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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6459069 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1325 on: 20/09/2008 19:30:46 »
Juan Pablo, great to see you again! Did you get my email?
« Last Edit: 21/09/2008 01:39:09 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1326 on: 20/09/2008 19:35:03 »
Has anyone noticed any seasonality to their symptoms? ...I had some symptom-free NEs this summer which I attributed to my addition of raw garlic to my diet....I had some minor symptoms recently after orgasm.
John, I never noticed any seasonality differences in my POIS. But looking at your garlic experiences, unless I'm reading incorrectly...it seems to work! Not perfectly lately, but "minor symptoms recently" sounds like it's still working! My Levitra works 75%, but it's still hugely in the right direction. Am I missing something?
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1327 on: 20/09/2008 20:06:12 »
Demografx, yes it could indeed be the garlic that produced the results, but I am just speculating on another possibility.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1328 on: 20/09/2008 20:21:39 »

Has anyone noticed any seasonality to their symptoms? I had not previously made any association with POIS and time of the year, but I am just curious about it now.


Actually, seasonality is an interesting point. When I think about it, I do think that my POIS symptoms are
better during warmer weather. For me that could be attributed to the fact that my overall immunity is
better when it's warmer, as I am less prone to colds/flus/infections then, and consequently I have more
energy "to spare."
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1329 on: 20/09/2008 20:31:48 »

Girlwind i wanted to do this test after your initial post. It will be interesting to do it again after you take the supplement. (I can't find
where it's written 16mcg of iodine.)    I'm not sure if you've done an other test for the thyroid, it should be showing something if the
tincture test is meaningful.


I had to call the company to find out how much iodine is in that product (called Modifilan). It's a concentrate of
a brown seaweed called laminaria japonica--basically Japanese kelp. They told me 6 capsules equals 80-100 mcg.,
so that's 16.66 mcg per capsule. I started with a higher dose of 4 capsules first thing in am on empty stomach,
but now have reduced it to just one capsule per day.

This seaweed concentrate contains a high level of sodium alginate, which is known to remove heavy metals and
radiation from your body. In fact, it was created by Russian scientists to help the victims of the Chernobyl disaster.
I have experienced some detox symptoms, which were a bit uncomfortable at the higher dose, so I'm doing less.
On the other hand, I've seen benefits already for some of the thyroid symptoms that I had been having. I will
retest for the iodine deficiency after a few weeks.
« Last Edit: 21/09/2008 01:45:12 by girlwind »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1330 on: 20/09/2008 21:04:12 »
Demografx, yes it could indeed be the garlic that produced the results, but I am just speculating on another possibility.
Thanks, John, I misunderstood, I thought you were questioning the garlic completely. So seasonality, Vitamin D and garlic might have some interplay. The mystery deepens :)
« Last Edit: 20/09/2008 21:26:24 by demografx »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1331 on: 20/09/2008 23:51:18 »
Girlwind, I have done the iodine test, i bought iodine tincture for 2 dollars. 12h later the iodine patch is still visible but is not far to disappear completely. Strange substance!
Perhaps it is skin thickness related.
A long time ago i tried laminaria , maybe digitata, (not japonica from the supplement you mention), and it was good for palor. Cod is rich in iodine (unsalted and without additives phosphates).I'll try this. It contains 110mcg of iodine for 100g (average value),

Concerning insomnia caused by sugar it can be a serotonin adaptation/change. There are sleep cycles every 1h30 or 2h00. In the evening you can feel these cycles, you're sleepy for a while, yawning, and then if you don't go to sleep it pass, and it's back 2 hours later. If i go to sleep sooner than usual (i do it when i occasionally eat sugar) then i wake up earlier than usual, in the middle of the night. I'm not sure but it can be this break of cycles.It's not only that however, my insomnia has certainly other major causes.
John i'm always better in automn/winter, perhaps more dopamin and i don't know why ! Vitamin D has a positive effect for me. It's more effective when i'm in physical activities (sports)
 

Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1332 on: 21/09/2008 23:04:53 »
feature=related
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1333 on: 22/09/2008 02:54:21 »
DR WALDINGER UPDATE

Email received today from Dr. Marcel Waldinger

Dear Mr [demografx],
 
I am impressed by the number of men that are member of your website. You have tried to contact me and contacted my colleague Dr. Schweitzer. What can I do for you or what are your expectations in contacting me?
 
With kind regards,
 
Dr. M.D. Waldinger

My reply

Dear Dr. Waldinger,
 
Thank you very much for writing back. Our Forum is very impressed with your pioneering work on POIS!
Again, my apologies for not contacting you first, but we could only locate Dr Schweitzer's email address.
 
As a first step, we would be honored and greatly appreciate your visiting, then joining our POIS website (you can of course use a confidential username and we would protect that). By reading what we are writing in terms of POIS experience, we would look for your guidance as to how we might go about achieving effective treatments at a faster pace than we are now.
 
So far, we have had some exciting positive tests with various treatments we have tried. But they are not totally consistent, and we could use your help in understanding what we found.
 
We have also considered PET scans, hormonal/endocrinology studies, etc. Your input as a physician and someone who understands POIS (indeed is the founder of the POIS name) would be invaluable!
 
In short, your expert counsel and advice at The POIS Forum is what we are hoping for.
 
Dr. Waldinger, If there is a way we can also help you to build on your 2002 original study, we of course could offer you a wealth of data and much cooperation.
 
We are constantly getting new visitors who are grateful to find that someone understands and is actually on a path to effective treatment.
 
I very much look forward to your positive response.
 
Best regards,
 
[name]
aka "demografx" - Moderator - POIS Forum
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1334 on: 22/09/2008 04:32:57 »
Nice Demografx. In Dr Waldinger's paper it's interesting that they have a treatment for pois (very low dose of flutamine) which is working to reduce the ejaculation frequency. It has an action on androgen receptors. It doesn't cure pois unfortunately but reduce it. It could be interesting to have a post from these two cases of pois, about their experience with flutamine.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1335 on: 22/09/2008 04:43:49 »
Thanks, Martin! Yes, it would be very nice to get their flutamine posts, I agree.
 

Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1336 on: 22/09/2008 17:33:33 »
Has anyone noticed any seasonality to their symptoms? I had not previously made any association with POIS and time of the year, but I am just curious about it now. After watching the video of Dr Holick I am wondering if there could be a link.

http://www.uvadvantage.org/Home/AudioVideo/tabid/69/Default.aspx

I had some symptom-free NEs this summer which I attributed to my addition of raw garlic to my diet.  Garlic may indeed have been what helped me, but I am realizing that that was the time of the year of maximum vitamin D production by the skin. Reading back in the forum I claimed my success on July 26th, and July was a really nice month where I live, lots of nice weather for me to get out in the sun. August and September have been mostly wet and dark, and therefore less time was spent outdoors. And as I mentioned, I had some minor symptoms recently after orgasm. I am therefore wondering if lower serum vitamin D levels might be a cause.  Although I have never associated POIS with seasonality, I have indeed noticed that my double vision problems always arose in the springtime, a time of the year when the body has been apparently running off the vitamin D “storage tank” all winter. 


Mine seems to be worse in warmer weather.  I dont think it is so much the warm weather but humidity  which tends to wear me down anyway.  I noticed when I was in a mountain desert region I had less effects than the tropical  coastal area I live.  It seems a little less in drier and thinner air.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1337 on: 22/09/2008 21:21:13 »
I don't think weather has much to do with it for me.  I usually get worse in the summer, but that's also when I'm least busy -- perhaps I am focusing on the symptoms more, or I am living more unheathily (drinking more, etc).

One thing I have meant to ask you guys about:
How do you go so long (weeks or a month) without orgasm?

After 3 days, the symptoms of having no orgasm are almost as insufferable as the post-orgasm symptoms.  I have trouble focusing, I feel as though I am on adrenaline, and my body desperately wants the "orgasm fix".  I don't have brain-fog, but I feel like I'm in withdrawal and that I can't relax unless I have an orgasm.  It's much worse after I've had alcohol too.

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1338 on: 22/09/2008 21:47:58 »
Counterpoints, you've just described the cruel double whammy of POIS!

Perhaps you could investigate what martin88 describes above: flutamine - as discussed in Dr Waldinger's study.

Reminder to all: to get a copy of Dr. Waldinger's POIS paper, contact pyropeach with your email address.

My solution was to stop improving low libido that developed recently.

« Last Edit: 22/09/2008 22:55:50 by demografx »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1339 on: 22/09/2008 22:03:27 »
Counterpooints,
Removing anything that would remotely get you excited from before your eyes is the way to be chaste... even something like a TV show with people kissing must be avoided at first. It might seem impossible, but that will change as you adapt. Think of it like quitting smoking, or even coffee, it's not easy but once you have quit for a while it gets easier.
It might be helpful to temporarily quit drinking while you adjust.
« Last Edit: 22/09/2008 22:06:35 by John21 »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1340 on: 22/09/2008 23:07:55 »
Going without orgasm is like going without ice cream. The momentary pleasure is not worth the days of
recuperation that follow. Besides, sex without orgasm can be very enjoyable, once you learn how to ride
the pleasure wave.  It's the "accidental orgasms" in my sleep that I have no control over. But lately, my
symptoms from those haven't been as bad. I'm getting between 50-75% relief from all my adrenal and
thyroid boosting supplements, and only taking one day to recover. Also, having low libido and only one
or two "accidentals" per month helps.
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1341 on: 22/09/2008 23:34:33 »
WELL DONE DEMOGRAFX !!

This man is an incredible amabassdaor not just of the site but of the POIS cause and is most certainly the foundation of this forum !!

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1342 on: 22/09/2008 23:44:40 »
NEIL,

Flattery will get you everywhere!

Thanks a bunch!

 ;D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1343 on: 23/09/2008 01:37:05 »
I'm getting between 50-75% relief from all my adrenal and thyroid boosting supplements, and only taking one day to recover.
girlwind, this is wonderful news. If it's not too personal, can you say on how many occasions you've experienced this relief?
« Last Edit: 23/09/2008 01:38:49 by demografx »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1344 on: 23/09/2008 02:40:01 »
I'm getting between 50-75% relief from all my adrenal and thyroid boosting supplements, and only taking one day to recover.
girlwind, this is wonderful news. If it's not too personal, can you say on how many occasions you've experienced this relief?

Actually the last three times. And I'm just beginning to get on top of the thyroid problem.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1345 on: 23/09/2008 03:43:07 »
I'm getting between 50-75% [POIS] relief from all my adrenal and thyroid boosting supplements, and only taking one day to recover.

girlwind, this is wonderful news. If it's not too personal, can you say on how many occasions you've experienced this relief?

Actually the last three times. And I'm just beginning to get on top of the thyroid problem.

Congratulations, girlwind, this sounds like a breakthrough! And unlikely that it's a placebo effect 3X! Or are you still cautiously optimistic? ;D
« Last Edit: 23/09/2008 03:46:43 by demografx »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1346 on: 23/09/2008 15:31:39 »

Congratulations, girlwind, this sounds like a breakthrough! And unlikely that it's a placebo effect 3X! Or are you still cautiously optimistic? ;D


Of course! It will probably have to be 300X consistently, before I can claim that I have found a definitive
solution.  ;)
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1347 on: 23/09/2008 19:07:56 »
Congratulations but can you detail more the supplements you take ?
I have not really understand : the supplement you talked is the seaweed ?

Hello B_Jim:  Please see my post on page 47, with the message ID 191121, for the list of supplements that I use
to help my adrenal deficiency. And go to my post on page 55, message ID 195193, for the info on the iodine test and
the thyroid boosting seaweed supplement I recently found. (I have been cutting back on it already, as it is causing some
detox symptoms that I am too busy to deal with right now.)
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1348 on: 23/09/2008 22:10:23 »
It will probably have to be 300X consistently, before I can claim that I have found a definitive
solution.  ;)
Sure, girlwind, but then 301-600 will show the same phenomenal result and you'll start questioning the first 300X! ;D
« Last Edit: 23/09/2008 22:58:30 by demografx »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1349 on: 24/09/2008 00:34:42 »
Thanks demografx, girlwind, and John, for your responses.  I'll clench my teeth and try to hold out...

Belated thanks also to post-chronic, for his well-articulated response.

John: It is worth thinking about whether you had made any changes in addition to the garlic...  Note that Guthrie and one other also improved with your diet, however.

« Last Edit: 24/09/2008 00:44:17 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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