for every day. In all situations their quality of life has been greatly improved.
Let us know how things are going and if there is anything we can do. God bless, Cathy

His ways are higher than mine
« Last Edit: 28/02/2005 05:20:43 by Kittycat »
 

Offline FightforWarren

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Re: GBM Grade 4 Glioblastimo Multforme
« Reply #2 on: 22/04/2005 21:29:26 »
My father was diagnosed with a GBM IV earlier this week.  I am trying to find options for treatment and came across your message.  You made mention of knowing some people that are battling it and prolonging their life.  Is there anything 'different' that they are trying that is resulting in their fight?

Anything welcomed.

Thanks,

David

David
 

Kittycat

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Re: GBM Grade 4 Glioblastimo Multforme
« Reply #3 on: 22/04/2005 22:21:39 »
I will be happy to talk about it with you and help in anyway possible. Cathy
email me at:
Cathy@OptimalHealthusa.com

His grace is sufficient and His strength is made perfect in my weakness
 

The Naked Scientists Forum

Re: GBM Grade 4 Glioblastimo Multforme
« Reply #3 on: 22/04/2005 22:21:39 »

 

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