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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6449102 times)

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17625 on: 15/01/2013 13:11:58 »
BIG NEWS!!!!!

Sorry for not connecting a lot lately, but i wanted to share that i'm 90% cured!! I explain everything on the other Pois forum: http://poiscenter.com/forums/index.php?topic=945.0

I'm so happy; LOL!

 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17626 on: 15/01/2013 13:39:01 »
BIG NEWS!!!!!

Sorry for not connecting a lot lately, but i wanted to share that i'm 90% cured!! I explain everything on the other Pois forum: http://poiscenter.com/forums/index.php?topic=945.0

I'm so happy; LOL!


That's great news. I think your tonsils were probably inflammed and it's interesting that tonsil stones are calcium deposits. Perhaps your cranial calcium levels were too high.

I've had several tests for sleep apnea and they've ruled it out. Any sleeping problems I have are down to sinusitis and there's no obvious allergic cause of the sinusitis. Indeed my IgE is low whether I have POIS or sinus blockage. I've been to 2 allergy specialists so far, trying to connect the sinusitis with POIS. Hence, the belief that it's a mast cell disorder but not due to a specific allergen.
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17627 on: 15/01/2013 13:40:08 »
BIG NEWS!!!!!

Sorry for not connecting a lot lately, but i wanted to share that i'm 90% cured!! I explain everything on the other Pois forum: http://poiscenter.com/forums/index.php?topic=945.0

I'm so happy; LOL!


I would also urge anyone who is posting here about something on poiscenter.com to repost the information here. This is a separate forum and some people are members of NSF but not poiscenter.
Thanks.
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17628 on: 15/01/2013 14:08:22 »

I would also urge anyone who is posting here about something on poiscenter.com to repost the information here. This is a separate forum and some people are members of NSF but not poiscenter.
Thanks.

Sorry, here is the post i wrote on the Poiscenter forum:

Hi guys! First i'd like to apologize for not connecting more often lately. The reason is that i don't wanted to think about Pois so much. But now i have some good news: I'm 90% cured!!! My biggest symptom was the headache i suffered in all my scalp after having an O. That headache lasted for hours and days and also caused me psychological symptoms. So, how i got cured? You wouldn't guess it: i had a total tonsillectomy. I always had what they call "cryptic tonsils" or "tonsils stones". You can check that on Google. It's kind of disgusting. I told my doctor about it and he says "it's not possible for a tonsillectomy to improve headache symptoms". Look, i don't care what he thinks about it LOL (i still think he is a great doctor). What i know is that now after the O. i don't have that debilitating headache anymore!!! I still have some stomach issues, but my main problem was the headache, and that is gone!

So, here are the hypothesis:

1) Tonsillectomy is good for Pois sufferers who have cryptic tonsils/tonsil stones. ---> this one is very likely
2) Tonsillectomy is good for Pois sufferers even if they have no problems with tonsils. (tonsils are lymphoid tissue)  ---> this one is not so likely
3) The antibiotics they gave me after the tonsillectomy were the reason for the headaches cure. ---> i don't know.
4) I had an underlying Sleep Apnea and I didn't know, and the tonsillectomy improved that ---> i don't know if i had a sleep apnea, but it's a possibility.


Kurtosis, i find very interesting the calcium topic. I think tonsil stones are made of calcium deposits, but also bacteria. Still, the main constituent may be calcium. But i believe if my calcium levels were (i don't know) high before the tonsillectomy, there would be still high afterwards...So i'm more inclined to believe my Tonsils were inflammed or were causing a weird immune reaction. Or maybe they were negatively affecting blood flow to my head/scalp.
 

Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17629 on: 15/01/2013 14:39:52 »
How long have you been better for?  I hate to say it, but many of us have improved for a week or two. Im really hoping this continues to work for you.
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17630 on: 15/01/2013 15:10:08 »
How long have you been better for?  I hate to say it, but many of us have improved for a week or two. Im really hoping this continues to work for you.

2 months aprox. I have waited those 2 months before posting it here because i wanted to be sure that the problem was solved. And indeed is. Before, i had instantly that scalp numbness and headache after the O. Now i don't have the scalp numbness and that horrible headache. I also hope it continues the same way!! The only symptom that remains is some stomach bloatness...In fact, last week i tried to have 1 O. per day (for me that is a lot) and i had no problems. It's been years since i was able to have 1 O. per day without symptoms. I'm even thinking about starting to look for a girlfriend, since i didn't want to have one while i had Pois.
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17631 on: 15/01/2013 16:44:20 »
BTW, even if i'm 90% cured, i want to still help on this forum, and to donate to NORD. Do you know if it's possible to pay using Paypal?
 

Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17632 on: 15/01/2013 16:59:40 »
90 %? So whats left?
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17633 on: 15/01/2013 17:19:40 »
90 %? So whats left?


Nothing really as important: just some stomach pain and bloatness, but nothing really serious. My main issue was the headache, fatigue and pshychological symptoms that lasted for days. And all of that is solved :)
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17634 on: 15/01/2013 18:32:38 »
90 %? So whats left?


Nothing really as important: just some stomach pain and bloatness, but nothing really serious. My main issue was the headache, fatigue and pshychological symptoms that lasted for days. And all of that is solved :)

Interesting. Can anyone who has POIS and who still has tonsils let us know?
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17635 on: 15/01/2013 19:08:01 »
I still have my tonsils, but I haven't had any problems with them that I'm aware of. I haven't been tested for sleep apnea so I suppose it's a possibility.
« Last Edit: 15/01/2013 19:15:12 by Vincent M »
 

Offline Prancer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17636 on: 15/01/2013 19:48:06 »
That's very good news Quasar! I still have my tonsils. I also don't have any of the symptoms of tonsil stones (but I just read that there sometimes are no noticeable symptoms and it's good to get X-ray to find out for sure).

As a quick side note, I just realized that I do have methylcobalamin B12 (the thorne capsules) that I bought a while back. I completely forgot that I had ordered it! I'll start taking them now as my source of B12, folate & B6.
 

Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17637 on: 15/01/2013 20:45:21 »
Hi all

Just a report ; I get really good result with ketoprofene (Nsaids) for treating POIS episode ;It's actually the fist drug thats clearly help me and I can say that after 2 month of use.Niacin taken in a daily basis helps also. I'm getting quite convinced that in my case POIS is a problem of brain vessels constriction or lead to this condition ;

Just a question : My doc who knows this condition(for him it's a form of Post coital head haches) want to have a close look to my brain vessels with the MRI  numeric capture(the DVD) to see if there is anomaly ; Has anybody had this kind of precise verification ?
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17638 on: 15/01/2013 23:32:07 »
@Lapoisse2

It's interesting. So, that Nsaid has 2 functions i suppose: 1) reduce headache pain (like any Nsaid) and 2) reduce vessels vasospam or constriction/dilation.  It's interesting because i think both mechanisms could be related. I remember having some success with Nsaids and also Paracetamol. One doctor recommended me once to take Propranolol.

Well, going back to my tonsils topic, i've made a new Poll here: http://poiscenter.com/forums/index.php?topic=946.0
 

Offline Nightingale

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17639 on: 15/01/2013 23:59:06 »
Still have my tonsils.  I have been diagnosed with mild sleep apnea, but it subsided with stopping a certain med.

I too will say what B_Daniel said: there have been quite a few people who have cured themselves only to come back later and say it just helped.  I don't want to ruin the party, but put it in perspective.  It could be temporary.
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17640 on: 16/01/2013 00:08:55 »
@Nightingale

Thats true. I'll never know if it will come back (hope not!). It's been 2 months. If it comes back i'll tell this forum ASAP.
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17641 on: 16/01/2013 14:00:06 »
Just a question : My doc who knows this condition(for him it's a form of Post coital head haches) want to have a close look to my brain vessels with the MRI  numeric capture(the DVD) to see if there is anomaly ; Has anybody had this kind of precise verification ?

I really think this is a great idea. I had an MRI and they didn't find any obvious problem but I guess it may have been more useful to have the MRI immediately after an O. I had allowed 3 hours to elapse for obvious reasons. I was in work that day... :)

However, I've always felt that part of my POIS was blood vessel related and I sometimes get mild headache symptoms that sometimes develop into migraines. It's rare but I don't think it's completely unrelated to my POIS.

So a question is what of the chemical cocktail that changes during an erection and following an O causes blood vessels to dilate or constrict?
Histamine is one neurotransmitter that does this. The Calcium channel also has an effect. Is POIS related to hypertension? Is there reduced NO production. All interesting questions to be explored with the help of a willing and interested neurologist.

For instance, have a look at supplements that cause vasodilation.
http://www.ehow.com/about_6615780_supplements-dilate-blood-vessels.html
Niacin, Vitamin C, Magnesium, etc. Ring any bells?
You could add ginkgo and l-arginine to this list. These are all things that have brought about some POIS relief for people. It's an interesting thought... :)
 

Offline helloworld

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17642 on: 16/01/2013 16:30:13 »
Hello everyone again -- I see that no one replied to my post awhile back, as at that time, everyone was posting about funding research into POIS. I still say, if you are feeling this way, try what I do which has been working for months for me -- it's given me a lot more energy and my sex drive has increased dramatically without the symptoms of POIS. I used to wait two weeks before having sex because of the way I felt, now I can have it daily and still feel that drive the next day with barely any POIS symptoms. You can try all of these supplements, but if you do what I do, you'll get all of that plus so much more. Here's part of my original post -- I really suggest you try it for at least a month and see the results you obtain. What I've found that works consistently to speed up feeling "normal" again is blending (not juicing) the following: kale (about a cereal bowl full -- make sure it's organic -- look up the 'dirty dozen',) blueberries (about one handful), strawberries(4-6), 2 bananas, Hershey's cocoa (non-alkalized -- about two teaspoons,) 1 celery stalk (organic -- look up the 'dirty dozen',) baby leaf spinach (about half a cereal bowl - organic -- look up the 'dirty dozen',) red globe grapes (seeded, including the seeds, about 10-15 grapes) and a half red bell pepper. I generally make about 4 full mugs full and drink it in one sitting. If you try this, be warned, your stool will be quite unpleasant the first one or two days. But one caveat -- be careful if you're on a low-oxalic diet, spinach and kale, and the berries do have a lot of oxalic acid. Hope this helps some people.

I've recently added organic grapefruit, oranges, red delicious apples, Ceylon and Indonesian cinnamon (not siagon -- too much coumarin for the dosage I use and the frequency that I use it.) Does it taste good? No. It's awful -- you're tongue doesn't know where to begin to describe all the types of taste. But it's loaded with just about every nutritional element your body needs. Blend it for at least 3 minutes on high -- as cellulose it tough to break down, and use a tight seal glass jar to keep a drink ready for the morning. Also, when drinking, keep the juice in your mouth for a few seconds to mix it with your salivary enzymes like ptyalin. Also, add some raw, un-roasted almonds, walnuts and cashews to chew on while drinking this -- the fat in the nuts help bind fat soluble vitamins.
 

Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17643 on: 16/01/2013 21:40:21 »
Interesting Hellworld.
Have you tried taking part of your ingredients and seeing what effects you get?
It's a complicated cocktail to just arrive at by accident :)

For example, I eat a lot of blueberries and have found that they appear to have positive effects on my sinusitis and memory. This may be due to flavanoids but I think the scientific consensus on these are "promising but more research needed".

http://www.scientificamerican.com/article.cfm?id=your-brain-on-blueberries

http://www.webmd.com/alzheimers/news/20100121/blueberry-juice-may-boost-memory

I found blueberries mentioned on some fora as useful for home remedies for treating sinus infections but it's not exactly peer reviewed publication material :)
 

Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17644 on: 17/01/2013 13:53:15 »
@demo

So, i just made a 50$ donation to Nord. Is not a lot, but i hope it helps, and maybe i make more donations in the future :)
 

Offline Kingkong

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17645 on: 18/01/2013 00:23:42 »
I still have my tonsils, but I haven't had any problems with them that I'm aware of. I haven't been tested for sleep apnea so I suppose it's a possibility.

I don't have my tonsils since I was 10 years old. I'm 53 now. And I have POIS. I should say that I have a saliva gland removed in 2004 because it was producing stones of calcium. Also, I stopped taking flunarizine yesterday. The sides effects were too hard for me. The sides effects were: fatigue, concentration's difficulties. I was sleeping 12 hours a day and it was'nt enough. I had also muscular pain. But I must say that flunarizine was very efficient for my POIS and my headache. I usually have headache 3-4 times a week. So I took flunarizine from november 19th to january 16th. Also, I sent my saliva sample to 23andME. They said that I will have my results at the end of febuary.
 

Offline RalphW

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17646 on: 18/01/2013 00:54:30 »
I've been a POIS sufferer for many years. Here's a bit of my history:
3 major concussions in my youth, masturbated frequently from the age of 13, extremely shy and anxious since childhood.

I started having headache/brain fog symptoms around age 25. My other symptoms include nausea, sinus congestion and tiredness. The brain fog is the worst part as communicating and focusing are difficult. Symptoms happen about one hour after ejaculation and last for days. The only time I can remember being symptom free is many years ago when my girlfriend went away traveling for a few months and I must have abstained or severely reduced my ejaculation frequency. I get less severe symptoms if I have sex but don't ejaculate.
   
I have been taking an MOAI anti-depressant for the last 10 years to treat social anxiety and depression. I have sleep apnea which is being treated. The scan they took showed excessive fluid levels in my sinus cavities but nothing more was said about that from the doctor.
Since reading this forum I have started taking Methionine, NAC (N - ACETYL CYSTEINE) and I'm about to start niacin. It's just been a week so no change yet.
Hopefully a cure will happen soon!     
 
 

Offline helloworld

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17647 on: 18/01/2013 02:56:47 »
kurtosis, I did try that at one point, but due to the daily demands in my life, I really didn't have the time to do so. I kinda have to beg to get 30 minutes just to prep/blend/clean with everything going on in my life at the moment. I will say this though, it did take sometime, about two weeks until I started to feel this way, i.e., feeling like my normal self, and having my sex drive return to an age about 15 years younger. Regardless of the specific components involved here for that particular effect, I'm doing this as a comprehensive approach for better health overall. I browsed many nutritional sites and read many books over the years, and found whfoods.com to offer a good amount of info on specific vegetables and fruits, and based on my personal research, I decided to go with that mix (occasionally, I'll also add in limes (love the taste of them) or lemons and baby carrots.) Quick note, I decided on blending because it's the only way I'm going to realistically eat all of this. Prior to this, whenever I did this, I start with the best of intentions and wind up a few days later only eating the convenient things (like blueberries/strawberries on cereal) and have the other items rot because I was to lazy to actually prepare a salad. But when I did do a salad, I still couldn't "eat" the amount I get by blending, let alone this kind of combination, and in addition, using dressing, the salad just kind of laid in my stomach for hours. Doing it this way, it just works for me, and I get my fiber + very easy clean-up compared to juicing, as there's no waste.

Again, no one here has anything to lose, other than possibly excess weight if they give it try with the potential to feel normal after orgasm + you'll be all the more healthier for doing so.

Have you tried taking part of your ingredients and seeing what effects you get?
It's a complicated cocktail to just arrive at by accident :)
 

Offline Nightingale

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17648 on: 18/01/2013 04:04:24 »
I've been a POIS sufferer for many years. Here's a bit of my history:
3 major concussions in my youth, masturbated frequently from the age of 13, extremely shy and anxious since childhood.

I started having headache/brain fog symptoms around age 25. My other symptoms include nausea, sinus congestion and tiredness. The brain fog is the worst part as communicating and focusing are difficult. Symptoms happen about one hour after ejaculation and last for days. The only time I can remember being symptom free is many years ago when my girlfriend went away traveling for a few months and I must have abstained or severely reduced my ejaculation frequency. I get less severe symptoms if I have sex but don't ejaculate.
   
I have been taking an MOAI anti-depressant for the last 10 years to treat social anxiety and depression. I have sleep apnea which is being treated. The scan they took showed excessive fluid levels in my sinus cavities but nothing more was said about that from the doctor.
Since reading this forum I have started taking Methionine, NAC (N - ACETYL CYSTEINE) and I'm about to start niacin. It's just been a week so no change yet.
Hopefully a cure will happen soon!     
 

Hi and welcome!  I'm glad you introduced yourself.  You definitely sound like you have POIS.  The biggest thing that has changed my life in regards to POIS has been the use of the niacin flush before orgasm.  That's the only real relief I have besides abstinence.

You are the first person I know to be taking MAOI's.  Those went out of style once they SSRI's came out, but are used when symptoms are so severe that it's worth dealing with the side effects.  I have been dealing with depression for nearly 10 years as well as bipolar type II.  I have unpleasant dreams with SSRI's, so I don't take them.  I had to spend 3 years in hospitals and group homes to overcome my severe depression and intermittent psychosis.  Have you ever been manic or psychotic?  I take an antipsychotic every day along with a benzodiazapine for anxiety.  Oh and lithium for bipolar (which actually is helping me with its antidepressant properties.

Induce that niacin flush (like get HOT and RED!), wait 20-30 min after the peak, and then have your orgasm.  I'm quite confident you will find relief!
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #17649 on: 18/01/2013 15:36:07 »
Nightingale, have you ever tried taking only the benzo without the antipsychotic and the lithium? And if so for how long were you only on the benzo?

Also was there a time when you were on the other two drugs without the benzo?

For me benzos have amazing anxiolytic and antidepressant effects where as actual "antidepressant" class drugs just make all of my POIS symptoms worse. In my reading on the subject I've found that this is also the case for many other people.

I suspect that it is the benzo that is actually helping you and the other drugs are probably just making you feel worse. In addition the benzo could be masking the side effects of the other drugs since it's a CNS depressant.
« Last Edit: 18/01/2013 15:48:45 by Vincent M »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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