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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6449436 times)

Offline demografx

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« Reply #13775 on: 28/06/2011 23:52:06 »
Hi everyone,

I'm really just curious. Given than Waldinger has effectively found a 'Treatment' for POIS, i.e. Allergy Injections.
Why are we not all rushing out to our local Dr's and Allergists shoving the Waldinger Papers in their faces and saying 'now stick me with my Semen!'

Is there something I am missing here? The papers have certainly given me the courage now to talk to my GP and ask for a referal to an allergist..


P.S - I myself are still trying all sorts of Alternative..treatments, Apple Cider Vinegar, Garlic Pills, Ginko Biloba...Nothing seems to be giving me the 'relief' I'm looking for though..



His theory is only one, and not yet firmly proven. The purpose of the NORD research we are undertaking is aimed at exploring ALL possibilities that we have discussed here since 2007.
 

Offline Counterpoints

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« Reply #13776 on: 29/06/2011 04:14:23 »
Quite interesting reading:

http://yourbrainonporn.com/rebooting

http://yourbrainonporn.com/rebooting-accounts

http://yourbrainonporn.com/what-are-the-symptoms-of-excessive-porn-use

etc. (try to search the site)

Can you see the similarities in symptoms? This is not about porn, it is more likely about attitude, addiction and rewarding behaviour.


YES!!!!!

http://yourbrainonporn.com/what-are-the-symptoms-of-excessive-porn-use

Many of these posts sound EXACTLY like POIS.  I have always thought there was an 'addictive' quality to my POIS (symptoms feeling somewhat like withdrawal, needing to achieve a high, subsequent orgasms helping alleviate symptoms, etc).  I think somehow porn use may have changed the chemistry of my brain, and how I respond to orgasm. :(.  Hopefully this can be reversed! 
 

Offline silverandcol

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« Reply #13777 on: 29/06/2011 04:47:25 »
Anyone ever feel some kind of burning and semi-tingly sensation somewhere on their head as they are healing?  I am on like my 9th? day of celibacy and occasionally I get this weird burning sensation right at the top of my head. Just wondering if you guys get it too.
 

Offline Omen 30

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« Reply #13778 on: 29/06/2011 12:17:58 »
today is my 3 rd day and i dont know wats happening...i was standing on the road for a cab and none of them stopped...maybe i didnt try at all...otherwise i always find 1 very easily...i think this is brain fog...when there is fog on the road u cant see anything while driving..similarly there is fog in the brain so the brain doesnt know what to do when.....
 

Offline jivetalk

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« Reply #13779 on: 29/06/2011 14:40:21 »
Quite interesting reading:

http://yourbrainonporn.com/rebooting

http://yourbrainonporn.com/rebooting-accounts

http://yourbrainonporn.com/what-are-the-symptoms-of-excessive-porn-use

etc. (try to search the site)

Can you see the similarities in symptoms? This is not about porn, it is more likely about attitude, addiction and rewarding behaviour.


YES!!!!!

http://yourbrainonporn.com/what-are-the-symptoms-of-excessive-porn-use

Many of these posts sound EXACTLY like POIS.  I have always thought there was an 'addictive' quality to my POIS (symptoms feeling somewhat like withdrawal, needing to achieve a high, subsequent orgasms helping alleviate symptoms, etc).  I think somehow porn use may have changed the chemistry of my brain, and how I respond to orgasm. :(.  Hopefully this can be reversed! 


What if most if not all of these cases are in fact POIS cases. What if someone has gotten to them that watching PORN has been shamefull and has somehow caused these 'abnormal effects' when in fact it is just POIS? I mean, really - how many people do you know that does not watch PORN? and what about heaps of those guys that watch lots of porn or have heaps of sex without any of these symptoms?

I don't know about any of you guys, but I certainly have abstained for MONTHS on end, then BANG back to POIS once I become sexually active again. Reminds of the that bloke in the Research Journal and him being relieved of POIS symptoms for 9 months whilst his wife was pregnant..

I feel a lot of that material on the website is VERY relevant, but not very well researched or scientifically backed - rather just opinions and experiences. I'm not suggesting that's bad....But just maybe, a lot of people there might be very interested/relieved to hear about POIS.
« Last Edit: 29/06/2011 14:53:23 by jivetalk »
 

Offline jivetalk

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« Reply #13780 on: 29/06/2011 14:55:58 »
Hi everyone,

I'm really just curious. Given than Waldinger has effectively found a 'Treatment' for POIS, i.e. Allergy Injections.
Why are we not all rushing out to our local Dr's and Allergists shoving the Waldinger Papers in their faces and saying 'now stick me with my Semen!'

Is there something I am missing here? The papers have certainly given me the courage now to talk to my GP and ask for a referal to an allergist..


P.S - I myself are still trying all sorts of Alternative..treatments, Apple Cider Vinegar, Garlic Pills, Ginko Biloba...Nothing seems to be giving me the 'relief' I'm looking for though..



His theory is only one, and not yet firmly proven. The purpose of the NORD research we are undertaking is aimed at exploring ALL possibilities that we have discussed here since 2007.

Hi Demo. Agree, but correct me if I am wrong but to me his seems the most promising at this point in time - With definitely two successful treated cases in his paper - and hopefully a lot more in the second round of trials..

I'm certainly going to try this route if this is at all possible, I was just wondering why (More) others have not (that is others that aren't already trying experimenting with different theories like yourself)?
« Last Edit: 29/06/2011 15:13:42 by jivetalk »
 

Offline jivetalk

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« Reply #13781 on: 29/06/2011 14:58:59 »
Hi everyone,

I'm really just curious. Given than Waldinger has effectively found a 'Treatment' for POIS, i.e. Allergy Injections.
Why are we not all rushing out to our local Dr's and Allergists shoving the Waldinger Papers in their faces and saying 'now stick me with my Semen!'



I tried that, but none of them will do that:
autologus ijections are very rare and its just the testing phase, i think in a few years it will be possible

Really? Did they read the Waldinger papers or even refer you to someone that might be able to assist?  Also what Country are you in? I'm based in Australia so I'm hoping there may be someone here that may give it a try for me.
 

Offline demografx

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« Reply #13782 on: 29/06/2011 15:20:32 »


Hi everyone,

I'm really just curious. Given than Waldinger has effectively found a 'Treatment' for POIS, i.e. Allergy Injections.
Why are we not all rushing out to our local Dr's and Allergists shoving the Waldinger Papers in their faces and saying 'now stick me with my Semen!'

Is there something I am missing here? The papers have certainly given me the courage now to talk to my GP and ask for a referal to an allergist..


P.S - I myself are still trying all sorts of Alternative..treatments, Apple Cider Vinegar, Garlic Pills, Ginko Biloba...Nothing seems to be giving me the 'relief' I'm looking for though..



His theory is only one, and not yet firmly proven. The purpose of the NORD research we are undertaking is aimed at exploring ALL possibilities that we have discussed here since 2007.


Hi Demo. Agree, but correct me if I am wrong but to me his seems the most promising at this point in time - With definitely two successful treated cases in his paper - and hopefully a lot more in the second round of trials..

I'm certainly going to try this route if this is at all possible, I was just wondering why (More) others have not (that is others that aren't already trying experimenting with different theories like yourself)?



       
jivetalk, it IS promising. I would donate my right arm if this could work without doubt!

But some of us are very concerned (mentioned in the papers) that no controls (non-POISers) were studied!

Further, there is concern that these patients studied were perhaps not PRIMARILY there for POIS treatment - but possibly for premature ejaculation (too many cases - including the 2 patients who were the entire basis of the 2002 study - and the autoimmune-theory-launching-pad for future study - were/are PE patients for my comfort level).

We know NOTHING about the 2 "successes", 1 of which is completely premature to conclude "success" even if we had the POIS progress report.

And perhaps most important, I think too many of us are so desperate for a cure that just  thinking of 5 years of injections prompts us to seek alternatives. Urgently.

Not to mention the impracticality of the $cost (doubtful if insurance covers) and time required.

Weekly flights to Europe for 5 years???

And to find that MAYBE it works after all that???




This is NOT to invalidate the "autoimmune" theory. We have already begun looking into finding local non-European medical personnel and also "rapid desensitization". And there may POSSIBLY be other ways to tackle autoimmune besides autologous semen injections.

These are elements that can possibly be studied in-depth, with cutting edge state-of-the-art medical science by our NORD Research Grant!!



« Last Edit: 30/06/2011 04:49:31 by demografx »
 

Offline CertainlyPOIS

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« Reply #13783 on: 29/06/2011 15:47:59 »
jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.
« Last Edit: 29/06/2011 15:49:40 by CCconfucius »
 

Offline demografx

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« Reply #13784 on: 29/06/2011 16:43:10 »

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.



CC, thanks for pointing that out!
« Last Edit: 29/06/2011 16:44:53 by demografx »
 

Offline demografx

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« Reply #13785 on: 29/06/2011 16:46:45 »



For all our new visitors and friends!

We started a POIS Research Fund to boost our attack on The POIS Monster! Explained here:
http://poiscenter.com/forums/index.php?topic=125.0

We raised $2,150 in just the first 2 weeks, with much more pledged!

And your POIS fund donation is most welcome here:
http://rarediseases.org/about/support/research-donations

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php

Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.





 

Offline gabin

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« Reply #13786 on: 29/06/2011 21:21:30 »
Does anyone have some deviations on brain MRI scans?
I had hydrocephalus in moderate form recently discovered. And also disk protrusions (or bulges) in the cervical spine.
 

Offline demografx

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« Reply #13787 on: 29/06/2011 21:32:35 »

Does anyone have some deviations on brain MRI scans?
I had hydrocephalus in moderate form recently discovered. And also disk protrusions (or bulges) in the cervical spine.



gabin, my brain MRI (pituitary) revealed a "partially empty sella".

Good question.
 

Offline demografx

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« Reply #13788 on: 29/06/2011 21:41:29 »



Research Fund Total: $2,385.00


Please read about it at: http://poiscenter.com/forums/index.php?PHPSESSID=97a0a767229bfcd7b6822ec05c6c0160&topic=125.0

Then help yourself! by donating here: http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3



Thank you very, very much, everyone!!



« Last Edit: 29/06/2011 23:21:23 by demografx »
 

Offline pois_chile

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« Reply #13789 on: 30/06/2011 12:26:10 »
Ohh!!! At last a logical explanation about this horrible illnes. Hi, I suffer POIS since 15 years old. Now im 32 and I have had a devastating sexual life. I have many reasons to think, like another persons says, it is an Adrenals Glands imbalance, cause I sufer Chronicle Fatigue Syndrome at the time. I'm sure that there are many case like me which the two syndromes coexist at the same time. Is There somebody happen the same like me? Thanks PERSON2202 for your valued information on Youtube. My question is what do you can recommend me, what Treatment, to relieve my terrible situation. I'm really desperate, thanks you so much.
 

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« Reply #13790 on: 30/06/2011 12:33:31 »
For my own experience I am sure as POIS as Chronic Fatigue Syndrome are narrowly related. Bouth response to an Adrenal Gland imbalance. What do you think?
 

Offline jivetalk

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« Reply #13791 on: 30/06/2011 14:58:55 »

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.



CC, thanks for pointing that out!

Demo & CConfucious - Thank you Gents for answering my question so thoroughly.

Completely agree with everything stated, I just didn't realise it was such an uphill battle, even with the papers.
I have tried a number of things which hasn't seem to help much - so yes - I too am desperate for a solution.

Will let you know if/when I can find a doctor.....
 

Offline jivetalk

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« Reply #13792 on: 30/06/2011 15:11:53 »
Hahahaha....I like this - Thought I'd share it.

"Not only is the syndrome not well-known, but many men may feel embarrassed. They shouldn't! Rather, they should just think positive: maybe their semen is just extra-powerful."

From an Internet Report on POIS.
http://jezebel.com/5736771/post+orgasm-illness-sounds-awful

So Guys. We've just got Extra Strong Semen! Problem Solved.
 

Offline horizon

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« Reply #13793 on: 30/06/2011 17:59:31 »
The conversation in the comments is funny...
 

Offline demografx

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« Reply #13794 on: 30/06/2011 21:05:22 »

Hahahaha....I like this - Thought I'd share it.

"Not only is the syndrome not well-known, but many men may feel embarrassed. They shouldn't! Rather, they should just think positive: maybe their semen is just extra-powerful."

From an Internet Report on POIS.
http://jezebel.com/5736771/post+orgasm-illness-sounds-awful

So Guys. We've just got Extra Strong Semen! Problem Solved.


jivetalk, let's get out there and sell "Jivetalk's Secret-Formula Semen Thinner®"

We'll make a fortune! ;D
 

Offline demografx

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« Reply #13795 on: 30/06/2011 21:28:14 »

jivetalk adding to demografxs post, i think most people have tried to talk to doctors with no good response. Most of the doctors saying one article is not good enough and they don agree with dr waldinger. In the US the one that kinda agree say, it is not fda approved so they can do it. I personally have contacted above 10 doctors, two of them with semen allergy experience and no one helped. I think On the forum people are talking about things that are helping, but in the background they are searching for doctors to no avail. 
Personally i will say start trying some of the things we have discussed at your on caution of course, while looking for a doctor, it might take a while for you to find a doctor.



CC, thanks for pointing that out!

Demo & CConfucious - Thank you Gents for answering my question so thoroughly.

Completely agree with everything stated, I just didn't realise it was such an uphill battle, even with the papers.
I have tried a number of things which hasn't seem to help much - so yes - I too am desperate for a solution.

Will let you know if/when I can find a doctor.....


The papers are VERY useful!! I used the 2002 paper (co-authored by an endocrinologist, which I pointed out to MY endocrinologist) to find a POIS treatment (testosterone) for me that ultimately WORKED!

The papers show credibility for our disorder, REGARDLESS of our final choice of treatment-attack!
« Last Edit: 30/06/2011 21:39:59 by demografx »
 

Offline Mutant Man

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« Reply #13796 on: 01/07/2011 12:14:56 »
Why I'm I only finding out about this forum eight years after my introduction to this cursed illness. Not just that but also realising that insufficient medical advances have been set in motion, regarding the treatment of this disease. I implore you all, can anyone please provided me with a detailed, up-to-date package of the most effective approaches proposed by either forum members, medical practitioners or research institutions, most considerable for attacking this disease? The forum is almost 600 page long and as such, I am almost incapable of reading it from page 1. I just need an overview from a dedicated visitor who has been in constant interaction with this page to help me out. Thank you.
 

Offline horizon

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« Reply #13797 on: 01/07/2011 15:11:43 »
Interesting Testosterone videos
« Last Edit: 01/07/2011 15:29:53 by horizon »
 

Offline pyropeach

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« Reply #13798 on: 01/07/2011 15:36:58 »
Why I'm I only finding out about this forum eight years after my introduction to this cursed illness. Not just that but also realising that insufficient medical advances have been set in motion, regarding the treatment of this disease. I implore you all, can anyone please provided me with a detailed, up-to-date package of the most effective approaches proposed by either forum members, medical practitioners or research institutions, most considerable for attacking this disease? The forum is almost 600 page long and as such, I am almost incapable of reading it from page 1. I just need an overview from a dedicated visitor who has been in constant interaction with this page to help me out. Thank you.

Check the compendium on the website, that is exactly what its for.
 

Offline Mer

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« Reply #13799 on: 01/07/2011 16:39:28 »
I am getting wet dreams just because I`m afraid of getting one.. How to deal with this situation?
 

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« Reply #13799 on: 01/07/2011 16:39:28 »

 

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