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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6449138 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2400 on: 18/12/2008 20:08:14 »
MRI OF THE BRAIN

Scheduled for 12/26! I owe thanks to this forum for seeing a top endocrinologist. Why? Before this forum, I had no idea what those guys do for a living! :)

Who knows if it's headed towards a cure. But I'm more hopeful now than any of the last 30 years! Thanks, guys/gal!
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2401 on: 19/12/2008 04:07:15 »
MRI OF THE BRAIN

Scheduled for 12/26! I owe thanks to this forum for seeing a top endocrinologist. Why? Before this forum, I had no idea what those guys do for a living! :)

Who knows if it's headed towards a cure. But I'm more hopeful now than any of the last 30 years! Thanks, guys/gal!

Hey Demo: Thanks for acknowledging my existence: as the "gal." 

Also be forewarned about the MRI. It is a very strangely LOUD experience, especially for those of us who
are sensitive to loud noises and somewhat claustrophobic. I had one about 8 years ago, and I will describe it as
being placed into a VERY snug metal tube and then having someone channel jackhammer noises into both
my ears. You might consider wearing some ear plugs. (I wish I had.) After I got over the initial fear of the loudness,
it became a bit hilarious, in that weird ironic way. But you know most medical people aren't going get any awards
for their sense of humor (or empathy), and I had to be asked to curb my laughter, so they could finish the job.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2402 on: 19/12/2008 06:12:43 »
Thanks, Girlwind, after your reassuring post ;D I emailed my endocrinologist requesting a tranquilizer.

You're right, I've had MRI's, scans, etc. and they can be a pain.

I'm also getting an injection so they can visualize "with and without contrast," whatever the heck that is.

Hey, maybe the POIS-thing will light up!
« Last Edit: 19/12/2008 06:19:38 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2403 on: 19/12/2008 06:33:41 »

                   where is the POIS-thing????
« Last Edit: 19/12/2008 16:42:29 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2404 on: 19/12/2008 16:18:10 »

Do you remember exactly what molecule of testosterone you were taking ?
(Some are safer for the liver)


Martin, I found the bottle. Each mL contains Testosterone Cypionate Injection 200 mg.

My dosage was every two weeks, I don't recall my exact strength but the package insert recommends 50-400 mg.

When I began testosterone, I was desperately looking for POIS relief. Upon a recommendation from an established American sex researcher, whose associate was interviewed on a CNN television show, I telephoned a researcher in Czechoslovakia, who insisted that the cure for POIS is testosterone! So with great hopes (for the umpteenth time) I went to see some uncooperative doctors who finally approved the "complicated" Rx and administration (I needed two physicians, because neither would approve 100% - because of medical concerns about testosterone causing prostate cancer, which a Harvard study eventually dispelled to my satisfaction).

The testosterone did cure my POIS! Alas, a GIANT placebo effect: the first and only injection "worked". But my libido was low, so I continued anyway.

Testosterone-replenished, having just come out from an extended depression which also left me with ED, my libido went from zero/maybe-minus to more-than-adequate. To the point of being attracted indiscriminately to many things that moved in my line of vision :)

I eventually quit this madness and was told that it would take time for my body's own testosterone production to return. It's been well over a year and libido and testosterone are low. But the depression-fueled bad news of ED led me to Levitra, which as you know has a positive effect on my POIS.

For over one year, the Levitra seemed to cure 75% of POIS. Now it feels more like 50% or less. Hard to quantify.
« Last Edit: 19/12/2008 16:32:05 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2405 on: 19/12/2008 17:03:26 »
Demografx, maybe you could ask dr Waldinger what he thinks about cortisol and Pois, next time you will send email to him. But don't send a new one just for this. You are the link beween him and this forum it's very very important to keep this link and don't boring him. Even my symptoms are not as severe as dr Waldinger described...

B_Jim, recently, Dr. Waldinger is not responding to my emails. I am asking him if he has time to devote to us.

My sense is that our forum has moved far beyond Dr. Waldinger's initial 2 patients that he and Dr. Schweitzer studied, both POIS patients with spontaneous ejaculation. Any suggestions you have to stimulate his response, please let me know. I would also be happy to put you in touch with him directly.
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2406 on: 19/12/2008 17:41:55 »

Possible anti-inflamation diet : Salmon(omega3), Wallnuts(omega3,maybe melatonin), Onions, bluberries(antocyanins), sweet potatoes, spinach, garlic, pineapple (bromelain), ginger, curcumin, apples(flavono´ds), cherries, olive oil, magnesium, vitamin C and K, green tea (without caffeine i suppose :) )   

On the topic of anti-inflammatories, fenugreek has been documented as having anti-inflammatory properties.  For example, see here: http://books.google.com/books?id=WJocdLd68sUC&pg=PA299&lpg=PA299&dq=fenugreek+inflammatory&source=web&ots=66s8NQuCpC&sig=Zi9b1RjKd4JIuIiwMdgKbSJqsM8&hl=en&sa=X&oi=book_result&resnum=1&ct=result#PPA299,M1

Thus, at least two of the possibly effective POIS-combatting suggestions (garlic and fenugreek) are known for anti-inflammatory properties.  So this could be a direction to pursue further.
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2407 on: 19/12/2008 17:49:21 »
On the topic of anti-inflammatories, fenugreek has been documented as having anti-inflammatory properties.  For example, see here: http://books.google.com/books?id=WJocdLd68sUC&pg=PA299&lpg=PA299&dq=fenugreek+inflammatory&source=web&ots=66s8NQuCpC&sig=Zi9b1RjKd4JIuIiwMdgKbSJqsM8&hl=en&sa=X&oi=book_result&resnum=1&ct=result#PPA299,M1

Thus, at least two of the possibly effective POIS-combatting suggestions (garlic and fenugreek) are known for anti-inflammatory properties.  So this could be a direction to pursue further.

Also, on the above-referenced link, it says that the dosage range for the clinical studies was 50-100 grams of fenugreek seed per day.  The Solgar capsules are 520 mg, so even if you take two per day, that is only 1 gram per day, compared to 50-100 grams!  I'm not saying that we POIS folk should necessarily be taking that much, but it definitely seems like a big difference.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2408 on: 19/12/2008 18:45:42 »
Possible anti-inflamation diet : Salmon(omega3), Wallnuts(omega3,maybe melatonin), Onions, bluberries(antocyanins), sweet potatoes, spinach, garlic, pineapple (bromelain), ginger, curcumin, apples(flavono´ds), cherries, olive oil, magnesium, vitamin C and K, green tea (without caffeine i suppose :) )   

I think turmeric is one of the best anti-inflammatory herbs. It's CHEAP and easy to use in curried foods.
I would put it close to the very top of your list.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2409 on: 19/12/2008 19:45:15 »
Mysterious fenugreek :) But it works for 4/5 of us !

My pharmacist says it's ok to take fenugreek, but I'm concerned that with Levitra it may be too much of the same thing. Does anyone know?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2410 on: 19/12/2008 19:48:11 »
http://books.google.com/books?id=WJocdLd68sUC&pg=PA299&lpg=PA299&dq=fenugreek+inflammatory&source=web&ots=66s8NQuCpC&sig=Zi9b1RjKd4JIuIiwMdgKbSJqsM8&hl=en&sa=X&oi=book_result&resnum=1&ct=result#PPA299,M1
says that the dosage range for the clinical studies was 50-100 grams of fenugreek seed per day.  The Solgar capsules are 520 mg, so even if you take two per day, that is only 1 gram per day, compared to 50-100 grams!  I'm not saying that we POIS folk should necessarily be taking that much, but it definitely seems like a big difference.

Big? It seems H U G E !!
« Last Edit: 19/12/2008 19:51:14 by demografx »
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2411 on: 19/12/2008 19:58:41 »
I added it; thanks Girlwind.

B_Jim, I think that turmeric and curcumin (which was on your original list) are actually the same thing!  (I didn't know that earlier, I just noticed it now when googling turmeric.)
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2412 on: 19/12/2008 22:34:34 »
Interesting point Guthrie.  One physician recommended taking anti-inflammatory medication prior to orgasm, and was quite insistent it would work for POIS.

For those taking fenugreek:
Do you just take it prior to orgasm?  Or do you take it several times a day, every day?
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2413 on: 19/12/2008 23:16:56 »
Regarding POIS and Inflammation:
Although I've never had "brain fog", I've always had lower back pain and pelvic floor inflammation during POIS. When it subsides, usually all other symptoms disappear, such as insomnia, chills, sweats, tingles, depression, fatigue etc. Sometimes I get sinus congestion, but never full blown flu symptoms.

I was wondering if others out there have their sleep cycle/s interrupted during the 2 to 4 days of discomfort? If so, how so? 
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2414 on: 20/12/2008 00:06:27 »
I was wondering if others out there have their sleep cycle/s interrupted during the 2 to 4 days of discomfort? If so, how so? 

Yes, my sleep gets interrupted from POIS. Strangely enough any over-exertion (of which POIS is one) causes me to
get a hyper-active buzz, which masks fatigue underneath. I would describe it as an agitated depression or a restless
fatigue. But I also get the brain fog with the fatigue, and often sinus infections and flu symptoms.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2415 on: 20/12/2008 01:56:33 »
I find my resistance to colds is lower in-POIS. Deliberate, lethargic, low exertion now prevents colds. Heckuva lousy way to live though.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2416 on: 20/12/2008 02:17:58 »
I was wondering if others out there have their sleep cycle/s interrupted during the 2 to 4 days of discomfort? If so, how so? 

I simply have excessive yet nonrefreshing sleep during the 4 days. Plus naps, which after very brief energy revival, lapse into even further sluggishness.
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2417 on: 20/12/2008 02:51:50 »
Martin, I found the bottle. Each mL contains Testosterone Cypionate Injection 200 mg.

The testosterone did cure my POIS! Alas, a GIANT placebo effect: the first and only injection "worked". But my libido was low, so I continued anyway.

Testosterone-replenished, having just come out from an extended depression which also left me with ED, my libido went from zero/maybe-minus to more-than-adequate. To the point of being attracted indiscriminately to many things that moved in my line of vision :)
to many things!! ;D

Thanks for your detailed answer. As you know I'm not too much on the idea of a placebo even if I do not totally exclude it, I'm trying to stay open minded to all. I'm more on a tolerance theory or a side effects theory ... It's written on the web that testosterone cypionate aromatizes easily (conversion to estrogen), this can be a possibility why the good effect is only at the beginning. Estrogen aggravates pois ?...(This has already been mentioned before)
« Last Edit: 20/12/2008 02:56:40 by martin88 »
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2418 on: 20/12/2008 05:30:51 »
It seems to me that exhaustion, fatigue and the other common symptoms of POIS require an incredible energy expenditure. We get into this deficit, and it takes time to come out of it. Our bodies require rest and rebalancing of hormones, neurotransmitters etc. Our nervous system has to return to "normal". Do we burn calories faster than others and at an intensity that puts us into a fight or flight response even though this excitatory period is relatively short, and we are obviously not in fear. For one, I've often thought that I'm releasing adrenaline almost as if there is a "wiring" error and my hyper-excitatory state is mistaken for danger. How else to explain the exhaustion and associated physical conditions? Lately my thought process has taken me to consider adrenal exhaustion as a possible cause of my problems and a nervous system that needs to be seriously built up. I definitely believe that my overall predispostion to anxiety contributes to the intense excitatory state that precipitates POIS and that my body may just become too overloaded. I wish it weren't like this; HOWEVER, I'm hopeful we will find a variety of natural solutions to boost our immune system (for lack of a better term)or strengthen our nervous system and improve our lives. This forum is the best place to brain storm and share ideas no matter how crazy. Remember, it is the accidental discovery that often seems to lead the way for cures. My latest experiments will be with Valerian Root and Holy Basil extract, just to improve my sleep and reduce anxiety. I'll go from there.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2419 on: 20/12/2008 06:39:27 »
...my libido went from zero/maybe-minus to more-than-adequate. To the point of being attracted indiscriminately to many things that moved in my line of vision :)
to many things!! ;D

OK, OK, OK, to many people, places and things! ;D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2420 on: 20/12/2008 06:44:13 »
Remember, it is the accidental discovery that often seems to lead the way for cures.

That's exactly what happened with me, POIS, and Levitra!
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2421 on: 20/12/2008 18:41:19 »

You case is very interesting because you are the opposite of some guys  (Counterpoints and the "Relora testers" :) for example ) o brain fog but flu-like symptoms. I consider aches, back pain, sweats and chills are flu-like symptoms. You can see in the database cases like this.
Sometimes they write : "i have knees pain " , " i have back pain " but they don't have brain fog. So i suppose adrenals are ok for them. Or at least steroids/cortisol ratio.
I think for all cases for you, if you fight supposed inflammation after orgasm, your condition might be better.

B_jim, your differentiating between 'brain fog' symptoms and 'flu-like' symptoms is very interesting, especially in light of my experience yesterday.  I took 3 solgar fenugreek capsule 1.5 hours before release Thursday night, then 1 more capsule right afterwards, then 1 Friday morning.  Throughout the day on Friday, my brain fog was much better, and I was able to get a lot of work done.  However, starting around evening-time, I wasn't feeling that great--not brain-fog issues, but just 'feeling out of it' and grumpy.  So it may be that the fenugreek helped with the brain fog, but didn't affect some other symptoms as much.

In response to Counterpoint's question about when I take fenugreek:  I had generally been taking it every day, not just right before orgasm.

 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2422 on: 20/12/2008 18:52:17 »
What's the difference between 'brain fog' and 'feeling out of it'?  Maybe the grumpy symptoms, etc., were unrelated to POIS?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2423 on: 20/12/2008 19:18:34 »
...they don't have brain fog. So i suppose adrenals are ok for them.

B_Jim, do you see any connection between the adrenal gland and what my doctor is doing, trying to explain my high prolactin via the pituitary gland?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2424 on: 20/12/2008 19:48:32 »
I think for all cases for you, if you fight supposed inflammation after orgasm, your condition might be better.

I wonder if some of the 12-hour non-steroidal anti-inflammatory preparations (NSAIDS) sold over-the-counter  - like *Aleve« with Naproxen Sodium - would work on POIS?

I was advised by a doctor once to take a double dose for an inflammation.

*(store-generic brands are less expensive)
« Last Edit: 20/12/2008 20:24:23 by demografx »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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