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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6462621 times)

Offline Nightingale

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15950 on: 03/04/2012 05:24:13 »
I'm just posting here real quick in addition to on the POISforums where I usually post.  I have had trouble getting a niacin flush, and have recently tried 3 grams (GRAMS) and had very little sensation of flush.  It seems critical for my treatment to have a flush.  I usually wait 20 minutes after flush (30 minutes?) before O.  I read that some here wait 60 minutes.  I will try that next.

I really don't want to become desensitized to niacin, but I am 25 and my sex drive is hard to deal with!!
 

Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15951 on: 03/04/2012 08:10:00 »
Hi,

Last week I posted that I am suspecting the long term effects of Chickenpox may be lead to POIS.  I have taken medicines used for healing chickenpox.  But none of them worked for POIS.

Interestingly, I observed another symptoms that will increase POIS effects me.  If I drunk Coconut water in POIS period my symptoms of POIS will increase and it will reach worst.  I drunk coconut water  in 4th day after "o" and the symptoms of POIS is increased worst like 2nd day.  During NOn-POIS days drinking of cocount water is not cause anything to me.  But if I drunk in POIS days, the POIS symptoms will increase and I feel like a some Bacteria / virus is growing in my body and If I drunk 2 or 3 coconut water, I will suffer throat infection on that day. 

Does any one observed this symptom?.   
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15952 on: 03/04/2012 10:57:46 »
Hi,

Last week I posted that I am suspecting the long term effects of Chickenpox may be lead to POIS.  I have taken medicines used for healing chickenpox.  But none of them worked for POIS.

Interestingly, I observed another symptoms that will increase POIS effects me.  If I drunk Coconut water in POIS period my symptoms of POIS will increase and it will reach worst.  I drunk coconut water  in 4th day after "o" and the symptoms of POIS is increased worst like 2nd day.  During NOn-POIS days drinking of cocount water is not cause anything to me.  But if I drunk in POIS days, the POIS symptoms will increase and I feel like a some Bacteria / virus is growing in my body and If I drunk 2 or 3 coconut water, I will suffer throat infection on that day. 

Does any one observed this symptom?.   
weird, coconut water actually makes me feel a bit livelier. How many people will be part of the first Nord research, assuming we find the extra money? Perhaps there are different kinds of POIS.
 

Offline chickenpox3

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15953 on: 03/04/2012 18:51:29 »
Hi,

Last week I posted that I am suspecting the long term effects of Chickenpox may be lead to POIS.  I have taken medicines used for healing chickenpox.  But none of them worked for POIS.

I support this hypothesis as well as my POIS started right after chickenpox (i was 21 years old). I have created a poll that asks if you had a chickenpox as a child or an adult: newbielink:https://docs.google.com/spreadsheet/viewform?formkey=dGQ5NFh5XzM3b0VLVGZBQk1XU240elE6MQ [nonactive] and encourage forum members to answer it so we will be able to say if the ration between us and healthy people in terms of chickenpox virus is the same.

Since many of us may have similar questions that can help to gather some statistics about POIS I also to created a poll that can be edited by anyone so if you can contribute to this poll with some question please feel free to do so: newbielink:https://docs.google.com/spreadsheet/gform?key=0AjR9YCwateRQdDF3ancwZndRWFBOT29CbFJLYVBYOVE&gridId=0#edit [nonactive]

Just click "Add item" in the left top corner, choose type of a question and fill the inputs.
« Last Edit: 03/04/2012 18:59:30 by chickenpox3 »
 


Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15955 on: 04/04/2012 10:38:21 »
why isnt their a Facebook page?

Hi Defsync,
Thanks for the thought. Actually, as Vincent Marcus pointed out to me a while back, there are actually two Facebook pages!

http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome/129914263717751
and
http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome-POIS/175719769110249

Didn't realise POIS has a facebook page. Thanks whoever did that. Not sure how many sufferers would be comfortable "liking" it on facebook though. 20 people have so far - don't know if they are sufferers or not
http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome/129914263717751

There are actually 2 POIS groups on facebook that I know of. Well one is just a page I guess, but this is the link to it: http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome-POIS/175719769110249

I made an alternate facebook account to "like" and join the groups.

Personally, I haven't joined either page. I can count on one hand the number of friends who know about my POIS and still have a finger left over. I'm not ready I don't think for everyone to know about my POIS. I do have some other friends who I'd be comfortable telling though. On that topic, if someone is reading this who hasn't told anyone at all about his POIS and is wondering about telling a close friend, well in my experience its a good thing to confide in some one. Its not such a big deal. People who care about you are understanding. It can seem like a huge step telling someone but in my experience it works out well and isn't an ordeal at all when you've done it, its a positive thing.

Of course having people who know about POIS and who are understanding is also a big part of what this forum does for all of us.
 

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15956 on: 04/04/2012 11:02:05 »
Click here to see The Now-Famous POIS Reddit Post (should we include this in the Welcome Post to newcomers?)

I don't think it does any harm to include it. Along with the mention of Girlwind's video, the tv shows, the NIH listing etc, it helps show that, as well as being a support group, we are pro-actively trying to raise the profile of POIS and improve our understanding of it. If someone joins our group and from the start is presented with the mind-set that we are a pro-active group, that can only encourage them to get down and contribute ideas and actions themselves. The other thing about reddit in terms of a newcomer seeing it is that it contains reactions from non-POIS sufferers, the vast majority of which are sympathetic/understanding. It shows how people perceive our condition. It also emphasises that POIS is one rare illness amongst many that exist and it needs to be tackled as such - by raising awareness, securing funds and carrying out research.
« Last Edit: 04/04/2012 11:04:46 by mellivora »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15957 on: 04/04/2012 22:54:16 »
Thank you, Mel!!!
 

Offline victor.kons

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15958 on: 05/04/2012 15:10:03 »
Hi,

Last week I posted that I am suspecting the long term effects of Chickenpox may be lead to POIS.  I have taken medicines used for healing chickenpox.  But none of them worked for POIS.

I had POIS since puberty and had a chickenpox in adult age, several years after I had POIS already
 

Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15959 on: 05/04/2012 22:57:48 »
I saw Dr Goldmeier today, a POIS specialist, i found him very easy to get on with.
He asked my symptoms and some general physical and mental health questions.
This is what he recommended after listening to my particular presentation:
*He thought that my general state of anxiety meant that orgasm plummeted me to a state of exhaustion which i could take on board, he suggested a book and the practice of mindfulness meditation to dela with the anc=xiety and bring about a more level state.
*Blood tests to determine levels of various things in my bloodstream - results in ten days.
* An antihistamine called Levatra that we agreed i could start if necessary after 8 weeks or so of the mindfulness practice.
* having neuropyschogical tests pre and post orgasm.
* seeing an immunologist when an appointment comes up in 2 months time. i suffer from tree pollen, animal fur, dairy allergy so various tests will be performed.

I feel very pleased with these actions, the British N.H.S. is truly wonderful, all these services free at point of delivery.

Dr Goldmeier said it seemed that my case was not as severe as some he had seen, I agreed that i had read what appeared to be more severe stories on the forum. He did not give definitive answers as to what caused POIS or say that he believed that any partiuclar anti-POIS strategy i was using was definitely working.
I believe however that Zinc supplements, Niacin (Flushing type -100mg) taken at a certain point before orgasm, gentle exercise and a new wonderful sexual relationship were all helping mitigate the effects of POIS.

I think its worth noting that this year my usual tree pollen allergy (hazel, cherry, laurel) has not started. This would usually be in full flow in April with debilitating effects similar to POIS. The only thing i can think of that is different this year is Niacin supplementation - 100 mg, probably 2 or 3 times a week and that this is somehow effecting the histamine in my body.

Anyway, i am happy to report all this and hope that the work Dr Goldmeier does with me advances the knowledge base about POIS. We will crack this together boys!!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15960 on: 06/04/2012 01:14:37 »
WONDERFUL POIS NEWS, BADGERSTRIPE! THANK YOU!

I ADMIRE AND APPLAUD DR GOLDMEIER'S GOOD POIS WORK!
 

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15961 on: 06/04/2012 08:13:06 »
Great news badgerstripe! I am starting my 4th week of the 8 week mindful meditation course (same book I think: http://www.amazon.co.uk/Mindfulness-practical-guide-finding-frantic/dp/074995308X/ref=sr_1_1?ie=UTF8&qid=1333696953&sr=8-1)

I have an antihistamine to test too - probably the same one - but am waiting for a non-POIS health issue to clear before trying it.

Really glad you went to Dr Goldmeier and thanks for reporting back. Good luck!

As I've said before, Dr G is willing to see anyone with POIS from the UK. (He's seen one or two POIS sufferers from other countries in Europe too).

« Last Edit: 06/04/2012 08:14:44 by mellivora »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15962 on: 06/04/2012 15:58:32 »

Dr. David Goldmeier, London is willing to see anyone with POIS from the UK. (He's seen one or two POIS sufferers from other countries in Europe too).


Dr. David Goldmeier in London is a wonderful and very knowledgeable physician-friend to POISers!

Very grateful we found him.

If anyone wants his email, or his published POIS paper (his PDF paper requires your regular email address) just send me a PM.
« Last Edit: 09/04/2012 15:20:50 by demografx »
 

Offline pois1

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Treatment
« Reply #15963 on: 06/04/2012 16:39:10 »
Has anyone had any luck finding someone to do sublingual immunotherapy?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15964 on: 06/04/2012 17:40:06 »

We will crack this together boys!!


Thanks, badgerstripe!!
« Last Edit: 06/04/2012 18:29:34 by demografx »
 

Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15965 on: 07/04/2012 00:08:32 »
Hello,

I shared some of things that bring some pois relief to me (p.660). It is especially stretching, or loosening of pelvic floor and strengthening of deep abdomen muscles. I suppose tail bone is affected too.

Did anyone have similar relief through this? Is it worth exploring further?

Niacin (with flush affect) is not available in my country. Under what name is it distributed in the US?

Do you live in the U.S.? Then i think it would be easy for you to find niacin in your country. Vincent Marcus could help you, because he lives in the U.S., but i am buying the niacin Solgar 100 mg- A brand from the U.S., representing Natureīs bounty?- in Spain. So you could try in any Wal-mart if you are living in the U.S.

Regards

Thanks for advice. I actually live in Europe. I will look for Solgar. Any other non time release brands available in Europe?

Someone mentioned that the most effective form of Niacin is nicotinic acid, not the nicotineamid. Does Solgar provide nicotinic acid form?

Yep, solgar provides the nicotinic acid form.

http://www.health4youonline.com/health_supplements_solgar_s_e1860.htm
« Last Edit: 07/04/2012 00:10:08 by observercenter »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15966 on: 08/04/2012 07:21:56 »
Thanks, B_Jim.
 

Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15967 on: 08/04/2012 13:35:36 »
ABC Australia is already announcing the next program about POIS - and another disorder- on 12th April in its website:

http://www.abc.net.au/catalyst/default.htm (Preview)
http://www.abc.net.au/catalyst/stories/3470261.htm

I do not know how we could watch it, maybe we have to wait after the official broadcast.
 

Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15968 on: 09/04/2012 07:30:10 »
Hi everyone,

10 days back, I decided to not to have orgasm for next one or one and half month and I wanted to see how I will be free in Non-POIS period.

In this forum, I read that Niacin will reduce the POIS symptoms.  In our area, Niacin tablets is not available.  Hence I decided to use B.Complex (which contain Niacin) tablets instead of Niacin.  11 days back i decided to have orgasm and I have taken B.complex tablets 4 hours before the orgasm.  After 4 hours of orgasm, I took another B.complex tablet.  Further I also used Garlic.    In the first day of orgasm, I noticed reduction in POIS symptoms and I recovered from POIS symptoms in just 3 and half days completely.  From fourth day onwards I am completely relived from POIS symptoms and I started enjoying the days (after long time in my life) and i got peace in my mind.  From the fourth day I started meeting with my old friends and spend a time with them.  During these days, I was very happy, my concentration level is very high with good memory power and I was enjoying the days. 
 Yesterday, it was my 10th day after "O" and I gone to movie with my friends in a very good mood and enjoyment.  In the beginning of the movie, my mind has calmness, good concentration level and happiness exist. 

In the middle of  movie there was a Romantic scene and Sexual scene for 5 minutes.   While watching the scene I was normal and I did't observed any thing at that time.  But after coming out from the theater I was experienced the first day of POIS symptoms.  I did't able to drive cleraly while going to home and my mind started to exhaust and my concentration level and memory power hit a worst and in the night (during sleep) i got many dreams (I usually got more dreams in POIS period, i don't know the reason why it is like this, I can say it is excessive dreaming that will happen in POIS period).   Today the symptoms reached worst.  The symptoms were same as second day after "O" and now it is confirmed for me that I experiencing POIS symptoms without had "O" and these symptoms triggered by just watching a 4 minutes romance and Sexual scene in a movie.   

Hi, does anyone has experienced this? and how POIS triggered by just watching a sexual scene in a movie.

 

Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15969 on: 09/04/2012 11:43:52 »
Finally!! We could watch the POIS documentary on ABC Australia at this link (from 12th April): http://www.abc.net.au/catalyst/vodcast/default.htm
« Last Edit: 09/04/2012 12:53:22 by observercenter »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15970 on: 09/04/2012 15:01:25 »

No, only orgasm can trigger Pois  for me.


Same.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15971 on: 09/04/2012 15:07:48 »
Observercenter, help!

How do I find POIS APRIL 12 VIDEO on that link???

(My menu stops @ April 5).

Thanks again!!!

« Last Edit: 09/04/2012 15:13:16 by demografx »
 

Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15972 on: 09/04/2012 16:56:48 »
Observercenter, help!

How do I find POIS APRIL 12 VIDEO on that link???

(My menu stops @ April 5).

Thanks again!!!



Hi demografx!

Sorry for the confusion, I mean that the video is going to appear on the same list on 12th April or just after the same day,  (the day when itīs going to be broadcast by ABC.)
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15973 on: 09/04/2012 21:22:36 »

Finally!! We can watch the POIS documentary on ABC Australia at this link. Mark April 12th and April 13th on your calendar to check for it:
http://www.abc.net.au/catalyst/vodcast/default.htm


observercenter, T H A N K   Y  O U !!!
« Last Edit: 10/04/2012 05:52:01 by demografx »
 

Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15974 on: 09/04/2012 21:38:16 »
Hi everyone,

10 days back, I decided to not to have orgasm for next one or one and half month and I wanted to see how I will be free in Non-POIS period.

In this forum, I read that Niacin will reduce the POIS symptoms.  In our area, Niacin tablets is not available.  Hence I decided to use B.Complex (which contain Niacin) tablets instead of Niacin.  11 days back i decided to have orgasm and I have taken B.complex tablets 4 hours before the orgasm.  After 4 hours of orgasm, I took another B.complex tablet.  Further I also used Garlic.    In the first day of orgasm, I noticed reduction in POIS symptoms and I recovered from POIS symptoms in just 3 and half days completely.  From fourth day onwards I am completely relived from POIS symptoms and I started enjoying the days (after long time in my life) and i got peace in my mind.  From the fourth day I started meeting with my old friends and spend a time with them.  During these days, I was very happy, my concentration level is very high with good memory power and I was enjoying the days. 
 Yesterday, it was my 10th day after "O" and I gone to movie with my friends in a very good mood and enjoyment.  In the beginning of the movie, my mind has calmness, good concentration level and happiness exist. 

In the middle of  movie there was a Romantic scene and Sexual scene for 5 minutes.   While watching the scene I was normal and I did't observed any thing at that time.  But after coming out from the theater I was experienced the first day of POIS symptoms.  I did't able to drive cleraly while going to home and my mind started to exhaust and my concentration level and memory power hit a worst and in the night (during sleep) i got many dreams (I usually got more dreams in POIS period, i don't know the reason why it is like this, I can say it is excessive dreaming that will happen in POIS period).   Today the symptoms reached worst.  The symptoms were same as second day after "O" and now it is confirmed for me that I experiencing POIS symptoms without had "O" and these symptoms triggered by just watching a 4 minutes romance and Sexual scene in a movie.   

Hi, does anyone has experienced this? and how POIS triggered by just watching a sexual scene in a movie.



Hi Nathan123, 

I believe that a few men have posted here (or on the SMF site) that sexual stimulation without the ejaculation does bring on POIS symptoms.

 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15974 on: 09/04/2012 21:38:16 »

 

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