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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6459459 times)

Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13500 on: 02/06/2011 19:06:02 »

I'd like to pledge $1,000 towards research.


Thank you so much, Limejuice!!
 

Offline Limejuice

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« Reply #13501 on: 02/06/2011 21:36:11 »
Thank you Demo and community!
 

Offline Habibou

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« Reply #13502 on: 03/06/2011 00:03:38 »
I would like to share the experience of a french POIS guy who doesn't go to the forum but he got 95% cured with : Goji (or Wolfberry) from Tibet.  One spoon every morning.

It is the most nutritive fruit known on the earth : http://en.wikipedia.org/wiki/Wolfberry

    11 essential and 22 trace dietary minerals
    18 amino acids
    6 essential vitamins
    8 polysaccharides and 6 monosaccharides
    5 unsaturated fatty acids, including the essential fatty acids, linoleic acid and alpha-linolenic acid
    beta-sitosterol and other phytosterols
    5 carotenoids, including beta-carotene and zeaxanthin (below), lutein, lycopene and cryptoxanthin, a xanthophyll
    numerous phenolic pigments (phenols) associated with antioxidant properties

Select examples given below are for 100 grams of dried berries.

    Calcium. Wolfberries contain 112 mg per 100 gram serving, providing about 8-10% of the Dietary Reference Intake (DRI).
    Potassium. Wolfberries contain 1,132 mg per 100 grams dried fruit, giving about 24% of the DRI.
    Iron. Wolfberries have 9 mg iron per 100 grams (100% DRI).
    Zinc. 2 mg per 100 grams dried fruit (18% DRI).
    Selenium. 100 grams of dried wolfberries contain 50 micrograms (91% DRI)
    Riboflavin (vitamin B2). At 1.3 mg, 100 grams of dried wolfberries provide 100% of DRI.
    Vitamin C. Vitamin C content in dried wolfberries has a wide range (from different sources[citation needed]) from 29 mg per 100 grams to as high as 148 mg per 100 grams (respectively, 32% and 163% DRI).

 
It has many components of semen one, so it would be for the "semen regeneration theory".
Did you hear/try it?
 

Offline daveman

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« Reply #13503 on: 03/06/2011 00:44:33 »
The NORD site attracts a completely different yet sympathetic audience than we do. Many people go there just because they want to do someting good. Refreshing in today's world! The POIS fund (or whatever it will be called) at NORD will be visible to the (large) NORD audience. Experience has shown that some funds grow there from sources that nobody even knows.

So just another possiblity.

 

Offline demografx

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« Reply #13504 on: 03/06/2011 06:51:30 »

I would like to share the experience of a french POIS guy who doesn't go to the forum but he got 95% cured with : Goji (or Wolfberry) from Tibet.  One spoon every morning.


Habibou, thank you!

It would be helpful to know more about this man's specific type of POIS story and more about his history.
 

Offline demografx

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« Reply #13505 on: 03/06/2011 06:54:17 »
B_Jim, thank you again for discovering the Nature.com article!
 

Offline Habibou

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« Reply #13506 on: 03/06/2011 11:36:16 »

I would like to share the experience of a french POIS guy who doesn't go to the forum but he got 95% cured with : Goji (or Wolfberry) from Tibet.  One spoon every morning.


Habibou, thank you!

It would be helpful to know more about this man's specific type of POIS story and more about his history.
I agree with you ! He is never online but when he will be I will ask more about what was his POIS.
I remembered he said he had mainly cognitive symptoms and even in NON-POIS period, he didn't feel 100% ok with his brain function. Now, he told me he was very energetic, that his POIS was so light and lasted some hours so he gets O the evening and already recovered in the morning. I will tell you more when I get news !
 

Offline daveman

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« Reply #13507 on: 03/06/2011 15:47:10 »
Just a note for any members who go to the new forum to register for the first time, you'll find that the registration needs approval. This is to protect against SPAMMERS, who only want to use our space to publicize their products.

In response to the request to join, I send an EMail that must be returned with your username, city and country. Once received you will be approved.

Sorry for the inconvenience. SPAMMERs are the POIS of internet!

 

Offline demografx

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« Reply #13508 on: 03/06/2011 15:51:12 »

SPAMMERs are the POIS of internet!


Yes, and their symptoms are all cognitive!
 

Offline demografx

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« Reply #13509 on: 03/06/2011 16:00:03 »

The NORD site attracts a completely different yet sympathetic audience than we do. Many people go there just because they want to do something good. Refreshing in today's world! The POIS fund at NORD will be visible to the (large) NORD audience. Experience has shown that some funds grow there from sources that nobody even knows!
http://www.rarediseases.org



Please follow our discussion, "Funding a POIS research grant"
http://POIScenter.com/forums/index.php?topic=125.0
« Last Edit: 03/06/2011 16:16:46 by demografx »
 

Offline daveman

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« Reply #13510 on: 03/06/2011 18:43:11 »
Everybody, yet again Stefanie Putkowski from NORD comes through!!
Here is what she has to say about a research fund for POIS at NORD!


Congratualtions Everybody,
The fund is good to go -- it can be now be done online
POIS has formally been added to the list of research funds.  And someone has already made an anonymous donation!

FYI, go to: Research Donations

In the spot for "Research Fund," hit "Please Select a Research Fund."  It's an alphabetical drop down -- go to P and find your fund.



Sincerely,
 
Stefanie Putkowski, RN, BSN
Clinical Information Specialist
Research Program Administrator
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203.744.0100
Fax: 203.798.2291
email: rn@rarediseases.org
http://www.rarediseases.org
 
Join our online community
http://nord.clinicahealth.com/
 
NORD Subscription Service
http://www.rarediseases.org/programs/subscriptions
« Last Edit: 05/06/2011 02:25:44 by demografx »
 

Offline Vandemolen3

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« Reply #13511 on: 03/06/2011 23:46:36 »
Great! Maybe NORD can make it possible to donate money online from another country then the US. Now you can only choose from US States.
 

Offline daveman

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« Reply #13512 on: 04/06/2011 01:01:11 »
Great! Maybe NORD can make it possible to donate money online from another country then the US. Now you can only choose from US States.

If I remember well, Stefanie said that if there are any particular cases (including absolute confidentiality, meaning not wanting to enter any data), that it could be done through her. So this could include international cases.

The main reason for the information on the form is for tax deduction purposes, which I imagine are only valid in the US.

I would guess that if you put whatever in the fields that don't correspond to your country, that they will go through anyways. But I'll check with Stefanie.

It's even possible there are international tax deduction options, I'll check that too, in which case you'd also have to go through Stephanie.

« Last Edit: 04/06/2011 01:17:47 by daveman »
 

Offline CertainlyPOIS

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« Reply #13513 on: 04/06/2011 03:21:43 »
Speaking purely for myself, I would like most to see:

1) A repeat of Waldingers test but including non-POIS volunteers
- Ideally Dr.W could test 10+ non-poisers with the same procedure as his original 33 man one, i think this is unlikely though(?), will he want to disprove/prove his own study?
- A better idea could be to get a U.S based doctor who has already had a positive skinprick test done on a forum member. like Dr.Bewtra for example.
Get 10 Non-POIS and 10 POIS
or even better 20 Non-POIS and 20 POIS
They dont have to be equal as its the "percentage that test positive" thats important,
..But I feel if we only get non-POIS to compare with Waldingers original 33 man test then I can see us being in the same old position- doubting the results, wondering whether they are correct, comparing the different methods (the method will be different in some way), ratios etc..
Lets just do a new fair test comparing both NonPOIS and POIS under the SAME conditions.
Hopefully Dr Waldinger wont see this as a form of descent or backstabbing, its purely science!

Surely this wouldnt cost anything near $33k, its a couple of hours work for one/two allergist plus a bit of money for volunteers.
When advertising for non-POIS volunteers it should read recently a rare illness has been been linked to an allergy of a natural protein found in the body, we need volunteers that dont have this rare illness to prove they test negative, i.e male volunteers are needed for an allergy test
dont tell them about semen! until they are face to face with the doctor!

Maybe NORD can organise this test?

2)A couple of POISers to test out Monoclonal Antibody therapy
I know its new on the forum, but it does say its meant to "stop allergic attack dead in the tracks", sounds exciting.


If NORD cant do that maybe we can write a proposal and send to DRs that have done research on semen allergy, other research allergist, and organization like aaai and apor(do patient oriented research).
But we still have to find way to foot bill.
what do you guys think something to purchase.
 

Offline Hoping

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« Reply #13514 on: 04/06/2011 03:23:49 »

Anyways...I can surely attest to experiencing no symptoms as soon as I feel like my sperm supply has fully regenerated...


I can attest to that feeling too.


Well it sure seems like it. But you can't take your sperm count in your head! LOL



I was not taking my sperm count in my head. I was sensing a legitimate biological feeling, which I had grown attuned to and aware of. Perhaps the cause of that feeling is unknown, and "illusory" as demo has suggested. However, it is legitimate, and has a legitimate cause.


Reflecting on my earlier posts, I hedged a little more than I should have about "subjective" and "feeling".

After 35 years of this, it's way more than "illusory".

When I "feel" semen is low (early regeneration), the ejaculate is....LOW VOLUME.

When I "feel" semen is high (late stage regen), the ejaculate is.....HIGH VOLUME.

And no, I didn't use a measuring cup. Just trust me, ok? ;D



The above data have been independently verified by Bernie L. Madoff, Butner Correctional Facility, NC.


YES, exactly! Me too!  ;D
I could even add in that POIS symptom levels corresponded too.

When I "feel" semen is low (early regeneration), the ejaculate is....LOW VOLUME- and the POIS symptoms are at a High.

When I "feel" semen is high (late stage regen), the ejaculate is.....HIGH VOLUME- and the POIS symptoms are Low.

I totally agree with this!!
 

Offline martin88

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« Reply #13515 on: 04/06/2011 14:12:56 »
Since I'm on this forum, with all the attempts to cure my POIS, I felt my sexual frequency had been increased and I became more tired than I was, or I'm simply getting older! Anyway I don't regret at all that I tried to beat this thing.
I tried several things in the last 6 months including quinine from Schwheppes last january (I stopped because of sugar) and some supplements I forgot the name. Something in this changed the way I react to orgasm. I now tend to have a day 4 aggravation instead of day 2. An other mystery...

Recently a bad life event increased my depression significantly so I decided to take St John's Worth. I'm taking it since the beginning of last april (since 2 months approximately).
I started with 3 x 300mg/day and found it decreased my libido. It really helps me to stay sexually abstinent. After 3 weeks of abstinence I almost forced myself to have sex. However after orgasm I felt the opposite, my sex drive was increased and my depression reduced.
It seems a part of POIS (no desire to move) is shorter than before but I still have anxiety, low endurance etc...
SJW did exactly what John said, better sleep but feeling groggy during the day after a while so I had to cut it to 2 x 300mg/day to reduce fatigue so it's now bearable. I won't stop taking it because I feel a part of me is constantly improving, even after 2 months. I think with time SJW will reduce my overall sexual frequency and fatigue as well. There is a good site about SJW here: http://www.sjwinfo.org/
« Last Edit: 04/06/2011 22:41:34 by martin88 »
 

Offline daveman

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« Reply #13516 on: 04/06/2011 15:04:18 »
Speaking purely for myself, I would like most to see:

1) A repeat of Waldingers test but including non-POIS volunteers
- Ideally Dr.W could test 10+ non-poisers with the same procedure as his original 33 man one, i think this is unlikely though(?), will he want to disprove/prove his own study?
- A better idea could be to get a U.S based doctor who has already had a positive skinprick test done on a forum member. like Dr.Bewtra for example.
Get 10 Non-POIS and 10 POIS
or even better 20 Non-POIS and 20 POIS
They dont have to be equal as its the "percentage that test positive" thats important,
..But I feel if we only get non-POIS to compare with Waldingers original 33 man test then I can see us being in the same old position- doubting the results, wondering whether they are correct, comparing the different methods (the method will be different in some way), ratios etc..
Lets just do a new fair test comparing both NonPOIS and POIS under the SAME conditions.
Hopefully Dr Waldinger wont see this as a form of descent or backstabbing, its purely science!

Surely this wouldnt cost anything near $33k, its a couple of hours work for one/two allergist plus a bit of money for volunteers.
When advertising for non-POIS volunteers it should read recently a rare illness has been been linked to an allergy of a natural protein found in the body, we need volunteers that dont have this rare illness to prove they test negative, i.e male volunteers are needed for an allergy test
dont tell them about semen! until they are face to face with the doctor!

Maybe NORD can organise this test?

2)A couple of POISers to test out Monoclonal Antibody therapy
I know its new on the forum, but it does say its meant to "stop allergic attack dead in the tracks", sounds exciting.


If NORD cant do that maybe we can write a proposal and send to DRs that have done research on semen allergy, other research allergist, and organization like aaai and apor(do patient oriented research).
But we still have to find way to foot bill.
what do you guys think something to purchase.

This NORD program I think will do much more than reconfirm (or not) Dr. Waldinger's paper. We NEED more than that. We have to insist in more than that.

Dr. Betra is doing great work, but there are many doing such work, and NORD is in touch with them. This RFP should attract an excellent field of potential researchers.

My hope is that this will reach a molecular level, where the rubber meets the road. If we don't come out of this with someting VERY positive and certain, I will be very disappointed.

I'm sure at this point, with all that we know about POIS that we can't even imagine the level of investigation that is going to come out of this.

Don't get me wrong, in the field of medical research $33,500 is peanuts! That's less than the salary of a good engineer for a year, and some of these investigations often go for more than that. But, the time is right for this. This is a seed grant, the idea being that it's money dedicated to demonstrating a genuine viable direction. THAT is what the REAL researchers need to see. That's what we need to see.

And given that the time is right, it may just go beyond demonstrating a genuine viable direction. The genuine viable direction could point to an easily implementable safe procedure.

Yes, we have to put all our desires on a list, but let's not limit our possibilities. Let's not limit ourselves.

THIS WILL BE THE NEXT BIG QUANTUM LEAP. So let's make it a good one
« Last Edit: 04/06/2011 15:08:16 by daveman »
 

Offline daveman

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« Reply #13517 on: 04/06/2011 15:18:14 »
Just a note on the "online donation function" at NORD.

NORD had normally accepted donations for grants manually. The "online facility" is new. AND, Demo had a couple of small problems when he donated. But the IT department reacted VERY quickly to fix the problems (related to iPhone). There shouldn't be anymore. But we wanted to mention it just in case. If there is any problem whatsoever, drop a PM to Demo or I and we'll get immediate attention.

Also in answer to other concerns about international donations etc, I copy this note from Sefanie and NORD. She said:

I'll ask on Monday about international donations to NORD.  We receive them from all over the world, but I am not sure if they can come through the website because the money might need to be converted first to US dollars. I truly don't know if that's the case, or how that works -- but will find out and get right back to you.

Since we do receive funds from all over the world,  this is not an uncommon occurrence at NORD.

FYI, if the money needs to be converted to US dollars first, then I believe that the most economical and the easiest way to do this -- and probably the most anonymous -- is to purchase a postal money order through the local post office.  There will be a modest fee (as an example, it's around $4.00 in the US to send a postal money order from here to overseas).
.
Regarding the absolute anonymity, if someone wants their donations to be totally anonymous (meaning the ID is not even known to NORD), I think the postal money order route, mailed via postal mail, is the best and only choice. It's not a bad choice, by the way. It's a very good, safe choice--for anyone, in any circumstance.

Our website definitely won't accept charge card donations without all the required information. That is a given everywhere and not unique to NORD.  So, one can't do an online donation totally anonymously (anonymous to the point that NORD doesn't have the contact information of the person).  An anonymous postal money order sent via snail mail is the answer in that case.

What I said, or tried to say previously, about contacting me re: anonymity -- is related to not receiving an acknowledgement (a thank you) from NORD if a donation is made through the web site.

Thus, if someone feels that they would like to donate via the website, but doesn't want to be receiving an acknowledgment of the donation for the sake of anonymity at their end, they can feel free to contact me directly and I'll make sure nothing is ever sent.They don't need to tell me the amount of the donation, as this is kept confidential also (I have no need to know how much an individual donates).

We send these acknowledgments so that people (within the US) can use it for tax records, but we also send them simply as a "thank you" to everyone.

By the way, I learned today that we receive several anonymous donations yearly for various funds and for unknown reasons.  This is not a new concept for us.

 

Offline Habibou

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« Reply #13518 on: 05/06/2011 00:42:56 »
This is an excellent thing to start now we have more specific researches to do !

I agree with Vandemolen, we should gather all POIS suffers to give an equal part since we are over 200 getting this condition. 100$ each would already be a lot, and for the others who are willing to give more, it would be possible !

Of course, we can't push anybody to give money for it... but according to me, it is intelligent money investment. Indeed, we try many things , sometimes more or less expensive, with a probability to cure of 1/N (N very high sometimes). With that, we would be sure, the money would build up a serious investigation for a real finding and a possible cure (more or less easy, depending on the case found). 100$ is the price of 30 minutes with a specialist (or even a lot more) who will tell us "sorry i can't do anything for you". Then those 100$ would be wasted !  Sorry if i am messy   ;D
 

Offline demografx

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« Reply #13519 on: 05/06/2011 02:16:31 »

NORD-POIS WILL BE THE NEXT BIG QUANTUM LEAP. So let's make it a good GREAT one!
http://POIScenter.com/forums/index.php?topic=125.0



mod-mod-edit :)
« Last Edit: 05/06/2011 04:27:20 by demografx »
 

Offline demografx

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« Reply #13520 on: 05/06/2011 03:35:58 »
Research Fund Total: $300
 

Offline demografx

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« Reply #13521 on: 05/06/2011 04:40:05 »


What I said, or tried to say previously, about contacting me re: anonymity -- is related to not receiving an acknowledgement (a thank you) from NORD if a donation is made through the web site.




I received an email from Stefanie about confidentiality regarding NORD's acknowledgement to me about my website donation, and I said that I only wanted acknowledgement by email, not snail mail. (If I said NO acknowledgement that would have been respected as well).

She double-checked with me to make sure that she understood exactly what I wanted before proceeding.

VERY reassuring!
« Last Edit: 05/06/2011 04:42:21 by demografx »
 

Offline Animus

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« Reply #13522 on: 05/06/2011 05:54:06 »
B_Daniel's pledge encouraged me to pledge as well, I will call in a modest amount to NORD for POIS-research, using my credit card.

I encourage everyone to join me and do the same for this wonderful new road we're on to cure POIS!!!

I think it's a good idea to put money together- that shows people we're serious about this. Even if it's a small donation.
« Last Edit: 05/06/2011 06:18:24 by Animus »
 

Offline Animus

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« Reply #13523 on: 05/06/2011 06:25:01 »
I just made a $100 donation on the NORD website to the POIS fund! Just think, if each of us makes a $100 donation we would have $30,000! 
I don't know how this works, or what. But if we don't reach our goal what happens to the money?
« Last Edit: 05/06/2011 07:03:14 by Animus »
 

Offline B_Daniel

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« Reply #13524 on: 05/06/2011 08:53:21 »
Animus - good question - this is detailed on the NORD website. 

"If the total of donated funds for research on a specific disease is less than $1,000 after two years without significant donations, the fund will be transferred to general research and related activities.
If the total of donated funds for research on a specific disease is more than $1,000 but less than $5,000 after four years, the money will be transferred to research on related diseases."

The website goes on like this, defining different hurdle amounts and specifying the length of time which the donations are valid before they are contributed to another activity.  Also, exceptions can be made if NORD sees continued donor activity for a specific disease, indicating that there is a determined effort to reach the minimum $33,500 goal.

I can't say how long it will take us, but I am very confident we will reach the $33.5K.  I just hope we meet it sooner than later!  My donation is forthcoming.
 

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« Reply #13524 on: 05/06/2011 08:53:21 »

 

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