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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6445699 times)

Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1000 on: 07/08/2008 02:49:10 »
I did feel very bad after eating a piece of garlic. I got very constipated. I think garlic attack a bacteria E. coli producing constipation  and  pois symthoms, in my case.
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1001 on: 07/08/2008 10:00:20 »
What?? Garlic causes POIS symptoms for you!! Weird. I'm thinking Herxheimer reaction.... Perhaps you should wait a while and then start with a small piece, gradually increasing the amount consumed (if possible). I also suggest a relatively high fiber diet and adequate water/liquids...keeps things moving along.
« Last Edit: 07/08/2008 10:04:58 by John21 »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1002 on: 07/08/2008 18:06:55 »
I did feel very bad after eating a piece of garlic. I got very constipated. I think garlic attack a bacteria E. coli producing constipation  and  pois symthoms, in my case.

Garlic can actually cause a yeast die-off in the body, which can make one feel temporarily worse. So I concur
with John21, regarding the Herxheimer reaction. Or it could just be an allergic reaction to garlic, a food allergy.
There are labs that do extensive food allergy testing that you could look into if you found it necessary.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1003 on: 08/08/2008 01:33:47 »

Today i'm on Day 2 . I have a nice improvement of my symptoms with my current diet, for the first time since more 10 years. Maybe 30-40% better. Less flu-like state, more concentration. I'm more and more confident to break the POIS.


B_Jim, Congratulations!! Do you think there is/are any one or two components of your diet that helps to fight POIS more than anything else on the rest of your diet?

WONDERFUL news again, B_Jim!
« Last Edit: 08/08/2008 01:37:43 by demografx »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1004 on: 08/08/2008 05:39:09 »
Nope. Haven't tried phenelzine. I do take Cymbalta, but what seems to work best for me are the ADD-type stimulants, which can become addictive. They do have a potential for abuse, so it's a wee bit scary. I do drink a lot of coffee along with the stimulants, probably not the healthiest thing. But all in all, it's good.
Thanks for your answer. As you said before, some antidepressants are effective and others not, we never know with this one ... Phenelzine (MAOI) act on serotonin and norepinephrine like cymbalta (SNRI) but in a different way. However i think you can't take it with an ADHD medication, and some foods are prohibited with it. Possible side effects are also a bit scary but I read in an other forum that people are well only with this one. If you are ok with what you take now, i'm ok too ! 

 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1005 on: 09/08/2008 16:37:08 »
YouTube POIS PSA/film is almost done--This is a request for help posting it.

Hello Everybody--I'm getting close to finished with the youtube POIS PSA/film. It looks pretty good. I've spent
about 50 hours on it so far and want to finish it this week.

When I'm done, I need to have someone post it for me on youtube, as I don't know HOW to do this, and also
would like  to maintain my anonymity. Is there someone in this group I can just send a hard copy of the DVD
to, who knows the ins and outs of getting it FTP'd and then transferred onto youtube? Please let me know via this
forum or email.           
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1006 on: 09/08/2008 19:35:25 »
Hi girlwind,

That's great news about the almost-completed video.

In terms of getting it uploaded to youtube, it seems like it wouldn't be too hard for you to do it yourself, both in terms of ease and anonymity. 

With regard to anonymity: You can create an account on youtube here ( http://www.youtube.com/signup?next=/index ) without having to provide your name at all.  You can come up with a username like "POIS_support", which also keeps you anonymous.  The only thing you need to provide is an email address, which would not even be publicly visible on your youtube account--and again, even for that, you could just create a gmail account to use, also without having to provide your real name.

With regard to uploading the video: uploading is pretty easy: all you need to do is log into your youtube account, click "upload", and then click on the file name on your computer:  http://www.google.com/support/youtube/bin/answer.py?answer=57924&cbid=-io7pajywi9n9&src=cb&lev=
It looks like most of the typical video formats are acceptable.  How long is the movie and how big is the file?


I'd be happy to help with any of this, if you want to send me a private message on my Naked Scientist account.  But overall, it seems like doing it yourself might be easier and quicker than mailing a hard copy to someone else.  Let  us know what you think...


 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1007 on: 09/08/2008 21:14:26 »
Hi Guthrie--

I'm not looking forward to uploading. You make it sound very simple, but I've attempted this before
and failed badly at it. Right now the film is in Final Cut. I can get it into Quicktime and see how big that
file would be. After that, I will probably avoid dealing with for a while, so as to avoid the frustration of
the task.    [8] [8] [8] Then I'll be in touch.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1008 on: 10/08/2008 03:32:00 »
GOODOLEBOY55

Welcome to the POIS Forum and THANK YOU for your detailed post! At one time I thought the psychological/emotional realm could be the basis for POIS, but since being cured 75% of POIS symptoms (through my Rx for Levitra, which I take for my ED and which I accidentally discovered thanks to the alertness that this Forum encourages), I am firmly convinced that it's physical.

However, I still wonder if the emotional/psychological realm did not set it off in the first place for some of us. At any rate, I think POIS problems for us today are a biological phenomenon.

Thanks for your contribution!
« Last Edit: 10/08/2008 03:37:24 by demografx »
 

Offline longwalkhome

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1009 on: 11/08/2008 01:59:09 »
Hey everyone,
I'm 26 years old and from Germany. Around ten years ago I first experienced the severe back pains some people on this board are mentioning after sexual release. In the wake of these problems I underwent several medical examinations, but none led to any sort of diagnosis. As time passed I started getting throat aches and feeling incredibly drowsy and foggy whenever I was sexually active. It is usually very hard for me to concentrate on anything in this state, and to make things worse, it is accompanied by diarrhea, flatulence and a terrible feeling of "drying up" from my mouth. Also, my eyes get worse the day after climax (especially the vitreous clouding - those annoying black dots and lines).

Around seven years ago, while I was suffering from work-induced stress I had an overall blood check, and it turned out I have what is called a "thrombocytopenia", which means my blood does not contain the regular amount of thrombocytes. This means that if I get injured my blood will not clot correctly, and this, in turn, can be very dangerous depending on the amount of thrombocytes I have. But the important thing about this state is how it is triggered. I had my bone marrow punctured twice over a period of five years, because I kept losing thrombocytes, which can be a sign of leucemia. Thankfully, everything was okay (so far), and said thrombocytopenia has been diagnosed as "Morbus Werlhof" - this means that for some reason, my body is producing antibodies to the thrombocytes in my blood. I have also noticed that I usually have lower amounts of thrombocytes after sex and during the period of pain and drowsiness that follows. This seems to be in accordance with the theory that POIS is induced by the body "fighting off" what is released into the blood after sexual release. Sadly, every doctor I have approached about these problems has answered to them with not much more than a puzzled frown.

I hope my story has made some sort of contribution to this thread. I am literally at my wit's ends.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1010 on: 11/08/2008 04:48:18 »
longwalkhome

Longwalkhome, welcome to The POIS Forum! We have all been/are at our wit's end, too, and that fact should hopefully provide some relief. Before this Forum, it was rare to find anyone who understood us and POIS.

In just a little over a year, we have made tremendous progress and I suspect that this Forum - with some assistance - will find some solid, universal cures one day. We have already witnessed some people here with major post-orgasm symptom improvements.

Your contribution is indeed most appreciated!
« Last Edit: 11/08/2008 04:54:17 by demografx »
 

Offline longwalkhome

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1011 on: 11/08/2008 10:56:23 »
Hi B_Jim!

The reason the thrombocyte deficiency went unnoticed during the first diagnosis was probably due to the fact that I didn't have my blood checked at the time. There was no need to, because I thought I had some sort of bowel disease and simply asked for a colonoscopy and a gastroscopy. Also, the doctors I was seeing then said that the pains were probably stress-related and that at my age it would be unnecessary to look any further into the matter. They told me to try doing sports regularly and keeping a healthy sleep rhythm, which I did but to no effect. Also, I was sort of reluctant to associate the problems I described with my sexual activity at first. I noticed how the pain came whenever I had been sexually active, but I believed the doctors and kept telling myself the symptoms were stress-related. When the drowsiness and all the other problems set in, too, this seemed to underline the fact that these things were indeed due to stress, since I was going through a lot of emotional pain and loads of work at the time. When it all got too much, though, I finally decided to see another doctor, because doing sports wasn't helping at all, and I kept waking up all tired. Said doctor decided to do an overall medical check-up, which included a very thorough blood check. That's when I was diagnosed with thrombocytopenia. It wasn't much of a problem yet back then, because the amount of thrombocytes in my blood was not that much below the average yet, and the bone marrow puncture proved that it wasn't due to any sort of cancer. After a while, the drowsiness and the pains got yet worse though, and the amount of thrombocytes in my blood started dropping rapidly, too. That's why I have to have my blood checked on a weekly basis now, and I've deliberately (though reluctantly) tried to have sex the the day before or of the examination. I did that because I started noticing symptoms associated with thrombocytopenia like bruises and little red spots all over my legs after sex. That's when I noticed I usually have lower amounts of thrombocytes one or two days after release. My doctor didn't make much of this information though and said there may be different reasons for this (none of which she could openly explain to me), but that it was probably just a coincidence.

I'm not saying that anyone who's suffering from POIS necessarily has to have thrombocytopenia like I do - I guess if you usually have an average thrombocytes level there's probably not much to worry about, because I have a relatively low level even if I remain abstinent for several days or weeks. The parallel between Dr Waldinger's theory about POIS being some sort of allergic or autoimmune reaction and the fact that my thrombocytopenia is also caused by my body producing antobodies to thrombocytes just struck me.

Anyway, thanks for reading! I've been searching the net for ages for the exact symptoms everyone on here is describing and constantly had to live with the inner struggle between accepting them as stress-related and the urge to go see a doctor for help. Finding this board means a lot to me ...
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1012 on: 12/08/2008 04:24:54 »
Today i'm on Day 2 . I have a nice improvement of my symptoms with my current diet, for the first time since more 10 years. Maybe 30-40% better. Less flu-like state, more concentration. I'm more and more confident to break the POIS.

Up : remember what ultraka wrote :
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149172#msg149172
Quote
i always try to find the natural solution out of this and although nothing is 100%, the following help a little:

5htp
protein shakes
yoga
strenuous exercise(as difficult as this can be)
also mental effort to ignore symptoms
sometimes also strong tobacco.

I agree I suggest to eat rich proteined diet D-1 and D1 (maybe i will try amino acids supplement + enzymes)to reduce POIS symptoms. Proteins/carbs ratio might have an influence on cortisol, steroids and neurotransmiters.

i agree with the protein connection. An adequate carbohydrate/protein/fat proportion should be 4/2/1.

Milk is incredibly rich in sugar (12.8 sugar for 7.9 protein)
while cottage has (8.2 sugar for 31.1 protein)
http://www.nutritiondata.com/facts/dairy-and-egg-products/69/2
http://www.nutritiondata.com/facts/dairy-and-egg-products/14/2
Both have the same calcium/magnesium ratio.
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1013 on: 12/08/2008 04:47:07 »
Posts after posts from newcomers, this is very encouraging for the future of pois. Keep posting ! We need you.

Maybe someone who has already sent letters in the past can send a copy to these locations :
http://www.aamc.org/research/clinicalresearch/start.htm
http://www.afmr.org/
http://www.ama-assn.org/ama/pub/category/8245.html
http://www.americanmedicalresearch.com/aboutus.html
http://andrologysociety.com/
http://www.aace.com/
 

Offline heparbee

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1014 on: 12/08/2008 09:53:40 »
Hi

As you can see I'm new to this forum.

I have CFS/ME and have been try to understand more about it.
I was doing some searches on here yesterday and this thread kept appearing.

One of the similarities between the two conditions is the recovery time. This for CFS/ME is thought to be because of mitochondria dysfunction. If you use up all available energy, you then have to make new energy (ATP) Dr Myhill explains it well. Not all of it will bw relevant to you.

newbielink:http://www.drmyhill.co.uk/article.cfm?id=381 [nonactive]

Women with CFS/ME suffer much more when they are trying to bleed.

Prof. P told me this is because the Pituitary gland is next to the Hypothalamus but I think it is because of the extra energy needed at this time. I am very encouraged by my use of enzyme Q10. I have only used it for three months but soon saw an improvement.

Q10 speeds up the chemical reactions needed to make new energy.

CFS/ME specialists believe the other symptoms cognitive, fatigue, immune, etc. are all secondary to the mitochodrial failure.

Hope this helps in your quest.

Bx





 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1015 on: 12/08/2008 22:01:24 »
OKAY GANG, here it is. The final edit of the POIS PSA/youtube posting, with a link to this forum.
Thanks Guthrie for the technical assistance. 

 

Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1016 on: 12/08/2008 22:21:33 »
I love the video u made, it certainly is in the direction of progress, and it gave me hope as I watched it.  Thank you girlwind.

My latest attempt to see a highly noted neurologist in San Fransisco failed, he won't have openings for another two months, by which time I will have left California well in advance.  It probably would have cost me an arm and a leg anyways....
 

Offline Bizzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1017 on: 12/08/2008 23:03:19 »
Hi folks

I havent posted in a while though I have been trying all sorts of pharmaceutical medicines.
I have just seen the youtube clip made by girlwind with the help of guthrie. Its excellent work, im amazed. A lot of people will certainely be viewing that.
We still need an endochrinologist to start research on POIS. Not some professional to just look at the posts and make recommendations, even I can do that. This condition needs to be researched using patients and this forum can provide that resource.
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1018 on: 13/08/2008 01:50:47 »
Nice video Girlwind! Thanks to you and Guthrie. Finally it wasn't so long to wait for the film. I hope this will be useful. It's too soon to have it listed in Google i see, or i didn't search with the right keywords.
Hi Bizzy,
I agree with you, we're waiting for an endocrinologist and i think also any practitioner who can help. Even if it's only to post here it will definitely be appreciated. It can be someone who's already treated people with our symptoms, or simply someone to give an advice or suggestions, i'll take everything!
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1019 on: 13/08/2008 04:27:02 »
Yes, as girlwind says, I only provided about 5 minutes worth of youtube advice--she is the one who did the entire video.

Girlwind, I just watched the video--I think it is great!  Truly a job well done.

Now, the question is: how to spread the word and get people to watch the video on youtube?  Will people just come across it on their own?  Or, can we posts links to it in different places on the web?  (For example, CFS forums, or sites for other sexual/endocrine/immune ailments.)
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1020 on: 13/08/2008 04:33:06 »
Curious: did anyone here undergo a physical trauma (particularly to the head) around the time (within months) of connecting orgasm to these symptoms?
 

Offline omglol

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1021 on: 13/08/2008 04:50:37 »
Hello.

I'm just wondering... How many of you that suffer from POIS get thunderclap headaches?

I suffer from all the symptoms listed with only one more symptom.. thunderclap headaches.

visit this thread to read about these types of headaches. http://www.thenakedscientists.com/forum/index.php?topic=2734.0

I am lucky enough to know one more person with the same symptoms I have, that also has thunderclap headaches.

We both worked at a certain factory for the same duration, exposed to the same chemicals.
 

Offline Bizzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1022 on: 13/08/2008 09:38:14 »
I just had a thought, maybe our efforts should be aimed at attracting researchers tied to universities rather than more of the public. This forum might eventually get flooded with people posting about their experiences. That might leed to difficulties in our communication and campaign planning.
For example the youtube video could link to a wikipedia page providing a discription of the illness. The wikipedia page should end with advising people to see endocrinologists and start their own campaigns in the aim of attracting researchers. The wikipedia page should also make a direct appeal to medical researchers.
« Last Edit: 13/08/2008 09:40:43 by Bizzy »
 

Offline Bizzy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1023 on: 13/08/2008 09:44:18 »
Curious: did anyone here undergo a physical trauma (particularly to the head) around the time (within months) of connecting orgasm to these symptoms?

I suffered a trauma to my head when I was two years old.
 

Offline sparx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1024 on: 13/08/2008 12:01:33 »
... final edit of the POIS PSA/youtube posting ...

thanks girlwind! an excellent presentation ... seems very balanced and representitive of the wide variety of experience reported here. Looks like you've done quite a bit of research and careful writing to come up with all that. Great effort and result!
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1024 on: 13/08/2008 12:01:33 »

 

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