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Author Topic: Unusual Generalized Edema & zebra hunting  (Read 2464 times)

Offline girlimpossible

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Unusual Generalized Edema & zebra hunting
« on: 17/07/2014 22:04:30 »
(Not looking for a dx, just looking for dx ideas to bring to my dr) Since about march or April, I've had bilateral swelling in my hands and feet, mild/mod but obvious if you look at before and after photos, starting to cause an aching pain, sometimes causing nerve sx's. I think it's also around my neck/trunk, my jeans started to fit and I had just actually lost weight before this. It is worse when I sit or lay down, possibly even worse when I've slept over night or just a nap. -- what we've ruled out; - medication, - liver, - kidney, - dvt/legs, EKG is normal, CBC normal, thyroid normal. The presentation doesn't seem to for anything I can find anywhere. --- things I already have: unspecified dysautonomia, mild chiari 1, migraine, hx of anemia, Raynauds, no med changes that match up with sx's onset. ---- have repeat autonomic testing scheduled, not until after the event I wanted to not have pain and swelling for of course....... --- if anyone has had similar s a, or knows of something that matches or could match or should be rulled out, or if you know of a specialist who likes puzzles and may have experience, anything would be so very very greatly appreciated!


 

Offline RD

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« Last Edit: 17/07/2014 23:32:17 by RD »
 

Offline girlimpossible

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Re: Unusual Generalized Edema & zebra hunting
« Reply #2 on: 18/07/2014 01:40:37 »
Rings jeans and shoes feel tight, I'll try to post the photo tomorrow somehow the sub megapixel one I have is too large..... :)
 

Offline RD

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Re: Unusual Generalized Edema & zebra hunting
« Reply #3 on: 18/07/2014 11:46:41 »
I take it that the "zebra hunting" bit means you're in Africa.

There are tropical parasites which cause lymphedema ...

http://en.wikipedia.org/wiki/Lymphedema#Causes

http://en.wikipedia.org/wiki/Filariasis
« Last Edit: 18/07/2014 11:49:37 by RD »
 

Offline girlimpossible

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Re: Unusual Generalized Edema & zebra hunting
« Reply #4 on: 18/07/2014 21:40:19 »


RD no, they sometimes use "zebra" in reference to rare medical problems, "when you hear hoof beats, think horses not zebras" :)

 

Offline RD

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Re: Unusual Generalized Edema & zebra hunting
« Reply #5 on: 18/07/2014 23:19:40 »
oops  [:I] ( in my defence sometimes there are questions here from people in Africa).

It's difficult to tell from the arty black&white photo ,  but the search term "periungual erythema" may be relevant.



If you're taking a vasodilator to treat Raynaud's that's a possible explanation swollen feet ... http://www.patient.co.uk/health/peripheral-vasodilators#nav-5
« Last Edit: 19/07/2014 00:04:58 by RD »
 

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Re: Unusual Generalized Edema & zebra hunting
« Reply #5 on: 18/07/2014 23:19:40 »

 

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