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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6459889 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2175 on: 28/11/2008 18:00:46 »
Girlwind, and Chewbacca, sorry I mixed up the "risk message" above (#208110)...I thought it was from Chewbacca. I corrected it.
« Last Edit: 28/11/2008 18:08:46 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2176 on: 28/11/2008 18:47:22 »
SOHAIL aka sgsg777 - WHO IS IN THE MIDST OF POIS - HIS PRIVATE MESSAGE TO ME AND MY REPLY. FEEL FREE TO WRITE TO HIM WITH ANY ENCOURAGEMENT OR IDEAS.

Quote from: sgsg777

pls demo help me or i will kill my self


Quote from: demografx

PLEASE CALL 1-800-SUICIDE or 911 or IMMEDIATELY GO TO YOUR NEAREST HOSPITAL EMERGENCY ROOM. WE ARE NOT EQUIPPED TO DEAL WITH YOUR SERIOUS PROBLEM.

« Last Edit: 28/11/2008 19:04:59 by demografx »
 

Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2177 on: 28/11/2008 19:19:35 »
how do we private message?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2178 on: 28/11/2008 19:59:11 »
how do we private message?

All the way at the top of the screen, you will see "Naked Science Forum"...under the word "Science", you will see "Messages"...click on that...then all the way to your left click on "New Message"...and it should be obvious then as to next step.

The person you're writing to should be in quotes, e.g., TO: "Chewbacca"...the message is standard type and when you're finished just click "send message"

If you're writing to the distressed newbie...thanks!!!
« Last Edit: 29/11/2008 01:48:42 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2179 on: 28/11/2008 20:08:04 »
Sohail's (sgsg777) email address that he lists:
gagaitextilesATgmailDOTcom
 

Offline laroux

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2180 on: 28/11/2008 20:16:56 »
For all those interested in trying the Celtic Sea Salt, here is a list of the minerals present in this product:

newbielink:http://www.celticseasalt.com/PDF/CSSAnalysis-Jan2007.pdf [nonactive]

Again, please provide feedback if you try it and please be careful about how much you use.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2181 on: 28/11/2008 20:56:41 »
Chewbacca: The link is http://pois.olympe-network.com.  In consideration of demografx' concern, I hope you didn't feel I was revealing something deeply "confidential", by asking why you haven't filled out the form, when you are planning a new study.  If that is the case, I apologize.  Many people in this community have spent a lot of time designing, finding a host for, and finding researchers to look at, this questionnaire.  So if there is something that is preventing others from filling it out, I would like to know.

Demografx: He was about to start a fresh study.  I was wondering if there is some reason he hasn't taken part in the study we've already started. I don't see how that is revealing "private, confidential, information".  I think you are being way too sensitive.  Further, I never made any claim that the form responses are "private and confidential". The system is set, so that by default, you are not given a link to other people's responses, until you have filled out the form yourself.  I don't see any more questionnaire responses, than do the others who have also filled out the form. And I am not responsible, at all, for that information.  It is unlikely I would discuss details of someone's response, in public, but I can't speak for other people.  People post about their symptoms on this forum all the time (under anonymous pseudonyms).  The form offers an extra layer of privacy... but it's not substantially more confidential than forum posts.  It is, in my opinion, the best way we are going to receive any rigorous form of support, though.  So it is in our best interests to transfer some of the information we have posted about in this forum (possibly with additional details), over to that questionnaire.



« Last Edit: 28/11/2008 21:11:13 by Counterpoints »
 

Offline sgsg777

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2182 on: 28/11/2008 21:07:25 »
help me guys , what is best to do after orgasm or before orgasm , is GNC gensing serbian root is good .
pls help me
sohail
 

Offline sgsg777

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2183 on: 28/11/2008 21:08:09 »
and Thankyou everyone of helping me ......its killing me socially ....especially brain fog , what to do pls helllllllllllppp
 

Offline laroux

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2184 on: 28/11/2008 21:21:54 »
A lot of people have mentioned Addison's disease as a possible cause of POIS.  I found this excerpt very interesting due to the link with a recommendation to increase salt intake when on therapy for Addisonian crisis. 

Treatment
Treatment of Addison's disease involves replacing, or substituting, the hormones that the adrenal glands are not making. Cortisol is replaced orally with hydrocortisone tablets, a synthetic glucocorticoid, taken once or twice a day. If aldosterone is also deficient, it is replaced with oral doses of a mineralocorticoid called fludrocortisone acetate (Florinef), which is taken once a day. Patients receiving aldosterone replacement therapy are usually advised by a doctor to increase their salt intake. Because patients with secondary adrenal insufficiency normally maintain aldosterone production, they do not require aldosterone replacement therapy. The doses of each of these medications are adjusted to meet the needs of individual patients.

During an addisonian crisis, low blood pressure, low blood glucose, and high levels of potassium can be life threatening. Standard therapy involves intravenous injections of hydrocortisone, saline (salt water), and dextrose (sugar). This treatment usually brings rapid improvement. When the patient can take fluids and medications by mouth, the amount of hydrocortisone is decreased until a maintenance dose is achieved. If aldosterone is deficient, maintenance therapy also includes oral doses of fludrocortisone acetate.

This excerpt is from an NIH article located here newbielink:http://endocrine.niddk.nih.gov/pubs/addison/addison.htm [nonactive]

It may me wonder if POIS sufferers are suffering from some sort of Addisonian crisis induced by depleting cortisol before and during orgasm.  Hmmmmm....
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2185 on: 28/11/2008 22:14:06 »
and Thankyou everyone of helping me ......its killing me socially ....especially brain fog , what to do pls helllllllllllppp

Some suggestions:
1) Avoid orgasm, as long as you are able
2) Talk to a physician.  Mention this forum.  Tell him there are 150+ other people with a very similar condition.  Tell him it is called "POIS: Post Orgasmic Illness Syndrome".  Tell him/her a scientific journal article was published on this condition, by Dr. Waldinger (MD).
3) Discuss beta-blockers, relora, fenugreek, zoloft, wellbutrin, levitra, garlic, salt-water, etc. with your physician. 
4) Consider cortisol, prolactin, thyroid (TSH, T3, T4), DHEA, blood tests.  Get your blood pressure checked, and your heart rhythm.  Also consider a blood sugar test.

Good luck.
« Last Edit: 28/11/2008 22:19:50 by Counterpoints »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2186 on: 28/11/2008 22:53:57 »
Demografx: He was about to start a fresh study.  I was wondering if there is some reason he hasn't taken part in the study we've already started.

Counterpoints: Your "public wondering" would have been better expressed in private message. It's not the world's business to know that he hasn't filled out the form. Some might even think that's a failing to cooperate on his part. Your questionnaire, as your insistence that all of us do cortisol tests, are not gospel.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2187 on: 28/11/2008 23:00:15 »
Demografx: He was about to start a fresh study.  I was wondering if there is some reason he hasn't taken part in the study we've already started.

Counterpoints: Your "public wondering" would have been better expressed in private message. It's not the world's business to know that he hasn't filled out the form. Some might even think that's a failing to cooperate on his part. Your questionnaire, as your insistence that all of us do cortisol tests, are not gospel.

You're being unnecessarily combative.  This isn't a power struggle.  Stop making things personal.  People might even think all sorts of things, based on what you, or other people have posted.  It's up to them to make their own judgements.  There are no deep insinuations in my comments.  For better or worse, basically everything I've posted has been motivated to help this community.  Also note, that it isn't just my questionnaire.  Several people in this community have spent a lot of time contributing to it, and I am very appreciative of their efforts.
« Last Edit: 28/11/2008 23:17:34 by Counterpoints »
 

Offline sgsg777

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2188 on: 28/11/2008 23:11:13 »
in my part of world the highest rated neurologist and phcychitrist did laugh when i talked to them about the POIS ........
should i take the test my self to a lab .....
and why when i am on POIS symptoms , my nostrils get blocked , then i have to use some nasal spray .
i also feel too much noise in ears like tinnitus ... and simple noise make me angry ....
some guys on net told me to take serbian root of gnc i am taking it , but not much help .
the brain fog is the main thing
social phobia  is also killing my contacts , and stopping me from work
pls guys , May God Bless u help me .
give me some tips .......
sohail
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2189 on: 28/11/2008 23:16:58 »
For better or worse, basically everything I've posted has been motivated to help this community.

Just like my posts. So we're in agreement.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2190 on: 28/11/2008 23:19:22 »
You're being unnecessarily combative.

Yes I am, when I think someone is insensitive to paths other than their own. Hardening of the categories.
« Last Edit: 28/11/2008 23:21:02 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2191 on: 28/11/2008 23:25:11 »
Counterpoints, as my last word: I greatly appreciate everything you do. I'm just asking for a little openness to others' pov, such as cortisol and questionnaires. If you wish to continue, I can't stop you (I won't delete your post), but don't expect a reply. I do think deep down you and I are after the same thing, a POIS cure. We might differ slightly in how we should all get there.
 

Offline sgsg777

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2192 on: 28/11/2008 23:28:31 »
we all are helping each other , pls dont fight ....
i need ur help ..???
thanku guys
 

Offline sgsg777

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2193 on: 28/11/2008 23:31:55 »
i live in UAE........ ajman !!!
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2194 on: 29/11/2008 00:09:35 »
It may me wonder if POIS sufferers are suffering from some sort of Addisonian crisis induced by depleting cortisol before
and during orgasm.  Hmmmmm....

Laroux--

The cortisol issue has been a BIG one that we've recognized earlier on. But I don't think POIS is anywhere close to being
as severe Addison's disease. Unfortunately, in order to have western medicine recognize adrenal fatigue, which I do think
is part of the POIS profile, you have to practically be in an Addisonian coma. It's really odd that most endocrinologists
and even most of the doctors that work with balancing female hormones, WILL NOT ADDRESS ADRENAL FATIGUE.

This is bizarre, because it's the adrenals that produce not only cortisol and adrenaline, but also take over the production
of the sex hormones like testosterone, progesterone and estrogen, once the ovaries stop doing this. So go figure! There
is NO logic here. Except that it's not part of the "textbook protocol."

Because many with CFS have adrenal fatigue, I've experimented a lot with adrenal boosting supplements, and they also
have helped my POIS, as have the thyroid boosting supplements. (see previous postings) The salt water solution is also
very right on, and I intend to try it as well. Thanks for your input and ideas about this.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2195 on: 29/11/2008 00:49:56 »
we all are helping each other , pls dont fight ....
i need ur help ..???
thanku guys

Sohail, you're absolutely right!

We're back on track now.

This kind of back and forth has been extremely rare in the nearly two years of this forum's existence.

Glad you're here!
« Last Edit: 29/11/2008 01:41:12 by demografx »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2196 on: 29/11/2008 00:50:32 »
Sohail, you might also wish to try consuming raw garlic.  I have had some success in that my POIS following nocturnal emissions (wet dreams) was eliminated while eating a clove daily. I'm not positive that is what helped me, but I suspect that it is. It's cheap and easy to try. Good luck!

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2197 on: 29/11/2008 01:05:49 »
in my part of world the highest rated neurologist and phcychitrist did laugh when i talked to them about the POIS ........

Sadly, Sohail, many of us have had similar experiences!

and why when i am on POIS symptoms , my nostrils get blocked , then i have to use some nasal spray .

Sometimes I have the same problem. Careful with nasal spray, it can make it worse if used too much.

should i take the test my self to a lab .....

Ask others here who have more experience than me. If you go back through the posts - or search - you will find much information. Click here below for some POIS Forum messages to check out (look for message number in each link):
http://www.google.com/search?hl=en&q=POIS+lab+test+site%3Ahttp%3A%2F%2Fwww.thenakedscientists.com&btnG=Google+Search&aq=f&oq=

i also feel too much noise in ears like tinnitus ... and simple noise make me angry ....
some guys on net told me to take serbian root of gnc i am taking it , but not much help .
the brain fog is the main thing
social phobia  is also killing my contacts , and stopping me from work
pls guys , May God Bless u help me .
give me some tips .......
sohail
help me guys , what is best to do after orgasm or before orgasm , is GNC gensing serbian root is good .
pls help me
sohail

Sohail, POIS was first recognized in 2002, but little research has been done, so we don't have all the answers.

You are more than welcome to stay here and learn more with the rest of us!
« Last Edit: 29/11/2008 01:43:32 by demografx »
 

Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2198 on: 29/11/2008 01:19:59 »
Post testing....123...havent been able to post.
 

Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2199 on: 29/11/2008 01:21:52 »
So now it works...hum bug!

RE: Counterpoints, Demografx, sgsg777, everyone else.

I have just completed counterpoints questionnaire. I did this because his goal is the same as mine...the accumulation of data from multiple individuals who suffer from POIS in an attempt to find a commonality. Thank you for your concerns demografx, you seem dedicated to creating a free and open forum which should be commended.

sgsg777...I know the pain of social anxiety my friend. I have had it even without POIS. It is terrible thing to have to endure. If your looking for something to help I can only tell you about what has helped me. What has helped me with POIS induced social anxiety is fenugreek. Fenugreek is a plant they use in India to season food. However, it also has a long(thousands of years long) history as a medicinal plant. It's benefit to social anxiety potentially comes from its oxytocin synergist effect. Apparently it stimulates pituitary oxytocin. Several recent studies have indicated extraordinary findings regarding the use of oxytocin( a neuro -hormone) to alleviate symptoms of social anxiety. Apparently, their finds are remarkable.

So don't worry brother....If you need something to get you through hard times while we are finding a more permanent solution....use fenugreek. But before you do, consult with your local health care provider. I used Solgar brand, one capsule, morning, noon and night, for several days. Works wonder for me, maybe it could help you out. Other forum members have had success with it too. "Hurray" is one. Take it in moderation!!!do not over do it in moments of desperation!!!

Other than that my friend....exercise, exercise, exercise!.....Best of luck to you!
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2199 on: 29/11/2008 01:21:52 »

 

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