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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6461848 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1850 on: 04/11/2008 19:04:20 »
TESTING, SUPPLEMENTS, Rx, MD's vs. ALTERNATIVES

To Everyone: None of us are here as your medical practitioner or healthcare provider.

Some of us may have strong opinions, but it is your body, and your decision!

So please: follow your best knowledge and intuition, including which healthcare provider can best help validate or augment your decisions.

I only ask you for one thing: PLEASE don't hold back in sharing your experiences by posting them here, good and bad. THAT is how we will ultimately find the best POIS remedies!

And PLEASE don't be swayed from reporting your experiences here just because someone disagrees with your methods or remedies. I, for example, have found POIS relief with Levitra, a somewhat risky drug which may not please those who favor a more naturopathic route. But I still wish to learn from the alternative methods because I suspect there are more benign supplements that may do the trick, including fenugreek and relora! I, however, choose to wait to test my supplements because i don't know how they interact with my Rx meds (especially relora, which is not in my pharmacy's Rx-interaction system...but fenugreek is).

But others here, as they have indicated, have chosen to try fenugreek and relora and may not have those interaction concerns.

As to "required testing", there is no such thing here! Only if you wish to do so, or your healthcare provider suggests that.

I look forward to reading about your latest adventures! Soon!



 :)
« Last Edit: 04/11/2008 22:10:26 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1851 on: 04/11/2008 19:59:53 »
My opinion on thyroid tests - listen to Girlwind, I have heard of too many cases where people continue to suffer for years after only having just basic TSH test or having to fight doc to try different drug treatment.

I assume a Comprehensive Male Profile such as ZRT Labs provides will include this thyroid test plus Free Testosterone?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1852 on: 04/11/2008 22:37:56 »
B_Jim, I'm on Day Zero and I just went on The B_Jim Protein Plan! (Hope to avoid those nasty carbs!)

 ;D
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1853 on: 05/11/2008 04:25:41 »
thank you very much for sharing your painful experience and shedding more light on the MD vs. naturopath debate.
No problem Demo. We have had a similar debate already in the forum with the same people involved. It's just a remake!

Alternative Medicine vs. MD testing
it doesn't exist or it must be depression. For most GPs or MDs (depending on where you live), that is the basket for POIS.

I finally had my free T tested and it came back abnormal.

I heard of someone who had hypopituitism who also had POIS
Nice post Acronym. Did you try to take antidepressants or testosterone ? If yes what were the results ? I'm wondering how you can arrive to a diagnostic of CFS. I heard you have to eliminate all other possible diseases before. Thanks for your answer if any.

I have never done a test for hypopituitarism in pois.
It could be interesting. However my FSH and LH were both normals 15 days after release while I wasn't symptomatic. At 23 my GH was normal, I was mild symptomatic during the test.
« Last Edit: 05/11/2008 04:27:54 by martin88 »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1854 on: 05/11/2008 15:33:12 »
Like Girlwind and many other CFS suffers you lose faith in conventional doctors after a while. I am currently seeing a great doc
who is a laterall thinker and researches, but they are the exception. I agree with the comment most probably don't do much in
the way of furthering their knowledge past graduation. If it was not in their textbook then it doesn't exist or it must be depression.
For most GPs or MDs (depending on where you live), that is the basket for POIS.

My opinion on thyroid tests - listen to Girlwind, I have heard of too many cases where people continue to suffer for years after
only having just basic TSH test or having to fight doc to try different drug treatment.

I have made a post regarding POIS on a pituitary forum asking if its members can relate to POIS. I heard of someone who had
hypopituitism who also had POIS. I have been diagnosed with hypopituitism. On this pituitary forum there are also numerous
stories of people getting dicked around by incompetent/negligent/lazy medical specialists. I will monitor my post there and report
back what I get.

Thank you, Acronym, for your post. It is very validating to hear the experiences of another with both CFS and POIS.
What I wouldn't do for a great doc who is open to research....  I have been looking for this for 30 years!

And yes, regarding thyroid, I am one of those who has suffered for DECADES, without anyone even bothering to seriously
investigate my thyroid levels. THis is why I have been so strongly urging others to take initiative to do thyroid tests. It's
a simple action that could save you from many many years of worthless exhaustion.

As for the pituitary... PLEASE TELL ME WHAT TEST(S) YOU USED TO CHECK PITUITARY FUNCTION. I would like
to check this out on myself. 
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1855 on: 05/11/2008 15:43:45 »
My opinion on thyroid tests - listen to Girlwind, I have heard of too many cases where people continue to suffer for years after only having just basic TSH test or having to fight doc to try different drug treatment.

I assume a Comprehensive Male Profile such as ZRT Labs provides will include this thyroid test plus Free Testosterone?

The ZRT tests in the Comprehensive Male Profile I are mostly saliva tests. Only the thyroid is tested via blood. There is
another panel that is mostly blood tests. If you want to know more, you should read about them, or call the lab and get
your questions answered directly through them.  http://www.zrtlab.com/Page.aspx?nid=12&action=view&category=3

ZRT LAB   (1-866-600-1636)




« Last Edit: 05/11/2008 15:45:42 by girlwind »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1856 on: 05/11/2008 16:31:18 »
The ZRT tests in the Comprehensive Male Profile I are mostly saliva tests. Only the thyroid is tested via blood. There is another panel that is mostly blood tests. If you want to know more, you should read about them, or call the lab and get
your questions answered directly through them.  http://www.zrtlab.com/Page.aspx?nid=12&action=view&category=3
ZRT LAB   (1-866-600-1636)

Thanks, girlwind, as you can tell I'm new at this. Ever since my less-than-ecstatic alternative therapy experiences I've avoided this route. But it seems like you know who "the good guys" are in this world, thru painful trial and error.
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1857 on: 05/11/2008 18:20:44 »

It is as if i become diabetic after orgasm.

Me too.  It's just weird...and quit unnecessary :)

Relora Results - after taking relora for a week I noticed a reduction in POIS symptoms and duration of period - approximately 50% for each.  I've decided to stop taking relora altogether because I didn't care for it's side effects - extreme relaxation, low motivation, and I would feel a weird content glaze affecting my personality.  I seem to be quit sensitive to it.

I'll now try fenugreek - just purchased a bottle of solgar at vitamin shoppe.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1858 on: 05/11/2008 19:57:23 »
POIS DIARY

Just wanted to check in: I took Levitra yesterday and today is Day 1. 75% relief. It's continued to work well for over a year now, but I'd still prefer the naturopathic route.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1859 on: 05/11/2008 19:59:56 »
Relora Results - after taking relora for a week I noticed a reduction in POIS symptoms and duration of period - approximately 50% for each.  I've decided to stop taking relora altogether because I didn't care for it's side effects - extreme relaxation, low motivation, and I would feel a weird content glaze affecting my personality.  I seem to be quit sensitive to it.

I'll now try fenugreek - just purchased a bottle of solgar at vitamin shoppe.

Limejuice, thank you for this!

As I mentioned earlier, "bad" experiences, such as side effects, are very important for all of us to know.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1860 on: 05/11/2008 20:03:02 »
...THis is why I have been so strongly urging others to take initiative to do thyroid tests. It's
a simple action that could save you from many many years of worthless exhaustion.

Girlwind, sorry if this is repetitive, but have you found effective treatment for thyroid?
 

Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1861 on: 05/11/2008 20:27:49 »
RE: Limejuice

Relaxed, content, and low motivation….. That sounds like the perfect state of mind!!!!! Thought, I guess I can understand not liking the low motivation. I'm taking Theanine serene with Relora and its doing wonders. Still haven’t POIS tested it yet, but it's doing wonders for the rest of my life. I guess though for me I don't get hyper sedated because I'm taking an herbal mix that has ginseng in it. It's like I'm relaxed and have energy at the same time. The herbal mix is for what my Traditional Chinese Medical doctor calls kidney chi deficiency. Which in western terms I think means and imbalance in my hypothalamic pituitary adrenal axis. Anywho, after a couple weeks more of treatment I'll do some testing and see how my POIS reacts to what I've been doing. I figure this little regime I'm on is good because I'm boosting the ability of my H.P.A. axis to deal with stress(ginseng/ TCM herbs) and I'm lowering my stress response with the theanine serene with relora. We’ll see how it goes. Maybe when I test I’ll take some fenugreek the day of and day after if need be.

Oh…..about fenugreek and my concerns with breast development in men who take it. It appears the risk of gynecomastia (man boobs) is somewhat small. One article I read said fenugreek contains a compound called diosgenin. Diosgenin a compound sometimes used in the creation of synthetic estrogen. Estrogen is the primary sex hormone of female breast development. However the estrogen like effect of fenugreek is not the same thing as real estrogen. Fenugreek estrogen is a phytoestrogens (plant estrogen). These estrogen like compounds actually bind to estrogen receptor sites in the body and may actually decrease the effects of estrogen in the body because the real biological form of estrogen cannot bind to it’s receptor site. (so it might actually lower estrogen in the body)

Fenugreek definitely increases milk supply in nursing mothers which is one thing that would increase breast size. It also increases water retention…another thing that could contribute to its apparent breast growing effects.

However, despite all this….it’s hard to ignore a centuries old claim that fenugreek increases breast size. But, if it is the case that fenugreek increases breast size then at least there is a remedy for that. According to some sources one effective treatment for gynomastia (man juggs) is to take turmeric. Apparently it reduces breast tissue and I believe abdominal fat as well. Many men have used it for more classic cases of gynomastia (man knockers) So…..whenever I take fenugreek, I take turmeric right alongside it just to be safe. Tumeric is also good for the liver.
Hope this helps some of ya’ll.

 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1862 on: 05/11/2008 20:59:09 »
...THis is why I have been so strongly urging others to take initiative to do thyroid tests. It's
a simple action that could save you from many many years of worthless exhaustion.

Girlwind, sorry if this is repetitive, but have you found effective treatment for thyroid?

I'm working on it. See my post on this page--up above: MessageID: 203282
 

Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1863 on: 05/11/2008 23:19:06 »

It is as if i become diabetic after orgasm.

Me too.  It's just weird...and quit unnecessary :)

Relora Results - after taking relora for a week I noticed a reduction in POIS symptoms and duration of period - approximately 50% for each.  I've decided to stop taking relora altogether because I didn't care for it's side effects - extreme relaxation, low motivation, and I would feel a weird content glaze affecting my personality.  I seem to be quit sensitive to it.

I'll now try fenugreek - just purchased a bottle of solgar at vitamin shoppe.

I just wanted to second this.  I've been taking Relora for 4 days now, three times a day.  It clearly has diminished my POIS symptoms (less brain fog, etc) to about 25%.  As for the duration of symptoms, I can't say at this point.  I have also noticed its relaxing effects as well as the lowering of motivation, but these effects aren't strong enough for me not to ignore.  So far, Relora is working better than anything I've tried before.  Of course I do still feel a little weird...for some reason my head feels kinda bloated.  I'll continue taking Relora and keep posting....

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1864 on: 06/11/2008 02:21:56 »
...I've been taking Relora for 4 days now, three times a day.  It clearly has diminished my POIS symptoms (less brain fog, etc) to about 25%.  As for the duration of symptoms, I can't say at this point.  I have also noticed its relaxing effects as well as the lowering of motivation, but these effects aren't strong enough for me not to ignore.  So far, Relora is working better than anything I've tried before.  Of course I do still feel a little weird...for some reason my head feels kinda bloated.  I'll continue taking Relora and keep posting....

Pyro, thank you. Just be careful with relora with Rx meds, and non-prescription too, since there's nothing in the pharmacy computers to check it against other stuff.(Fenugreek is in though)

Great news!
« Last Edit: 06/11/2008 02:25:00 by demografx »
 

Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1865 on: 06/11/2008 02:23:50 »
I have been taking Relora for about two weeks now.  Three times a day.  I have had about eight orgasms.  I feel so normal that I now don't even worry about the my symptoms coming.  I do feel more relaxed because of Relora (or maybe its because of the orgasms).  But I don't mind that because I am normally very stressed.  However, I still have motivation, so I am not sure if that is a side effect of Relora or not.

I am amazed that I feel no more side effects.  Limejuice and others, I am not sure why I have an almost 100% reduction instead of just 50 or 25%.  Must be a biological difference.

I see no reason why I can't continue taking Relora indefinitely.  The ingredients are natural and I feel awesome, since I don't have to worry about POIS and the intense pressure to satisfy my desires (I used to battle with myself for hours because I had such intense sexual urges).  Now I have lots of time to make productive without the stress of intense sexual desire.

I can't tell you how great this forum truely is.  How many times have you heard about a large group of people coming together, most of whom have no medical background, and finding certain medicines and herbs that fix the chemicals of the body.  That is why humans are so incredible!

It's amazing how ajusting just a few chemicals like cortisol (a chemical?) can actually change a persons entire life.  It will change my life.  

Thanks everyone for all the posts.  If I never found this forum I would still be stuck with the same miserable state of sexuality.  
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1866 on: 06/11/2008 02:26:37 »
I have been taking Relora for about two weeks now.  Three times a day.  I have had about eight orgasms.  I feel so normal that I now don't even worry about the my symptoms coming.  I do feel more relaxed because of Relora (or maybe its because of the orgasms).  But I don't mind that because I am normally very stressed.  However, I still have motivation, so I am not sure if that is a side effect of Relora or not.

I am amazed that I feel no more side effects.  Limejuice and others, I am not sure why I have an almost 100% reduction instead of just 50 or 25%.  Must be a biological difference.

I see no reason why I can't continue taking Relora indefinitely.  The ingredients are natural and I feel awesome, since I don't have to worry about POIS and the intense pressure to satisfy my desires (I used to battle with myself for hours because I had such intense sexual urges).  Now I have lots of time to make productive without the stress of intense sexual desire.

I can't tell you how great this forum truely is.  How many times have you heard about a large group of people coming together, most of whom have no medical background, and finding certain medicines and herbs that fix the chemicals of the body.  That is why humans are so incredible!

It's amazing how ajusting just a few chemicals like cortisol (a chemical?) can actually change a persons entire life.  It will change my life.  

Thanks everyone for all the posts.  If I never found this forum I would still be stuck with the same miserable state of sexuality.  

Tarkington...incredible!! Congratulations!
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1867 on: 06/11/2008 04:25:12 »
Tarkington, I think 2 weeks is not enough to say if you're completely cured but it's really nice you're reporting this here about your first 2 weeks of relief. You're young, maybe it can be a good idea to save a bit of fluids for your future partner.. I talk for me, sperm is like gold !
Several people here were reporting a 3 months without pois with a kind of euphoria, which for a psychiatrist may sound like an episode of mania, but I'm not one of them, I can't be judge.
An other point, you took centrum, this could have been involved in your success, not only Relora. Good luck.
« Last Edit: 06/11/2008 04:50:22 by martin88 »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1868 on: 06/11/2008 08:16:16 »
To clarify: I am not suggesting anyone permanently discontinue any supplement.  I think POIS, for some of us, could be caused by an underlying adrenal gland problem.  In this case, it would be wise to get a cortisol blood test.  Relora could interfere with the results of this test.  So in the event that you do want to get tested, I suggest temporarily discontinuing use of this supplement, within a proximity of the test.

Great news tarkington! I sense we are all becoming more hopeful. :)
« Last Edit: 06/11/2008 08:29:00 by Counterpoints »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1869 on: 06/11/2008 11:16:54 »
Nice to see Relora is working for you Tarkington

>> POIS culprit = cortisol? <<

It is interesting to find claims that garlic can inhibit cortisol. Perhaps NO wasn't the mechanism by which garlic helped me.
http://findarticles.com/p/articles/mi_m0KFY/is_6_21/ai_105514494
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1870 on: 06/11/2008 14:12:43 »
Very good results with Relora. You should try a least 1 or 2 months to eliminate placebo effect.
Relora help to reduce cortisol and balance DHEA too.
I agree with you B_Jim, it can be a placebo effect. But I'd like to add that it's not because an effect stay only for one month, or one day, or even for ten minutes that it's necessarily a placebo effect.
A good example of this is when you treat a plant with a fertilizer. If the latter is not well balanced, the plant will grow very quickly, will make big flowers, and will ultimately die of exhaustion, all this happens very quickly. The fertilizer "burns" the plant.
The healthy effect is not a placebo and doesn't stay indefinitely.
 

Offline msl

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1871 on: 06/11/2008 16:59:58 »
Sorry guys but im in a bit of a bad mood! have we supposed almost every single cause under the sun by now? Testosterone, endocrine stuff, intestinal stuff? candida, blood pressure, neurotransmitter depletion, dopamine all this sorta stuff. I went to my gp the other day, she referred me to an erectile dysfunction clinic (the waiting period is around 11 weeks). I dont know where thats gonna go but i dont feel very enthusiastic. Howeverm My counsellor said that she had heard of cases where orgasm had induced an epileptic attack or fit. READ THIS newbielink:http://en.wikipedia.org/wiki/Postictal_state [nonactive]
Do the words written here jump out of the page to you, like they did me?

“poor attention and concentration, poor short term memory, decreased verbal and interactive skills, and a variety of cognitive defects specific to individuals.”

Sound familiar? Also notice it mentioned that you may not be aware you have had a seizure. On further research i am under the impression that epilepsy is a very complex condition and that you do not have to have a "fit" (as what would normally assosciate with epilepsy) to have a seizure. the Neurotransmitter depletion suggestion as the cause for a post ictal state makes perfect sense to me. What do you all think?
 

Offline msl

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1872 on: 06/11/2008 17:02:39 »
also notworth is:

"Dr. David Rabinowitz advised a full battery of investigations, and raised the possibility of a dissociative state, or a variant of Transient Global Amnesia. Dr. Ganesh Adaikan forwarded an article from the lancet where a woman with similar symptoms was cured with the antiepileptic, carbamazepine. Dr. Broderick also advised ruling out arrhythmias and blood pressure disorders by an ambulatory halter monitor and Blood Pressure cuff, then proceeding with considering dissociative states."

Taken from newbielink:http://www.issm.info/prod/system/main/index.asp?page=/prod/data/issirlist/digest13.htm [nonactive]
 

Offline msl

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1873 on: 06/11/2008 17:03:30 »
"I had come across the following article from Lancet long ago. It is somewhat inversely related to your case. Interestingly, the patient was cured with antiepileptic, carbamazepine 300mg."
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1874 on: 06/11/2008 17:10:35 »
I have taken Relora for two weeks, and had to stop because I began feeling a bit too ampted up and had
trouble sleeping. At first I thought it could be other things I'm taking in addition (more iodine in diet and
the Ashwaganda), but just stopping the Relora brought me back down enough to get my sleep back. This
is puzzling.  Why would something that lowers cortisol give me insomnia...?  Any idea on this.
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1874 on: 06/11/2008 17:10:35 »

 

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