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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6431982 times)

Offline fornicationDENIED2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18275 on: 04/06/2013 16:16:19 »
I know, but I am in remission, zero diarrhea and little pain, that is, until I ejaculate. POIS triggers the diarrhea.

More likely some consequence of orgasm triggers your IBD ... http://en.wikipedia.org/wiki/Occam%27s_razor

I just found out that  that pharmacological agonists of 5-hydroxytryptamine2A (5-HT2A)serotonin receptors can block the pro-inflammatory effects of Tumor Necrosis Factor (TNF) on smooth muscle vascular cells.5-HT2A receptor is involved in cognition. TNF is supposed to promote inflammatory reactions in Crohns disease. This is interesting because  serotonin appears to be pro-inflammatory, as a number of studies have shown depletion of serotonin within the CNS acts to reduce animal models of inflammation such as adjuvant-induced arthritis. However it suppresses multiple responses to TNF. Testing to find TNF active have failed, but I never had orgasms before testing. My Crohn diagnostic is not 100% accurate because of lack of acces to the small intestine, and gluten free diet helped me more than drugs, but any complex protein is not recommended for any IBD because it can cause issues on a damaged intestinal lining.  http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2861806/

Another indicator of low serotonin is that orgasms make me VERY hungry, serotonin activates some neurons and melanocortin-4 receptors, or MC4Rs, to curb appetite and at the same time blocks other neurons that normally act to increase appetite. High Acetylcholine seems like the path I should take , it is a serotonin antagonist, in a damaged intestine, I suppose  Acetylcholine binds to receptors in the intestine and induces that dreaded diarrhea, causes brain fog, joint pain, etc. The problem I face are the high costs of testing anything were I live. 
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18276 on: 04/06/2013 21:17:00 »
I've stopped taking fenugreek for the time being...I will be more accurate this time when I take it again and then get back to you.

Thanks for your response.
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18277 on: 04/06/2013 21:25:13 »
hi guys, my syndrom is getting better after i use protein powder. It really helps, about 85-95%.. I should have tried it after i read, it was a little bit too late. I luckily coincidentally took a protein powder at the supermarket, drank it after ejaculation, and miracle happened....

answon1, could you give us a list of your exact symptoms? I'm trying to compile our symptom&treatment data on all our members. At this point it seems to me that the most common POIS symptom is cognitive impairment(brain fog), but there have been members with virtually any symptom you could imagine.
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18278 on: 05/06/2013 00:19:48 »
When I am at my worst and falling apart.... I get what smells like Ammonia in the back of my nose.... very slight smell... this is new... but then again my POIS is getting worse as time goes on..... :-(

PS.
 

Offline answon1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18279 on: 05/06/2013 03:49:00 »
Hi Vincent, hi folks,
of course..i will do, sorry i'm too lazy to scroll over the pages in this forum again to collect the symptoms the same i have like you all. So now i'll try directly to describe it as good as i can: Yes, I have like a brain fog, i can't think clearly, its difficult to concentrate, memory loss, its difficult to take informations from my memory while thinking, speaking, connecting, and processing the informations i have in mind,  i can't speak fluently especially for foreign language, difficult to hear (maybe earfog?? ;) ), difficult to social behave, also physically loss of endurance and coordination while taking a sport like jogging etc., leak of motivation for example going outside to the school, university, to socialize, meet many people or someone important. But i don't have symptoms like burning nails, back pain or such a things.
 

Offline gondal4

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18280 on: 05/06/2013 06:35:18 »
First i had symptoms like all you guys brain fog,fatigue etc which usuallly lasted on day,then i had jaundice, it remain for 4 months i could not eat anything and got sevely weak lost more than half of my weight.(it was in 2009)
After that the symptoms changed,brain fog was permanent after O my abdomen becomes so weak that i could barely walk and could not travel in car because abdomen becomes so weak it feels like it will break when i walk more than five minutes i cannot.these symptoms remains 4,5 days.
Any idea what causing this?
 

Offline shen mue

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18281 on: 05/06/2013 10:14:52 »
newbielink:https://www.aldi-sued.de/de/angebote/angebote-ab-donnerstag-2-mai/detailseite-kw18-do/ps/p/multinorm-power-eiweiss-shake-122portionen1/ [nonactive]

Its not from meat, its from milk, soy, collagen, egg-white..

I'm German too and at the moment looking for a protein shake. Gonna try that too :)
 

Offline shen mue

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18282 on: 05/06/2013 10:17:26 »
Shen Mue,

yes, don't overdo with investigations and don't get stressed about it. Gather the info, then make up your mind on how to move in health jungle :-)

I'm not aware of any totally reliable blood tests to assess one's methylation status. Homocysteine, and possibly methylmalonic acid, might give a clue. Then there are the genetic testings to determine MTHFR polymorphism, which I've seen discussed here sometimes. I don't really know if testing histamine or glutathione would really shed a light on this... There are people here more expert in methylation than me. I would also be interested to learn if one can actually determine under/over-methylation from labs, directly or indirectly.

Insufficient cortisol production is often correlated to hypoglycemia and sugar drops after meals. Adrenal dysfunction can also mean a mix of low-high cortisol during the day (salivar tests give a clue about it), so you might see a mixed behaviour. Also there are different degrees of adrenal fatigue/dysfunction. But then, there are other factors in play to control blood sugar management, such as insulin production and insulin resistance.
As you have it handy, you might play a bit with a glucometer. Take tests AM fasting, then 30, 60 ,120 mins (or 45 and 90 mins if you want to spare strips and time) after each meal, for 5-7 consecutive days. Take multiple tests each time because I've seen these values fluctuating a lot, then average them out.
Ideally, you do not want blood sugar to go over 140 and under 75-80 after a meal. If it goes over 140 consistently, either you are eating too many carbs, or there is something going on with your insulin (insufficient or resistance). If it goes under 75-80 repeatedly, there might be a reactive hypoglycemia possibly caused by insufficient cortisol. If you can't figure it out this way, you can take a Glucose Tolerance Test (GTT) with both sugar and insulin measurements, and watch at their curves.

If you will decide to go for a salivar cortisol/DHEA, stop adrenals-affecting supplementation (DHEA) at least 2 weeks before.

I hope this helps.
Andrea

thanks for the help; a lot of those things shouldn't be hard to do...I'll come back to the forum once I have some updates
 

Offline Mer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18283 on: 05/06/2013 11:07:00 »
Hi everyone!

Instead of semen allergy, I think POIS is some sort of neural fatigue triggered during/after orgasm.  Basically all the nerves in body suddenly get very weak in responding. The drop and looseness of all the hair on body after orgasm, drop of facial tissues, slow motor response, weakness of all muscles, slow mental functioning (brain fog), vision tiredness/fatigue, etc. all could be strongly related to how responsive our nerves are.  I think this fatigue is caused by a delay in responsiveness of the neural network throughout body, caused perhaps by presence of an "extreme amount" of some series of chemicals. I put the "extreme amount" in quotation marks, implying that the amount of those chemicals present in our blood tests may be considered normal to doctors, while it is too much for our body. One type of experiment could be useful in testing this hypothesis, in which a series of complete blood tests before and after orgasm to be taken; identify which chemical levels in blood has dropped/increased. Externally inject those chemicals in body and see if POIS symptoms appear. Or possibly a series of simulation of orgasmic functions on body could sort out what causes what during orgasm.

Whatever it is, once released causes my nose to become inflamed both internally and externally. Breathing then becomes difficult for me. I also get a lump on my throat with  white color. I have to put more efforts to focus my eyes on an object. I look at things but then it takes me a few seconds to realize what I just looked at and then associate it with my current thought process. I can only remember 1 or 2 words at a time and I can't simply put words in a sequence in my mind once I heard them and recall them. (I speak English everyday, but it is not my first language. I perform better when I have to speak my first language when in POIS but still the problem exists in either case.)

My brain fog disappears quicker when I speak to someone and discuss about something that I know a lot about or something that makes me think in depth. I find talking a very quick way to get rid of my brain fog. Folks, you could try it and see if it works!

I used to stutter a lot when I was a teenager. after the age of 18 my stuttering reduced significantly that it became unnoticeable. However, when in POIS mode, I just stutter like I was younger. I feel I cannot take full control of my speech. After a few days, when my POIS is gone, I then speak normally.

I strongly believe that we need to focus on neurological changes after orgasm and during POIS. The re-appearance or increase of stuttering seem to be highly correlated to neural responsiveness.

Does anyone else has/had stuttering issues and has felt the difference while in POIS?
 

Offline meteo74

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18284 on: 05/06/2013 11:50:32 »
 
  Surely , stuttering is the big problem with me while in pois,and I can't find words .

hi every one  ,Is there some food reduces pois?
« Last Edit: 05/06/2013 11:55:18 by meteo74 »
 

Offline answon1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18285 on: 05/06/2013 13:34:57 »
newbielink:https://www.aldi-sued.de/de/angebote/angebote-ab-donnerstag-2-mai/detailseite-kw18-do/ps/p/multinorm-power-eiweiss-shake-122portionen1/ [nonactive]

Its not from meat, its from milk, soy, collagen, egg-white..

I'm German too and at the moment looking for a protein shake. Gonna try that too :)

It's only the brain fog that i have the same symptom like you, but hope it will work for you too.. Grüße
 

Offline gondal4

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18286 on: 05/06/2013 15:45:45 »
For some reason no one wants to reply to my posts,im leaving this forum.Thank you
 

Offline answon1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18287 on: 05/06/2013 17:39:25 »
First i had symptoms like all you guys brain fog,fatigue etc which usuallly lasted on day,then i had jaundice, it remain for 4 months i could not eat anything and got sevely weak lost more than half of my weight.(it was in 2009)
After that the symptoms changed,brain fog was permanent after O my abdomen becomes so weak that i could barely walk and could not travel in car because abdomen becomes so weak it feels like it will break when i walk more than five minutes i cannot.these symptoms remains 4,5 days.
Any idea what causing this?

i don't know, but it's sad man.. what do you have for symptoms now? you said you had, but now?
 

johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18288 on: 05/06/2013 17:47:18 »
So my question to all of you is: has anyone else tried going gluten and lactose free and did that affect your POIS symptoms?
Cheers

Swedish: POIS gör oss extremt mer känsliga för ibs, gluten, laktos. Har samma erfarenhet. Har också drabbats av en i mitt fall tung depression.

POIS makes me much more vulnerable for IBS, lactose, gluten.
However, not doing O:s I have no major problems with lactose and gluten.
 

johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18289 on: 05/06/2013 17:50:11 »
This site has made me much stronger. Try it, will open your eyes to porn addiction.
http://yourbrainonporn.com/uncle-bob-porn-addiction-recovery-tips
 

Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18290 on: 06/06/2013 19:53:56 »
I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case
 

johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18291 on: 06/06/2013 22:15:24 »
I too have had test results with a heighten level of calcium.
 

Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18292 on: 06/06/2013 23:12:00 »
I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18293 on: 07/06/2013 05:38:12 »
Thanks for listing your symptoms, answon1. I've added the data to my compilation.

As of now the work is far from complete and mostly what I've tried to do so far is get a link to each pois member on nsf in order to easily find their profile/posts along with a few symptoms/treatments that I happened across in the process. Eventually I want to have all the members symptom data and primary treatments with links to their posts all on one page so a simple ctr + f search will return that data, but I'll be taking a break from working on it for a while.

Here is the link to what I have done so far in case anyone is curious or would like to continue where I've left off:

https://sites.google.com/site/poiscompilationsbyvm/

Also I'd like to remind everyone to post your pois summary, which should at least include your symptoms and treatments in an organized manner at this thread on our main forum: http://poiscenter.com/forums/index.php?topic=81.0
« Last Edit: 07/06/2013 06:06:23 by Vincent M »
 

Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18294 on: 07/06/2013 06:30:11 »
For some reason no one wants to reply to my posts,im leaving this forum.Thank you

Many ideas and much speculation on the cause of POIS has taken place on this thread and at our main forum. All of that data is available for you to search through, although I don't remember any other members including jaundice and intense abdominal weakness among their POIS symptoms. None of us can tell you for sure why you had jaundice or why your abdomen got weak. Many of us do experience muscle weakness as a symptom and it seems like your abdominal weakness could be a more severe form of that.

You have contributed to our cause by sharing your experience with POIS with us. Perhaps others will come here with the same symptoms as you and may benefit from the data you've provided. I'm sorry you haven't found a treatment to relieve your symptoms yet.
« Last Edit: 07/06/2013 06:39:59 by Vincent M »
 

Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18295 on: 07/06/2013 12:11:31 »
I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

Urano, thanks for your explanations wich are always interesting to hear.
From what I understand, low ceruloplasmin/low total copper would be more mean copper toxicity due to to much free copper than the opposite.

Actually with this blood tests and my symtoms, it could be a suspicion of Wilson disease.

I dont think I have Wilson's(I need to check My 24h copper) but I could have a problem due too a bit two much of free copper in my system.

How do you see that adrenals are week ?..what is the link with ceruloplasmin ? Is there a way to monitor adrenal functions ? A way too improove it's functions ?Have you heard about hyperparathyroidy ?

 

Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18296 on: 07/06/2013 13:36:37 »
I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

Urano, thanks for your explanations wich are always interesting to hear.
From what I understand, low ceruloplasmin/low total copper would be more mean copper toxicity due to to much free copper than the opposite.

Actually with this blood tests and my symtoms, it could be a suspicion of Wilson disease.

I dont think I have Wilson's(I need to check My 24h copper) but I could have a problem due too a bit two much of free copper in my system.

How do you see that adrenals are week ?..what is the link with ceruloplasmin ? Is there a way to monitor adrenal functions ? A way too improove it's functions ?Have you heard about hyperparathyroidy ?

Lapoisse,

I have already answered to some of your questions about your labs in #18821, you possibly overlooked it:

"About (very slightly) high calcium, have your PTH and Vit D3 tested to rule out hyperpara or D overdosing. It can be an idea to test ionized calcium too next time.
Sodium is a pinch low maybe, ideal is about 141. Check if you had aldosterone/renin in some recent labs, and they were OK. Do you have postural (orthostatic) hypotension?
Your TSH is a little on the low side, even though plain FT3/FT4 values don't fully suggest overactive thyroid. Check your temps and heart rate as I suggested in my previous post.

I've also written several posts recently on how to assess adrenal function with temperatures, blood pressure, salivar and blood tests, please check them.

I don't normally write much about recovering adrenal function because I'm in the process of finding the way out myself after trying so many different things.
Also, recovering from an adrenal crash can be a process lasting for months and even years, and demands a change of lifestyle in terms of stress management, diet, exercise, sleep habits, so it requires a lot of dedication and patience.

In a nutshell, depending on the adrenal status, you can use adaptogenics herbs, vitamins & minerals, glandulars and in more serious cases hormones replacement (pregnenolone, DHEA, HC or isocort...). I don't really recommend using hormones (which I did) if not strictly necessary, because they just replace from the external what should be balanced from the inside, and worst might lead to adrenal suppression if not used very carefully.

This is really something one has to find his own way. Some startup resources in http://www.stopthethyroidmadness.com/adrenal-info/

About ceruloplasmin I am not very expert on this, so take my statements easy. And the copper topic is a tricky one morever.
Low ceruloplasmin depends either on the fact that you liver dosn't make enough of it, and one of the most likely causes is low adrenals.
Or that you do not have enough bioavailable copper around, either because you are copper deficient, or because you tend to accumulate it in tissues (Wilson is a rare and extreme cause of that). Copper imbalance typically affects iron metabolism as well.
As serum copper/zinc values do not seem to be very representative of what's stored in tissues or used by cells, they don't really shed much light in themselves.

Personally, I do have a cerulosplasmin on the low side the same as you do, and I've had a chance to see the same in few other POIS suffererers, so I tend to believe that copper metabolism might have an importance in our symptoms, at least for some of us.

Maybe someone knows more about this and can explain it better.

I hope this helps in the meantime.
 

johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18297 on: 07/06/2013 17:52:24 »
Thanks for listing your symptoms, answon1. I've added the data to my compilation.

https://sites.google.com/site/poiscompilationsbyvm/


Wow, what a work you have put down. Impressing, you are a true hero to me  :D
 

johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18298 on: 07/06/2013 18:15:52 »
Could it be that we suffer from some worm or bacteria induced by cunnilingus?
 

Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18299 on: 07/06/2013 22:33:14 »
As I sometimes receive questions on what I say about adrenals and adrenal fatigue, I've come across this very simple and concise article:

http://www.liveinthenow.com/article/10-ways-to-optimize-your-adrenal-function
 

The Naked Scientists Forum

Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18299 on: 07/06/2013 22:33:14 »

 

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