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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6428831 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15650 on: 22/02/2012 23:47:40 »
We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

Thank you, everyone!

« Last Edit: 23/02/2012 19:28:47 by demografx »
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15651 on: 23/02/2012 06:17:31 »
We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

 that is a long time.
Congratulations everyone, lets keep working.
 

Offline Omen 30

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15652 on: 23/02/2012 07:08:51 »
Morning orgasms used to work for me...they used to give me the needed spike in my system...but now it has stopped working for more than 2-3 days...after 2-3 days I again get the brain fog and lethargy...somebody please explain me why its happening...
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15653 on: 23/02/2012 08:57:21 »
We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

Thanks to everybody who has put in so much effort over the years to help us beat this thing. I'm a relative newbie to the forum but it's a strong and sharing community in spite of our collective difficulties and worries. There's so much potential here to be tapped when we're all POIS free.
 

Offline EDS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15654 on: 23/02/2012 13:05:53 »

Thanks to everybody who has put in so much effort over the years to help us beat this thing. I'm a relative newbie to the forum but it's a strong and sharing community in spite of our collective difficulties and worries. There's so much potential here to be tapped when we're all POIS free.

How right you are, kurtosis.
We have the world's POIS symptom experts here!
Now let's put all of this knowledge to work for us with a world renowned scientific institution like NORD.
For all of us, but especially the younger members... think about how much more earning potential you will enjoy over a lifetime if we can beat this malady.

Everyone! Please pledge or donate to OUR FUND with NORD today!!
 

Offline demografx

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« Last Edit: 23/02/2012 19:26:22 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15656 on: 23/02/2012 19:31:32 »

We just passed February 18, our

5th Year Anniversary
Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.


Thanks to everybody who has put in so much effort over the years to help us beat this thing. I'm a relative newbie to the forum but it's a strong and sharing community in spite of our collective difficulties and worries. There's so much potential here to be tapped when we're all POIS free.


Thank you, kurtosis!

« Last Edit: 23/02/2012 19:35:58 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15657 on: 23/02/2012 20:03:27 »
Click here for Stefanie's ("nordnurse" at POIS forums) article on Rare Disease Day!

http://www.amylinbuildingblocks.com/index.php/2012/rare-disease-day-2012-a-time-to-reflect-on-how-far-weve-come/
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15658 on: 24/02/2012 03:18:43 »
In the past weeks I've done two experiments with treatments discussed in the past on this forum.
One was with nutmeg(know that nutmeg can cause death if too much is eaten)
and one was with phosphatidylserine. Neither treatment proved to be optimal and
since I ceased my other treatments and since I wanted to find out exactly how long each dose would last
I unfortunately had to endure some of my past unpleasant POIS symptoms. But it was worth it as I
discovered that both of these treatments are able to relieve some of my symptoms in a way that will
be useful to me in the future.


I discovered that taking 1/2 a teaspoon of ground nutmeg in the morning protects me from much of my
physical POIS symptoms for 2-3 days even if I have more than one "o" per day, but the nutmeg leaves
me sort of cognitively sedated which makes complex thinking more difficult and it also seems to make me
less motivated to do anything requiring any thinking at all. In the future I'll try taking a smaller dose to see
if I can get the physical symptom reduction without the mental sedation. Of course keep in mind that
nutmeg is dangerous in higher doses such as those exceeding about 30 grams. Originally I was testing
nutmeg for any anxiolytic effect it may have and I ate 3 whole nutmegs which I guessed was around
20 to 25 grams and it just made me pretty nauseous for the afternoon into the night. Again,
remember that nutmeg can be fatal in higher doses:
http://nutmeghigh.com/?p=858

In my experiment with phosphatidylserine I used a single 500mg Source Naturals brand capsule taken at
night. I found that this supplement relieved more of my cognitive POIS than any other of my treatments
has and it enhanced my cognitive ability in such a way that I was able to think much more quickly and the
act of thinking itself ceased to become difficult and actually became enjoyable. I've taken maybe 10
capsules so far and have found that unfortunately they don't protect me from enough physical POIS to
replace my other treatments. The benefit they provide lasts for about 3 days with multiple "o"s per day.

I'm still in sort of a POIS haze right now as I've temporarily lost my sleep schedule and discipline to avoid
masturbation due to allowing full blown POIS to come back for a bit so I'll likely elaborate upon this post
in the coming days and weeks when I'm back on track.

I'll definitely be adding phosphatidylserine to my other current treatments and will report back on how
I feel with everything put together.
« Last Edit: 24/02/2012 03:46:23 by Vincent Marcus »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15659 on: 24/02/2012 04:02:43 »

Thanks very much for the caveats about nutmeg, Vincent Marcus!

 

Offline Pharaoh

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15660 on: 24/02/2012 23:17:07 »
demo,

What do you believe is the underlying pathology?  What theory are you leaning towards?  Just interested to know. Thanks.
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15661 on: 25/02/2012 10:51:27 »
Re. Phosphatidyl Serine. In terms of efficacy on cognitive function, bovine would probably be the highest concentration but there are health risks associated with this. Fish like herring and mackerel contain high amounts of it. AFAIK there's some in Krill oil capsules too as its naturally occurring in KO and the astaxanthin prevents the oil from going rancid. I'm unsure about levels in triglyceride form fish oils.
But fish sourced PS seems to be just as good as bovine sourced. http://www.ncbi.nlm.nih.gov/pubmed/20677367
Is anyone else trying Krill Oil as the smoothie+KO combination is really working for me?
 

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15662 on: 25/02/2012 13:43:23 »
Niacin survey is ready. On the POIS site you will see a link to the new survey.

Use the same username and password to enter (if necesary, it may remember  you). If you haven't already taken the previous survey your data will not be cross-referencable to POIS usergroups.

Remember if you need a password, a link exists to have it sent to your EMail on record. You will need to use your NSF username to access your password.

Any other questions PM me here.

I have a fairly heavy contract which is using a lot of my time right now, so I will not be able to move as quickly on our advances.

I have begun however the cross-referencing software that will allow a more in depth filtering and viewing of the survey data.

We now have 30 members registered. It would be great to get another 20!!

Thanks for your participation
« Last Edit: 25/02/2012 13:46:09 by daveman »
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15663 on: 25/02/2012 17:35:28 »
first and foremost, i would appreciate it if no one ever edits my posts or deletes them again. You feel you need to do what you must, at the same time censorship of the pain of this condition seems somewhat self-defeating.

With that, I recently almost lost my life in a car wreck. By about a foot. After drinking. I have to look at this as a second chance, tho a chance for what Im not sure.

My plans are to relocate to Hawaii where I am familiar with the cities and the wilderness, and see if I can find some sense of peace away from humanity.

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15664 on: 25/02/2012 17:59:15 »
As required by Naked Science Forum, any posts that contain ad hominem attacks (e.g., expletives) directed toward fellow forum members will be edited and/or deleted, and the poster will be warned and/or banned with continued displays of ill will.

Thank you, everyone, for keeping this forum friendly.
« Last Edit: 26/02/2012 08:31:42 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15665 on: 25/02/2012 18:56:26 »

demo,

What do you believe is the underlying pathology?  What theory are you leaning towards?  Just interested to know. Thanks.



Pharaoh, I really don't know any more than you do. All I can personally vouch for is my own experience. After 30+ years of POIS agony, I am now 90%+ POIS-free, primarily from testosterone replacement therapy (TRT).

Why? I haven't yet spoken to any medical professional, including Waldinger, who understands why.

This is why NORD research on POIS is so crucial!
« Last Edit: 25/02/2012 22:47:18 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15666 on: 26/02/2012 00:03:35 »
We just passed February 18, our

5th Year Anniversary

Of this POIS thread at Naked Science Forum.

"John21" was the very first one to post here.

 that is a long time.
Congratulations everyone, lets keep working.

Thanks for that, CC!
« Last Edit: 26/02/2012 08:34:13 by demografx »
 

Offline Pharaoh

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15667 on: 26/02/2012 01:59:22 »

demo,

What do you believe is the underlying pathology?  What theory are you leaning towards?  Just interested to know. Thanks.



Pharaoh, I really don't know any more than you do. All I can personally vouch for is my own experience. After 30+ years of POIS agony, I am now 90%+ POIS-free, primarily from testosterone replacement therapy (TRT).

Why? I haven't yet spoken to any medical professional, including Waldinger, who understands why.

This is why NORD research on POIS is so crucial!

Glad to know you're doing better.  I've been on testosterone therapy for half a year now, and quite frankly, it hasn't done much.  Aren't you also on a dextroamphetamine and amphetamine? 

I'm looking forward to my appointment at the headache center.  I'm worried this may be some type of transient ischemic attack (mini-stroke).  Could explain why Imitrex and Niacin have been effective.  We'll see.  Looking forward to NORD's findings as well.
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15668 on: 26/02/2012 04:01:45 »
Since phosphatidylserine is found in meat and since taking it in capsule form helps me I now suspect that I may not be digesting meat properly. I'm going try betaine hcl for a bit next to aid digestion. I also get pretty bad bloating after eating most foods, which is another reason for me to try betaine hcl.
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15669 on: 26/02/2012 04:28:44 »
Daveman,  just letting you know that for question number 10 on the niacin survey there doesn't seem to be a "N/A" option.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15670 on: 26/02/2012 08:05:33 »
demo,
What do you believe is the underlying [POIS] pathology?  What theory are you leaning towards?  Just interested to know. Thanks.

Pharaoh, I really don't know any more than you do. All I can personally vouch for is my own experience. After 30+ years of POIS agony, I am now 90%+ POIS-free, primarily from testosterone replacement therapy (TRT).
Why? I haven't yet spoken to any medical professional, including Waldinger, who understands why.
This is why NORD research on POIS is so crucial!

Glad to know you're doing better.  I've been on testosterone therapy for half a year now, and quite frankly, it hasn't done much.  Aren't you also on a dextroamphetamine and amphetamine? 

Your disappointment with TRT unfortunately proves we're all different. I am very lucky TRT works so well for me.

Yes, I'm also on Ritalin (previously Adderall), and moderate caffeine, which help. Occasional Levitra also helps. And forced napping/sleep helps.

I have experimented with higher-than-average TRT doses. It helps, but my urologist suggested to cut back after 2 years. When I did cut back the TRT, the good anti-POIS effects still held up well. Lucky again!

I'm looking forward to my appointment at the headache center.  I'm worried this may be some type of transient ischemic attack (mini-stroke).  Could explain why Imitrex and Niacin have been effective.  We'll see.  Looking forward to NORD's findings as well.


I assume you saw Dr Selwyn Dexter's paper on headache-featured POIS and his treatment? If not, I can email that to you. (It didn't work for me because I couldn't tolerate progesterone well.)

Best wishes at the headache center, Pharaoh!

« Last Edit: 26/02/2012 08:28:35 by demografx »
 

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15671 on: 26/02/2012 13:47:59 »
Daveman,  just letting you know that for question number 10 on the niacin survey there doesn't seem to be a "N/A" option.

Being a text field you can just enter "N/A" there. No problem.

 

Offline makaveli

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15672 on: 26/02/2012 21:19:27 »
One thing I find that helps is that soon afterwards,
lifting weights and caffeine reduces the fatigue and metal confusion significantly.
I would probably say about 60-70%. Otherwise, I am basically non functional.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15673 on: 26/02/2012 22:32:59 »

makaveli, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year! We hope to launch serious POIS Medical Research! A great time to be here!




**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain!)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum -- "daveman".  He'll reply to you.


Here are some POIS resources which may be helpful to you:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click HERE first, and then look for "CHAT" button towards top of page, 6th button to your right!


Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the YouTube file for the POIS  TV documentary, "Desperate Measures":

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


Available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

It can be very  helpful to you when dealing with medical professionals to point out the
POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website! - Click here!

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus nearly 1,500,000 page visits. Not bad for a rare malady!



SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15674 on: 26/02/2012 22:38:11 »
Niacin survey is ready. On the POIS site [nofollow] you will see a link to the new survey.

Use the same username and password to enter (if necesary, it may remember  you). If you haven't already taken the previous survey your data will not be cross-referencable to POIS usergroups.

Remember if you need a password, a link exists to have it sent to your EMail on record. You will need to use your NSF username to access your password.

Any other questions PM me here.

I have a fairly heavy contract which is using a lot of my time right now, so I will not be able to move as quickly on our advances.

I have begun however the cross-referencing software that will allow a more in depth filtering and viewing of the survey data.

We now have 30 members registered. It would be great to get another 20!!

Thanks for your participation

Thanks Daveman

I've been experimenting with Niacin for a couple of months now. I lost my notbeook with detailed notes but i am able to draw some conclusions from doing this. I will fill in the survey when i'm not in POIS, otherwise it feels too complex to do!
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15674 on: 26/02/2012 22:38:11 »

 

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