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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6428852 times)

Offline demografx

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« Reply #13150 on: 12/05/2011 18:40:22 »
B_Jim, yes, it is a stupid joke video. The name "Post Orgasmic EVIL Syndrome" is the first clue.
 

Offline Vandemolen3

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« Reply #13151 on: 12/05/2011 22:49:17 »
After 10 hours I still have a big red spot on my arm. The previous time it went away after 4 hours.
 

Offline Vandemolen3

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« Reply #13152 on: 12/05/2011 22:54:01 »
I was in Asia for a holiday. I also visited a spice garden. There the guide said that if I have a lot of flu and rash in the throat and nose I must try fresh cinnamon. So I bought some and make tea of it. The guide said that there are 2 types of fresh cinnamon being sold. One is cheap and doesn't help.
 

Offline Vincent M

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« Reply #13153 on: 12/05/2011 22:59:44 »
I found this about some herb in a google alert:

"I tried kratom recently and really liked it-not necessarily because it got me high, but because it beautifully counteracted the symptoms of my POIS (post orgasmic illness syndrome), which are: muscle tension, restricted breathing, zero drive/motivation, drained feeling, lack of emotion, social anxiety, brain fog, no concentration, negative thoughts, general feeling of shittiness.
I know the people in Southeast Asia chew Kratom virtually daily--and they seem to be doing alright. Do you think I could do it say, twice a week, without getting addicted or experiencing too much tolerance?"
http://www.bluelight.ru/vb/showthread.php?t=570478

I wonder has anyone heard of kratom? I looked it up and it is illegal in some countries in Asia, but in the U.S. you can order it online completely legally.
« Last Edit: 12/05/2011 23:07:01 by Vincent Marcus »
 

Offline John21

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« Reply #13154 on: 12/05/2011 23:24:46 »
I was in Asia for a holiday. I also visited a spice garden. There the guide said that if I have a lot of flu and rash in the throat and nose I must try fresh cinnamon. So I bought some and make tea of it. The guide said that there are 2 types of fresh cinnamon being sold. One is cheap and doesn't help.

Cassia and ceylon are the two types of cinnamon. They have similar but different tastes. Cassia is the common grocery store type. It has a blood thinning component and therefore it can be dangerous to take too much and likewise it has medicinal benefits in the correct quantity. Ceylon does not have the danger nor the medicinal benefit, as I understand it anyway.
 

Offline Animus

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« Reply #13155 on: 12/05/2011 23:43:22 »
Today I had another injection for the desensitization. Normally the dilution of the semen is 1/10.000. But this time I had 1/1.000. Normally 1/1.000 is reached after 5 months. The doctor said that the chance of chance of complications is the biggest in the first months. But they had a good research and that's why it was possible for me to go to 1/1.000. After 3 years the dilution is 1/20.

That's great Van. did you have a chance to ask Dr.Waldinger the questions we asked about last time? I don't remember exactly what they were, but it was something about comparing the skin P r i c k test for those who have POIS and those who don't... Carlitto asked it also.
« Last Edit: 12/05/2011 23:52:48 by Animus »
 

Offline daveman

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« Reply #13156 on: 13/05/2011 03:11:53 »
rock27 : hmm sorry then. And sorry for your wallet. I thought it was important because the papers don't explain this point.
Vandermolen3 : thank you for the very precious numbers of the dilution you gave. I will keep them !
Aspagnito : welcome if you think you have Pois.

Well, your research is new. The Dr. Waldinger paper names the tissue and explains that it's the likely sensitive point, but your research and description as a lymphatic tissue is VERY enlightening. Something that Dr. Waldinger would have known all about and the reason, I'm sure, for his certainty.
 

Offline Nightingale

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« Reply #13157 on: 13/05/2011 05:13:50 »
I just got diagnosed with vitamin D deficiency after getting a low result on a blood lab.  !  Apparently this can make one very sluggish, and has been connected with depression.  I'm on a 3 month regimin of supplements, with a giant 50,000 unit dose once a week for 3 weeks.  I'll let y'all know
 

Offline Vandemolen3

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« Reply #13158 on: 13/05/2011 08:05:45 »
That's great Van. did you have a chance to ask Dr.Waldinger the questions we asked about last time? I don't remember exactly what they were, but it was something about comparing the skin P r i c k test for those who have POIS and those who don't... Carlitto asked it also.
Like you I didn't remember the question. I just came back from a holiday. The only thing I remembered was that there were a few questions. I didn't had the chance and the time to look which ones. Maybe next time. I have an appointment about 5 weeks. Please help me remember.
 

Offline Vandemolen3

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« Reply #13159 on: 13/05/2011 08:08:25 »
I just got diagnosed with vitamin D deficiency after getting a low result on a blood lab.  !  Apparently this can make one very sluggish, and has been connected with depression.  I'm on a 3 month regimin of supplements, with a giant 50,000 unit dose once a week for 3 weeks.  I'll let y'all know
The best thing is to book a trip to a warm country. Two weeks of sun is better than 1 year of supplements. For me that's one of the reasons I booked 2 vacations in a row. Because my vitamin D level is 16. It should be 85.
 

Offline lauracostis

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« Reply #13160 on: 13/05/2011 08:28:48 »
I just got diagnosed with vitamin D deficiency after getting a low result on a blood lab.  !  Apparently this can make one very sluggish, and has been connected with depression.  I'm on a 3 month regimin of supplements, with a giant 50,000 unit dose once a week for 3 weeks.  I'll let y'all know
The best thing is to book a trip to a warm country. Two weeks of sun is better than 1 year of supplements. For me that's one of the reasons I booked 2 vacations in a row. Because my vitamin D level is 16. It should be 85.
I agree Van, I already tried the prescription 50,000 unit vit D because I had low D levels, but I just felt weird after a couple doses and stopped. Instead I went to Hawaii for 9 days and liked it better than taking pills.
 

Offline MrMoonJr

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« Reply #13161 on: 13/05/2011 13:10:41 »
Hmm. I wonder if other vitamin deficiencies could also be tied in.. I was diagnosed with high Iron which too makes you draggy and tired and cognitively slow.
 

Offline martin88

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« Reply #13162 on: 13/05/2011 13:52:58 »
Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Hi CCconfucius,

Huge though our thread is, the POIS posts only account for a fraction of their overall traffic. TNS has an enormous PageRank of 7/10 - by comparison, the Yahoo directory has a PageRank of 8/10 (10/10 only goes to the likes of Google, Youtube and Facebook). There is so much POIS-related unique content on this forum that this thread will always rank highly for POIS and its accompanying symptoms.

No matter how big the new forum gets, it will always be a lot harder to find due to its relative obscurity (with regards to search engines). Not much we can do about that, but there will always be plenty of new posters coming from TNS.

Plus I don't really think the traffic on this thread will slow down too much, if at all. More and more people are discovering POIS, especially since the recent major news coverage. It was only a short time ago that we passed the 1,000,000 views milestone - we are already past 1,100,000

Since the new forum allows a variety of simultaneous discussions to take place, I find myself logging in and posting things that I would not post on the TNS thread - I don't want to clutter this thread up with too many posts, not an issue at the new forum. I suspect many TNS regulars feel the same way, and traffic will continue to grow at a healthy rate on both forums.

This thread keeps me up to date when I don't have time to go through the other forum - when time is plentiful, I can contribute over there also. A win/win situation for everybody.
Interesting point Hurray with page rank, thanks for that. I tend to agree the traffic here will never decrease for the pages already indexed but we have to make sure our traffic will continue to increase, and this is not done by posting in a hidden forum.
TNS pagerank is 7/10 but the first page of the POIS forum is only 3/10, proof that Google treat it separately than TNS, at least partially. There are other topics at TNS with 0/10 pagerank. Maybe it's the number of links toward the topic that make the difference and perhaps for a small part the number of pages with the same title...
It would be really nice to have a main forum bigger than what we have now at TNS and very well exposed in search engines with a good pagerank.

An other point about search engines, Google does not recommend to have duplicate content within or across sites. I don't know if cross posting can be considered as duplicate content. After years of doing this the amount of duplicate can be huge but I would not think it's a problem if only a small part of each page is duplicate.
From Google guidelines:
http://www.google.com/support/webmasters/bin/answer.py?answer=66359
« Last Edit: 13/05/2011 14:14:04 by martin88 »
 

Offline demografx

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« Reply #13163 on: 13/05/2011 14:56:52 »

I just got diagnosed with vitamin D deficiency after getting a low result on a blood lab.  !  Apparently this can make one very sluggish, and has been connected with depression.  I'm on a 3 month regimin of supplements, with a giant 50,000 unit dose once a week for 3 weeks.  I'll let y'all know


Very interesting!
 

Offline daveman

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« Reply #13164 on: 13/05/2011 17:20:34 »
I just got diagnosed with vitamin D deficiency after getting a low result on a blood lab.  !  Apparently this can make one very sluggish, and has been connected with depression.  I'm on a 3 month regimin of supplements, with a giant 50,000 unit dose once a week for 3 weeks.  I'll let y'all know

Vitamin D does seem to help feel better. The effect that sunshine has is notable (on many of us) I wonder what dosage the sunshine gives, because it seems to be just right without causing side effects.

From what I've ssen over time ( on NSF ) is that it isn't a cure, but helps the symptoms.

That's the problem with doctors unfamiliar with POIS, they see the defficiency as THE problem, and treat it as so. And it's NOT. It's a side effect. I wonder why they don't ask WHY we have the Vit. D defficiency? That's a question that even a lowly engineer would ask.

 

Offline spence23

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« Reply #13165 on: 13/05/2011 20:53:54 »
Hey all, I've stumbled on these forums about 6 months ago but could never bring myself to post.  I've been dealing with some form of POIS for almost 10 years now.  Similar to a lot of other people its been a horrible thing to deal with but somewhat manageable with the ups and downs.

Unfortunately about 3 years ago the "ups" stopped altogether, it went down and has just stayed there.  I only managed to the read 75 or so pages on the forum so i'm not sure if this has happened to anybody else but i'm sure you can all understand that finding a solution to a rare variation of an already rare condition has left me extremely frustrated and tired.

Lately it seems like i have nowhere else to turn, nothing more to try, so at this point i am looking for ideas or suggestions from anybody on something to try.  Could be medication, could be therapy, could be herbal remedies, anything at all.

Any input would be greatly appreciated, thank you.
 

Offline daveman

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« Reply #13166 on: 13/05/2011 21:26:22 »
Hi spence23,

There are several others who have very little to no "up" time, and me myself, sometime feel as though the up time is reducing.

I've had it now, maybe 6 to 8 yrs. and over that time it's gotten progressively worse. But whereas 2 yrs ago, I had definite up's and shorter downs, now it's the opposite.

The main POIS cycle lasts me anout 4 or 5 days, but some residual symptoms extend up to 2 or 3 weeks. I usually never make it that long between O's so I'm almost always with something.

Fortunately for me my cognative symptoms are not strong..... they only last up till day 3 perhpas.

Anyways, I think you've come to the right place. Whereas we still don't have serious enough definitive results to say we can implement someting sure for anyone, we're closing in on several good possibilities.

There'll be lots of things here meantime that I'm sure will help to relieve symptoms. Also visit our other forum too.
 

Offline rock27

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« Reply #13167 on: 13/05/2011 23:10:53 »
Spence,

For me: 15+ years of experience.
I am also in POIS most of the time and it is very frustrating to never have a good condition, while I exercise a lot and don't drink and don't smoke.

Anyway, statistically our situation has never been as good as now!
Dr. Waldinger published 2 studies in January in a scientific journal. He advocates it's an allergy and he has treated 2 POIS patients using desensitisation therapy. One patient has 90% success, and the other 60%, so far.
What can you do? Contact allergy clinics / universities close to you, give them the Waldinger papers and get tested.

We don't know if this allergy applies to all of us. Some others on the forum have had low testosterone levels and were treated for that, so you could also check for that. There's probably some more causes but I can't think of them now.

For a quick solution:
- For allergy: The use of anti-histamines (like used for hay fever) has seen mixed but not too encouraging results on the forum. I notice a difference, but far from a cure. Or try remedies to reduce inflammation.
- Testosterone: There are plenty of herbal remedies for more energy.
« Last Edit: 13/05/2011 23:14:37 by rock27 »
 

Offline spence23

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« Reply #13168 on: 14/05/2011 02:57:36 »
Thank you both for the reply's, its always comforting to hear about other folks getting results from this.

The idea of Testosterone is something that intrigues me, its always something that i couldn't help but felt i was missing over these last 3-4 bad years.  However i'm not very up to date on supplements/remedies, would anybody be able to recommend some Testosterone supplements available in Canada?

Also i know its asking alot but where might i find the papers from Dr. Waldinger? 
 

Offline Animus

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« Reply #13169 on: 14/05/2011 06:46:30 »
Thank you both for the reply's, its always comforting to hear about other folks getting results from this.

The idea of Testosterone is something that intrigues me, its always something that i couldn't help but felt i was missing over these last 3-4 bad years.  However i'm not very up to date on supplements/remedies, would anybody be able to recommend some Testosterone supplements available in Canada?

Also i know its asking alot but where might i find the papers from Dr. Waldinger? 

No problem at all! You should be getting a welcome newsletter from demografx soon. It has a lot of great reference information in it- including on how to get the articles.
« Last Edit: 14/05/2011 06:48:17 by Animus »
 

Offline John21

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« Reply #13170 on: 14/05/2011 10:31:50 »
Hey all, I've stumbled on these forums about 6 months ago but could never bring myself to post.  I've been dealing with some form of POIS for almost 10 years now.  Similar to a lot of other people its been a horrible thing to deal with but somewhat manageable with the ups and downs.

Unfortunately about 3 years ago the "ups" stopped altogether, it went down and has just stayed there.  I only managed to the read 75 or so pages on the forum so i'm not sure if this has happened to anybody else but i'm sure you can all understand that finding a solution to a rare variation of an already rare condition has left me extremely frustrated and tired.

Lately it seems like i have nowhere else to turn, nothing more to try, so at this point i am looking for ideas or suggestions from anybody on something to try.  Could be medication, could be therapy, could be herbal remedies, anything at all.

Any input would be greatly appreciated, thank you.

Spence, here is what has helped me:
1. Avoiding milk products (this was just recently reinforced) and  2. Consuming anti-inflammatory foods like sweet potatos, blueberries, etc.

For herbal supplements Relora has helped, nutmeg (the spice) has helped ( careful: is dangerous to take too much), and fenugreek has had an anti-depressant like effect. 

« Last Edit: 14/05/2011 10:34:19 by John21 »
 

Offline hurray

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« Reply #13171 on: 14/05/2011 12:25:23 »
Interesting point Hurray with page rank, thanks for that. I tend to agree the traffic here will never decrease for the pages already indexed but we have to make sure our traffic will continue to increase, and this is not done by posting in a hidden forum.
TNS pagerank is 7/10 but the first page of the POIS forum is only 3/10, proof that Google treat it separately than TNS, at least partially. There are other topics at TNS with 0/10 pagerank. Maybe it's the number of links toward the topic that make the difference and perhaps for a small part the number of pages with the same title...
It would be really nice to have a main forum bigger than what we have now at TNS and very well exposed in search engines with a good pagerank.

An other point about search engines, Google does not recommend to have duplicate content within or across sites. I don't know if cross posting can be considered as duplicate content. After years of doing this the amount of duplicate can be huge but I would not think it's a problem if only a small part of each page is duplicate.
From Google guidelines:
http://www.google.com/support/webmasters/bin/answer.py?answer=66359

You make a good point about the difference between the TNS pagerank and the POIS thread internal pagerank. Internal pageranks can be misleading, though - the biggest subforum on google webmaster central "Crawling, indexing & ranking" has over 50,000 threads and shows an internal pagerank of 0! However, the content there is still very heavily indexed.

The vast majority of websites have a front page with a pagerank of less than 3 - for a single thread on a subforum, 3 is pretty darned impressive. The number is derived from external links that go directly to this thread and the internal link(s) from our PR7 friends at TNS.

It's entirely possible that we could get the pagerank of the front page of the new site up to 2 or 3 with lots of unique content and some high-quality external links. The internal pages would almost certainly have a lower pagerank though. I would predict that both forums will continue to co-exist for many years to come, and that's no bad thing.

Duplicate content is a real issue with SEO, but it mostly affects sites that steal content wholesale from other websites. If you have 90%+ original content, you are fine - I see no harm in people cross-posting messages between forums where it is appropriate; we have so much unique content on this thread already that the chance of us getting penalised by google for duplicate content is negligible.

While it's hugely important that POIS sufferers can find our websites and contribute, it's even more important that we can have relevant detailed discussions about POIS and share our findings with one another - the new website has really improved our ability to do that, and if it means that somewhere along the line we take a slight SEO hit, so be it. But my own opinion is that the TNS thread will remain very visible to search engines, while the new forum's visibility will grow organically over time.
« Last Edit: 14/05/2011 12:35:51 by hurray »
 

Offline Habibou

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« Reply #13172 on: 14/05/2011 12:40:21 »
Demo, do you have some news from Prof Waldinger? how the research is going and so on? thank you  :)
 

Offline hurray

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« Reply #13173 on: 14/05/2011 12:51:20 »
Some good points hurray. Particularly what you say about both forums being quite active.

One of the MOST important factors to consider in the creation of the new forum, was the potent pull that NSF has.

The desire was to provide a new forum where a focus in activity could be achieved through the ability to separate topics. We didn't want two NSFs, nor to take away from what NSF had. The new forum has a completely diferent style, and initial reactions to this new style and interactions desired by the users tended to stay tied to a NSF way. But now that the forum is up and running, a natural feel and usage style is setting in for each forum, just as you indicate; you go to one for one thing and another for another.

What we want to do, to further facilitate access and a more seamless interactivity is join everything together with a well designed POIS Center.

We are in the process of preparing conditions and implementing an integrated Search Engine Optimization Scheme. Part of this plan in a second stage involves dedicated sponsors which will initially help pay for Google Ad exposure.

Google Ad exposure is very efficient for our application. Whereas it may have a 1% efficiency per click at best for normal sales applications, it has an efficiency closer to 80% per click for POIS sufferers looking for a "home".

So although in this moment it seems like forums here and forums there, and databases in other place and compendiums etc. we are going to unite into one entity. And new resources are and will be attracted, like NORD and other rare disease facilities, where you tend to find community in the understanding of little understood suffering.

I feel that we are JUST getting started, and with OUR group, it's going to be really exciting!



You are going to use Google AdWords? That should be interesting! The more people who find out about our forums, the better. The new forum has certainly flourished thanks to the work that you and Demo have put into it - I admit to being pleasantly surprised by its success so far  :) I have every faith that you can achieve what you are setting out to do - good luck, you have set yourself a big challenge  ;)
 

Offline hurray

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« Reply #13174 on: 14/05/2011 13:02:08 »
i agree with your all your points, but i believed the goal was to eventually make the move to the other website so things can be more organize. I was not sure about how quickly that transition was going to happen that is why i was curious why we are not trying to create visibility as early as possible and using all the tools available.
As long as we are taking it slowly, nsf is definately taking care of the exposure we need, evident by the current flow of new people.
When it is time to get a domain i believe there is a ways we can share the cost one person shouldnt just do it. 

Thanks, CCconfucus! It sounds like Daveman is working to achieve greater visibility for the new site - of course, the biggest thing that will make it visible is the unique content (POIS posts) that we are contributing. This will build up over time and gradually give us google rankings for all kinds of search words - perfect for finding new POIS sufferers who can contribute with their ideas. I'm not sure we will ever entirely move over to the other site, but that doesn't mean that both sites can't be valuable together.
 

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« Reply #13174 on: 14/05/2011 13:02:08 »

 

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