The Naked Scientists

The Naked Scientists Forum

Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6450707 times)

Offline gabin

  • Jr. Member
  • **
  • Posts: 47
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16425 on: 14/05/2012 16:15:26 »
May GoingCrazy's success with sea salt and VitC be explained by the fact that sea salt is rich in iodine which in beneficial in treating thyroid gland diseases (such as thyroiditis)?
 

Offline observercenter

  • Full Member
  • ***
  • Posts: 87
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16426 on: 14/05/2012 17:19:43 »
Guys, thank you very very much for your support.

I have amazing news, my interview for El Mundo is done - I talk about how awful is this syndrome, that a lot of us are struggling with a very difficult condition and that the medical community knows very little about it. Also it is going to be stated that more research is neccesary. I have made my point very clearly that this is IN NO WAY a Psychological disorder . I have made a direct appeal(via video) to the readers to donate to NORD (i said that It doesn´t matter if is 1 $, 2$ or 5$, every little contribution will add). Our forum/ABC video is going to appear also. Everything is going to appear very clearly on the web-page/newspaper. Expect a "money-bomb" directed toward our NORD fund when the article appears(2-3 weeks, i am waiting for the final word on this issue).
They are also working on more interviews with several spanish specialists and i believe that they will make a graphic about the syndrome.

As always, i will update very soon about this issue.

That's great observercenter! Although I'm American, I lived in Madrid for a year (and have also lived in Central America). I speak Spanish and am happy to contribute to the article if they would like to interview a second person. El Mundo is one of the most popular newspapers in the country (think NY Times-esque), so this is big time! Bien hecho!

Hoping! Check your PM, El Mundo is interested in your POIS story!
 


Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16428 on: 14/05/2012 22:27:36 »
Guys, thank you very very much for your support.

I have amazing news, my interview for El Mundo is done - I talk about how awful is this syndrome, that a lot of us are struggling with a very difficult condition and that the medical community knows very little about it. Also it is going to be stated that more research is neccesary. I have made my point very clearly that this is IN NO WAY a Psychological disorder . I have made a direct appeal(via video) to the readers to donate to NORD (i said that It doesn´t matter if is 1 $, 2$ or 5$, every little contribution will add). Our forum/ABC video is going to appear also. Everything is going to appear very clearly on the web-page/newspaper. Expect a "money-bomb" directed toward our NORD fund when the article appears(2-3 weeks, i am waiting for the final word on this issue).
They are also working on more interviews with several spanish specialists and i believe that they will make a graphic about the syndrome.

As always, i will update very soon about this issue.

That's great observercenter! Although I'm American, I lived in Madrid for a year (and have also lived in Central America). I speak Spanish and am happy to contribute to the article if they would like to interview a second person. El Mundo is one of the most popular newspapers in the country (think NY Times-esque), so this is big time! Bien hecho!

Hoping! Check your PM, El Mundo is interested in your POIS story!

I also sent the above to Hoping's email address.
 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16429 on: 14/05/2012 22:35:15 »
May GoingCrazy's success with sea salt and VitC be explained by the fact that sea salt is rich in iodine which in beneficial in treating thyroid gland diseases (such as thyroiditis)?


I don't think so:

http://m.wisegeek.com/is-there-iodine-in-sea-salt.htm
 

Offline observercenter

  • Full Member
  • ***
  • Posts: 87
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16430 on: 14/05/2012 22:53:50 »
Guys, thank you very very much for your support.

I have amazing news, my interview for El Mundo is done - I talk about how awful is this syndrome, that a lot of us are struggling with a very difficult condition and that the medical community knows very little about it. Also it is going to be stated that more research is neccesary. I have made my point very clearly that this is IN NO WAY a Psychological disorder . I have made a direct appeal(via video) to the readers to donate to NORD (i said that It doesn´t matter if is 1 $, 2$ or 5$, every little contribution will add). Our forum/ABC video is going to appear also. Everything is going to appear very clearly on the web-page/newspaper. Expect a "money-bomb" directed toward our NORD fund when the article appears(2-3 weeks, i am waiting for the final word on this issue).
They are also working on more interviews with several spanish specialists and i believe that they will make a graphic about the syndrome.

As always, i will update very soon about this issue.

That's great observercenter! Although I'm American, I lived in Madrid for a year (and have also lived in Central America). I speak Spanish and am happy to contribute to the article if they would like to interview a second person. El Mundo is one of the most popular newspapers in the country (think NY Times-esque), so this is big time! Bien hecho!

Hoping! Check your PM, El Mundo is interested in your POIS story!

I also sent the above to Hoping's email address.
Thank you demografx, i was going to ask you to do the same thing.
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16431 on: 15/05/2012 01:12:08 »
This is such an exciting time here!
 


Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16433 on: 15/05/2012 13:56:17 »
Much of the world "news" trickling in is re-hashed old news. Nevertheless, it shows the exciting momentum of the outside world slowly but gradually - (and painfully for us) - learning about our condition.

And taking us more seriously.
« Last Edit: 15/05/2012 13:57:52 by demografx »
 

Offline Stef

  • Full Member
  • ***
  • Posts: 72
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16434 on: 15/05/2012 20:57:47 »
Hi All,

I was just reviewing all of NORD's grant funds with our accounting department, and was reminded that Demografx -- Your Main Moderator on NSF -- the guy who welcomes everyone to the forum, who acknowledges just about every single post, the one who makes sure that "safety first" is stressed regarding potential treatments, and the person who always thanks everyone for their research fund donations, regardless of the amount...

...that Demografx....

quietly DONATED $1,000 to the POIS research fund in early May!

I just thought you all might like to know this. :-)

Stef

 

Offline Range Of Motion

  • First timers
  • *
  • Posts: 1
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16435 on: 15/05/2012 23:49:23 »
Hello , this is my first post. I recently stumbled upon a TV show that was talking about a man that had POIS and that he was going to get amputation of his testicles. This scared me and also inspired my to conceive of this idea. See, I just recently graduated from massage therapy school , and while this does not make me an expert , I feel that I have some insight into the possible treatment of this condition.

First of all , I wanted to ask if any one out there (who has this) tried treating POIS with cool/cold hydrotherapy?

And secondly , after reading this article newbielink:http://www.actionlove.com/extra/testicularpain.htm [nonactive] , I read that when the SNS is firing too much down 'there' that this can happen.  To quote..."without sufficient prostaglandin E-1 in the penile prostate or testicle tissue, you will experience penile, prostate or testicular pains during sexual arousal or orgasm  when the tissue is excited and expanded by the sympathetic nervous beta receptor gene expression. Excessive oxytocin release during sexual arousal can induce excessive prostaglandin E-2 synthesis for penile, prostate and testicular pains. Excessive prostaglandin E-2 in the testicles will kill your testicular function!"

As I have studied in massage , autoimmune inflammatory responses can be treated with cool or cold hydrotherapy, in this case cool hydrotherapy would seem to be indicated. Also , with hydrotherapy , we can turn "up" or "down" the "switches" that control the SNS and PNS by placing certain temperatures on certain parts of the body.

I hope this helps!

If anyone would please like to comment that would be great!
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16436 on: 16/05/2012 00:05:43 »

Range Of Motion, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here.     


**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- or another forum member - - go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain.)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum.


Here are some POIS resources which may be helpful to you:

Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CCconfucius"!

Our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click here first, and then look for "CHAT" button towards top of page, 4th button to your right!

Our alternate POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php
Our 5-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


POIS Research Studies available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD, Ph.D., and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "My Messages" at the top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "





It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website. - Click here.

The Post Orgasmic Illness Syndrome (P.O.I.S.) Forum is listed in the organization database of the National Organization for Rare Disorders (NORD) -- http://poiscenter.com/forums/index.php.  The link for this, through their home page, is --
http://rarediseases.org/rare-disease-information/organizations/byID/3136/viewDetail.


POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.







 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16437 on: 16/05/2012 00:20:25 »


After reading this article http://www.actionlove.co m ...


Range Of Motion, sorry to report, but Actionlove.c om has been thoroughly discredited here.

Please click here for some of our website posting history here at the forum or by following the google instructions in the last part of your Welcome Post.

Range Of Motion, Welcome again!
« Last Edit: 16/05/2012 01:27:30 by demografx »
 

Offline EDS

  • Jr. Member
  • **
  • Posts: 36
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16438 on: 16/05/2012 00:21:09 »
Hi All,

I was just reviewing all of NORD's grant funds with our accounting department, and was reminded that Demografx -- Your Main Moderator on NSF -- the guy who welcomes everyone to the forum, who acknowledges just about every single post, the one who makes sure that "safety first" is stressed regarding potential treatments, and the person who always thanks everyone for their research fund donations, regardless of the amount...

...that Demografx....

quietly DONATED $1,000 to the POIS research fund in early May!

I just thought you all might like to know this. :-)

Stef



Way to go Demo!!

If we could all be 1/10 as dedicated as you toward the fight against POIS, we would be well on our way to finding a possible cause and cure!!!!
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16439 on: 16/05/2012 00:27:13 »

Hi All,

I was just reviewing all of NORD's grant funds with our accounting department, and was reminded that Demografx -- Your Main Moderator on NSF -- the guy who welcomes everyone to the forum, who acknowledges just about every single post, the one who makes sure that "safety first" is stressed regarding potential treatments, and the person who always thanks everyone for their research fund donations, regardless of the amount...

...that Demografx....

quietly DONATED $1,000 to the POIS research fund in early May!

I just thought you all might like to know this. :-)

Stef



Way to go Demo!!

If we could all be 1/10 as dedicated as you toward the fight against POIS, we would be well on our way to finding a possible cause and cure!!!!


Wow, EDS! And Stef!

Do I really deserve that?

THANK YOU!!!
« Last Edit: 16/05/2012 00:29:18 by demografx »
 

Offline Vincent M

  • Sr. Member
  • ****
  • Posts: 285
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16440 on: 16/05/2012 01:23:21 »
Once again great work, observer.
 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16441 on: 16/05/2012 05:07:25 »
Just checking in, I "O'd" 3 times today as part of my plan.  Usually I keep it down to 2-3 times per week with all the ejaculations happening on a certain day.  I am still POIS free, taking no supplements.  There IS a light at the end of the tunnel.
 

Offline kurtosis

  • Sr. Member
  • ****
  • Posts: 360
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16442 on: 16/05/2012 18:51:59 »
Just checking in, I "O'd" 3 times today as part of my plan. 
It does seem like a cunning plan!
 

Offline observercenter

  • Full Member
  • ***
  • Posts: 87
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16443 on: 16/05/2012 21:58:06 »
I will update tomorrow, but it seems that the POIS report is going to be published THIS SAME WEEKEND.

By this time,, Hoping should have done the interview. I am  very, very thankful that Hoping has joined me to do the interview. We will hear from him directly!
 

Offline observercenter

  • Full Member
  • ***
  • Posts: 87
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16444 on: 16/05/2012 23:28:09 »
There are several reasons that have made me to go "public" about this condition:

1.- My life has improved dramatically over these past months, and all of you are the reason.
2.- I look at my past, and how could i have progressed during the years i experienced this horrible condition, and i repeat to myself: Never again! . POIS has wasted so much time for all of us that we could not afford anymore to miss this opportunity to destroy this ugly monster(as demografx calls it; demografx you´re such a hero for me, your dedication and commitment to the cause should be an example for all of us).
3.- I have no shame. Sex is another dimension of the human life and POIS is not our fault.  We deserve to be treated like every other human and we have the right to ask for a research.
4.- I have told my problem to some of my friends and relatives. I am not "nervous" anymore(You will see it on El Mundo report) when i am talking about my problem. They fully support me and they have encouraged me to take this step.

We should do everything - I know for a fact that other POIS members are going to go public very soon about this problem in their countries, explaining it on the media - to have a research as soon as possible, and to get the medical community on board. POIS has a solution. If we  are like an "army of bulls" determined to beat this condition,this objective would happen very soon.

I hope my reflections are useful. I need your help. Thank you very much.
 

Offline silverandcol

  • Jr. Member
  • **
  • Posts: 49
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16445 on: 17/05/2012 00:37:09 »
Well done, I wish I was able to have such courage as you do.  This will be the year where we will make the most progress in POIS ever.
 

Offline jferr

  • Full Member
  • ***
  • Posts: 57
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16446 on: 17/05/2012 02:47:49 »
Hey guys. Im my POIS, burning eyes/eye pressure behind eyes/light sensitivity and cognitive symptoma seem to go hand in hand. Sometimes it takes me all day to open my eyes fully without redness.Does anyone else feel this way?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16447 on: 17/05/2012 03:22:46 »

Well done, [Observer], I wish I was able to have such courage as you do.  This will be the year where we will make the most progress in POIS ever.


Yes!
« Last Edit: 17/05/2012 04:38:39 by demografx »
 

Offline Stef

  • Full Member
  • ***
  • Posts: 72
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16448 on: 17/05/2012 03:56:44 »
Observer wrote:

"I have no shame. Sex is another dimension of the human life and POIS is not our fault.  We deserve to be treated like every other human and we have the right to ask for a research."

You are so, totally correct, Observer!!!  POIS is slowly coming out of that dark closet -- because of people like Animus and you! You're a hero to a lot of people!!!!
 
Can't wait to read that article!!!  Perhaps NORD can include a link to it on our FB and Twitter pages -- and who knows what else. (We'd only do this with your and Hoping's consent.)  Anything that will raise awareness -- and maybe bring in more funds for your grant -- is the goal.

Just think of the countless men you'll be helping by coming forward!

Break a leg this weekend, Observer and Hoping!!!!!

Stef
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16449 on: 17/05/2012 04:53:13 »

It seems that the [El Mundo] POIS report is going to be published THIS WEEKEND.


This weekend!

Exciting news, Observer.


« Last Edit: 17/05/2012 05:07:34 by demografx »
 

The Naked Scientists Forum

Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16449 on: 17/05/2012 04:53:13 »

 

SMF 2.0.10 | SMF © 2015, Simple Machines
SMFAds for Free Forums