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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6458215 times)

Offline B_Jim

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19875 on: 03/07/2015 19:53:37 »
Happy to read that, John !
I take it since one year now. I reject all possible placebo effect, it simply works against Pois.
I don't know how does it work. I just made a bloodtest this week and maybe I will have some info soon.
At the start I had a strong anti-anxiety effect, anti-muscle tremors and even... anti-premature ejaculation. Does taurine help with magnesium or boost testosterone or avoid dopamine drop after ejaculation ? But something is working that is clear.
Now, I take only 500mg before ejaculation. I have a very little fear that excess of taurine can affect testicles.
« Last Edit: 03/07/2015 19:56:45 by B_Jim »
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19876 on: 05/07/2015 13:34:24 »
Hi everyone,

The fact that the naked scientists forum and poiscenter has helped me a lot to combat my POIS. I thought it’s my duty to also add some further details regarding what I’ve been doing to fight this monster.  It’s almost been a year now since I’ve discovered POIS and I think that I’ve finally moved a big step forward. Though I still feel there is a lot of work that needs/must be done. Something that I don’t think  I’ve  mentioned yet in earlier posts is that one of the first things I did in the first months is I had a professional blood test done and based on the results I was recommended a range of supplements and vitamins. This was carried out by a doctor that pretty much only does this and accordingly to what his patients explain him about their health complaints. Although I am currently living in Europe where I have done this, his system is based on Linus Pauling system (USA). So I presume it was a quality option. After about 3 months of taking the recommended supplements my blood was tested again. According to the new results, on paper I was supposed to be well above average in terms of health.  Although I did feel stronger and reducing stabbing pains (to a certain degree) in my chest (felt like a knife cutting through my heart at times) against combating POIS there was obviously still something very wrong. That’s when I started searching more intensely in whatever remedies I could try find on the forums. Nothing was working exactly the way I wanted it to because sometimes they work sometimes they don’t, etc… Things just never seem reliable I even tried a custom made testosterone (mentioned in earlier post) where the positive effects seemed short lived to my disappointment. I’ve spoken to a whole list of specialists and the greater majority could sadly not help me at all except for maybe 1 or 2 tips that usually did not really help me anyway. One of the most frustrating things is that although most appointments could be done quite quickly with some, I had to wait months before I could see others. And in the last 2 months quite a lot has happened shortly after one another and I currently feel like the last weeks seem to be paying off (I just hope I finally found stability because I’ve had many short lived situations.
 
So here I explain what my most recent events are.  I had a 1,2/1,5 hour embolization treatment/ operation for varicocelle.  A Dr/Prof.  endocrinologist recommended me to first  get this sorted, after I asked him to look into my POIS.  I obviously need to wait a few weeks to see in what way this will have a positive impact on me but in the meanwhile within a week after this I also had appointment planned with a biologist/nutrition-expert as I wanted to find someone advising me on a system to support me with inflammatory gut issues. This guy put me on an additional 3 supplements with a diet plan to clean my digestive system (flora/pro biotic). He also asked me to temporarily try completely stop eating all starches (bread/pasta/potatoes/rice/French fries/etc…). Interestingly enough before all this I again had blood taken because I insisted to get allergy testing done on it. The fact that in Waldinger’s papers it mentions that the greater majority of POISers are “Atopy” I thought it’s important to keep insisting in allergy tests. With time I will try get more allergy tests done but so far I’ve just received confirmation in the meanwhile that I am allergic to wheat and other. So to cut out all starch was also a good plan of action in my case.(Takes a bit of getting used to/feeling rather hungry at times now/ losing weight).  On top of all this to confuse things further I also take 2 daily flat table spoons of a supplement that supports intestinal function (mentioned in previous post). Don’t forget I also take L-Tyroxine.

Normally I currently only have an O every month or so as the suffering is just not worth it. And if I don’t have O I’d just end up with frustrating emission’(s). I most recently had O and this time my symptoms were barely noticeable (Best ever). I touch wood and hope that I manage to keep this under control as I currently stand and also hope that it wasn’t just a one time off. I feel a bit like I have to follow a daily agenda now and need to be careful in maintaining this and prevent any abuse whether it’s a diet treat or O. Time will tell.

I personally think that the combination of stopping with eating starch (certainly my case) and promoting healthy gut/digestive tract which was recommended to me by the biologist/nutrition-expert is probably the biggest contributor in reducing the symptoms after everything that I’ve recently done. After O, I had no feelings of depression (which I sometimes get), I did not get that feeling of exhaustion or tiredness, I did not get any stabbing pains, and my concentration had up to 90% improvement.
 
Sometimes I was thinking that I need to wait a bit longer before I say all this but even if I lose control I still think it’s probably interesting from a scientific point of view that playing around with these options confirms that something must be changing in a positive sense. My overall sleeping also seem to improve, which is obviously also important.
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Besides POIS with it’s subsequent symptoms another personal issue I have is that I generally feel very sensitive regarding  mental clarity, it’s like as if I am ultra-sensitive when it comes to this depending when I eat, feeling hungry or simply from a change in using energy, etc…. I don’t see much on the forums about members mentioning complaints regarding this outside their POIS recovery days. Or am I missing something here???. The fact that the greater majority of doctors/Prof I’ve spoken to barely have any knowledge of POIS, they obviously don’t know where my complaint is coming from. This is obviously also something that is generally not regarded as to be recognized although there must be an underlying issue I have.  Sometimes I’m wondering if years of suffering of POIS without finding a true remedy is a contributing factor to this!!! I got to admit though that as I stand at the moment, the recent steps I’ve taken seem to have helped me to partly address this. Any advice on this will be appreciated!!!!!!!!!!!!!!!!!!!!!!!!??????????????????????????????
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Anyways I’d also like to say that so far all this has cost me a lot of time and money; without mentioning what it’s all done to me in the previous years!!! Perhaps I should still count myself lucky cause I don’t know how some youngsters would be able to afford going through all this. It’s a cruel world we live in. May the strongest survive as some say!!!
Lets hope the researches find a true solution and I'd like to thank once again all participants on the forums especially Demo, Dave, Stef, G-Man, Outsider, Colm, Pianist, FB, Habibou, Quantum,and loads more...
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Tip: don't just start taking things I've mentioned here, talk about it to your doctor first.
« Last Edit: 05/07/2015 14:42:52 by 4everfogged »
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19877 on: 05/07/2015 15:45:20 »
Adding to my above post it’s probably also important I mention again that I do at least 3/4hour to 2 hours a day of fast walking (deep breathing). This combined helps me keep control of my situation.
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19878 on: 18/07/2015 10:53:18 »
***TESTOSTERONE***

Want to report something extra here cause some are always considering testosterone (TST). I Don't want to discourage anybody but something to think about here.

In November last year I got a new and pretty complete blood test. The weeks before this I took no supplements whatsoever to start once again from a clean "bill". My readings for the TST part were as follows:

SHBG        39.0     ref. 18.3-54.1 nmol/L
TST total   472             280-1100  ng/dL
TST free    7.90           6.00-18.00 ng/dL

Then as mentioned in previous post I started taking TST gel (custom lab made; supplied by reliable source; therefore not over the counter version)

New results from late Feb this year (clearly shows I'm on TST gel)

SHBG        25.1      ref. 18.3-54.1 nmol/L
TST total    782             280-1100  ng/dL
TST free    18.41           6.00-18.00 ng/dL

As mentioned in previous post, effects felt short lived even though I was initially and temporarily "over the moon" etc. (you can search old posts on this site)..... so I stopped using TST

In the meanwhile I got new results again including TST taken mid-June this year.

SHBG         37.2      ref. 18.3-54.1 nmol/L
TST total    343             280-1100  ng/dL
TST free     5.93            6.00-18.00 ng/dL

As you can see these last results show a considerable drop has occurred according to this blood test. BUT at the moment on average I still feel that i am feeling better off with my current new regimen. So in my case TST gel supplement obviously was nothing for me. Perhaps it has caused nothing else than damage in my case!!! At this present time and as time passes I want to further fine tune my current strategy that I mentioned in previous post(s).

I know I'm only one example but hope this gives POISers something to think about. Waldinger obtained my 1st results mentioned here on paper.

I still keep my fingers crossed that the research finds the ultimate solution for us.

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Extra info: All these blood tests were done in the morning approx 3,5 hours (max 4 hours) after I woke up in the       
               morning. I can unfortunately not recall how long before I had O.
« Last Edit: 18/07/2015 11:52:41 by 4everfogged »
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19879 on: 18/07/2015 10:58:04 »
It's been rather quiet here on this forum lately I hope you all still fighting this monster!!!
 

Offline Bulbo

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19880 on: 19/07/2015 13:15:37 »
Hello everyone
I have been following Gcrisp's (NSF Forum) advice of eating eggs for POIS . I have been eating 2 eggs daily for 7 months. My POIS duration has reduced from 5 days to 3.5 days. Duration of Pois after notcturnal emission has also reduced
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19881 on: 19/07/2015 15:15:48 »
Hello everyone
I have been following Gcrisp's (NSF Forum) advice of eating eggs for POIS . I have been eating 2 eggs daily for 7 months. My POIS duration has reduced from 5 days to 3.5 days. Duration of Pois after notcturnal emission has also reduced

Lately I've been mainly focused on which foods are more suitable to eat since I discovered some foods I'm allergic too,etc... But noticed in the meanwhile that a meal with several eggs in one go (+tomatoes+cheese+...) give me a more overall feel good factor in comparison with other meals. Perhaps they work hand in hand to help us with IBS,SIBO, leaky gut syndrome,etc...

One of my favourites have always been salmon (cooked/half raw on inside), especially during POIS faze.

I KNOW.....POIS'ers food choices are often of the most expensive. LOL

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Done a lot of travels in my life due to father's career,etc.....I think if would've stayed in 1 country (EU) all my life I would've had easier time to discover my allergies.... (countries medical system is important)
 
« Last Edit: 19/07/2015 15:24:26 by 4everfogged »
 

Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19882 on: 22/07/2015 19:08:15 »
Here are my hair test which represents the average of the last 3 months standards:
I run out of calcium, zinc, magnesium and selenium and the ration Calcium/Potassium is very low.
I will then take supplements and tell you if my POIS gets better.
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19883 on: 23/07/2015 13:33:32 »
Here are my hair test which represents the average of the last 3 months standards:
I run out of calcium, zinc, magnesium and selenium and the ration Calcium/Potassium is very low.
I will then take supplements and tell you if my POIS gets better.

My daily intake of recommended supplements partly contains what you mention here, with extra selenium taken separately.
From my understanding, selenium can partly help the thyroid gland that is overworked.
After every O my thyroid gland is always under a lot of pressure.

I've noticed thyroid gland issues have been on the radar since quiet a while according to old posts concerning some POISers.
 

Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19884 on: 23/07/2015 14:11:48 »
yes, Thyroid, but also heart troubles (intolerance to physical activities), and neurologic troubles !
Which kind of selenium supplement do you use?
Garlic contains a lot of Zinc and Selenium, that is perhaps why some of us seems to be relieved with garlic...
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19885 on: 23/07/2015 16:17:45 »
Currently as I see it, thyroid seems like the central point of the reaction of what occurs after O, from there I have issues effecting/spreading towards upper chest (heart as you say). This heart/chest part is the part that's most disruptfull for falling asleep or regularly waking up in nights after. But I don't believe anything is wrong with heart. You can take medical curcuma to partly relieve this pressure.

For my Thyroid gland I currently take 100mcg of L-Thyroxine on a daily basis (at least 5/10 min before breakfast/just dissolving this tiny tablet in mouth), originally started on 25mcg and gradually increased dosage as going according to blood tests. Every doctor has his opinion obviously. My dr. started me off with 25mcg then towards 50mcg. Then my other dr. that monitors my detailed blood test increased dosage to 100mcg + adding selenium. I personally think that this must be looked closer into cause I still don't feel optimal, particularly on this although blood test show a clear improvement. Several months ago my Prof/sexologist (not a POIS specialist) thinks there is no point using L-Thyroxine!!! I was only in contact with him (Prof/sexologist) "several months ago/more-a-less" when I had just been advised to increase dosage to 100mcg. (Difficult to get in touch with this prof/sexologist; can take 6 months or more)

I have no idea as I'm not a doctor but sometimes I wonder if there is not another way going round this problem cause tempted to go off selenium again to see what happens (medical insurance does not intervene with this product (selenium) though not expensive/ not a money issue/ just saying). But need to chat to my doc 1st).

My sinus, blocked nose, watery eyes, mental focus, brain fog, etc.... have greatly been reduced with the "Probiotics + wheat free diet".....stays as a huge improvement....I also completely eliminate frying oils/sunflower oil.

I don't know how important it is from who you'd get selenium but I currently get mine from "Nutrisan - NutriSelenium"

On my blood test dating back from last year my thyroid was measured  3.00mU/L and since taking these supplements it's recently measured at 1.27mU/L. Meaning thyroid does not have to work as hard, but still something annoying is going on there!!!

 
« Last Edit: 23/07/2015 17:52:49 by 4everfogged »
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19886 on: 27/07/2015 21:01:24 »
I've also noticed that Fibromyalgia has been mentioned repeatedly in old posts. With some believing there could be a connection. I believe one of my parents' siblings to be diagnosed with it!!!
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edit: apologies I think I'm wrong here about parents' sibling......at least I'm being honest.....but this illness has been spoken about in several older posts
« Last Edit: 28/07/2015 19:00:39 by 4everfogged »
 

Offline pois_poster

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19887 on: 29/07/2015 15:57:21 »
Hi guys!

Here's one test that i did, i know its kinda messy and to some point disgusting but i had good results so if you are like me totally desperate, why not give it a try.

OK, so my theory was that there was some sort if infection in the prostate, some infection that antibiotics, medicine or nutrition could not cope with, it simply does not get in or close enough. So I thought, lets apply olive oil straight onto the prostate. Yes, this is where it actually gets a bit disgusting, but read on...

So i applied olive oil, with a massage dildo, around the prostate, both inside the ass and on and around the penis with my hands...

I then some 30 minutes later had an orgasm with very small amount of symptoms.
So i usually get very strong allergic reaction with sneezing and eyes about to burn up in flames.. but now there was only some reaction, far less than expected.

So i tried the same procedure the next day and one after that. I did get a bit tired after the third time, but there were no strong allergic reactions.

So here's my theory, somehow we have got our dicks contaminated with some fluid that only remains in the prostate. So do a really extensive prostate treatment and you will be fine.

I know its messy and disgusting but i tried it with my girlfriend and she actually did not mind me having oil on the dick under intercourse, did not tell her about my ass though, that may remain a secret.

So my suggestion is extensive olive oil enemas.
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19888 on: 01/08/2015 15:54:09 »
Hello

Does anyone have a interesting report of this recent conference (June 19-21_2015) which included a POIS summary?
page 13,25,26 & 32

https://www.statusplus.net/issm/saopaulo2014/presentations/084.pdf

 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19889 on: 05/08/2015 14:41:47 »
Hi

I just send a private message to demografx via the mailing system of this forum. I also noticed he has not logged on since several weeks. Just in case he is currently not checking on his NSF mail, perhaps someone could let him know via other means, about a message I send him.
---------------------------------------------------------------------------------------------------------------------------------
If anyone can do this please just say done or completed hereby as I don't want a whole list of people suddenly bombarding him with mail now

Thanks,
 

Offline POISGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19890 on: 05/08/2015 14:55:26 »
Another guy with POIS here. How many of us are there now?

On your first visit to a doctor, how do you explain the reason for the visit to the person making the appointment?

I think I should go to an endocrinologist first. Anyone going to one? Any results?

So I call up. They say, "why do you need an appointment?" What do you say?
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19891 on: 05/08/2015 16:22:58 »
Another guy with POIS here. How many of us are there now?

Not sure but I'm pretty sure at least over a 1000 including poiscenter


On your first visit to a doctor, how do you explain the reason for the visit to the person making the appointment?

I think I should go to an endocrinologist first. Anyone going to one? Any results?

So I call up. They say, "why do you need an appointment?" What do you say?

Just say it's for sexuology issues.....reception staff are used to hearing something like this.....but one doc might forward you to another to find the right one......not easy......good luck
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19892 on: 06/08/2015 04:40:54 »
Hello all, it's been many years since I've posted on this forum and I was going to post at poiscenter but something is wrong with the forums.  I've just wanted to let you know that I've drastically reduced and possibly eliminated my POIS.  It seems like it all had to do with heavy food intolerances.  I'm most sure this is what has helped me but you can look at my other posts at poiscenter once it is fixed under my other name "going less crazy" to look at the other things I was doing, also my other posts from years ago on this site.  Right now I can orgasm pretty much whenever I want although I try to keep it down to a few times on one day during the week.  Currently I can "O" without taking anything in advance or afterwards. 

In detail, what has helped me is I've gone 100% completely gluten-free, along with a few other similar items that I cannot handle properly such as buckwheat, corn and other ingredients even included in some gluten-free foods that I have a negative reaction to, especially in pasta and gf pasta (im still in the process of finding pasta I can eat without bad brain reactions).  These reactions were all heavily "brain" based from bad mood to foggy inflammation-brain like feelings with some intestinal upset, but the brain reactions were much worse.  For me its all about trying it out and seeing if it negatively affects me or not... if it affects me negatively, and I will know within 30 minutes to an hour, I put it on a list of foods I cannot eat.  So this is what has helped me.  If you try it and it works for you than great, but if you do try it you have to try it for at least 3 weeks and than see how you feel.  And when I say 100% I mean 100% gluten-free.  If you want to you can than reintroduce it to your diet and if you feel bad than you may have found something that you should stay away from.  Good luck to everybody.

Also it is strange that the two (food intolerances and POIS) would be related, but for me they definitely were.  Both probably affecting the same system, whether neurotransmitters or something I probably will never know.  If you try this you really have to be careful and look at what youre eating.  For example I had Schar gluten-free bread multigrain but after I ate it I had a bad "brain" reaction.  I looked at the ingredients and compared it to other gf breads I can eat well and noticed that this new bread contained "buckwheat", supposedly a highly "allergic" food.  I don't think I have celiac but I definitely have at least non-celiac gluten sensitivity (NCGS).  Again good luck guys on whether you try this or not, I hope you resolve your POIS.
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19893 on: 06/08/2015 10:33:56 »
Hi “Going “Less”Crazy”, thanks’ for reporting this. As I’ve mentioned before, I fully agree that diet plays a big part in our symptoms regarding POIS.  I’ve been eliminating all starch foods for approx. just over 1½ month now and still feel like I’ve made the biggest step forward since ever.

But regarding this there is something else I want to report; recently I had to be present at a big & important family event. We all had to travel together to this far distance (about 6 hour drive) place. For 3 nights I did not sleep in my own bed. Because we had to wake up early so that we could leave as early as possible, the 1st night I slept at another house to be sure I’m not running late in the morning. Amongst my allergies I am also allergic to “house dust mites” (very frustrating). So I struggled to fall asleep that 1st night but halfway through that night I moved from the bed to a leather sofa in that house and so at least I managed to have a half decent night sleep. The following morning we then left for that approx.  6 hour drive. On arrival due to traffic jams etc… we were almost late although it was important that we’d arrive well on time. On arrival I was given clothes and was asked to change ASAP. There was an arrangement of place & time to get my clothes changed but somebody got real upset that we were slightly late creating some last minute changes, making it more complicated. While we were travelling and getting nearer to the destination we could tell we were running a bit late but as soon as we arrived I had adrenaline kicking in and had to rush to get my clothes changed (I’m talking about saving seconds as most guests had already arrived via other transportation/groups.) But as soon as I got to where we were supposed to arrive after I had changed clothing, I felt like all the chemicals in my brain were out of their place. I don’t know how to better explain this but I felt like I was wishing I could just shake my head or start taking some supplements or something to get this sudden problem at the wrong time and place under control. There were a lot of people and I could feel my anxiety kicking in. My eyes and forehead were just not quite the way it was supposed to be. So what does this mean!!! I did the max to prepare myself but lost control. On the way there I took my own lunch box with to make sure I eat the right food. On top of this I had a “O” exactly 6 days before hand to make sure I get no POIS issues around the time of this event. This has made me think further and wondering if these circumstances is a hint of having anything to do with the real reason for POIS. When I explained this to my doctor he was telling me that I must look into “Adrenal fatigue”.

The 2nd night at the destination I slept in a perfect anti-allergies bed, I slept well although I could have done with a bit of a longer sleep. The 3rd night I slept again in that leather sofa.

It took me at least another 4 days to feel back to normal in terms of recovery of what all happened in my head.
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Is it because of a change in adrenaline? From being in a calm to a sudden rushing state….
Is it because of a change in routine? Some POISers report issues when they go on vacation…
Is it a change of being on your own to suddenly being in a situation of speaking to many people?
Is it a psychological event that does not allow our physical state to cope with this sort of situation?
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https://en.wikipedia.org/wiki/Adrenal_fatigue
 

Offline POISGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19894 on: 06/08/2015 16:21:19 »
In detail, what has helped me is I've gone 100% completely gluten-free, along with a few other similar items that I cannot handle properly such as buckwheat, corn and other ingredients even included in some gluten-free foods that I have a negative reaction to, especially in pasta and gf pasta (im still in the process of finding pasta I can eat without bad brain reactions).  These reactions were all heavily "brain" based from bad mood to foggy inflammation-brain like feelings with some intestinal upset, but the brain reactions were much worse.  For me its all about trying it out and seeing if it negatively affects me or not... if it affects me negatively, and I will know within 30 minutes to an hour, I put it on a list of foods I cannot eat.  So this is what has helped me.  If you try it and it works for you than great, but if you do try it you have to try it for at least 3 weeks and than see how you feel.  And when I say 100% I mean 100% gluten-free.  If you want to you can than reintroduce it to your diet and if you feel bad than you may have found something that you should stay away from.  Good luck to everybody.

Congratulations!

How did you figure out that this is what would help you? What was your process? Did you see doctors? Try supplements? How did you get to this?

What exactly is your diet? Is it just gluten-free? Low FODMAP? 4everfogged wrote about eliminating all "starch foods" -- doesn't that mean eliminating all plant foods?

Could you give some examples of the foods that you do eat? An example of what you eat on a typical day?
« Last Edit: 06/08/2015 16:28:32 by POISGuy »
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19895 on: 07/08/2015 15:55:26 »
How did you figure out that this is what would help you? What was your process? Did you see doctors? Try supplements? How did you get to this?

What exactly is your diet? Is it just gluten-free? Low FODMAP? 4everfogged wrote about eliminating all "starch foods" -- doesn't that mean eliminating all plant foods?

Could you give some examples of the foods that you do eat? An example of what you eat on a typical day?

Hi POISGuy

Diet and Probiotics have been one of the most recent discussions amongst POIS debates. The vast majority of POIS posts are on poiscenter but as mentioned the website is temporarily not running.

Because you new here and only starting to discover how to manage POIS. Try starting off with a healthy diet that includes loads of vegetables, fish, lean meat’s (rather not dried), fruit (rather start off without citrus fruits or small portions), eggs, cheese(hard cheese, examples such as cheddar, emmentaler or gouda…I think soft or old is not as effective), tomatoes, yogurt (without sugar)etc….
For breakfast have oats with soyamilk (try find with no added sugar). You could add pure cocoa or cinnamon.
For fats you can use olive oil, coconut oil (I think this one is ok), walnut oil, …
Don’t eat factory made foods with labels on them that contains full of preservatives, colouring, bad oils such as sunflower or palm, especially if it contains added sugar, etc…  Forget about fast foods.
Don’t drink soft drinks; stick to bottled water.
(Starch):Don’t eat pasta, bread, potatoes, french fries, rice…
Don’t drink milk
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This is just a basic suggestion; I know it might seem like a boring start but try stick with these food types.  Go to hypermarket and get mixed frozen vegetable (example the one’s you’d make soup from). Just defrost them and eat semi raw (big portion).
Every morning after breakfast you might want to take probiotic supplement and perhaps any supplement that cleans your intestines.
Try stick to this for several weeks, and see how it goes, orgasm every 2 or 3 weeks or less and see how it goes(perhaps abstain for a month if you can!!!).
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At a later stage (several weeks), you could perhaps try other starch foods again, one at a time such as brown rice, egg or rice noodles (thin ones), etc… perhaps with time you will find out you don’t even want any of these  either after all!!!
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Try get official allergy test done through your doctor on basic foods if possible!!!
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Can you report what your symptoms are after O? Can you roughly tell us what your age is?
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Go through old posts as much possible but don’t forget to do a minimum amount of daily exercise.
At a later stage as you learn you might want to fine tune yourself taking supplements, etc…
Good luck and please report back to let us know how you doing.
This is just a start... ;)
« Last Edit: 07/08/2015 16:32:01 by 4everfogged »
 

Offline fidalgo

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19896 on: 07/08/2015 16:49:32 »
Hi,

I want to read the first study of Waldinger, from 2002. Someone can send to me????
 

Offline POISGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19897 on: 07/08/2015 22:20:32 »
4everfogged,

What is the idea behind this diet? Is this an elimination diet based on the theory that POIS is caused by allergy? The idea is to find and eliminate foods that you are allergic to?
 

Offline POISGuy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19898 on: 07/08/2015 22:26:15 »
Is this POIS? What do you think? I'm a 40 year old male. The post-ejaculation symptoms started about 10 years ago.
* Immediately after I ejaculate, I get pain / tightness on the left side of my chest, left shoulder, left arm, left part of my neck, and left leg. I avoid physical activity because I feel like it worsens the symptoms. I do not have any other symptoms. This is why I am asking the question. My symptoms look a little different than most people with POIS.
* I have lifelong premature ejaculation.
* These obviously sound like cardiac symptoms. I recently went to a doctor. He listened to my heart, gave me an EKG, and said that I was fine. 
* Immediately after I ejaculate, I feel a need to eat. I need to feed. I am not sure, but I think high protein foods lower symptom intensity. Or it could just be calorie-dense "unhealthy" fatty or sugary foods. Not sure.
* The intensity varies.
   * Rarely, I get no symptoms.
   * Usually, I get medium intensity symptoms. I just take it easy and pretend it's not happening. In a way, I am used to it, and there is nothing I can do.
   * There are times when it's really bad. Terrible. Recently, I thought that I could get a heart attack or a stroke any minute. I didn't know what to do.
* Symptoms last about 30 hours. After that, I'm back to about "95% normal".
* 10 years ago, when it all started. I was having sex every single day. Sometimes a couple of times per day. The symptoms would get worse with more frequent sex. When I would decrease the frequency, the intensity would decrease.
* It's never really gone away, but I've learned to live with it. Past few weeks have been bad though, even though my sex frequency is on the low side, about once a week.
* Subjectively, I feel like when I ejaculate, I am "drained" of something. And then I need to build it back up again.
* I think the intensity of the symptoms is related to the intensity of the orgasm. More intense or "deep" orgasm = more intense symptoms. I am not sure.
* I don't masturbate often. When I do masturbate, I don't think I have these symptoms. Subjectively, when I masturbate, my ejaculation is not "deep".
 

Offline 4everfogged

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19899 on: 08/08/2015 15:55:27 »
Is this POIS? What do you think? I'm a 40 year old male. The post-ejaculation symptoms started about 10 years ago.
* Immediately after I ejaculate, I get pain / tightness on the left side of my chest, left shoulder, left arm, left part of my neck, and left leg. I avoid physical activity because I feel like it worsens the symptoms. I do not have any other symptoms. This is why I am asking the question. My symptoms look a little different than most people with POIS.
* I have lifelong premature ejaculation.
* These obviously sound like cardiac symptoms. I recently went to a doctor. He listened to my heart, gave me an EKG, and said that I was fine. 
* Immediately after I ejaculate, I feel a need to eat. I need to feed. I am not sure, but I think high protein foods lower symptom intensity. Or it could just be calorie-dense "unhealthy" fatty or sugary foods. Not sure.
* The intensity varies.
   * Rarely, I get no symptoms.
   * Usually, I get medium intensity symptoms. I just take it easy and pretend it's not happening. In a way, I am used to it, and there is nothing I can do.
   * There are times when it's really bad. Terrible. Recently, I thought that I could get a heart attack or a stroke any minute. I didn't know what to do.
* Symptoms last about 30 hours. After that, I'm back to about "95% normal".
* 10 years ago, when it all started. I was having sex every single day. Sometimes a couple of times per day. The symptoms would get worse with more frequent sex. When I would decrease the frequency, the intensity would decrease.
* It's never really gone away, but I've learned to live with it. Past few weeks have been bad though, even though my sex frequency is on the low side, about once a week.
* Subjectively, I feel like when I ejaculate, I am "drained" of something. And then I need to build it back up again.
* I think the intensity of the symptoms is related to the intensity of the orgasm. More intense or "deep" orgasm = more intense symptoms. I am not sure.
* I don't masturbate often. When I do masturbate, I don't think I have these symptoms. Subjectively, when I masturbate, my ejaculation is not "deep".

Hi POISGuy,

You don’t need all described symptoms to be a POISer . As bad as it is to have POIS, you can still consider yourself lucky to only start getting it so late. I’ve been suffering with this since at least 15/16 years of age. And somehow I feel like there was even something inside me that was not functioning the way it was supposed too even years before that. I’ve also had loads of muscle/back pain, legs, feet issues (late teens, 20’s & early 30’s). But for some reason which I cannot explain they have gradually reduced which is still a mystery to me as I did not really take any special precaution that I’m aware of (It's like as if the problem been shifted from suddenly more physical and then gradually suddenly more cognitively) but most of the other known symptoms have been an endless battle for me. For me the physical complains only arise seldom these days (months); but can get painful. Years back it even felt like it would temporarily paralyze me. This last year I finally managed to get my other symptoms partly under control thanks to NSF and poiscenter(can’t say it enough).  Everybody’s symptoms after O seem different which only explains that we somehow all different mechanically but probably all have one same mysterious defect within us. And yes I agree that you more than likely have POIS.
Now since my current symptoms (cognitive dysfunction, headaches, flu-like, exhaustion, etc………….) have greatly been reduced with this new diet I put in place. It would be quiet interesting to know if it works on you too. Though for some reason I think it sure should make a difference. After all, a healthy lifestyle will help almost anyone with a health issue. In my case I’ve always had this strange feeling that something was also going on within my digestive system. Even though I tried a range of supplements or medication (obsession at times) over the years they would always make me feel like it was doing something in a positive or negative sense but I was just never quite satisfied or the positive effects were short lived. When I found these websites I found some ideas that I had actually already tried but for some newly found ideas were obviously worth trying. Interestingly some POISers tried some powdered foods (body building type of foods). Not everyone had taken this seriously as not all want to turn into a bodybuilder!!! But those ideas should probably have been taken more seriously. Because not so long ago I tried some special diet foods (powder mixed with soya or coco milk that are similar (normally something taken for people who want to lose weight) and interestingly I could sense a whole range of benefits from using it. I came to this conclusion after trying this out after weekly and sometimes daily discussions with my house doctor. But in my case I ended up having a problem with this special diet because it was giving me too much adrenalin, pain in chest and started to increase difficulty with sleep……all this regardless of having O or not. When I started to look more closely at the ingredients it contained too much fructose (not added sugar; but similar category; I mentioned in previous post be also careful with citrus). And so from there I went into this more natural diet that I recommend you to start off with. An additional supplement that I took every morning after breakfast was probiotics.  There are loads of websites that explains probiotics so I don’t need to explain(stomach health booster!!!). Then another additional supplement that I am currently using that I’ve mentioned before is http://www.nutrifor.be/en/produit/nutricament/permufor  You don’t need to go buy same as I found here but I’m sure if you go to a health store they probably have something similar.
Tip: Go slow, perhaps don’t do everything I mention here in one go, otherwise you might not know what is actually helping you, etc….
The idea behind this is that it feels like something in our bodies whether it’s the intestines, pancreas, etc…. In my case “something” surely and probably doing too much overtime and then when you have orgasm it creates one huge explosion as this mysterious “something” is unable to cope, ending up with our nightmare symptoms.
On top of this as mentioned about allergies, In my case I first had immunoglobulin tested (blood test)which gave me a personal reading of 147kU/L and given a reference that it should be less than 120kU/L. This proves that I have allergy issues and is so worthwhile getting individual allergy tests done for foods and others.  The fact that Waldinger focused on allergy theory and says that greater majority of POISers are atopy says enough. When I mentioned this to my doc he accepted to do allergy tests (Doctor always first think of money aspect and that’s why you need to convince).
As said one step at a time, don’t rush, let your body get used to each change and adapt to new diet approach. Eventually if you can afford it you can go to specialist that can get your blood tested in detail which will tell you what is missing/incorrect in your blood and can change that with supplements and vitamins. You will gradually be able to listen to your body and hopefully understand where the problem lies. That’s what I hope at least.
Something on which I could “partly” be wrong is with the starch issue. But for me it works because I am allergic to wheat for a start but regardless being allergic to it or not I noticed that even basmati rice was messing me about, also French fries so I got aggressive with diet and kicked it all out. I think with time there is no harm cheating every once in a while (small quantities) as long as you stick to supplements I mentioned.
This route “should” gradually make you feel better; at least your symptoms are likely to decrease in severity.
Some people also take a whole range of supplements on top of all this an hour or so before they O. I also have my personal list but at the moment I am in process of adapting it since the positive impact of this diet.
If it works but suddenly it doesn’t it just might make you realise that you have passed your limit on how often you can permit yourself to O, obviously emissions are a bit of a bummer with this.

Then my next tip…..if in 6 to 8 weeks (or emergency) you are still experiencing pain in chest…..try medical curcuma (1 or 2X 500mg), after this if you still don’t manage to get your chest pains under control I have another supplement that I currently use called OrthoNutrients Mix (372 or 120)(4 or 6 per day)….. Your pharmacy/doc can probably recommend similar “natural/over the counter” product. Omega 3 (heart/brain)(4x daily) and combination“B1 with C” (1xor2x/daily)can also help. In fact all of this entire last paragraph combined for your chest/heart issues will help. (note:this is part of what I substituted of what was missing in my blood but was not on current diet yet that I have now switched over too.) PAIN: I know what you talking about you sometimes feel like you going to die!!! It’s absolute hell with this “so called heart/chest” issue. It can take a long time for your body to "adapt/neutralize"

But when I mention supplements I also advise you to first chat with your house doctor about it.

Good luck....perhaps I just saved your life ;)and will feel like you got half of it back...LOL

P.S: If you can please do us a favour and try do the theoretical research survey (look through old/recent posts for contact details)
 

The Naked Scientists Forum

Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #19899 on: 08/08/2015 15:55:27 »

 

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