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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6438633 times)

Offline demografx

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« Reply #13950 on: 08/07/2011 18:48:31 »

Demo, Great Call. It is a Good thing we've got you here to screen out people like this.


JT, I REALLY appreciate the sentiment because...it was painful for me!

I saw many people's hopes being raised (including mine), plus the guy is a Supreme Manipulator, so...I had to rely on my potentially unpopular and seemingly (to me at the time) risky decision.

I'm thrilled it worked out well, and we have even gained another possibly useful arrow (XN) in our quiver!
« Last Edit: 08/07/2011 19:43:06 by demografx »
 

Offline Counterpoints

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« Reply #13951 on: 08/07/2011 19:13:51 »
Yes, Waldingers "study" was completely inept.

Ok guys.  I get that we're frustrated with Waldinger, and for good reason.  He's totally unresponsive and seems to play games with people who are pretty desperate for help.  But lets not be too harsh.  His work has really helped our cause gain recognition, and his study was not completely inept.
 

Offline Limejuice

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« Reply #13952 on: 08/07/2011 19:16:43 »
I think it's interesting that XN is a vasodilator just like Levitra.  Demo, what are your thoughts?
 

Offline demografx

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« Reply #13953 on: 08/07/2011 19:41:44 »

Limejuice, I'm really no longer certain what to think about Levitra and POIS.
 

Offline horizon

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« Reply #13954 on: 08/07/2011 21:39:05 »
Yes, Waldingers "study" was completely inept.

Ok guys.  I get that we're frustrated with Waldinger, and for good reason.  He's totally unresponsive and seems to play games with people who are pretty desperate for help.  But lets not be too harsh.  His work has really helped our cause gain recognition, and his study was not completely inept.

ok, partially inept...

whats in september i wonder? ha a new russian forum?
« Last Edit: 08/07/2011 21:44:19 by horizon »
 

Offline daveman

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« Reply #13955 on: 08/07/2011 21:52:33 »
Victor, can you apply to the other forum too? We have a thread specifically dedicated to XN where we would like to get into detail for the good of everyone.

http://poiscenter.com/forums/index.php

Already applied, waiting for admin's approval

Victor

OK, you're on.
 

Offline Habibou

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« Reply #13956 on: 08/07/2011 22:23:45 »
It would have been fun if our lifes were as fun as a comedy show, but it isn t the case  :-\
Well, I arrive at a point that :
-We have to pay attention everywhere (doctors, fakers, cheaters)
-We are by our own to treat a health, which is supposed to be the most important for each one.
-My doctors discredits the "forums on internet where you can find crazy things" but in the same time the doctors never found something... kind of normal we are focused on finding the cure we are waiting for so long.
And yes, for a doctor who stated "we have found semen allergy" , got many adverts on his name through internet to work on our cause... a little bit more contact with the main forum dealing with it would have been a minimum.
 

Offline John21

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« Reply #13957 on: 08/07/2011 22:53:23 »

My neurologist also suggested that it would be interesting to see how my brain reacts under functional MRI. He gave an impression that it might somehow even be possible to have it done, as he mentioned that an esteemed fMRI researcher would be doing some work locally. Believe me, if that happens I will keep you all posted!


John, I think fMRI on POIS is a most exciting prospect for us!

I have been hoping to see this done for several years.


I second Demo's enthusiasm.  That would be amazing if you could get that done!  John, would the fMRI tell resolutely whether you suffer from a migraine or not?  I did a quick forum search of "migraine" and it seems as if GoingCrazy, defsync, vandemolen3 and others have thought about this connection before.  Maybe there's something to it.   

I got the impression that a fMRI would indeed show if POIS was similar to migraine imaging. I don't know how possible he thinks it is to have this happen.  Maybe in their meetings he will discuss this curious case and be able to "supply" me for testing if the researcher get excited about the prospect.
 

Offline demografx

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« Reply #13958 on: 08/07/2011 23:27:41 »

And yes, for a doctor who stated "we have found semen allergy" , got many adverts on his name through internet to work on our cause... a little bit more contact with the main forum dealing with it would have been a minimum.


Sad, but we take what is good from this and build strength.
 

Offline POIS-SUFFERER

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« Reply #13959 on: 09/07/2011 01:39:11 »
My 2 cents worth :-)

XN seems to be very B3 related (Niacin), and my DR after much talking of my condition had stated that I should try taking B3. There are 2 kinds, one will make you very flush and one will not, he said to find the non-flush type.....

I had read someone talking about the Niacin and 5 hour energy giving someone an allergic reaction, this was not allergies, this is what the one form of Niacin does....

Anyway thought it was an interesting coincidence.

I am going to start taking my B3 and see....

PS.
 

Offline Habibou

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« Reply #13960 on: 09/07/2011 02:06:17 »
I have to underline that my pois got worse in April 2010 since i lost my sleeping time and now (late but at least it comes back to my mind...) i realize that at this time my GP gave me a vasoconstrictor since i complained about hypotension when i stood up! so i feel for my case, there is an important link between vessel constriction and my Pois...

like i feel my heartbeat 24h/24
in my brain as when i did sport and when i got angry when i didn't have Pois. i am sure the vessels blood flow tests from your neurologist could explain the cognitive part! i am very enthusiastic about it. when could you have a chance to get it ?! :) thank you!
 

Offline connor

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« Reply #13961 on: 09/07/2011 04:57:05 »


The main symptoms i'm experiancing are a complete lack of motivation and energy to the point where i stopped working and dropped any and all of my hobbies.  I've been attempting to do some digging and it seems that those 3 fit fairly well with low testosterone which i know some people here have had issues with as well but my blood tests have all come back normal so my doctor disregarded my concern.

over the past 3 years i've attempted about 6 different types of anti-depressants as well as many different types of therapy and seen many psychologists but nothing has helped even in the slightest.  I've been given a clean mental bill of health multiple times and am concerned its a physical/hormone issue but my family doctor has pretty much given up at this point

about 3 times in the last 3 years i've had complete relief from these new symptoms but its only been for 24 hours and i can never find a connection, any suggestions would be be greatly appreciated, thanks.

what antidepressants have you tried? wellbutrin is the closests i've gotten to curing this nightmare. i've tried all the ssris pretty much and they made things worse. i think my problem stems from low dopamine

I'd have to check my exact list but the 4 i can remember now are Pristiq(desvenlafaxine),  paroxetine, Prozzac and Wellbrutrin.  The first day or 2 of trying the welbutrin gave me complete relief of those new symptoms, i felt 100% better, was a night to day comparison.  Unfortunately that left after 24 hours and never came back in my next 10 weeks on the drug regardless of doubling and 2.5x the dose.  

Honestly i'm no expert but after trying these various anti depressants for over a year i've convinced myself its not standard depression, i've had depression in the past many years ago and this just doesn't feel the same.  Not only that but from i understand about antidepressants is they work over a period of time so for me to be relieved 100% within an hour or so of taking it makes me feel it was more likely some sort of other chemical reaction unrelated to depression.

were you on wellbutrin by itself? or was it anadjunct to another antidepressant?

I just wanted to chime in that I've been taking 150mg wellbutrin for the past two or three years. This is a fairly low dosage. I feel like I have more energy while on the drug. I feel like my "lows" aren't quite as low. POIS-induced depression and mood swings are still a big problem for me, but the wellbutrin may have lessend them -- it's difficult to remember my pre-wellbutrin self.
Connor and Spence --> what dosage did you try?

i'm on 200. i think it's helping. i seem to recover faster at least.
 

Offline valtak2610

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« Reply #13962 on: 09/07/2011 19:09:35 »
With regard to migraines, I have headaches that are similar to a migraine headache in POIS. Indomethacin does help me to some extent - and that must mean something, because
indomethacin works on alleviating a certain class of headaches. But haven't figured out
what this class is and how it relates to POIS.
 

Offline Animus

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« Reply #13963 on: 09/07/2011 19:22:20 »

for a doctor ... a little bit more contact with the main forum dealing with it would have been a minimum.

I would agree with that... However we do have Vandemolen and demo as trusted liasons. And maintaining trust is the most important thing.


Sad, but we take what is good from this and build strength.

I agree!
 

Offline Habibou

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« Reply #13964 on: 09/07/2011 19:38:56 »
Yes, we don't have choice anyways !
Demo, when was the last time you got Prof Waldinger through the phone?  :)
 

Offline Starsky

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« Reply #13965 on: 09/07/2011 21:11:18 »


The main symptoms i'm experiancing are a complete lack of motivation and energy to the point where i stopped working and dropped any and all of my hobbies.  I've been attempting to do some digging and it seems that those 3 fit fairly well with low testosterone which i know some people here have had issues with as well but my blood tests have all come back normal so my doctor disregarded my concern.

over the past 3 years i've attempted about 6 different types of anti-depressants as well as many different types of therapy and seen many psychologists but nothing has helped even in the slightest.  I've been given a clean mental bill of health multiple times and am concerned its a physical/hormone issue but my family doctor has pretty much given up at this point

about 3 times in the last 3 years i've had complete relief from these new symptoms but its only been for 24 hours and i can never find a connection, any suggestions would be be greatly appreciated, thanks.

what antidepressants have you tried? wellbutrin is the closests i've gotten to curing this nightmare. i've tried all the ssris pretty much and they made things worse. i think my problem stems from low dopamine

I'd have to check my exact list but the 4 i can remember now are Pristiq(desvenlafaxine),  paroxetine, Prozzac and Wellbrutrin.  The first day or 2 of trying the welbutrin gave me complete relief of those new symptoms, i felt 100% better, was a night to day comparison.  Unfortunately that left after 24 hours and never came back in my next 10 weeks on the drug regardless of doubling and 2.5x the dose.  

Honestly i'm no expert but after trying these various anti depressants for over a year i've convinced myself its not standard depression, i've had depression in the past many years ago and this just doesn't feel the same.  Not only that but from i understand about antidepressants is they work over a period of time so for me to be relieved 100% within an hour or so of taking it makes me feel it was more likely some sort of other chemical reaction unrelated to depression.

were you on wellbutrin by itself? or was it anadjunct to another antidepressant?

I just wanted to chime in that I've been taking 150mg wellbutrin for the past two or three years. This is a fairly low dosage. I feel like I have more energy while on the drug. I feel like my "lows" aren't quite as low. POIS-induced depression and mood swings are still a big problem for me, but the wellbutrin may have lessend them -- it's difficult to remember my pre-wellbutrin self.
Connor and Spence --> what dosage did you try?

i'm on 200. i think it's helping. i seem to recover faster at least.

Dopamine works supresive on the cytokines so it could make POIS easier to live with.
 

Offline demografx

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« Reply #13966 on: 09/07/2011 21:40:05 »




Demo, when was the last time you got Prof Waldinger through the phone?  :)


About one month ago.


« Last Edit: 10/07/2011 05:38:12 by demografx »
 

Offline John21

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« Reply #13967 on: 09/07/2011 22:47:44 »
Victor I hope you don't get disgusted and leave us. I also welcome your input.
« Last Edit: 09/07/2011 22:51:44 by John21 »
 

Offline victor.kons

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« Reply #13968 on: 09/07/2011 22:58:18 »
Victor, you must understand that you are under suspicion because of the context in which you entered the forum. However, there are a few people here willing to give you the benefit of the doubt. I'm a hard boiled skeptic, also however. So watch out!
If it were up to me you would be banned too. I don't like to take any chances. But it's demo's call, not mine.

I don't like to prove anything about myself, but for the sake of naked truth I've appeared on this forum long ago this accident. And when I appeared my first message was about XN, this message didn't took much attention at that time, because it was not promotional at all. But when the Dmitry came, sorry, it was my duty say its a lie, because it was me who helped him, but he from whatever reason started to lie and promote his own lie. (I don't think he would be able to do some profit actually, I think he behaved just idiotically)

Victor
 

Offline demografx

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« Reply #13969 on: 10/07/2011 00:34:33 »

Victor I hope you don't get disgusted and leave us. I also welcome your input.


Thank you, John.

And thank you, Victor.
 

Offline Animus

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« Reply #13970 on: 10/07/2011 01:40:30 »
Victor, you must understand that you are under suspicion because of the context in which you entered the forum. However, there are a few people here willing to give you the benefit of the doubt. I'm a hard boiled skeptic, also however. So watch out!
If it were up to me you would be banned too. I don't like to take any chances. But it's demo's call, not mine.

I don't like to prove anything about myself, but for the sake of naked truth I've appeared on this forum long ago this accident. And when I appeared my first message was about XN, this message didn't took much attention at that time, because it was not promotional at all. But when the Dmitry came, sorry, it was my duty say its a lie, because it was me who helped him, but he from whatever reason started to lie and promote his own lie. (I don't think he would be able to do some profit actually, I think he behaved just idiotically)

Victor

OK, welcome to the forum. I hope you can shed some light on the benefits of XM & your experience. thanks
 

Offline silverandcol

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« Reply #13971 on: 10/07/2011 03:52:00 »
Yea lets not hate on Victor with zero evidence of anything lol. ^^
 

Offline Animus

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« Reply #13972 on: 10/07/2011 04:14:19 »
Victor, you must understand that you are under suspicion because of the context in which you entered the forum. However, there are a few people here willing to give you the benefit of the doubt. I'm a hard boiled skeptic, also however. So watch out!
If it were up to me you would be banned too. I don't like to take any chances. But it's demo's call, not mine.

I don't like to prove anything about myself, but for the sake of naked truth I've appeared on this forum long ago this accident. And when I appeared my first message was about XN, this message didn't took much attention at that time, because it was not promotional at all. But when the Dmitry came, sorry, it was my duty say its a lie, because it was me who helped him, but he from whatever reason started to lie and promote his own lie. (I don't think he would be able to do some profit actually, I think he behaved just idiotically)

Victor

OK, welcome to the forum. I hope you can shed some light on the benefits of XM & your experience. thanks


I also look forward to hearing about all your experiences. Sorry that the timing was bad with all the Dmitry confusion.

It seems that you have much to share of interest with us, Victor.

Thank you!

Yes, It's really just the last part of what I initially wrote which went a little too far. But thanks to Victor for responding to it anyway and showing his staying power.
I'm still a hard boiled skeptic, but I don't want to ban you! Sorry, Victor!
« Last Edit: 10/07/2011 04:21:29 by Animus »
 

Offline demografx

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« Reply #13973 on: 10/07/2011 04:42:04 »

Thank you, silverandcol and Animus! Welcome again, Victor :)
« Last Edit: 10/07/2011 05:25:12 by demografx »
 

Offline demografx

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« Reply #13974 on: 10/07/2011 05:58:47 »



My 2 cents worth :-)

XN seems to be very B3 related (Niacin), and my DR after much talking of my condition had stated that I should try taking B3. There are 2 kinds, one will make you very flush and one will not, he said to find the non-flush type.....

I had read someone talking about the Niacin and 5 hour energy giving someone an allergic reaction, this was not allergies, this is what the one form of Niacin does....

Anyway thought it was an interesting coincidence.

I am going to start taking my B3 and see....

PS.

mod edit - Niacin bold-enlarged-emphasis above is mine, demo






Holy Moly! After re-reading POIS-SUFFERER's post above, it suddenly hit me: my POIS has strangely but dramatically improved recently - 90% to 100% POIS relief, over my usual 80% relief with testosterone replacement therapy (TRT)...

At the same time, I also was recently put on NIASPANŽ (niacin extended-release tablets), 500 mg daily, for my cholesterol!

I hope this is real and not just a happy interlude!

Stay tuned!

Wow.

I was warned of a "flushing" side effect, and was advised to take uncoated 325 mg. aspirin 30 minutes before taking the NIASPANŽ, for the first few days so the body gets accustomed to it. I was told that many people quit this niacin therapy because of the flushing and possibly other adverse side-effects. Following my physician's directions, I tolerate it very well.

This is NOT a recommendation for you to try it, though I really hope this helps the forum's research! And - as always - work closely with your physician, and keep in mind that we are all different! What works for one person might not work for someone else. And could even be harmful.

« Last Edit: 10/07/2011 17:08:47 by demografx »
 

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