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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6430719 times)

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1100 on: 21/08/2008 16:53:54 »
THANK YOU Guthrie--for the acknowledgment that it was I who made the POIS video, (which stands for POST ORGASMIC,
not EJACULATORY), and that yes indeed, last I checked, I am a female, with the above fore-mentioned syndrome.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1101 on: 21/08/2008 18:20:25 »
Any tips on how to change my username? I don't want that name searchable -- would like to protect my privacy!
Thanks.
As you can see, it's been changed...including the "edit person" (in very small italics at the bottom) of your most recent post
« Last Edit: 21/08/2008 18:22:16 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1102 on: 21/08/2008 18:40:40 »
THANK YOU Guthrie--for the acknowledgment that it was I who made the POIS video, (which stands for POST ORGASMIC,
not EJACULATORY), and that yes indeed, last I checked, I am a female, with the above fore-mentioned syndrome.

girlwind, I thought I gave you proper credit above, but maybe it wasn't clear enough. If so, sorry.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1103 on: 21/08/2008 21:05:33 »
THANK YOU Guthrie--for the acknowledgment that it was I who made the POIS video, (which stands for POST ORGASMIC,
not EJACULATORY), and that yes indeed, last I checked, I am a female, with the above fore-mentioned syndrome.

girlwind, I thought I gave you proper credit above, but maybe it wasn't clear enough. If so, sorry.

You did. Don't worry, be happy.  :D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1104 on: 23/08/2008 02:16:03 »
Don't worry, be happy.  :D
Your wish is my command! ;D
 

Offline nopoison

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1105 on: 23/08/2008 12:49:55 »
This previous week I had another NE, while continuing my clove a day garlic diet. Again, I had no mental symptoms, and remember for me the mental trouble has always been the main symptom. I did notice that my neck glands were slightly swollen, as if I had a minor cold. Unexpectedly one morning I woke with a sore neck, which is very odd for me. Then a couple of days later my back went out.  Whether the back/neck problems are POIS related I have no clue. 

I believe that the garlic is definitely doing something. Is it killing an organism? Is it moving mercury around? I really donít have any idea, but it is my new drugÖ I am now a garliholic.  I am also still eating some raw onions, although my money is on the garlic.  I am also still consuming some flax oil,  it seems to help with energy especially when insomnia is sapping me.

Thinking back to when I believed a dairy free diet was helping me, this could very well have been around the time that I began adding cooked garlic to my diet.


Hello everybody (sorry for my english, I`m not native).

I`have tried your (John21`s) garlic diet idea and got interesting results:
- almost no 'mental-fogg efect' - which is most important for me, because I cant work while I get this,
- light back pain, no neck cracking / joints problem,
- generally a lack of mental destruction (not only a fog problem) - definitely a strong decrease, it used to push me away from people and concentrate on my self, which was deadly for my self-esteem and my ability to recover to communicate properly,
- no changes in libido, still wanting my girl as much as before (which usually was not a rule after a strong ejaculation bc of exhaustion probably), still have enough energy to get up from bed daily WITHOUT DEPRESSION-LIKE PROBLEMS,
- slight decrease in numerical / programming skills,
- almost no decrease in language skills,
- organization level at the stable level.

My story is a usual POIS problem story.  It started at the age of 10 (now Im 26) and made a hell of my 'private' life.

I started to live a balanced life 3 months ago, which means for me:
- having a 8-16 work with strong face to face interactions
- exercising daily with a plan
- eating healthy (no or little junk food), more vegetables and fish, less diary products
- socializing every weekend, taking care of people around,
- READ MORE BOOKS, LISTEN TO MORE MUSIC consciously - culture has a great katharictical influence, make a use of it,
- getting organized. the hardest part - its a constant demand for solving problems at the fast pace, in order to reduce stress and burnout,
- sleep more at regular basis: 12-7:30.

So once again - THANKS FOR A LIFESAVING TIP John21. I will bring some more info later on how it works.


Stay in health people,

James


 



 

Offline nopoison

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1106 on: 23/08/2008 12:53:36 »
Does anyone here have a stronger analytical background? I think that it would be useful to prepare some tests/forms which could give a wider understanding of our problems background. Many of us probably tried psychological / psychiatrical support (including me), but that really wasnt a solution. Maybe there is something that we are missing making ourselves hitting a dead end?

For example we could test:

=== social part
- are we in relationships or single
     - what was our overall ability to socialize before/after our pois problem begun
// this could help us realize if we are shizoidal by nature or it started at some point of time ;)

- what is our main reason not to restrain from sex
    - do we have addictions? are they sex addictions?
// after my example I can see that living unbalanced life leads to many addictions - sex addiction is one of them, including masturbation and pornography addiction. Having the knowledge of how spread this problem is  we would know much more about the INFLUENCE of it on our quest for antiPOIS drug.

- do we lead a stressfull life // I realized that having problems with your own life leads to hard frustration and some sort of anxiety/detachment which emphasizes POIS itself and escalates its effects

- do we have strong family relations?

- does anyone from our family/relatives know about our condition?

- how well socialized are we? do we have friends? do we go out every weekend or maybe more often?

- do we have hobbies?

=== health part

- do we exercise?

- what sports do we train?
===
etc etc.
===

There is an external web-forms engine which could help us prepare such polls. If local admins could help us get use of that it would be great, if not - we`ll need some other way to do it.

its called: newbielink:http://wufoo.com/ [nonactive]

------------------------

We could get in touch with students of medicine / psychology. Some of them are looking for a topic for their thesis / projects. Getting them involved would be beneficial for them and our community.

--------------------------


Tell us what you think about ideas above.
Stay in health :),
James


 



 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1107 on: 23/08/2008 23:36:37 »
James!
I am elated to hear you have seen positive results with the garlic! Myself I have had yet another positive occurrence, I am ecstatic about this find. I cannot imagine a placebo effect ever having the strength to influence the torment that I used to feel post sex. I am the most confident I have ever been that the problem finally out of my way, and it thrills me to hear that someone else is benefiting as well. Whether it works for all is to be determined, but perhaps if it doesn't we might be one step closer to knowing how to battle it.

My thoughts are that something, whether bacteria or fungus is living in the pelvic area, perhaps primarily in the prostate. When the sexual organs have been activated by orgasm blood increases to these areas and whatever is living there gets "fed" in the process, causing inflammation and many varied symptoms. When consuming garlic as medicine to counteract it, I believe it is most important to eat it immediately after sex (start the day after minimally, the hour after ideally), and if possible immediately before sex. (Doesn't sound too romantic does it :) ) This time when the pelvic area gets the increased blood circulation is the time to bombard it with allium sativum.
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1108 on: 24/08/2008 00:07:24 »
Animus,
Your situation is certainly very unique. I am sorry to hear that you have suffered so much. I hope you can benefit in some way from us, and I really hope you don't have to go through any more operations to counteract your problems. I'm not surprised that such a supplement caused you damage, but the severity is incredible. You scared me there for a moment, when you said girth I was thinking diameter...5" ! :D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1109 on: 24/08/2008 01:50:00 »
GARLIC DIET

John21, this is so amazing, to think that something so simple could be so powerful. Thank you for discovering it! It would be interesting if there are any similarities between garlic and Levitra! Or is that way too bizarre?
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1110 on: 24/08/2008 03:34:07 »
GARLIC DIET

John21, this is so amazing, to think that something so simple could be so powerful. Thank you for discovering it! It would be interesting if there are any similarities between garlic and Levitra! Or is that way too bizarre?

That is too delightfully funny...garlic as the new Levitra! But wait, I have something even more phenomenal.
I just recently read an article about a doctor in Italy, whose  "research has led him to believe that something as simple as a fungus,
Candida, is the leading cause of cancer; that cancer itself is in fact a fungus. What we refer to as a tumor, is nothing more than
your bodyís attempt at protecting itself from that fungus." 
And get this... this doctor Simoncini, has conducted tests using plain
old baking soda to shrink cancerous tumors. "Dr. Simonciniís experience has shown that 99 percent of breast- and bladder cancer
can heal in just six days, entirely without the use of surgery, chemo or radiation, using just a local infiltration device (such as a
catheter) to deliver the sodium bicarbonate directly to the infected site in your breast tissue or bladder."


Is this food as medicine, or what?   :o

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1111 on: 24/08/2008 05:19:19 »
Is this food as medicine, or what?   :o
girlwind, I can't respond to this right now. I'm late for a dinner out. Includes Aspirin+Tylenol Appetizer, entree of Antidepressant Salad and for dessert: Viagra Swirl Ice Cream! Yum. Beta Blocker Bubbly, too.
« Last Edit: 24/08/2008 17:35:02 by demografx »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1112 on: 24/08/2008 13:42:07 »
Hypothesizing that it is a fungal problem...I am wondering if people who do not respond to garlic should also include other antifungal supplements post sex, a quick search puts caprylic acid as being a candidate, amongst others. I might even do so myself.

http://www.bioactivenutrients.com/FungusFree.html
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1113 on: 24/08/2008 17:37:07 »
John, I've lost track. How often has the garlic diet worked now on your POIS?
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1114 on: 24/08/2008 19:41:35 »
I think it has been three times but I am not positive, it may have been four.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1115 on: 25/08/2008 00:42:34 »
Has it worked every time John?

PS.  I have been experimenting with beta blockers for the last couple weeks (Nadolol).  Will report soon.

Also: Yesterday I had an interesting experience.  In the last few months, after one orgasm I feel very distressed and have severe mental fog.  A second orgasm (within an hour) alleviates some of the mental fog and calms me down.  But after a second orgasm, I feel very drained, and exerting myself mentally  still causes me to feel extremely uncomfortable and distressed.  So recently, when I have orgasm, I will usually have 2 in succession: the symptoms are still quite bad but not as severe as after one orgasm -- if anything, my mind is slightly more clear and I feel more relaxed.  Two days ago, on friday, I had two orgasms in the morning.  After the first hour, I felt somewhat relaxed, but knew I wasn't "well" -- my mind was not clear, and I certainly wasn't "myself".  The next day, the symptoms were not gone.  I had company over for many hours, and I was putting everything into being a good, entertaining, engaging host. But this was extremely taxing -- I was in excruciating agony.  I couldn't wait for them to go in order to get some mental relief.  I felt very drained, and still sexually satiated.   I don't feel comfortable giving this type of detail, but it may be relevant: also, when symptomatic, like yesterday, I can constantly feel a kind of pressure in my prostate and testacles.  Anyways,  I had the sense that another orgasm wouldn't make things worse, and that I wouldn't need two.  I had another orgasm, and my symptoms completely drained away!  It happened too quickly after the orgasm for it to have been something else.

This is something I have experienced in the past after days of agony. (Something I first discovered accidentally after a nocturnal emission).  It took me ten years to find this out.  It certainly isn't consistent for me, but it's very interesting, and should certainly shed light on this problem.  It seems that orgasm can both cause and alleviate this problem.  Relief from orgasm I find usually happens only after prolonged suffering (days).  Not always though.
« Last Edit: 25/08/2008 01:05:48 by Counterpoints »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1116 on: 25/08/2008 03:56:32 »
All right, here is the questionnaire!
http://pois.olympe-network.com/

Many people in this community contributed, and Marnia of reuniting has generously agreed to take full responsibility.  Please direct questions to
reuniting at hotmail.com
« Last Edit: 25/08/2008 04:06:15 by Counterpoints »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1117 on: 25/08/2008 10:17:28 »
Counterpoints, yes that is correct.
 

Offline Coreman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1118 on: 25/08/2008 12:43:37 »
Hi,

How about testing B-Vitamin supplements, in high dose? I just wonder

I started a Vitamin-course today, having read that B-vitamins are essential for mental clarity and good cognitive functions.

This version may sound ridiculous, but who knows?

Has anyone tested "Overdose" amount of B-vitamins?


Great thanks for the garlic formula! It is a good supplement. 


Good luck to all

Coreman.

P.S: I highly recommend testing Cortitrol/Relora, however, I think high cortisol levels are rather an effect than a cause... Nevertheless, it properly eliminates a couple of symptoms

 
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1119 on: 25/08/2008 20:42:32 »

How about testing B-Vitamin supplements, in high dose? I just wonder

I started a Vitamin-course today, having read that B-vitamins are essential for mental clarity and good cognitive functions.

This version may sound ridiculous, but who knows?

Has anyone tested "Overdose" amount of B-vitamins?


I have experimented a lot with high doses of B vitamins, especially when I've had bad CFS episodes, specifically the
Super B-Complex (100 mg dose), up to 5 times a day. It has helped boost my energy and calmed my nervous
system when I've been in a state of depletion, but it hasn't been as helpful for pois episodes. What's helped me more
for pois is adrenal boosting supplements (schizandra, siberian ginseng and pantothenic acid--B5 and DHEA and fish
oil.  (I am also adding the garlic now.)

Pois is secondary for me, CFS is my primary problem, but I think they are interrelated, as both (in my case) have at
least something to do with hormonal deficiencies.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1120 on: 26/08/2008 16:54:17 »
Pois is secondary for me, CFS is my primary problem, but I think they are interrelated, as both (in my case) have at least something to do with hormonal deficiencies.
FWIW, when I described POIS to my previous psychiatrist, his reaction was that I had CFS.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1121 on: 26/08/2008 19:37:19 »
Pois is secondary for me, CFS is my primary problem, but I think they are interrelated, as both (in my case) have at least something to do with hormonal deficiencies.
FWIW, when I described POIS to my previous psychiatrist, his reaction was that I had CFS.

I don't know how your psychiatrist came to his conclusion, and I don't know exactly all the other symptoms beside POIS
that you experience, but I do know that there is a definite difference between chronic fatigue and Chronic Fatigue Syndrome.

The CDC define CFS as a distinct disorder with specific symptoms. The criteria for CFS can be found on the site below.
http://www.umm.edu/patiented/articles/how_chronic_fatigue_syndrome_diagnosed_000007_4.htm

Because CFS is so complex and varies from one person to the next (just like POIS), there can be many different patterns
of symptoms. For example: many of us with CFS have low libido, but not all of us have POIS. Many of us have hormonal
imbalances, but not all.. and some have very clear deficiencies in one hormone and not in another. The one thing that
stands out among most CFS sufferers that I know (and the clinical research confirms this number at 70%),  is that the
majority of the "sudden onset" CFS patients  were healthy until a distinctly flu-like illness struck them down at a definite
time. After that they were never the same.

There is a documentary  by Kim Snyder called I Remember Me about CFS. It's really well done and tells the story of many
both ordinary and famous people who have been living with CFS. It goes into the politics of the widespread denial of the
illness (for DECADES by the medical community) and all the efforts made by empathetic doctors to give it recognition and
get it the research that it deserves.

This sounds all to familiar, doesn't it? It's sad that the patients are the ones who have to take charge to get their own research
and treatment.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1122 on: 26/08/2008 21:25:33 »
Of course people who post here will also happen to have other ailments.  CFS and POIS are distinct, as far as we can tell.  Of all the people who have posted here (at least 100), girlwind is the only one who claims to have CFS, (and also is one of only two females).
 

Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1123 on: 28/08/2008 20:31:41 »
Contrary to my saying that i would not post anymore. I do want to add a few words on beta blockers.

After about six weeks all my symptoms have disappeared. I am now able to do things I, only a couple of months earlier, thought i would never again do. Things that some people take for granted.

Anyway except for maybe my special case I have noticed none of the fatigue symptoms some people talk about when talking about beta blockers.

On the contrary they make me feel a lot fitter then i used to do. I am also a lot hapier these days.

One thing that can be of interest to everyone is that it completely elimintated sex drive. I feel that I do not have to have sex. And that alone is a feeling more energyzing than anything I have ever felled before.

So personally I would recommend them to everyone and have any doctor shot that doesn't want to provide them.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1124 on: 28/08/2008 21:39:47 »
Contrary to my saying that i would not post anymore. I do want to add a few words on beta blockers.

After about six weeks all my symptoms have disappeared. I am now able to do things I, only a couple of months earlier, thought i would never again do. Things that some people take for granted.

Anyway except for maybe my special case I have noticed none of the fatigue symptoms some people talk about when talking about beta blockers.

On the contrary they make me feel a lot fitter then i used to do. I am also a lot hapier these days.

One thing that can be of interest to everyone is that it completely elimintated sex drive. I feel that I do not have to have sex. And that alone is a feeling more energyzing than anything I have ever felled before.

So personally I would recommend them to everyone and have any doctor shot that doesn't want to provide them.

imre1, how long did they take to start working?  are you taking anything else? what dose?  still emconcor?
Thanks so much for sharing this with us. I am so glad you are feeling better.  It provides so much hope.
Please let me know.
Thanks
« Last Edit: 28/08/2008 21:44:46 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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