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Author Topic: What's the treatment for Lupoid Sclerosis?  (Read 4202 times)

Marsha Griffee

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What's the treatment for Lupoid Sclerosis?
« on: 09/10/2009 12:30:04 »
Marsha Griffee asked the Naked Scientists:
   
What is the prognosis and treatment for Lupoid Sclerosis? I elevated my bed!!

What do you think?


 

Offline RD

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What's the treatment for Lupoid Sclerosis?
« Reply #1 on: 10/10/2009 01:07:19 »
Make sure the Multiple Sclerosis part of your diagnosis is correct.

There are ischemic MS-like conditions which can occur in  Lupus,
 e.g. cerebral vasculitis, and Hughes syndrome (APS).

These  ischemic conditions are more treatable than MS, e.g. Hughes Syndrome (APS) is an immune mediated hypercoagulability (causes minute blood clots) and is treated with anti-coagulants (“blood thinner”).

If your “MS” was actually “APS” you would miss out on an effective treatment to slow progression.
There are blood tests which can identify if you have APS ... http://en.wikipedia.org/wiki/Antiphospholipid_syndrome#Diagnosis

Quote
APS is commonly seen in conjunction with other autoimmune diseases; the term "secondary antiphospholipid syndrome" is used when APS coexists with other diseases such as systemic lupus erythematosus (SLE).
http://en.wikipedia.org/wiki/Antiphospholipid_syndrome

Quote
Some people with Hughes Syndrome [APS] develop a syndrome which is very similar to multiple sclerosis where they have numbness or pins and needles, double vision or loss of part of the field of vision, and have difficulty walking. Consequently, one of the main alternative diagnoses in patients with Hughes syndrome is multiple sclerosis, and the clinical team here are continually treating patients who had been previously misdiagnosed with “multiple sclerosis”.
http://www.hughes-syndrome.org/symptoms.htm#MS
« Last Edit: 10/10/2009 02:14:40 by RD »
 

Offline Andrew K Fletcher

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What's the treatment for Lupoid Sclerosis?
« Reply #2 on: 11/10/2009 16:36:36 »
Marsha

have you tilted the whole bed by raising at the head end by 15 cm's or six inches?
 

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What's the treatment for Lupoid Sclerosis?
« Reply #2 on: 11/10/2009 16:36:36 »

 

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