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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6457773 times)

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1475 on: 06/10/2008 02:58:22 »
ok thanks for the link. 

It has now been 28 hours and I still seen brown/yellow color.  Not sure what to believe.

My plan is as follows:  I am going to try Relora.  If that does not work then I will try the Kelp Powder.

Thanks girlwind

Your welcome. It sounds like we are proving Dr. Derry wrong, as my iodine patch was gone very quickly.
(I did it twice to make sure.) And yours lasted a long time. You may not even need the kelp, as I did.

« Last Edit: 06/10/2008 03:02:33 by girlwind »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1476 on: 06/10/2008 03:04:42 »
The whole point is that I'm trying to make people aware of their thyroid, to see if that might be one of
the problems in POIS. Because of that published study which concluded that "13 million Americans have
undiagnosed thyroid disease,"
  I just want people to consider this and investigate it, to see if they fit in
to that statistic. Iodine deficiency might be the first clue at finding the thyroid problem, and considering
how cheap and easy it is to do the patch test, I figure why not! What is there to lose?
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1477 on: 06/10/2008 06:15:41 »
To anyone:
If you're concerned about thyroid, I suggest getting a blood test. If you consult with your family physician he will order one.  It is one of the first things most general practitioners would test for when being consulted for POIS symptoms.  I would be surprised if a lot of the people posting here haven't already had thyroid tests that turned out to be normal.
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1478 on: 06/10/2008 10:27:21 »
Years ago when I was in the stage of running from doctor to doctor I had my thyroid checked, and the tests were apparently normal. I did the iodine skin test last week and the patch was still there after 12 hrs, on two occasions.

I have switched to using an iodized sea salt without calcium silicate, the free running additive. This seems like a more natural way to consume salt while ensuring I get enough iodine.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1479 on: 06/10/2008 17:14:24 »
Apparently, many doctors are NOT skilled at properly diagnosing thyroid disorders. Otherwise there would
not be "13 million Americans with undiagnosed thyroid disease," like me. I've probably gone a couple
decades without a proper diagnosis. And after the hell I've been through with 30 years of CFS and POIS, I feel
obligated to spare others of suffering through as much illness as I have.

So all I am saying is if you do go to a doctor to get your thyroid checked, please read the articles below. Find a
really good doctor, who knows how to PROPERLY diagnose thyroid, and ask to have a FREE T3, FREE T4 and TSH.
Then check the reference ranges to make sure you are not dismissed as "normal," if you really aren't. 

That's all I have to say about it. Now I know that there is a crystal  CLEAR connection between my POIS symptoms
and my low thyroid. Time will tell if healing my thyroid will heal my POIS. I will keep you posted.

http://holtorfmed.reachlocal.net/article_info.php?articles_id=2
http://www.thyroid-info.com/articles/brownstein-hormones.htm
http://www.thyroid-info.com/articles/mercola.htm
 

Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1480 on: 06/10/2008 18:15:29 »
Quote
B_Jim
I simply eat a lot of proteins during 24 hours after orgasm (and when i can the meal just before orgasm). No supplements.
Meat, fish, vegetables, milk and cheese, almond/nuts/hazelnuts, eggs.
Absolutely no sugar, candy, cake or soda. Few cereals (corn, rice but maybe oats is the best for low IG). I add some fats (coconut oil).
 

That's very interesting B_Jim, your protein approach is what has been most effective helping me to recover from POIS too!
Lamb kebab meat seems to be the thing that works best for me, not sure if the chilli sauce also contributes to the positive effect.

There is no science behind it, but I feel like my body is trying desperately to regain the fluids that have been lost, and in the process it is stealing nutrients from my brain, leading to the POIS symptoms. By giving my body the building blocks for what it wants, the symptoms seem reduced.
 
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1481 on: 06/10/2008 18:52:08 »
Quote
B_Jim
I simply eat a lot of proteins during 24 hours after orgasm (and when i can the meal just before orgasm). No supplements.
Meat, fish, vegetables, milk and cheese, almond/nuts/hazelnuts, eggs.
Absolutely no sugar, candy, cake or soda. Few cereals (corn, rice but maybe oats is the best for low IG). I add some fats (coconut oil).
 

That's very interesting B_Jim, your protein approach is what has been most effective helping me to recover from POIS too!
Lamb kebab meat seems to be the thing that works best for me, not sure if the chilli sauce also contributes to the positive effect.

There is no science behind it, but I feel like my body is trying desperately to regain the fluids that have been lost, and in the process it is stealing nutrients from my brain, leading to the POIS symptoms. By giving my body the building blocks for what it wants, the symptoms seem reduced.
 


Hurray, I feel somewhat like that.  "Withdrawal" is the best to way to describe it.  My body feels like it needs a chemical "fix".  And this leads to distress, difficulty concentrating, etc.

IMPORTANT QUESTION (open to all): Before or around the time you developed POIS symptoms, had you used tetracycline, minocycline, or any other antibiotics?
« Last Edit: 06/10/2008 23:20:31 by Counterpoints »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1482 on: 07/10/2008 03:51:14 »
POIS and carbohydrates

The protein discussion seems just a little foreign to me. When I'm in POIS I have a craving for the exact opposite, carbohydrates. Pasta helps my POIS, but not greatly.

I'd like to know how much of what we're testing lately helps on repeat POIS episodes. Protein, iodine, etc.

Please keep posting results!

« Last Edit: 07/10/2008 03:57:29 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1483 on: 07/10/2008 03:56:14 »
Counterpoints, my memory of POIS stops at 30 years ago. I have no idea when I first developed symptoms.
 

Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1484 on: 07/10/2008 06:30:31 »
Quote
B_Jim
I simply eat a lot of proteins during 24 hours after orgasm (and when i can the meal just before orgasm). No supplements.
Meat, fish, vegetables, milk and cheese, almond/nuts/hazelnuts, eggs.
Absolutely no sugar, candy, cake or soda. Few cereals (corn, rice but maybe oats is the best for low IG). I add some fats (coconut oil).
 

That's very interesting B_Jim, your protein approach is what has been most effective helping me to recover from POIS too!
Lamb kebab meat seems to be the thing that works best for me, not sure if the chilli sauce also contributes to the positive effect.

There is no science behind it, but I feel like my body is trying desperately to regain the fluids that have been lost, and in the process it is stealing nutrients from my brain, leading to the POIS symptoms. By giving my body the building blocks for what it wants, the symptoms seem reduced.
 


Interesting since I've noticed my symptoms are dulled by a protein shake after an orgasm, but I think its just the protein giving me an energy boost which only masks the symptoms.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1485 on: 07/10/2008 16:37:05 »
ratio between carbohydrates and proteins is the main factor. If you take a lot of proteins and a lot of carbs,
the anti-POIS effect doestn't work.

What ratio do you find most effective?
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1486 on: 08/10/2008 23:05:55 »
Imre1,

I forgot to answer one of your questions.  Bisoprolol hasn't substantially decreased my sex drive.  It may have decreased it to some extent, but it certainly hasn't completely eliminated sexual desire.  (Unfortunately!).  I'm on my first week of 10 mg/day.  I've been taking 5 mg/day for the past month.  We'll see how things change.  So far I've noticed increased fatigue, but not much else.
 

Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1487 on: 09/10/2008 13:34:31 »
RE: Counterpoints and antibiotics question.
Funny you should mention that, I was on tetracycline (mysteclin) around the time I got POIS. Antibiotics also figured in phases where POIS disappeared for me. Clindamycin + Clarithromycin where the 2 drugs concerned.
I was very interested in Dr.Matt's (pharma matt was more appropriate) post a couple of months back on the marshall protocol. I was waiting for him to explain exactly why he was so convinced as to the connection for this treatment which was originally developed for sarcoidosis but which is now starting to be used for other conditions that have TH1 immune dysfunction.
My thoughts at the time were, nice theory but not exactly practical. Its hard enough to explain POIS to a doctor let alone ask for prescriptions for benicar, minocycline, ciprofloxacin, Bactrim, etc, plus also wear dark glasses all the time for up to 2 yrs to undertake the marshall protocol.
 

Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1488 on: 09/10/2008 17:23:17 »
Quote from: hurray link=topic=6576.msg198780#msg198780 date=1223313329

IMPORTANT QUESTION (open to all): Before or around the time you developed POIS symptoms, had you used [b
tetracycline[/b], minocycline, or any other antibiotics?

I had not used any antibiotics.  However now that I think about it, the  really seemed to start when I started in college.  Around that time I remember having to get some shots to be allowed in?  I don't remember exactly what they were for but I remember feeling ill and feverish right after.

I have used probiotics after stumbling on an infomercial describing the effects of a deficiency of necessary intstinal bacteria.  Initially I ot on a very high dose and the results of that(I was also taking a lot of enzymes)  was a dramatic reduction in symptoms.  When I tapered to a maintenance dose the results were not as effective though.
Antibiotics kill these bacteria and they need to be replacd after.

Pois seems to be an immune system problem so maybe innoculations can cause our immune systems to malfunction producing an autoimmune reaction to the chemical changes in our own body during orgasm attacking our systems as if a foreign invasion was present.  This is beyond my scope of knowledge so I am making only a general supposition on this.  I don't know if there is any real connection?
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1489 on: 09/10/2008 18:39:36 »
Hello again from THYROID WOMAN (I should change my user name.)  :)

So... for the past week I have been devouring as much info as I can regarding balancing the endocrine glands.
I've been in touch with a former POIS forum member, who is helping me sort through my test results from the ZRT
Lab, (he had recommend this lab a while back), and has been giving me feedback on how to read my results, as
well as filling me in on what HIS experiences were in the process of healing his own endocrine deficiencies. He
has at this point recovered from POIS
(yes he claims to have recovered), and has provided me with some
good pieces of info. regarding what this process of recovery entailed for him. Bringing all the endocrine glands
up to a healthy level, according to him, is what did the trick.

In addition I have read two books: on thyroid and on iodine, and have travelled the web to about 6 different forums
including: a high dose iodine users forum, an adrenal/thyroid forum, an international endocrine forum etc.....
THERE IS A LOT I didn't know!  And a lot that I am learning. One thing for sure: most patients who are dealing with
endocrine (thyroid, adrenal, gonadal) hormonal problems have vehement NEGATIVe complaints about doctors,
whose ignorance and incompetence in diagnosing and treating hormonal imbalances has been an enormous cause
of grief and frustration. Many thyroid patients were initially put on guess what....anti-depressants! until they finally
found out what was wrong with them. The same is true for people with low cortisol (burnt adrenals),which most
medical doctors seem to COMPLETELY ignore (unless someone goes into a coma due to adrenal shock!) So if we're
looking for the "usual kind" of standard MD endocrinologist to help us on this forum, I think we are barking up the
wrong tree. Most of the "healed" endocrine patients I've read about and contacted had to find unusually brilliant
out-of-the-norm holistic type of MD's, or else they had to resort to helping themselves by reading and helping
each other with alternative methods-- (herbal and vitamin supplements and ovc hormones like DHEA).

The people who have healed their endocrine system have given this feedback: healing adrenals (raising their
cortisol level) and then thyroid (raising both T3 and T4 to HEALTHY levels and lowering TSH below 1.0) has been a
huge part of regaining their overall health and their libido. Taking care of the testosterone, DHEA, and estrogen
levels has been a big part of the picture, too.


Next week I have my first appointment with a holistic MD who is, according to locals, "a rock star" when it comes
to bio-identical hormones. Wish me luck!



« Last Edit: 10/10/2008 00:33:00 by girlwind »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1490 on: 09/10/2008 20:55:36 »
Good luck and thanks for this post.
I'm just a little disappointed that when someone manage to heal he leave  without helping others (not in this particular forum).
I remember i have tried a iodine supplement 2 years ago without effect. But maybe the supplmeent wasn't good enough (it was a multi-vitamin + minerals and iodine.

Hi B_Jim
I think when people feel better, they just want to live their lives and move away from thinking about their old problems.
I'm not like that, and will share what I learn that helps me, in the hopes that it will help someone else.  I will also request
that this ex-POIS forum member post his experiences of recovery in his own words. Hopefully he will do that.

Also, I should tell you that one of the side effects for me, still, of taking kelp (or kombu) is that it acts as a chelator for heavy
metals. Even the "clean" certified organic one has done that for me. So I have to be real careful about how much I ingest. I've
had an assortment of heavy metals appear repeatedly in my hair analysis, and since I do NOT like the symptoms of detoxing
too fast, I'm going very easy on it. (Just be aware of that when you eat seaweed.)
« Last Edit: 09/10/2008 21:13:58 by girlwind »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1491 on: 10/10/2008 00:54:46 »
Acronym, welcome to the POIS Forum! You may wish to see Forum member girlwind's POIS video at
« Last Edit: 10/10/2008 01:39:24 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1492 on: 10/10/2008 00:59:42 »
girlwind aka THYROID WOMAN, I share much of your enthusiasm, but I think it's important to differentiate between what is good for "overall health and libido" and POIS. The two don't necessarily go hand in hand. Thanks, and please don't take this negatively.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1493 on: 10/10/2008 01:11:57 »
I'm just a little disappointed that when someone manage to heal [POIS] he leave  without helping others.

B_Jim, I agree with you, it's disappointing. When I found - last year - that Levitra cured 75% of my POIS symptoms, I could have easily left, too, I was very happy. Or I could have just stayed and logged on every now and then just to read how I could make the other 25% go away.

But I have been suffering with POIS for more than 30 years and I still empathize with other POIS sufferers. I'm not a saint, part of my continuing involvement comes from so much of my life having been dominated, devastated and overwhelmed by POIS that it's now become a very strong interest of mine. And my POIS is so bad that I dread even the 25%. Going from 10 mg to 20 mg might do the trick, but I'm afraid to try it. So keep up the great work everybody, with testing iodine, beta blockers, protein and the rest. The key to great POIS success will be to see something work (1) repeatedly, not just a placebo effect, as I experienced with testosterone and (2) for more than 1-2 people.

ps - as always, PLEASE consult a physician before attempting Levitra.
« Last Edit: 10/10/2008 01:32:55 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1494 on: 10/10/2008 01:25:27 »
I'm not like that, and will share what I learn that helps me, in the hopes that it will help someone else.

I will also request that this ex-POIS forum member post his experiences of recovery in his own words. Hopefully he will do that.

Great to see your committment, girlwind, newbies as well as more experienced members will benefit enormously from your perspective.

And I do hope that the ex-POIS member will post his recovery experience!
« Last Edit: 10/10/2008 01:29:39 by demografx »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1495 on: 10/10/2008 01:35:07 »
girlwind aka THYROID WOMAN, I share much of your enthusiasm, but I think it's important to differentiate between what is good for "overall health and libido" and POIS. The two don't necessarily go hand in hand. Thanks, and please don't take this negatively.

Okay, okay Demografx--When I say "libido" I mean both healthy available sexual energy AND post-orgasmic
recuperative abilities...  Capish? Sometimes it just takes too much time to SPELL OUT ALL the details when you're in
hurry to write-up a posting. Also, I think what is good for overall ENDOCRINE health will most likely be good for POIS.
That's my story, and I'm sticking to it!   :)
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1496 on: 10/10/2008 03:08:04 »
Okay, okay Demografx--When I say "libido" I mean both healthy available sexual energy AND post-orgasmic recuperative abilities...  Capish? Sometimes it just takes too much time to SPELL OUT ALL the details when you're in hurry to write-up a posting. Also, I think what is good for overall ENDOCRINE health will most likely be good for POIS. That's my story, and I'm sticking to it!   :)
Okay, okay girlwind. I disagree (re endocrine - not proven, but Okay). :)
« Last Edit: 10/10/2008 03:19:45 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1497 on: 10/10/2008 03:13:03 »
girlwind (or anyone else, please jump in), I have a question for you. Do you have any theory or knowledge if some of the components in Levitra (PDE5 inhibitors), which works extremely well for my POIS, has any similarity to some of the things we're exploring? (iodine, garlic, protein, etc.)? My guess is that it would probably take a chemist's background to know.

I still think there is something significant to be learned from what I found with Levitra working, and Cialis being a complete dud!

My questioning endocrine health as the silver bullet comes from the dramatic results I have personally seen from Levitra. But maybe there is a connection between the two, which is what prompted me to write this post.

Anyway, I'm absolutely for the truth, wherever it takes us.
« Last Edit: 10/10/2008 03:29:15 by demografx »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1498 on: 10/10/2008 03:22:47 »
Acronym:  Please fill out the form found at pois.olympe-network.com
Your feedback will be much appreciated.  We would also like to be in touch when research investigations begin.

TO EVERYONE: If you haven't filled out the form yet, I encourage you to do so as soon as you find the time.  On October 23rd I am meeting with a research neurologist (different person than the MD PhD I previously mentioned), and I would like to bring that information to his attention.  In my opinion this form is the most effective way for us to start receiving help.  I encourage others to raise awareness about its existence.

ALSO -- I will soon be able to respond to the request for phone consultations with the MD PhD I mentioned.  In any case, he is planning a full fledged research investigation, which I think will probably start within the next two months.

RE: Counterpoints and antibiotics question.
Funny you should mention that, I was on tetracycline (mysteclin) around the time I got POIS. Antibiotics also figured in phases where POIS disappeared for me. Clindamycin + Clarithromycin where the 2 drugs concerned.
I was very interested in Dr.Matt's (pharma matt was more appropriate) post a couple of months back on the marshall protocol. I was waiting for him to explain exactly why he was so convinced as to the connection for this treatment which was originally developed for sarcoidosis but which is now starting to be used for other conditions that have TH1 immune dysfunction.
My thoughts at the time were, nice theory but not exactly practical. Its hard enough to explain POIS to a doctor let alone ask for prescriptions for benicar, minocycline, ciprofloxacin, Bactrim, etc, plus also wear dark glasses all the time for up to 2 yrs to undertake the marshall protocol.

« Last Edit: 10/10/2008 03:31:54 by Counterpoints »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1499 on: 10/10/2008 03:29:06 »
NOTICE:

I imagine many POIS sufferers read this forum without making any comments.  I hope you will find the information here useful, and I encourage you to contribute.  Most importantly, if you find something that helps you, or you are feeling better, PLEASE DO NOT JUST ABANDON THIS COMMUNITY WITHOUT SHARING THIS INFORMATION.  This is very self-centered, meaningless and heartless behavior.  It won't help you, and it could unnecessarily cost us decades of severe agony.
« Last Edit: 10/10/2008 03:40:21 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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