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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6437233 times)

Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1875 on: 06/11/2008 17:30:07 »
Interesting.  After all of my orgasms before taking Relora I hade insomina that night.

Also, I really don't want to stop taking Relora to get a blood test.  I know that sounds selfish, but I can't stand the symptoms.
 

Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1876 on: 06/11/2008 19:59:03 »
Putting Things In Perspective:

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

A psychological reframe about POIS and epilepsy: POIS is a condition that has not really been all that researched. It has many symptoms that fit with many different theories. Some of these theories are, high cortisol, pituitary tumors that cause prolactin imbalance(always a good one), low dopamine, hypothyroidism, glucose imbalance, epilepsy, my personal favorite...kidney chi deficiency and probably many more.

Nobody know though! Nobody.

My point is that the dispair we sometimes might feel because we think our syndrome is caused by something serious might be overkill if we don't really know what is causing it. When we get down on ourselves because we think we are sure of the causes of our POIS, and I certainly do this all the time, we are saying that we know what causes POIS. Nobody...not you...not me...not nobody, has definitive evidence(conclusive research done over time) that says "X" is the causes of POIS. POIS could just as easily be caused by something relatively minor and insignificant as something major and ominous. I'm not saying this makes POIS any less shitty. But we just don't know what causes it. It might have many causes. Hell....even for some diseases that are wide spread and common we don't really know what causes them, just look at depression. It's all a big imbalance with serotonin right....that's just one theory. There is the serotonin hypothesis, there is also the norepinephrine hypothesis...then there is one million different nutritional imbalance theories. SSRI's didn't do sh1t for me. Hell maybe they are a cause of POIS, wouldn't surprise me. Also, just look at the symptoms of depression. Pretty common across the bored with some differences here and there, but there might be different causes. Who knows?

So it is with POIS. The only thing that really makes sense is to be a POIS agnostics (non-knower) until we get conclusive evidence about what POIS is caused by. I'm not saying stop our search...that would be dumb. I'm saying continue our search but apply certainty when it is warrented. Certainty comes with proof and lots of it.

There are some really good theories about POIS that seem to interlock with one another...specifically those theories having to to with the hypothalamic, pituitary, adrenal axis and things that effect it...remedies that effect it... like relora, fungreek and oxytocin synergists(levitra, loving thoughts and massage included:)

I think our hypothesizing is good and we should continue our experimentation with what we have found to work so far without becoming to attached to a theory until we have strong evidence. Relora, has worked for some, levitra has worked for some, fenugreek has worked for some. The operation of these compounds is most likely what will lead us to definitive theories...but in the spirit of this post, i don't really know that either. POIS could be just as easily caused by epilepsy. If that were the case I could accept it. But I will not accept such a premise without 1)Having proof that POIS can be caused by epilepsy and 2)Having proof that the POIS I experience is caused by epilepsy. These are two pretty big criteria to meet....for any prospective causes of POIS.
 

Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1877 on: 06/11/2008 20:03:29 »
Sorry guys but im in a bit of a bad mood! have we supposed almost every single cause under the sun by now? Testosterone, endocrine stuff, intestinal stuff? candida, blood pressure, neurotransmitter depletion, dopamine all this sorta stuff. I went to my gp the other day, she referred me to an erectile dysfunction clinic (the waiting period is around 11 weeks). I dont know where thats gonna go but i dont feel very enthusiastic. Howeverm My counsellor said that she had heard of cases where orgasm had induced an epileptic attack or fit. READ THIS http://en.wikipedia.org/wiki/Postictal_state
Do the words written here jump out of the page to you, like they did me?

“poor attention and concentration, poor short term memory, decreased verbal and interactive skills, and a variety of cognitive defects specific to individuals.”

Sound familiar? Also notice it mentioned that you may not be aware you have had a seizure. On further research i am under the impression that epilepsy is a very complex condition and that you do not have to have a "fit" (as what would normally assosciate with epilepsy) to have a seizure. the Neurotransmitter depletion suggestion as the cause for a post ictal state makes perfect sense to me. What do you all think?

Very interesting.  This is what my first neurologist tested for - epilepsy.  But all he did was run two EEG tests; one when i was symptomatic and the other when I was normal.  He found nothing wrong.  I think epilepsy is a more believable cause for POIS, but we need more data as Chewbaca points out.  What tests can we take to see if we have some rare form of epilepsy?

Relora is still working great btw, thought its not a 100% fix, I can at least get through the day :)
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1878 on: 06/11/2008 20:47:34 »

Relora, has worked for some, levitra has worked for some, fenugreek has worked for some.


To add to the list: a low carb, high protein diet with garlic has worked for some, and adrenal
boosting supplements with Aswaganda and iodine supplementation has helped one of us too.
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1879 on: 06/11/2008 21:56:19 »
I've caught the attention of an endocrine specialist that is willing to run additional test on me.  My next lab appt is January 5th.

Members, in the name of identifying cause of POIS, what tests do you suggest I undergo?

All thyroid tests have been negative (free t3, free t4, TSH).
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1880 on: 06/11/2008 22:10:25 »
Putting Things In Perspective:

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

A psychological reframe about POIS and epilepsy: POIS is a condition that has not really been all that researched...

Chewbacca, great summary of State-Of-The-POIS!. It Reminds me of Bill Maher's movie "Religulous" where he says "I belong to the I-don't-know team". It's so easy to claim to "know" the truth about POIS, yet fact is, we know diddly at this stage. Yet, for me, the mere existence of this forum and some positive results is light years ahead of where I was just 2 years ago! (2 years ago: hopeless resignation)
« Last Edit: 06/11/2008 23:20:15 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1881 on: 06/11/2008 22:15:58 »
...I really don't want to stop taking Relora to get a blood test.  I know that sounds selfish, but I can't stand the symptoms.

Tarkington, you're not selfish! You've paid heavily with past POIS symptoms, you deserve a break! As long as you're medically careful with it (tell your doc, interactions aren't well known).

You're doing a lot for this Forum - and POISkind;D - just by reporting!

Enjoy your life. Take your time.
« Last Edit: 06/11/2008 22:23:32 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1882 on: 06/11/2008 22:35:56 »
HIV/AIDS Scientist/pioneer: status

I'll be speaking with him again tomorrow. So far, he is leaning toward IL-6 (stimulates prolactin among other things) as contributing to POIS. I will keep you all posted.

Prolactin: Sex and Immune Activation
http://www.lef.org/dsnews/ds_letter_2004_jul.htm#2
« Last Edit: 06/11/2008 23:06:56 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1883 on: 06/11/2008 22:42:15 »
I've caught the attention of an endocrine specialist that is willing to run additional test on me.  My next lab appt is January 5th.

Members, in the name of identifying cause of POIS, what tests do you suggest I undergo?

All thyroid tests have been negative (free t3, free t4, TSH).

Limejuice, I think it's up to you to choose from Counterpoints' or Girlwind's suggestions. Or perhaps some combination?

Look for Counterpoints' Message #203135 and Girlwind's Message #203140 (they're right next to each other)
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg203232
« Last Edit: 06/11/2008 23:00:33 by demografx »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1884 on: 06/11/2008 22:54:02 »
I've caught the attention of an endocrine specialist that is willing to run additional test on me.  My next lab appt is January 5th.

Members, in the name of identifying cause of POIS, what tests do you suggest I undergo?

All thyroid tests have been negative (free t3, free t4, TSH).

I'm happy your thyroid checked out in range. I would also check cortisol levels, as well testosterone,
estrogen, and DHEA-S.
You can do this with either blood spot tests or saliva through ZRT. Acronym
also mentioned something about pituitary testing, but he hasn't yet told us which tests he used.


http://www.zrtlab.com/Page.aspx?hid=410
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1885 on: 06/11/2008 22:57:25 »

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

Bill Maher's movie "Religulous" where he says "I belong to the I-don't-know team".

I vote YES on I don't know!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1886 on: 06/11/2008 23:02:55 »

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

Bill Maher's movie "Religulous" where he says "I belong to the I-don't-know team".

I vote YES on I don't know!

Girlwind, that's 2 votes this week! ;D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1887 on: 06/11/2008 23:14:01 »
...You can do this with either blood spot tests or saliva....

Girlwind, do you know when urine testing is used?
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1888 on: 06/11/2008 23:52:15 »
I'm taking an herbal mix that has ginseng in it.
It takes at least 5 years to obtain a mature root of ginseng. Because of this ginseng is very frequently contaminated with pesticides, otherwise it's difficult to keep it alive for such a long time.

In a recent study, ConsumerLab tested 22 brands of ginseng supplements sold in the U.S. and found that only nine passed its review.
http://www.thebody.com/content/art30220.html

From a Swiss TV, they have also tested some ginseng (test made in 2000):
http://74.125.93.104/translate_c?hl=en&sl=fr&u=http://www.tsr.ch/emissions/abe/archive/00/000222b.html&prev=/search%3Fq%3Dhttp://www.tsr.ch/emissions/abe/archive/00/000222.html%26hl%3Den%26sa%3DG&usg=ALkJrhiCi0oinfF3Eu2fp9QukmAh0N0rdA
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1889 on: 06/11/2008 23:59:22 »
...You can do this with either blood spot tests or saliva....

Girlwind, do you know when urine testing is used?

I don't.
 

Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1890 on: 07/11/2008 01:35:59 »
RE:Martin88

My herbs are from shen chang pharmaceuticals, a Taiwanese based pharmaceutical company. They are GMP(good manufacturing Practices) compliant. They don't use contaminated herb and they test their product for contamination and quality control.

Don't ever use non organic, non GMP herbs. Also, it's always a good idea to see a TCM doctor if your going to start dabbling in herbs for specific conditions...like kidney chi deficiency.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1891 on: 07/11/2008 01:36:45 »
POIS exhaustion/fatigue

I always thought this was a hallmark symptom of POIS until someone here said that theirs was not.

If exhaustion/fatigue is NOT your prime symptom, is brain fog?
« Last Edit: 07/11/2008 16:02:55 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1892 on: 07/11/2008 03:57:08 »




Beware instant POIS cures!
« Last Edit: 07/11/2008 04:04:18 by demografx »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1893 on: 07/11/2008 12:50:24 »
RE:Martin88

My herbs are from shen chang pharmaceuticals, a Taiwanese based pharmaceutical company. They are GMP(good manufacturing Practices) compliant. They don't use contaminated herb and they test their product for contamination and quality control.

Don't ever use non organic, non GMP herbs. Also, it's always a good idea to see a TCM doctor if your going to start dabbling in herbs for specific conditions...like kidney chi deficiency.
In 1996 I took myself one of the contaminated ginseng mentionned in the swiss report. I bought this at the pharmacy so I thought it was safe.. Hopefully I didn't take a lot of pills because of pois. (I don't know if the ginseng was organic and GMP, should it be "and" or "or" ?). I don't know the company you're mentionning. Even if you seem to know what you're doing I hope it was helpful for other people here.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1894 on: 07/11/2008 14:35:51 »
To Martin88 and Chewbacca:

The best Chinese herbs I've ever taken (the cleanest in terms of being free of toxins) are the Sun Ten powders,
that are distributed by Brion.
There are only a few practitioners I know that use them, because they are more expensive.
But if you want the cleanest, safest, best quality herbs, these are IT. (I am very chemically sensitive and I have NEVER had
any toxic reaction from the Sun Ten herbs and I used them for 15 years straight.) This company is the ONLY one that
succeeded in winning a Prop. 65 lawsuit against them. (Check out the blurb below, or read all about it at this link:
http://www.brionherbs.com/index.html

"Of the numerous herbal companies sued to date, Sun Ten and Brion Herbs are the only companies who have successfully
fought the Proposition 65 suite by proving that their products were not in violation of the California law.

The allegations stated that all of the Sun Ten and Brion Herbs' formulations and single herbs were violation of Proposition 65.
Over a period of three years, Sun Ten Labs and Brion Herbs Corporation engaged in a process of costly research and methods
of verification of manufacturing processes, using an international team of esteemed soil experts, herbal experts, pre-eminent
academic experts, and scientists in realated fields to document that all their herbal products, manufacturing practices, sources
of herbs and the soils in which they were grown do not add any metal pollutants, and that heavy metals that occur naturally in
soils were reduced to the lowest levels possible. In this process they were able to demonstrate that all their products met the
requirements of Proposition 65.

The winning of this case establishes that Sun Ten and Brion Herbs Products are compliant with Proposition 65 require-
ments for heavy metals and that their manufacturing process supports the healthy results for which the products are
intended."




« Last Edit: 07/11/2008 15:29:21 by girlwind »
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1895 on: 07/11/2008 16:46:46 »
Interesting.  After all of my orgasms before taking Relora I hade insomina that night.

Also, I really don't want to stop taking Relora to get a blood test.  I know that sounds selfish, but I can't stand the symptoms.


Tarkington - What brand of Relora do you take?

I've been taking vitamin shoppe custom brand with only partical success.  Maybe the brand makes all the difference.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1896 on: 07/11/2008 18:55:32 »
Tarkington - What brand of Relora do you take?

Limejuice, I saw your post so I thought I'd try out my new POIS Google-search method to find your answer.

I bought the Relora from Swanson Health for 7 dollars. 

Here is the link http://www.swansonvitamins.com/SWU148/ItemDetail?n=4294967189

As long as I'm using my POIS-Google search toy, I thought I'd find this disclaimer for you too.

IMPORTANT: ...RELORA - PLEASE READ!

From my pharmacology-lawyer friend:

RELORA

"Relora is a plant extract. Because the actual active ingredients are not discernible, there's no way to know what the interactions with other drugs might be. Therefore, I would recommend not taking it with Rx drugs,or with OTC drugs either.

This is what the manufacturer says: [Note the elevation in BP]

'side effects also include dizziness, trouble sleeping, and higher blood pressure.'  "

Limejuice (and others) - always a good idea to check out Relora - and other meds/supplements - with your healthcare professional advisor.
« Last Edit: 07/11/2008 19:09:41 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1897 on: 07/11/2008 19:26:42 »
I have taken Relora for two weeks, and had to stop because I began feeling a bit too ampted up and had
trouble sleeping. At first I thought it could be other things I'm taking in addition (more iodine in diet and
the Ashwaganda), but just stopping the Relora brought me back down enough to get my sleep back. This
is puzzling.  Why would something that lowers cortisol give me insomnia...?  Any idea on this.

Girlwind, as my pharmacology-lawyer friend is quoted above, in my post to Limejuice, "relora side effects...include dizziness, trouble sleeping, and higher blood pressure." (But still puzzling considering the cortisol-lowering).
« Last Edit: 07/11/2008 19:31:44 by demografx »
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1898 on: 07/11/2008 20:24:06 »

Girlwind, as my pharmacology-lawyer friend is quoted above, in my post to Limejuice, "relora side effects...include dizziness, trouble sleeping, and higher blood pressure." (But still puzzling considering the cortisol-lowering).

I have REALLY low blood pressure, which apparently goes with adrenal fatigue. My high reading
for blood pressure is 100/60, my low can be as low as 87/50. So it still doesn't make sense why
it could amp me up....?
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1899 on: 08/11/2008 00:56:24 »
Tarkington:

Aside from the Relora, have you been or are you taking any other medications/supplements?  Have you made any changes in your life or diet since you have noticed improvement? 

I believe you that the Relora is helping, but perhaps there are also other things at work.

Congratulations on your great success!  Thanks for sharing your story.  It will undoubtedly help many people.

Also: It is your choice whether or not to temporarily discontinue Relora.  For the most part, I am not suggesting anyone take a blood test for my benefit, but rather, for their own.  If you are being helped (by Relora) because you have an underlying adrenal gland problem, then it is likely in your best interests to find that out.  It may also be that Relora is helping you for some entirely different reason (other than cortisol).
« Last Edit: 08/11/2008 01:14:24 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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