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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6443714 times)

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19200 on: 10/12/2013 20:37:04 »
Gbolduev , you can delete your account anytime or just stop posting on this topic.

Sincerely
MrVat7


Mr vat please dont engage him it is only going to get worse.
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19201 on: 10/12/2013 21:30:31 »
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Mr vat please dont engage him it is only going to get worse.

Quote
I see the message "Post by Gbolduev click to view.Post by Gbolduev click to view." in place of some Hermans posts. When I click it nothing happens though. How can I view these posts?

Hello Certainly POIS & Bombero
Gbolduev was a retarded fellow and he is now banned. Feel free now, This forum is safe :D

Keep Posting
MrVat7
 

Offline eur79m

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Half 'Animus Solution' - No change
« Reply #19202 on: 10/12/2013 21:41:32 »
Hey guys,

its been a while since I have actively contributed or followed this forum but not due to a lack of interest but due to a lack of energy... constant POIS (24/7) is no joke. (see my previous posts for details on my condition)

I am finally posting an update again to inform you about my latest medical trials... and the so far negative results.

During the summer I finally managed to convince my immunologist to test weather immunosuppression with an immunmodulatory drug has any effect on POIS symptoms. I received custom made pills for 7 weeks, 6 of these weeks the pills would contain a placebo, 1 week it contained 20mg Prednisone. I did not experience any significant effect during any of the weeks and was not able to successfully state the week during which I actually received medication, according to the doc. So immunosuppression seems to be ineffective so far but I am still not quite convinced, due to reasons that will become clear later on, and will pursue a stronger (60mg Prednisone) longer term immunosuppression beginning next year.

Now to the major news, as you can read in my previous posts my POIS started with a trauma (squeezing) of my right testicle. I was experiencing constant, and post-ejaculatory stronger, pain in my right testicle and groin. It was thus a reasonable assumption that the right testicle was the cause of the pain and related POIS symptoms. It was a long fight but I finally managed to have my right testicle removed. I had an 'unilateral inguinal orchiectomy' performed one month ago. One testicle and spermatic cord were removed through the lower lateral abdomen, basically a 5cm incision in my pubic hair area. Surgery went well and just like after my previous surgery I felt incredibly good right after waking up from surgery. Might have been the drugs but I had no symptoms whatsoever and was mentally completely 'clear', a state of mind I have not experienced for more than 3 years. During the next hours my condition however worsened and I was hit by headaches that I would classify as 10x the usual POIS as well as a slight feverish feeling. The next morning a blood test revealed a severely increase white blood cell count (leucocytes) of 20,000 (should be max 10,000), which is indicative of a sever infection/inflammation. I received antibiotics for a couple of days and the value dropped to the normal range again. My surgeon attributed the extreme leucocyte value to a measurement error... I dont think so, since it was in line with the symptoms that I was experiencing. My wild guess (which I cannot corroborate) was that it was not some external bacterial infection (usual cause for this kind of WBC value) but that something got 'stirred up' during surgery, that had been there before, and is most likely the cause of the chronic POIS symptoms I experience. Surgery went well but absolutely no change in POIS symptoms. :( I even still seem to have some pain in my right groin area, though obviously no testicle pain anymore, but still have to wait for everything to heal completely to come to a final conclusion about the post-surgical condition.

However one positive result, the histological examination of the removed testicle revealed a chronic inflammation of the testicle! Why is this positive? It proves that the 'pain' that I was experiencing had a very physical cause and that the decision to have the testicle removed was medically warranted. However, I am still no further concerning the cause for the inflammation, and it proves that the testicle itself was NOT the cause of my POIS symptoms. I rather believe whatever is causing my POIS symptoms to be the reason for the inflammatory process found in the testicle... I fought hard before the surgery to arrange for the testicle to be cryogenically frozen, so it could be scientifically used for POIS research in the future but neither my surgeon nor a cryolab close to the hospital were willing to support this. This is very unfortunate, since it is highly likely that whatever causes my POIS symptoms had caused the inflammation of the testicle... and this cause would thus have to be present and detectable in the testicle...  >:(

One very specific condition I am experiencing since a long time is pain in my right lower rib cage area, where the liver is located. In addition one blood test value, the SGPT is elevated and rising. It doubled during the last year to 123 U/l (max normal is 50). This is not the value pointing to alcohol abuse (not a regular drinker) but a potential inflammation. Is anybody else experiencing the same?

My next steps... Everything points to some kind of chronic inflammatory process in my body the cause of which is not clear. This inflammatory process could have caused the chronic inflammation of my testicle and is potentially responsible for my increasing pain in my right abdominal area and increasing SGPT. If this is the case, it is reasonable to test weather it would respond to a strong immunosuppression. I will thus proceed to test this again, this time not placebo controlled but with a higher dosage and for a longer term (supervised by a physician). Next on my to-do list is to test two different antibiotics that I have taken before, which seemed to have an effect on my POIS symptoms. I see however no logical reason for this to be effective since no bacterial infection had been found so far.

Please let me know if anybody else:
- is experiencing testicle pain or right side abdominal pain where the liver is located
- has elevated SGPT values

Cheers for now...
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19203 on: 10/12/2013 21:48:19 »
Icefloe
I had poor eyesight after an O, Taking Omega-3 , EPA & DHA supplements make my vision a lot more clear. Here they are available in a single transparent oil capsule. And as I said earlier, if reduced blood flow due vasoconstriction caused by POIS if made normal one may feel absolutely normal. One more thing is to be noted here, creating vasodialation does not cure pois , it just makes one relief from POIS symptoms. POIS is a autoimmune defense mechanism opted by the body due to presence of sperm in bloodstream. For few individuals may develop Alopecia areata, diabetes ,eczema etc which can be induced by POIS.
 

Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19204 on: 10/12/2013 22:10:53 »
I am really sorry eur79m it did not help you. Pois does has nothing to do with sperm, you would get it even with both testicles removed as Animus did. Just stoping all seminal fluids from being ejaculated helped.
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19205 on: 10/12/2013 22:13:13 »
Hey eur79m
Humans and other vertebrate mammals have a sperm-testis barrier, which is usually hard to breach. And the reason for blood-testis is none of the both are made to come in contact with each other. You have got relief from POIS for 3y after removal of one testis is completely acceptable. Also your inflammation in testis. Here it's how causes POIS and how did you got relief and it all started again. If the blood-testis barrier is once breached and unable to heal back, or if you had undergone some kind of mutation,your testis may keep sperm spilling into your bloodstream, which will not be accepted by your immune system, So,What about the pain in testis? Your immunity continuesly keeps attacking damaged testicle which spills sperms, immune system sees your testis as a source of foreign body and tries to destroy it , eventually inflaming your testicle. So when you had your testicle removed, no sperms were getting spilled and no POIS. Now, the other testicle has started the spill. I don't want to scare you out but you will get same pain as earlier, so get prepared. Your immunologist had gave you all placebos. You might had failed to convince him. Go and try once again , you might like to discuss things about this forum, ask him for REAL immune suppressors. I had Alopecia areata earlier, it is also a autoimmune based cause. Sometimes immune system mistakes few of OWN body cells as of those foreign body (sperm here) and kills it, Few of my hair follicles were killed that way getting me a bald spot. Fortunately it healed back, I still loose hair sometimes after an ejaculation, In a few the insulin making cells in pancreas may be killed by the immune system as a consequence of POIS.

MrVat7
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19206 on: 10/12/2013 22:16:19 »
Hi Starsky,
Is it not Seminal vesicle producing seminal fluid and testis producing sperms. If Reducing seminal fluids helps then seminal vesicle and Cowper's gland must be removed, how is he getting pain in testis then ?   
 

Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19207 on: 10/12/2013 22:41:35 »
He got inflamation in testicle from POIS which is an chemical imbalance.It took Animus some time after he removed seminal vescicles and shrinked prostate to get the balance back. Removing the testis does not cure POIS so its not sperm in your brain  :o
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19208 on: 11/12/2013 00:00:57 »
 After one gets his testis removed , he still may feel symptoms for some days , and those symptoms automatically shut down within a few days. Also according to you starsky, how does taking immunosupressor help in pois ? And what about hormonal imbalance ? and which hormone imbalance? also there are also hormone suppressors , so why to remove testis and seminal vesicle for hormones?  Root cause POIS in the reproductive system , and if one is removing his reproductive organs then it is sure to get rid of pois, but the thing is not everyone can afford to remove their precious organs. That too reproductive ones ? lol few here still have to make kids.
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19209 on: 11/12/2013 00:23:17 »
We might like to hold on and think about a minimum invasive technique in curing POIS. People keep focusing on SSBT and try if you can prove it wrong. Keep Posting some phenomena which may not explained by SSBT, or how you have come to know the cause about your POIS symptoms ,supporting SSBT. We can have a debate kind of thing here.

MrVat7
 

Offline Kima

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19210 on: 11/12/2013 14:53:27 »
MrVat7
you do not have any evidence of your theory
And who are you by profession ?

How do you explain that Daniel was cured using Boldueva?

thank you
 

Offline bombero

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19211 on: 11/12/2013 15:15:47 »
Just wanted to mention that Kima has been banned from the russian forum for a long time now. You can't fully appreciate his stupidity because his using of google translate to post here. But you can sense it a bit watching his changing his mind. At one point he claims being cured by Germany (LOL), a week later he curses Herman.
You certainly can discuss your scientific theories with him here but it makes me laugh.
 

Offline Kima

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19212 on: 11/12/2013 15:42:01 »

Bombero
I do not sit at the Russian forum, because the idiots on this forum as you.


Gbolduev tells people that they have written to the forum If people refuse to listen Boldueva he refuses help
 
« Last Edit: 11/12/2013 15:55:37 by Kima »
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19213 on: 11/12/2013 16:05:21 »
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MrVat7
you do not have any evidence of your theory
And who are you by profession ?

How do you explain that Daniel was cured using Boldueva?

I am still studying, no profession yet. SSBT is a hypothesis. It still needs to be verified at laboratory level.According to SSBT deniel and Gbloduev did never had POIS. An infection inside the body causes the same immunological reaction that a POISer suffers but it is not POIS. After getting an infection if he gets orgasm he may feel that the symptoms are due to orgasm but actually not. After if one removes that infected body part he's alright. And that is why removal infected tonsils and wisdom tooth helped them. POIS starts from puberty. Gbolduev started feeling symptoms when he was 30 and then was later back to normal. He got himself diagnosed wrong.

I will be free after four months from now, so then I will collect my resources and start to verify for SSBT. Untill now all the pois symptoms have been satisfactorily explained by SSBT, you might like to check out earlier posts of mine.

MrVat7
 

Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19214 on: 11/12/2013 21:31:29 »
I'm just going to repeat myself because nobody seemed to hear me: As a 2.5 year NSF forum member, I am claiming for the first time ever that I'm completely CURED.  not just feeling a little better.  And this is over a period of months, not 1 night like most of you deem is relevant to post about.

While I'm finally better after 15 years of POIS and would like to help others feel like I do, I'm not getting any traction so no point in continuing to post.  So this'll be my last post for a while.  If you're interested in my help, send me a PM.  Good luck everyone.
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19215 on: 12/12/2013 06:04:04 »
I'm just going to repeat myself because nobody seemed to hear me: As a 2.5 year NSF forum member, I am claiming for the first time ever that I'm completely CURED.  not just feeling a little better.  And this is over a period of months, not 1 night like most of you deem is relevant to post about.

While I'm finally better after 15 years of POIS and would like to help others feel like I do, I'm not getting any traction so no point in continuing to post.  So this'll be my last post for a while.  If you're interested in my help, send me a PM.  Good luck everyone.

This forum has become very very hard to read now and get good information as everyone seems to have gone crazy! MrVat7 shows up all of a sudden and is an expert, where the hell did he get all the answers?

NO ONE has answers, this whole thing is STILL a mystery.... nothing has been 100% proven by anyone, at least not scientifically.

We need to get back to science.

There are a few on here that really show be listened to any no one is listening..... At this rate no one is being helped....

B_Daniel has a point, and a very good one, he has never cried wolf, time to start listening people!!!!!!!!

PS.
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19216 on: 12/12/2013 09:23:33 »
B_Daniel
Can you please post summary of how you were cured .
 

Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19217 on: 12/12/2013 11:07:34 »
Mate
B_Daniel
Can you please post summary of how you were cured .
he did. Look back about 3 pages.
 

Offline MrVat7

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19218 on: 12/12/2013 13:14:13 »
B_Daniel
If you stop taking amino acids , okra pepsin, etc for (lets say)  a year.. would you still feel better after an orgasm? And if you had daily been taking you supplements regularly to fuel up your body of amino acids and then after having consecutive ejaculations for three days ( when your body will still have lot of amino acids, but not took supplements ) would you feel no POIS ? Please let me know.
 

Offline Thapelo

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19219 on: 12/12/2013 14:32:17 »
helloo
i read all the posts in this topic
I am sure to have Pois, but my family doctor says its something like a fobie....
I searched and this is what i found:
There is a doctor in Den Haag (the Netherlands) who says to cure people from POIS. You can go to him without prove to have POIS from another doctor.

I will go to him in the new year, and if you guys like it, i will post how he is going to treat me.
I do not know how he does it, but he says that 80% of the people he threats are cured from the POIS.

maybe it is the amino acid treatment, but he did not want to tell me in advance, so thats why i got this limited amount of information

Lars
 

Offline Kima

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19220 on: 12/12/2013 14:53:19 »
lars
Hi, in the Netherlands is the only doctor who treats symptoms by 80% this doctor Valdingera   http://www.post-orgasmic-illness-syndrome.com/


« Last Edit: 12/12/2013 14:54:53 by Kima »
 

Offline Thapelo

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19221 on: 12/12/2013 15:02:28 »
lars
Hi, in the Netherlands is the only doctor who treats symptoms by 80% this doctor Valdingera    newbielink:http://www.post-orgasmic-illness-syndrome.com/ [nonactive]



He
yes thats what i meant, but i just wanted to share it with you guys, cause i know how annoying this is...
ill post what my experience with this doctor is
 

Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19222 on: 12/12/2013 19:34:25 »
lars
Hi, in the Netherlands is the only doctor who treats symptoms by 80% this doctor Valdingera   http://www.post-orgasmic-illness-syndrome.com/
yes thats what i meant, but i just wanted to share it with you guys, cause i know how annoying this is...
ill post what my experience with this doctor is
His treatment is desensitization. He injects (subcutaneously) very diluted amounts of your own semen over a period. I thought a few members of this site had it done but it did not seem to work or it helped a bit but was not a 100% long term success, but I am not sure. His 'semen allergy' theory did not seem to revolutionize too many lives here. I'm not sure how many tired it though. I thought a few tried to get their doctor to help them perform the desensitization treatment but they got knocked back.
I know of a few people who have had this sort of treatment done for other allergies and they used to get success initially but it wore off over the next few years. Good Luck.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19223 on: 13/12/2013 03:22:41 »
lars
Hi, in the Netherlands is the only doctor who treats symptoms by 80% this doctor Valdingera   http://www.post-orgasmic-illness-syndrome.com/
yes thats what i meant, but i just wanted to share it with you guys, cause i know how annoying this is...
ill post what my experience with this doctor is
His treatment is desensitization. He injects (subcutaneously) very diluted amounts of your own semen over a period. I thought a few members of this site had it done but it did not seem to work or it helped a bit but was not a 100% long term success, but I am not sure. His 'semen allergy' theory did not seem to revolutionize too many lives here. I'm not sure how many tired it though. I thought a few tried to get their doctor to help them perform the desensitization treatment but they got knocked back.
I know of a few people who have had this sort of treatment done for other allergies and they used to get success initially but it wore off over the next few years. Good Luck.

There have been about five or six people including me in the forums that have tried dessensistization. I only know of two that are getting great results.
LARS if you want more information go to poiscenter.com and there is a whole section dedicated to dessensitization.
« Last Edit: 13/12/2013 03:38:35 by CertainlyPOIS »
 

Offline Thapelo

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19224 on: 13/12/2013 16:13:24 »
Thanks a lot ! i will visit the site these days, my doctor just called me and said that i first have to go to AMC amsterdam, since thats where i live. thanks for the information !
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19224 on: 13/12/2013 16:13:24 »

 

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