The Naked Scientists

The Naked Scientists Forum

Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6447796 times)

Offline Animus

  • Sr. Member
  • ****
  • Posts: 242
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13400 on: 29/05/2011 02:09:55 »
Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...

I can attest to that feeling too.

Well it sure seems like it. But you can't take your sperm count in your head! LOL



I was not taking my sperm count in my head. I was sensing a legitimate biological feeling, which I had grown attuned to and aware of. Perhaps the cause of that feeling is unknown, and "illusory" as demo has suggested. However, it is legitimate, and has a legitimate cause.
 

Offline Animus

  • Sr. Member
  • ****
  • Posts: 242
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13401 on: 29/05/2011 02:44:08 »

Besides, we can't be straddling between two theories, lets just pick one and go with it for as long as it takes us.  


Personally, I don't think that intellectual method is the route to success. That's groupthink. And it shuts down curiosity and possibility. And, pyropeach, excuse me, but that seems like quite a reversal considering your most previous statements.

Whichever theory you decide to investigate is up to you. We are blessed to have many people on the forum, and this gives us the opportunity to do more than a single researcher can. I think we need to really employ the scientific method ourselves if we are to get anywhere. It should be possible however to keep more than one theory in mind if you use your intelligence.
 

Offline daveman

  • Neilep Level Member
  • ******
  • Posts: 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13402 on: 29/05/2011 03:31:37 »

Besides, we can't be straddling between two theories, lets just pick one and go with it for as long as it takes us.  


Personally, I don't think that intellectual method is the route to success. That's groupthink. And it shuts down curiosity and possibility. And, pyropeach, excuse me, but that seems like quite a reversal considering your most previous statements.

Whichever theory you decide to investigate is up to you. We are blessed to have many people on the forum, and this gives us the opportunity to do more than a single researcher can. I think we need to really employ the scientific method ourselves if we are to get anywhere. It should be possible however to keep more than one theory in mind if you use your intelligence.

Up until now its all been groupthink. And even then, yes, it HAS given us the opportunity to do more than a single researcher can..... intellectually.

But do we KNOW that it's not allergy? Do we KNOW that it's sperm recuperation? NO. Because our solutions are all in our heads.

I'd say we're close..... but ARE WE?

Actually the conflicting doubts point to the questions we need to ask. The only way to stop the speculation. Otherwise we just go round and round.

 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13403 on: 29/05/2011 03:43:05 »
This groupthink still beats the old days when I was counting sperm in a dish in the bedroom! ::)
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13404 on: 29/05/2011 03:57:03 »
In all seriousness, as I told Pyropeach privately, I find this very exciting. I think we're on to something. Dave, I'd like to see us continue...but NOT, as you say, to go round in circles!

I'm of course biased about these subjects, having firsthand experience and massive confusion over the preceding issues for 35 years! But I now feel there is some meaning to all this, not just because of my experience, but at least with a half-dozen other POIS cases here - just with testosterone alone!

Outline and chart next?
« Last Edit: 29/05/2011 06:31:43 by demografx »
 

Offline Pharaoh

  • Jr. Member
  • **
  • Posts: 29
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13405 on: 29/05/2011 04:09:49 »
Ladies and Gentlemen,

I would like to introduce myself and provide you with an interesting update on POIS research.

To begin, I have suffered from POIS for over a decade.  I had absolutely no idea that it was strictly somatic and due to my hypospadias condition and failed surgeries to correct it, I always believed it was triggered by depression and shame.  I also believed it was related to pornography addiction as for too long I avoided intimacy with a woman and relied on pornography for stimulation.  When I finally attempted to have sex, I failed on the two and only occasions. 

My extreme fatigue, passivity, and social anxiety lead me to test my testosterone level.  It was significantly below the lower bound.  Consequently, I was first prescribed Clomid.  Furthermore, I saw the top endocrinologist specializing in testosterone at the John's Hopkins Medical Center.  She sent me to the Sexual Behaviors Consultation Unit where I saw Dr. Chris Kraft (the expert commentator on Strange Sex last week).  After a session with a squad of Psychiatrists and Psychologists, they concluded my condition was caused by depression and shame at my hypospadias.  However, after a series of blood tests, my endocrinologist prescribed Testim 1% (5g/day).  She also mentioned her colleague at the Lahey Clinic, the hospital where I have my urethral reconstruction surgeries. 

I saw Dr. Andre Guay at Lahey last winter and he also prescribed Testim after revewing my t-levels.  Interestingly enough, after leaving the appointment, I recall cursing myself in the car for forgetting to mention my post-orgasmic symptoms.  I remember wanting to ask him if it was psychological or due to low testosterone.  After a month on Testim 5g, my levels had actually decreased!  Dr. Guay raised my dosage to 10g.  Also, having waited the full 6 weeks after my last surgery, I could now begin weight training again.  I avoided ejaculation for almost 3 months.   And just as important as avoiding the POIS symptoms, I was attempting to avoid damaging my urethra following the surgery. However, the gym sessions and the Testim not only resulted in rapid muscular development, but also a significant spike in my libido.  It had been 3 months and I was sexually aroused to the point that if any living creature walked into my apartment that night, I would have attacked it.  At that point, I decided that I needed to relieve myself.  I would not use pornography, nor would I even attempt to lengthen the session for enjoyment.  I was just going to ejaculate to reduce my urges and subsequent anxiety.  I did it in the bathroom in front of the mirror; it didn't take more than a couple of minutes.  I recall looking in the mirror at myself, specifically focusing on my eyes.  After ejaculating, the symptoms kicked in immediately.  The sinus pressure, the sniffling, and looking in the mirror, sure enough, it looked like someone took a black marker and colored my lids.  My back began to ache, and my stomach became inflated.  I couldn't visually focus, and I headed to the kitchen to load up on water, zinc, and protein shakes.  On queue, I dropped the bottle of zinc (my motor skills are impaired during POIS).  Lying in bed afterwards due to exhaustion, I felt that this couldn't possibly be due to low testosterone, because my levels were now above the upper bound.  I was convinced at this point that it might be some physical illness.  I decided to google masturbation and sickness on my phone and came across this forum. 
Reading the stories and discussions on here was both shocking and relieving at the same time.  Men with wives and children, women, men who at one point had healthy sex lives, in other words, normal people who didn't suffer from hypospadias.  At that point, I decided to write a letter describing my condition to both endocrinologists and suggesting that they read Dr. Waldinger's paper in the Journal on Sexual Medicine.  I received an email from the JH endo, and she still believed that it was psychological.  Dr. Andre Guay, however, wanted to see me ASAP. 
I saw Dr. Guay a few days ago.  For those who are unaware, he is among the most respected medical researchers in Sexual Medicine.  I began speaking about the letter I sent him, and he didn't recall reading it.  So, I began discussing POIS, at that point, he stood up, told me to stay where I was because he had just read a paper on it.  He left, and returned with Dr. Waldinger's paper.  He said by coincidence he had read it that morning.  He went through it with me and suggested that I try Allegra (60mg) 1 hr. before an orgasm.  He also stated that I would need to go see Dr. Waldinger himself to receive the therapy because it would require a grant to do it in the US.  Finally, he said he would contact Dr. Irwin Goldstein, editor of the Journal of Sexual Medicine (the person responsible for accepting Dr. Waldinger's paper), and ask him his suggestion for treating this illness here in the US.  Dr. Guay promised to get back to me and also to cc my endo at JH to keep her in the loop.

I look forward to his response and promise to share it with all of you.  Also, I'd like to thank you all for your willingness to share your experiences.  I am feeling good at the moment after hitting the gym again after 3 weeks.  So, I am unwilling to test the Allegra, although the libido is definitely high.  I also ordered Mind Body & Spirit (rhodiola rosea) and Energy Reserves based upon recommendations on this forum.  I know that I'll eventually have an O, but I wanted your feedback on Allegra.  Also, having seen Animus on TLC, I concluded that this illness must be "triggered" by something.  Animus seemed to be healthy, and after one night, he began to have POIS.  That is, he was NOT allergic to his sperm until that night.   

Looking forward to your feedback and thanks for your time.
« Last Edit: 29/05/2011 04:18:25 by Pharaoh »
 

Offline pyropeach

  • Sr. Member
  • ****
  • Posts: 101
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13406 on: 29/05/2011 04:10:52 »

This is definitely consistent with the auto-immune theory.  Animus, didn't you mention that you can still ejaculate, only much less than before and only experience very mild POIS symptoms?  

No. This is not true at all. In fact I have said the just opposite recently in the last few pages. Please check my previous comments.

I thought I remembered that being said at some point on the TLC program, but there's just another example of my memory on POIS....



Besides, we can't be straddling between two theories, lets just pick one and go with it for as long as it takes us.  


Personally, I don't think that intellectual method is the route to success. That's groupthink. And it shuts down curiosity and possibility. And, pyropeach, excuse me, but that seems like quite a reversal considering your most previous statements.

Whichever theory you decide to investigate is up to you. We are blessed to have many people on the forum, and this gives us the opportunity to do more than a single researcher can. I think we need to really employ the scientific method ourselves if we are to get anywhere. It should be possible however to keep more than one theory in mind if you use your intelligence.


This specific statement was the last sentence of a paragraph primarily addressed to daveman and to ease his frustration by trying to help end that little debate.  I realize that statement could of been written much better and I'm sorry that it is misleading (some people have brain fog pretty bad here, esp me, so cut me some slack).
 
Let me say now, do not think for one second that I am a proponent of shutting down curiosity and possibility by encouraging groupthink or any other sort of narrow minded intellectual method.  As the creator of the compendium, my aim was, and still is, to consolidate ALL theories and topics discussed in a more convenient form for everyone to review and expand upon.  In fact in my previous statement to B_Daniel, I already contributed to the "regeneration" theory by putting forth speculation that the Cowper's gland is potentially not involved in causing POIS symptoms despite my strong believe in the auto-immune theory.  There is no question we must employ the scientific method to get anywhere, after all, that is what we've been doing since the beginning of the forum, and is second nature to me as a past researcher and a to-be PhD student (the brain fog will probably kill me).  

All I'm trying to say is this: I do believe we should make extended efforts to develop the auto-immune theory because it is the strongest theory out there.  It was developed and carried out by certified experts, valid scientific data was collected, and it is mainly why we FINALLY have the attention of the biomedical scientific community in addition to the media (TLC).  There is no one here on this forum unintelligent enough to believe it is impossible to keep multiple theories afloat, to say or imply otherwise is absurd.

 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13407 on: 29/05/2011 04:45:22 »
Pharaoh, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the file for that TV documentary, "Desperate Measures", which can be downloaded and played. The segment starts at about 12:20..
http://www.fileserve.com/file/cUtJa9R/TITLE01.mp4

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat


* Most recent POIS Research Studies, 2011 *

Send Dr. Waldinger an email, and he will send you the copies of both articles. At a later date, he will send you a POIS questionnaire to fill in. He gets busy, so if you do not receive a timely reply, please contact me or "daveman" and we will expedite.
His email:
prof.dr.waldinger.pois@gmail.com

Prof. dr. Marcel D. Waldinger's website:
http://www.post-orgasmic-illness-syndrome.com/en/index.html


First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 3 studies: for a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus over 1,000,000 page visits. Not bad for a rare malady!



« Last Edit: 30/05/2011 00:55:07 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13408 on: 29/05/2011 04:46:39 »



Pharaoh, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

 

Offline B_Daniel

  • Sr. Member
  • ****
  • Posts: 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13409 on: 29/05/2011 04:51:32 »
Daveman, your frustration stems from a good thing.  It's a sign of all your passion to figure this out!
 

Offline B_Daniel

  • Sr. Member
  • ****
  • Posts: 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13410 on: 29/05/2011 04:54:14 »
Demo - I'm so happy that you've had success with Testosterone replacement therapy!  I've been reading these posts for a month now and have gotten on the garlic, relora, and fenugreek.  But I yearn to make this condition more manageable.  

I'd like to go see some doctors and get as much help as i can.  So for a newbie to these posts like me, can someone please get me started on a good working plan with a doctor.  

Which type of doctor should I see?  I'm imagining it's an endocrinologist.  Specifically, what hormonal tests should I ask the doctor to perform... And then what should I be looking for in the results?  Should I take the tests on a day following an "O" or does that matter?

Also, I know some members have flown to the Netherlands to see Dr. W.  Besides the 52 injections, is there any reason to go see him that would be above and beyond what we could get out of all these posts and seeing a local doctor?  If so, is there anyone stateside that can do the same?  Lastly, I keep hearing about this rush desensitization (~3 sessions).  Are there any doctors anywhere that'll try that for us?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13411 on: 29/05/2011 05:01:24 »

Pyropeach, wow, just as soon as I thought I was getting a small handle on my own POIS mechanisms, you come along and introduce.....Science!

Sigh....back to the drawing board!  :)

Sincerely, many thanks for the enlightenment.


Can't help it Demo...I'm a biomedical engineer.  I just thought I could clarify "regeneration"...


I'm glad you did!


Pyropeach, somewhere along the way, I "lost" my sperm count.


Demo, I'm sorry to hear that you lost your sperm count...could that be related to your T-patches?


As I related in the post where I "posted all my Lab sperm-zeros", too bad I didn't do a Semen Analysis prior to starting TRT! Now we'll never know! But at least the forum encouraged me to do it prior to starting P/T, so I think we gained some knowledge.
« Last Edit: 29/05/2011 06:28:58 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13412 on: 29/05/2011 05:25:36 »

She sent me to the [Johns Hopkins] Sexual Behaviors Consultation Unit where I saw Dr. Chris Kraft (the expert commentator on Strange Sex last week). 


Small world! Dr Kraft works with Dr Kate Thomas, a top sexologist at Johns Hopkins. After I frantically called possible POIS "experts" for years, I was recommended to Kate by a sexual medicine physician I saw on Larry King Live. Kate was my original POIS mentor and is still a friend.

Kate found Dr Waldinger for me in 2002, and recommended me to a Czech sexologist, Dr Petr Weiss, who strongly recommended testosterone to me as a treatment for POIS. I was skeptical, but finally convinced and succeeded with treatment in 2008 - after numerous false starts.
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13413 on: 29/05/2011 06:23:27 »

I received an email from the [Johns Hopkins] endo, and she still believed that [POIS] was psychological.


How disappointing!


I wanted your feedback on Allegra.


I searched all 10,000+ posts here since 2007, and not one other mention of Allegra was found!

« Last Edit: 29/05/2011 06:26:02 by demografx »
 

Offline Animus

  • Sr. Member
  • ****
  • Posts: 242
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13414 on: 29/05/2011 06:48:18 »
I'm saying there's a debate here. And perhaps we don't have enough information to say one way or the other. I understand what your saying Animus. And it could be. But it could also be auto-immune with the same situation.




daveman,
Thank you for making that point. I think it's important. I wonder how one would explain demo's improvement along the allergy theory. How would you explain that?
Also I would like to understand how testosterone could improve an allergic reaction.

Similarly, one can see my solution in terms of the allergy theory- in that semen elimination took away the allergen...?

Testosterone is a feedback hormone. It says, hey, I've got enough sperm! When it's low, like after ejac. the system says... oohh-ohh, I have to produce sperm.

So when "T" is taken, it reduces and even stops sperm production. If we are alergic to sperm, the allergy stops because we don't produce sperm. That's the idea with the use of male contraceptive methods to reduce/stop POIS.

As far as the remaining 20% that Demo has, could be semen allergy(?). Females are allergic to the proteins in semen more than they are allergic to sperm.

So who knows. Both reasons are possible. Allergy or regeneration.

I just want to, for once and for all, stop guessing!!!

Thanks for explaining that to me. I wasn't aware of that. I looked it up and confirmed that on the internet. Extra testosterone lowers sperm production. And that seems to be a good thing for lessening POIS. (Maybe I was mistaken with my earlier speculation that it enhanced demo's semen regeneration.) However, like you said, both reasons are still possible.

So one could say that the "shortcut" in the allergy theory is to stop sperm and semen production. And the longer method is through desensitization.

I have a few more questions, I'd like to ask to supporters of the semen allergy theory...
1. Are there any other known allergies that last for 7 days after exposure and have similar symptoms?
2. Why don't women with semen allergies react in the same way as men with POIS?
Thanks again.

I'm not saying you could answer them, but maybe speculate...
« Last Edit: 29/05/2011 07:32:38 by Animus »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13415 on: 29/05/2011 06:59:38 »

Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...


I can attest to that feeling too.


Well it sure seems like it. But you can't take your sperm count in your head! LOL



I was not taking my sperm count in my head. I was sensing a legitimate biological feeling, which I had grown attuned to and aware of. Perhaps the cause of that feeling is unknown, and "illusory" as demo has suggested. However, it is legitimate, and has a legitimate cause.


Reflecting on my earlier posts, I hedged a little more than I should have about "subjective" and "feeling".

After 35 years of this, it's way more than "illusory".

When I "feel" semen is low (early regeneration), the ejaculate is....LOW VOLUME.

When I "feel" semen is high (late stage regen), the ejaculate is.....HIGH VOLUME.

And no, I didn't use a measuring cup. Just trust me, ok? ;D

The above data have been independently verified by Bernie L. Madoff, Butner Correctional Facility, NC.

« Last Edit: 29/05/2011 07:02:17 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13416 on: 29/05/2011 07:10:03 »

(Maybe I was mistaken with my earlier speculation that [testosterone] enhanced demo's semen regeneration.)


I don't have even the least shred of doubt: testosterone put my regeneration at FULL SPEED AHEAD!
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13417 on: 29/05/2011 07:38:27 »

All I'm trying to say is this: I do believe we should make extended efforts to develop the auto-immune theory because it is the strongest theory out there.  It was developed and carried out by certified experts, valid scientific data was collected, and it is mainly why we FINALLY have the attention of the biomedical scientific community in addition to the media (TLC).  There is no one here on this forum unintelligent enough to believe it is impossible to keep multiple theories afloat, to say or imply otherwise is absurd.


Pyro, I agree with what you say, but I'm not sure about the emphasis or weight of alternate theories.

In some ways, we as the POIS suffering community have a vast storehouse of information, experience, and a keener edge on our condition than any single medical researcher/group.

Medical breakthroughs are carried out scientifically, but often begin intuitively. Sometimes even accidentally (Viagra). And, as you know,  sometimes hypotheses can be ultimately researched and/or presented as self-fulfilling prophecies.

Has auto-immune been seriously pitted against competing theories? I don't think so.

What can be more comprehensive as well as powerfully intuitive than our collective experiences born of REAL PAIN?

Look at your brilliant Compendium.

Your Compendium is vastly more far-reaching in scope than any single research entity could conduct.

All I'm trying to say is this: let's continue with OUR strength, which is to explore EVERY reasonable angle, based on our real experience.

I acknowledge a great debt of gratitude for the worldwide publicity garnered by recent research. But let's not short-sell our profound knowledge, motivation, and enormous flexibility to perhaps be the frontrunners in the definitive cure of POIS.

Our motivation is the purest of all: WE WANT RELIEF.

« Last Edit: 29/05/2011 07:40:37 by demografx »
 

Offline pyropeach

  • Sr. Member
  • ****
  • Posts: 101
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13418 on: 29/05/2011 08:34:20 »

All I'm trying to say is this: I do believe we should make extended efforts to develop the auto-immune theory because it is the strongest theory out there.  It was developed and carried out by certified experts, valid scientific data was collected, and it is mainly why we FINALLY have the attention of the biomedical scientific community in addition to the media (TLC).  There is no one here on this forum unintelligent enough to believe it is impossible to keep multiple theories afloat, to say or imply otherwise is absurd.


Pyro, I agree with what you say, but I'm not sure about the emphasis or weight of alternate theories.

In some ways, we as the POIS suffering community have a vast storehouse of information, experience, and a keener edge on our condition than any single medical researcher/group.

Medical breakthroughs are carried out scientifically, but often begin intuitively. Sometimes even accidentally (Viagra). And, as you know,  sometimes hypotheses can be ultimately researched and/or presented as self-fulfilling prophecies.

Has auto-immune been seriously pitted against competing theories? I don't think so.

What can be more comprehensive as well as powerfully intuitive than our collective experiences born of REAL PAIN?

Look at your brilliant Compendium.

Your Compendium is vastly more far-reaching in scope than any single research entity could conduct.

All I'm trying to say is this: let's continue with OUR strength, which is to explore EVERY reasonable angle, based on our real experience.

I acknowledge a great debt of gratitude for the worldwide publicity garnered by recent research. But let's not short-sell our profound knowledge, motivation, and enormous flexibility to perhaps be the frontrunners in the definitive cure of POIS.

Our motivation is the purest of all: WE WANT RELIEF.



Demo, that was beautiful, you'd make a superb motivational speaker! Don't get me wrong, I'm totally with you on everything you said.  I just want to determine what exactly in semen could potentially cause the allergic reaction because I think that may yield a valuable breakthrough. That's all, nothing more. 

Speaking of the compendium...its looking like semen-regeneration is gaining steam and make its way into the next revision.  I'm sure there's much more that can be added, and suggestions or comments can be added in the other forum under the Suggestions for the Compendium section found in Support and Miscellaneous.  If anyone wishes to add something, suggest something, or whatever to the compendium, please feel free to say so there!
 

Offline B_Daniel

  • Sr. Member
  • ****
  • Posts: 288
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13419 on: 29/05/2011 08:39:14 »
No, I am completely POIS free....

It requires maintenance. The surgeries removed all but the prostate- so it's still possible to create some seminal fluid. What I'm doing is shrinking the prostate as much as possible with medication. I find if I go off these medications, I will have some mild return of POIS symptoms- but much milder and less threatening than I had originally. While on these prostate meds I am completely symptom free, and have dry ejaculations.

Animus (great job on the show btw!), or anybody else -
It seems clear that the prostate causes at least some of your POIS issues, albeit maybe only 10-20%.  Would you not imagine that Flomax or Avodart be helpful for some others of us to take?  If the goal is reducing seminal fluid, these medications do that, correct?  

EDIT: I'm seeing now that a few of you tried Silodosin back in February and March.  I'm going back and reading up on that now, which should answer my question.  Ya'll are always 2 steps ahead of me!  ;)
« Last Edit: 29/05/2011 15:45:55 by B_Daniel »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13420 on: 29/05/2011 16:44:22 »

[Let's] determine what exactly in semen could potentially cause the allergic reaction because I think that may yield a valuable breakthrough.


I'm with you on that 100%, so I hope I didn't go overboard on worrying about competing theories. :)


Speaking of the compendium...its looking like semen-regeneration is gaining steam and make its way into the next revision.  I'm sure there's much more that can be added, and suggestions or comments can be added in the other forum under the Suggestions for the Compendium section found in Support and Miscellaneous.  If anyone wishes to add something, suggest something, or whatever to the compendium, please feel free to say so there!


Wonderful news, Pyro!!

Thought I'd post the Compendium Suggestions link:
http://poiscenter.com/forums/index.php?topic=78.0

« Last Edit: 29/05/2011 16:52:39 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
 

Offline daveman

  • Neilep Level Member
  • ******
  • Posts: 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13422 on: 29/05/2011 17:10:12 »
In all seriousness, as I told Pyropeach privately, I find this very exciting. I think we're on to something. Dave, I'd like to see us continue...but NOT, as you say, to go round in circles!

I'm of course biased about these subjects, having firsthand experience and massive confusion over the preceding issues for 35 years! But I now feel there is some meaning to all this, not just because of my experience, but at least with a half-dozen other POIS cases here - just with testosterone alone!

Outline and chart next?

I just want to clarify one thing. For me, it's not an issue if the result ends up NOT being auto-immune. I don't care.

I believe one thing others believe other things.

I just want to stop going round and round. I want to stop believing and start knowing!

That's all. No easy task I know!

 

Offline daveman

  • Neilep Level Member
  • ******
  • Posts: 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13423 on: 29/05/2011 17:32:32 »

Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...


I can attest to that feeling too.


Well it sure seems like it. But you can't take your sperm count in your head! LOL



I was not taking my sperm count in my head. I was sensing a legitimate biological feeling, which I had grown attuned to and aware of. Perhaps the cause of that feeling is unknown, and "illusory" as demo has suggested. However, it is legitimate, and has a legitimate cause.


Reflecting on my earlier posts, I hedged a little more than I should have about "subjective" and "feeling".

After 35 years of this, it's way more than "illusory".

When I "feel" semen is low (early regeneration), the ejaculate is....LOW VOLUME.

When I "feel" semen is high (late stage regen), the ejaculate is.....HIGH VOLUME.

And no, I didn't use a measuring cup. Just trust me, ok? ;D

The above data have been independently verified by Bernie L. Madoff, Butner Correctional Facility, NC.



No way!! Bernie (the snake) Madoff. Hey this guy knows his "stuff". if you know what I mean!
 

Offline daveman

  • Neilep Level Member
  • ******
  • Posts: 1002
    • View Profile
Post Orgasmic Illness Syndrome (POIS)
« Reply #13424 on: 29/05/2011 17:51:13 »
There are many things we can look into that can clarify the doubt and turn belief into knowledge, without committing to one side or the other.

From there the dice will fall as they may.
 

The Naked Scientists Forum

Post Orgasmic Illness Syndrome (POIS)
« Reply #13424 on: 29/05/2011 17:51:13 »

 

SMF 2.0.10 | SMF © 2015, Simple Machines
SMFAds for Free Forums