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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6434235 times)

Offline questforlife

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15575 on: 08/02/2012 22:25:20 »
Finally, I got my urine test about neurotransmitters , 10 hours after an O :

3.54 creatinin
dopamin          91.50                    (170-256)
0.4 dopac          0.4                      (0.70-4)
hva                   1.90                     (2.43-5.20)
noradrenalin     10.30                     (15-30)
mhpg                     1.5                   (1.3-4.15)
vma                   1.60                    (2.10-3.80)
adrenalin            0.98                   (1.27-6.10)
serotonin               62.40                (61.50-116)
hiaa                        2.30                 (2-4.20)
hva/5htaa =        0.83                   (1.25-2.56)

We can notice that many standards are lower than the low average which means a lot for me !

wow some interesting results.  People say you should be happy to have normal test results.  Im sure we all disagree to some extent.  Normal results only tell us we have looked in the wrong place and mean the search carries on.  I have sent an email to Dr Goldmeier so im hoping I will get an appointment, I am going to ask for the same tests and see what comes back.  Im hoping we find a correlation between our results.
 

Offline questforlife

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15576 on: 08/02/2012 22:28:12 »
Has anyone taken a supplement that has brought on feelings similar to what you get when your in POIS?  I have been experimenting again with different supplements and yesterday I took Alpha Lipoic Acid.  This stuff really sets me back which is strange as it was a low dose.  The symptoms I get with it appear within the hour and last for about 24 hours. They are very similar symptoms to my POIS:
Very poor co-ordination
Derealization
extremely poor lack of concentration / cognitive
Joint aches
Facial Muscles pain which effect my facial expressions / talking etc (this is my most unbearable POIS symptom which comes around straight after an O)

I thought it was strange how a supplement can bring on such similar symptoms and thought maybe there was a relationship between it.  Other supplements do make me feel much better and so I convinced there must be a chemical/neuro imbalance that is extremely sensitive. 



 Are you taking an Alpho Lipoic acid/Acetyl-l- Carnitine Combo? If you are I would stick with Acetyl-l-carnitine as it is an awesome memory booster and cognitive enhancer for me. Alpha Lipoic acid was starting to make me very edgy so I dropped it. It could be that since Alpha Lipoic Acid is a strong antioxidant it is helping your body purge toxins out of your body at a pretty fast rate.I know not everyone believes  being affected by toxins,but there's toxins everywhere,even in the air we breath which often contains pollutants from vehicles etc.



I was only taking alpha lipoic on its own, it was such a strange reaction to it.  I will take your recommendation POISon , thank you for replying to me .  You would not believe how many supplements I have got from experimenting, this one will join the tried and test box.
 

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15577 on: 08/02/2012 23:42:40 »
What is alpha lipoic acid, what is it for?
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15578 on: 09/02/2012 00:00:26 »
Finally, I got my urine test about neurotransmitters , 10 hours after an O :

3.54 creatinin
dopamin          91.50                    (170-256)
0.4 dopac          0.4                      (0.70-4)
hva                   1.90                     (2.43-5.20)
noradrenalin     10.30                     (15-30)
mhpg                     1.5                   (1.3-4.15)
vma                   1.60                    (2.10-3.80)
adrenalin            0.98                   (1.27-6.10)
serotonin               62.40                (61.50-116)
hiaa                        2.30                 (2-4.20)
hva/5htaa =        0.83                   (1.25-2.56)

We can notice that many standards are lower than the low average which means a lot for me ! As you can understand, I was very glad to discover so many abnormalities  :D :o

Wow Habibou! Have you talked with your doctor about the results? It's surprising that you are low in many neurotransmitters: Dopamine, Noradrenaline, Adrenaline. Serotonin is also low, but within the average.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15579 on: 09/02/2012 01:06:50 »
How reliable are neurotransmitter tests? 2 years ago, my endocrinologist said they were not reliable. But maybe he is wrong? Maybe things have changed?
« Last Edit: 09/02/2012 01:08:58 by demografx »
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15580 on: 09/02/2012 01:32:37 »
How reliable are neurotransmitter tests? 2 years ago, my endocrinologist said they were not reliable. But maybe he is wrong? Maybe things have changed?

I think they are not 100% reliable, because their levels depend on many factors, and they may not represent exactly the levels inside the brain. But at the same time, they can be correct and give clues of the real levels. I have read in some articles that they are not reliable, but i also have read in other articles that they indeed correlate to the brain levels.

So, if you do the test and your levels are borderline, it may not be significant, but if they are quite low, i think it means something is wrong...
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15581 on: 09/02/2012 01:39:06 »
Thanks for fleshing that out, Quasar!
 

Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15582 on: 09/02/2012 10:11:49 »

Wow Habibou! Have you talked with your doctor about the results? It's surprising that you are low in many neurotransmitters: Dopamine, Noradrenaline, Adrenaline. Serotonin is also low, but within the average.

I did not come to my doctor yet but I will asap ! anyways, my urine test was really under the low standards so I will get answers :)

« Last Edit: 09/02/2012 11:08:17 by daveman »
 

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15583 on: 09/02/2012 11:08:34 »

Wow Habibou! Have you talked with your doctor about the results? It's surprising that you are low in many neurotransmitters: Dopamine, Noradrenaline, Adrenaline. Serotonin is also low, but within the average.

I did not come to my doctor yet but I will asap ! anyways, my urine test was really under the low standards so I will get answers :)



Yes, at the very least there's enough evidence to look deeper. If it were just one that was on the low side, maybe not, but since there are so many related ALL below, and some well below.

Who at kind of a doctor will you go to, and, the same one who prescribed the tests? Also, you may expect these kinds of readings from CFS, which you have already been diagnosed with right?

BTW, you are in the group that doesn't get relief from niacin, right?
« Last Edit: 09/02/2012 11:38:46 by daveman »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15584 on: 09/02/2012 14:13:10 »
My hunch is that vasodilation occurs with me - like niacin - through Levitra and possibly some of my other meds, to contribute to and improve my POIS-free testosterone treatment.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15585 on: 09/02/2012 14:24:07 »






•Shine the light on our experience!

•Show them what we know!

•We are the biggest union of POIS sufferers IN THE WORLD

•Let’s get what we know about medicine effectiveness

•And symptoms and nutrition into an organized database.
 
Surveys are HERE!

 
www.poiscenter.com/surveys.htm
 

Get your password mailed to you from the link
on this page (Use your present username) and then
Click on “POIS Profiles by Username”


 
 
« Last Edit: 09/02/2012 22:21:49 by demografx »
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15586 on: 09/02/2012 15:06:55 »

Wow Habibou! Have you talked with your doctor about the results? It's surprising that you are low in many neurotransmitters: Dopamine, Noradrenaline, Adrenaline. Serotonin is also low, but within the average.

I did not come to my doctor yet but I will asap ! anyways, my urine test was really under the low standards so I will get answers :)



Besides talking with him about the causes and solutions, i guess you could ask for the same test, but in a Pois-free period. (abstinence for some weeks) and then compare them.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15587 on: 09/02/2012 16:19:18 »

How reliable are neurotransmitter tests? 2 years ago, my endocrinologist said they were not reliable. But maybe he is wrong? Maybe things have changed?


It might be an sign of something but the levels in blood are not representative of the brain levels. Anyway, Quasar's levels show a deficiency for all catecholamines + Dopac.


Thanks, B_Jim.
 

Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15588 on: 09/02/2012 22:42:42 »
@ Mellivora,

That was an awesome Post! What you said echoes exactly what I want from a Pois free life. It was very uplifting and inspiring to read what you posted. Thank You and very well written!

@Daveman

Alpha Lipoic acid is a potent antioxidant and it has been proved in studies to increase the effects of Acetyl-l-Carnitine when combined. That's why I was using it as part of a combo but perhaps it was helping to much as I started to feel side effects from it.

@ QuestforLife.

You're very Welcome! I love being able to help!
« Last Edit: 09/02/2012 22:47:40 by POISon »
 

Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15589 on: 09/02/2012 22:47:19 »
answers :)
Yes, at the very least there's enough evidence to look deeper. If it were just one that was on the low side, maybe not, but since there are so many related ALL below, and some well below.

Who at kind of a doctor will you go to, and, the same one who prescribed the tests? Also, you may expect these kinds of readings from CFS, which you have already been diagnosed with right?

BTW, you are in the group that doesn't get relief from niacin, right?

Yes, I have CFS and I do not react to Niacin :) I will probably start a neuroleptic with a psychiatre in pharmacology who can treat "idiopathic fatigue"
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15590 on: 09/02/2012 22:55:08 »
answers :)
Yes, at the very least there's enough evidence to look deeper. If it were just one that was on the low side, maybe not, but since there are so many related ALL below, and some well below.

Who at kind of a doctor will you go to, and, the same one who prescribed the tests? Also, you may expect these kinds of readings from CFS, which you have already been diagnosed with right?

BTW, you are in the group that doesn't get relief from niacin, right?

Yes, I have CFS and I do not react to Niacin :) I will probably start a neuroleptic with a psychiatre in pharmacology who can treat "idiopathic fatigue"

Did you get cfc before pois or pois cfc.   
Did your doctor say you have cfc because he cant wrap his head around,pois.
it all sounds to much of a coincidence
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15591 on: 10/02/2012 02:35:20 »
Ive folded into oblivion, a bastion of abstinence nonetheless. I am leaving mainland usa to live as a nomad fishing off the coast of Oahu HI, until the end of my days. My relationship will be with the sun and the ocean. I leave the structure of society behind and become one with mother nature.
 

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15592 on: 10/02/2012 10:18:47 »
Fill out the survey before you go  ;D
 

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15593 on: 10/02/2012 10:23:41 »
answers :)
Yes, at the very least there's enough evidence to look deeper. If it were just one that was on the low side, maybe not, but since there are so many related ALL below, and some well below.

Who at kind of a doctor will you go to, and, the same one who prescribed the tests? Also, you may expect these kinds of readings from CFS, which you have already been diagnosed with right?

BTW, you are in the group that doesn't get relief from niacin, right?

Yes, I have CFS and I do not react to Niacin :) I will probably start a neuroleptic with a psychiatre in pharmacology who can treat "idiopathic fatigue"

Did you get cfc before pois or pois cfc.   
Did your doctor say you have cfc because he cant wrap his head around,pois.
it all sounds to much of a coincidence

From what I remember, he was diagnosed with CFS as a result of POIS  by quite a reputable doctor who knows POIS.

POIS can drain the system and come to produce CFS.
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15594 on: 10/02/2012 11:04:46 »
Finally, I got my urine test about neurotransmitters , 10 hours after an O :

3.54 creatinin
dopamin          91.50                    (170-256)
0.4 dopac          0.4                      (0.70-4)
hva                   1.90                     (2.43-5.20)
noradrenalin     10.30                     (15-30)
mhpg                     1.5                   (1.3-4.15)
vma                   1.60                    (2.10-3.80)
adrenalin            0.98                   (1.27-6.10)
serotonin               62.40                (61.50-116)
hiaa                        2.30                 (2-4.20)
hva/5htaa =        0.83                   (1.25-2.56)

We can notice that many standards are lower than the low average which means a lot for me ! As you can understand, I was very glad to discover so many abnormalities  :D :o

Wow Habibou! Have you talked with your doctor about the results? It's surprising that you are low in many neurotransmitters: Dopamine, Noradrenaline, Adrenaline. Serotonin is also low, but within the average.
This does suggest the catecholamine depletion hypothesis might have some merit.
Have you ever taken L-Tyrosine and, if so, what effect did it have?
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15595 on: 10/02/2012 11:15:57 »
Ive folded into oblivion, a bastion of abstinence nonetheless. I am leaving mainland usa to live as a nomad fishing off the coast of Oahu HI, until the end of my days. My relationship will be with the sun and the ocean. I leave the structure of society behind and become one with mother nature.
Sounds peaceful but I'd miss broadband internet access.
 

Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15596 on: 10/02/2012 15:06:22 »
Ive folded into oblivion, a bastion of abstinence nonetheless. I am leaving mainland usa to live as a nomad fishing off the coast of Oahu HI, until the end of my days. My relationship will be with the sun and the ocean. I leave the structure of society behind and become one with mother nature.

Why are you giving up when we are at the end of the road?

I think that what you are proposing sounds peaceful, but one could not skip his duties forever.
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15597 on: 10/02/2012 17:06:05 »
Please, take a look at this: http://www.webmd.com/infertility-and-reproduction/antisperm-antibody-test

BTW, properly speaking, Pois is an Autoimmune disease (allergy to ourselfs). Plain allergies are only related to outside substances...

I think the skin ***** test is a useful tool, but shouldn't we also, in general, be doing the "Antisperm Antibody Test" they usually do to women? I mean, it is a test that is available right now, everywhere, the only difference would be that they would have to take the blood sample from ourselfs, not from the woman.

"An antisperm antibody test looks for special proteins (antibodies) that fight against a man's sperm in blood, vaginal fluids (not the case), or semen. "

 

Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15598 on: 10/02/2012 18:32:57 »
Ive folded into oblivion, a bastion of abstinence nonetheless. I am leaving mainland usa to live as a nomad fishing off the coast of Oahu HI, until the end of my days. My relationship will be with the sun and the ocean. I leave the structure of society behind and become one with mother nature.

Sounds lovely. May the blessings of the Ocean Goddess be with you!
 

Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15599 on: 10/02/2012 20:11:56 »
Hello all. I am currently taking niacin before orgasm and chlorella, vitamin C, And Fish oil afterwards. I can't have more than 1 orgasm a week without terrible symptoms. My symptoms have been severely cognitive to the point where I have been diagnosed with everything from depression to schizophrenia. My POIS is also consistent with the better days being after the normal POIS period. The weird thing is that now, with these products, I have become better in the first few days after orgasm, but after a few days I begin to return to my constant POIS. So now I need an orgasm every few weeks to stay productive. Its almost like that vulnerable period after orgasm gives me an opportunity to supply my body and brain with the proper supplies but it soon runs out or something.

Any thoughts would be appreciated. Also, if anyone has any questions for me I would be happy to help.

We won't give up,

Jon.
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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