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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 3621674 times)

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #25 on: 07/09/2007 02:01:04 »
B_JIM, you stated "Coffee/tea dont work for me (make me crazy and anxious)"

In your case then, No_Doz is not a good idea; it is basically caffeine-in-a-tablet, so it will make you "crazy and anxious".

« Last Edit: 19/10/2008 00:12:14 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #26 on: 07/09/2007 03:31:24 »
When I explained Levitra to my psychiatrist, he suggested experimenting with Cialis, since it has a 36-hour effectiveness. Perhaps I will.

Quote from: mellivora
link=topic=6576.msg121786#msg121786 date=1189091339

Thanks for your continued updates on your Levitra trials etc. Having read a bit about Levitra I canít explain why it might work but Iím definitely no expert and if its  helping you then thatís great!
« Last Edit: 23/11/2008 17:18:39 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #27 on: 07/09/2007 03:45:55 »
DR WALDINGER: Several people (including myself) have been frustrated trying to reach Dr. Waldinger. Since he is the foremost POIS author/researcher, he could be an invaluable ally here. So please feel free to try to reach him! (I will try, too). If you reach him, tell him about this site! Below is one of 2 places he is listed at:

Dr. Marcel Waldinger
Associate Professor in Sexual Psychopharmacology,
Utrecht University,
Department of Psychopharmacology,
Faculty of Pharmaceutical Sciences and
Rudolf Magnus Institute for Neurosciences,
Utrecht, The Netherlands

Tel.: +31 30 253 91 11 (operator)
Tel.: +31 30 253 70 00 (information and advice on study programmes)
Fax: +31 30 253 33 88

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #28 on: 07/09/2007 21:48:51 »
DOPAMINE
I saw my psychiatrist today and he reviewed this site. I mentioned to him that dopamine seems to be a narrowed-down suspect in our POIS-cure search. He replied that "[There is] no more [of a] powerful dopamine releaser than Adderall.  Would not suggest cocaine." As I mentioned, I am taking Adderall, which is basically an extended release amphetamine.

Yesterday, I posted that it was Day #1 and the timing coincided with the timing of my taking 60 mg Adderall XR. Interestingly, I did _NOT_ take Levitra yesterday or today, but was still relieved of a large degree of POIS sysmptoms! Which continues today, Day #2. Also, though, as I mentioned, I had my testosterone injection two days ago, so the fresh circulation of testosterone may also be a contributing factor. Perhaps the combination?

This doctor did not have great hopes for me with Zoloft, because he said that everyone reacts very uniquely to it (and to all antidepressants). I have now switched to Cymbalta, which seems to be alleviating depression better than the previous Effexor. But in 30-60 days I may try Zoloft, and the doctor said he would cooperate.

Perhaps the new Cymbalta in y system is yet another contributing factor to this current success? Placebo effect? We must consider everything.

This is a frustrating road for all of us. But with some successes already and future hopes which none of us have had before we banded together, we can think much more positively than the past.

Thanks everyone for the great support. I would of course, highly welcome any thoughts, questions or comments on what I just reported.

Best regards.
« Last Edit: 20/05/2012 03:54:33 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #29 on: 10/09/2007 00:43:19 »
LEVITRA
Today is "Day Zero" and I took Levitra and the usual meds, PLUS a lot of coffee. When I feel my energy go down, I try to counter it with caffeine. That seems to work best during the day. Today is not as good as my last report above, but still better than most episodes in my life. JP mentioned that we could exchange our experiences in how POIS has disrupted our lives. In my case, it has been severe. Even when the symptoms go away after 3-4 days, it is ALWAYS hanging over my head because I know POIS is "just around the corner", whenever the release happens. But now there is new hope, especially with the 8 people here. For YEARS I denied there was a "POIS" - - I always thought - at first - the symptoms were "something else". I just couldn't believe that such a natural pleasure could cause such great harm! Another thought: today is not bad for "Day Zero". The frequency is way up, probably due to the testosterone. Hope this post is not rambling too much. Best to all.
« Last Edit: 20/05/2012 03:55:43 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #30 on: 10/09/2007 17:38:03 »
POST ORGASMIC MENTAL ILLNESS?
I just now sent a request to the moderator to change our topic from POST ORGASMIC MENTAL ILLNESS to POST ORGASMIC ILLNESS SYNDROME (POIS). This would help more people to find us, I think.
« Last Edit: 19/10/2008 00:15:59 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #31 on: 10/09/2007 17:49:31 »
LEVITRA, ADDERALL, CYMBALTA, TESTOSTERONE, CAFFEINE?
Today is Day 1 of POIS. Feeling pretty good, not perfect. Just a little sluggish. I just had 2 Starbucks cans of "double-shot espresso" - Anyway, I posted all the meds above because now I'm not sure which one - or which combination - is working! One theory is emerging: the closer I am to having taken the testoserone injection, the better I feel. And I do feel (intuitive only) that Levitra plays a role (I'm not sure it's the pivotal role I originally thought because I once did NOT take it and I still felt better!) Although MELLIVORA (a member of this group who posted above) and my psychiatrist as well, seem befuddled as to why Levitra should work. But as MELLIVORA says, if it works, be happy  : - )

Sorry, everyone, that I don't have EXACT answers, but I do see promise and hope. The most I have had in over 30 years of POIS!!

Best regards.
« Last Edit: 20/05/2012 03:56:41 by demografx »

jplewin

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #32 on: 11/09/2007 01:12:38 »
Hi everyone...
demografx... you seem to be very enthusiastic! I'am too since I 'met' you here.
I would give you an advise. Since you are testing medication with yourself, I'd do what it's done in some motorsports (I practice karting, jejeje). This is to test every change in the setup one at the time... because if you don't, you don't know what really improved your performance. Maybe that can help you/us get better results.

Greetings!
JP
« Last Edit: 19/10/2008 00:17:43 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #33 on: 11/09/2007 19:43:02 »
Thanks JP! Today is POIS Day 1 and I'm feeling good (not "perfect" but better than I have ever been in 30 years of POIS-misery!!!)


Hi everyone...
demografx... you seem to be very enthusiastic! I'am too since I 'met' you here.
I would give you an advise. Since you are testing medication with yourself, I'd do what it's done in some motorsports (I practice karting, jejeje). This is to test every change in the setup one at the time... because if you don't, you don't know what really improved your performance. Maybe that can help you/us get better results.

Greetings!
JP
« Last Edit: 19/10/2008 00:18:45 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #34 on: 11/09/2007 19:50:59 »
Your experience with testosterone is intersting. We have few infos on the release of testosterone and sperm regeneration.
For dopamine, the problem of taking stimulant is you will increasing adrenaline/noradrenaline too. That's probably why i have problem with coffee.   So, to keep a high serotonin level maybe it's better to work with inhibitors.  
I'm searching guys with zoloft experience but very few have tested it. I will probably test myself soon at low proportion. (25mg)
Cymbalta is inefective too ? It's the third inefective ssri too then. As effexor, it works on serotonin/noradrenalin.

B_Jim....no, I did not say Cymbalta is ineffective. It may be EFFECTIVE, because two trials ago, I did NOT take Levitra but still felt much better. I had JUST BEGUN Cymbalta, and I was also close to testosterone injection, so I do not know which helped the most. I suspect CYMBALTA helped most, because in the past when I was on Effexor - and also taking testosterone...it did NOT seem to help.

Best regards
« Last Edit: 24/09/2008 18:41:20 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #35 on: 11/09/2007 20:01:20 »
Hi everyone...
demografx... you seem to be very enthusiastic! I'am too since I 'met' you here.
I would give you an advise. Since you are testing medication with yourself, I'd do what it's done in some motorsports (I practice karting, jejeje). This is to test every change in the setup one at the time... because if you don't, you don't know what really improved your performance. Maybe that can help you/us get better results.

Greetings!
JP

THANK YOU JP FOR ADDING YOUR ENTHUSIASM!!
« Last Edit: 19/10/2008 01:05:08 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #36 on: 11/09/2007 20:03:56 »
THANK YOU TO THE MODERATORS FOR CHANGING THE NAME OF THIS DISCUSSION TO POIS! (and not Mental Illness!)

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #37 on: 11/09/2007 20:15:47 »
Let me invite you all to a community dedicated to POIS.
It's a more interactive place where we can post our feelings and improvements.
Hope you all join in and maybe more people will come over and share their experiences.

The site is:

http://www.orkut.com/Community.aspx?cmm=39047985&refresh=1

(copy and paste)

Please don't be ashamed of joining in... I think it will benefit our comunication a lot.

Hope to see you in.

JP

THANK YOU JP I JUST JOINED THIS GROUP AND RECOMMEND IT TO OTHERS HERE>
« Last Edit: 19/10/2008 01:05:52 by demografx »

John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #38 on: 11/09/2007 23:26:48 »
Hi guys, it has been a while since I initiated this thread, I really didn't expect to get any responses like yours so I haven't checked back. Today I received an email from Neil notifying me of your responses. Wow, it is nice to know I am not alone after all. I have only gleaned your messages so far, I will soon read them in more depth.

Personally I am chaste now and avoid the problem altogether. As I said in my first post, when I was sexually active I was convinced that avoiding all milk products produced the most marked reduction in symptoms. I am wondering, have any of you guys experimented with a dairy free diet?

...looking forward to discussing this syndrome with you all.

John

John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #39 on: 15/09/2007 16:29:31 »
Remembering my symptoms: they were apparent in the morning following sex, whereas I instantly feel like I am altered mentally:  mentally drained (but not physically) and would feel intensely unwell (the fires of hades comes to mind) Perhaps it could even be described as still being "in" sex somehow.  After a few days it would subside and be replaced with a burnt out mental state that would continue for days. Overall the reaction would approximate a week in duration. During this time I have to work hard to hide this mental problem from others such that it does not affect my employment and relations with others. 

Another point that may be worth mentioning is that I have always had severe premature ejaculation. I'm talking about one or two strokes following penetration. I have tried many medications over the years, mainly SSRIs, and Paxil did somewhat reduce the PE, but not to a level that would seem normal. Neither the Paxil or any other SSRI ever helped me against the post orgasmic syndrome.

Around age 25-30 I was very active in going from doctor to doctor,explaining this very personal problem. It is very hard to talk about something that no one had ever heard of before, yet is plain as day to yourself. The most demoralizing part is that doctors seem to be inclined to not believe my adamant assertions that it is physical in nature, thinking that it's reality most likely has a psychological basis (such as guilty feelings toward sexual activity). Too bad a broken mind cannot be seen like a broken leg.

These days I feel loneliness, as the POIS/ insomina preclude me from entering in a real relationship, and I feel shame and loss of not having a family of my own.

I am interested in hearing if anyone has had any more success with medication.

John
« Last Edit: 22/05/2011 15:40:35 by John21 »

John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #40 on: 15/09/2007 21:55:29 »
Jim, hi. Zoloft was one of the medications I had tried, they all had an effect on my mental state, easing my anxiety but not the problem. By the way if any of you are on SSRIs and want to stop using them do it sloooowwwwly, especially Paxil. I stopped it suddenly and had quite bad consequences: hearing cutting out, the "zaps", pulsatile tinnitus. I still have the pulsatile tinnitus to this day, approx 15 years later. I think that doctors are more aware of this problem now.

John

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #41 on: 15/09/2007 22:52:30 »
JP,
I didn't want to say too much on your scrapbook, I don't know how private this issue is between you and your friends. I'm glad to hear you could discuss it with your parents, I can't imagine doing that! Your symptoms don't seem to match mine exactly, although reading yours brings back to mind minor aspects of the syndrome I have experienced such as flushing of the face, enhanced bowel movement ease, sore throat, somewhat swollen glands in the neck. At times during intense discomfort I have measured my blood pressure being far above normal, which I was able to demonstrate to my doctor. When I was not experiencing this condition I was otherwise healthy, blood pressure and all.

As you have searched the web you probably have come across the website actionlove.com, as I have. I don't think the author of this site "Dr Lin" is a real doctor, and I find his potions for sexual problems rather dubious. (Actually I tried them once, after reading testimonials)  But you might find it interesting to read the accounts of people listed there who have problems post-sex.  He will go into some longwinded technical analysis about what is causing the person's problem (which I suspect he truly believes yet is probably gibberish). Anyway you might wish to read it if you haven't already.

You mention you are taking schizophrenia medication, did you have schizophrenia before these post-sex problems developed? Or is this merely an attempt to cure this specific problem?

I'd love to hear more about your situation (and others here as well). Nice to hear from you.

John

John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #42 on: 15/09/2007 23:04:38 »
Here are examples of "Dr" Lin's site:

http://www.actionlove.com/extra/adhd.htm
http://www.actionlove.com/extra/over.htm

As I said, I find his explanatins dubious, and consider that he is trying to sell wonder potions. But at the same time it is interesting to read the stories people relate.

John

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #43 on: 16/09/2007 18:06:00 »
LEVITRA CONTINUED
Yesterday was "Day Zero". Since I started feeling POIS symptoms,and I didn't want to rely on the "maybe" of Cymbalta, I proceeded to take Levitra......AFTERWARDS!

lol. That seems as funny as taking contraceptive-prevention the day after. So........today is "Day #1" and I DO FEEL BETTER!

Stay tuned  : - )
« Last Edit: 20/05/2012 03:39:19 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #44 on: 16/09/2007 18:32:35 »
Let me invite you all to a community dedicated to POIS.
It's a more interactive place where we can post our feelings and improvements.
Hope you all join in and maybe more people will come over and share their experiences.

The site is:

http://www.orkut.com/Community.aspx?cmm=39047985&refresh=1

(copy and paste)

Please don't be ashamed of joining in... I think it will benefit our comunication a lot.

Hope to see you in.

JP

THANK YOU JP I JUST JOINED THIS GROUP AND RECOMMEND IT TO OTHERS HERE>

JP, AS I MENTIONED IN MY EMAIL TO YOU I WISH TO RETRACT MY RECOMMENDATION TO JOIN http://www.orkut.com/Community.aspx?cmm=39047985&refresh=1
NO FAULT OF YOURS, JP, BUT BY LOGGING ON TO www.orkut.com IT VERY AGGRESSIVELY "FORCES" YOU INTO
A SUBSCRIBER STATUS WITH iGOOGLE.COM AND MAKES IT EXTREMELY DIFFICULT TO UNSUBSCRIBE. SO I CANCELED MY JOINING THE "POIS COMMUNITY", WITH MUCH DIFFICULTY. JP, THANKS, THOUGH, FOR YOUR VERY GOOD INTENTIONS. SINCERELY, demografx
« Last Edit: 19/10/2008 01:15:40 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #45 on: 16/09/2007 18:51:29 »
JP,
I didn't want to say too much on your scrapbook, I don't know how private this issue is between you and your friends. I'm glad to hear you could discuss it with your parents, I can't imagine doing that! Your symptoms don't seem to match mine exactly, although reading yours brings back to mind minor aspects of the syndrome I have experienced such as flushing of the face, enhanced bowel movement ease, sore throat, somewhat swollen glands in the neck. At times during intense discomfort I have measured my blood pressure being far above normal, which I was able to demonstrate to my doctor. When I was not experiencing this condition I was otherwise healthy, blood pressure and all.

As you have searched the web you probably have come across the website actionlove.com, as I have. I don't think the author of this site "Dr Lin" is a real doctor, and I find his potions for sexual problems rather dubious. (Actually I tried them once, after reading testimonials)  But you might find it interesting to read the accounts of people listed there who have problems post-sex.  He will go into some longwinded technical analysis about what is causing the person's problem (which I suspect he truly believes yet is probably gibberish). Anyway you might wish to read it if you haven't already.

You mention you are taking schizophrenia medication, did you have schizophrenia before these post-sex problems developed? Or is this merely an attempt to cure this specific problem?

I'd love to hear more about your situation (and others here as well). Nice to hear from you.

John

John, I spent many years following a "POIS CURE" by the Thailand Taoist Mantak Chia, based on achieving orgasm without ejaculation. It was a useless/worthless experience. But I was desperate.
« Last Edit: 19/10/2008 01:16:33 by demografx »

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #46 on: 16/09/2007 19:58:54 »
Hello.

This is my first post, and I really want to thank you for your existence and your discussion. A 43 year old male, I have suffered from what appears to be POIS for the last 24 years (with the symptoms usually lasting 2 to 4 days). There is definite muscle tremor and weakness, along with fever, mental fog and anguish, exhaustion, heightened susceptibility to colds, and pronounced depression. Though I have been treated for depression for the last 23 years, the post-orgasmic depression is so acute that at times it has left me quite desperate and practically suicidal.

As with others who have posted above, this condition is so debilitating that I avoid sexual activity for the most part. And if I do find myself in the throes, I am painstakingly careful not to climax, for fear of facing the resultant condition. (Obviously, one can see how this can take its toll on a relationship.) This may sound strange, but I've even become vigilant in my sleep, avoiding sexual contact in my dreams if possible, so as to avoid the post-orgasmic condition. Further, I have a history of prostatitis and notice that if there is prostatic spillage, I sense the onset of POIS.

Thanks to your postings. I will copy this page (and others referenced here) and discuss this with my doctors. Though I have been on a variety of antidepressants and adjunct meds, I haven't had any relief.

Interestingly, recently my psychiatrist wanted to use an atypical anti-psychotic (Abilify) as an adjunct antidepressant. Unfortunately and apparently, my dopamine level was reduced which resulted in greatly exacerbating the depression. My motor skills were somewhat impaired and my mood plummeted radically to the point of despair. Actually, these symptoms echoed what I feel during the post-orgasmic period. Thus, I can see how dopamine (and other neurotransmitters) may play a role in all of this.

Again, I can't thank you enough for being here and sharing. Before I attributed the peculiar POIS to the general constellation of maladies that can be associated with clinical depression. I now know that this is a distinct condition, I am not alone, and perhaps there is hope.

Best wishes to everyone!

Tracy

TRACY,
I fully empathize with your condition and history. It is wonderful to have a place to share our feelings and not get blank stares ("Hmm...what are you talking about?") in return.
« Last Edit: 19/10/2008 01:17:23 by demografx »

jplewin

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #47 on: 18/09/2007 16:53:19 »
Hi everyone...
How are you doing...

Quote:
"You mention you are taking schizophrenia medication, did you have schizophrenia before these post-sex problems developed? Or is this merely an attempt to cure this specific problem?"

Answering John, I have never had schizofrenia in my life... my doctor gave that medication to me as a link between clonazepam and escitalopram. It worked to stop night eyaculations due to dreams...

Nevermind about Orkut... it's just an option if you want to visit, so it doesn't matter. Jejeje... it will still be open anyway if you want to take a look... maybe other people can join through that community.

Well... yesterday (monday) I started feeling bad out of nowhere. It was a very rough day, very emotional and sad because I was so dissapointed on a girl I was seeing. I don't know, but I was very angry and anxious... I went out at night (it's independence day today in Chile) and started feeling POIS symptoms: extreme cold and dry body. I knew it had come, so I knew today (tuesday) I would feel bad. As I said, today is holiday here, so I just masterbated because I was keen on doing it and it wouldn't affect my state today, because I had already started feeling like sh1t yesterday. As you know my POIS is short in extent compared to other cases, but it seems to be very hard during the day I feel bad. Today I'm feeling bad, but tomorrow I should be Ok.

In my mind I'm not feeling bad... I know that the anxiety that followed the sadness and dissapointment over that girl (if she can be called like that... I'm furious! jajaja) was the cause of the symptoms. The link between anxiety and POIS for me seems to be clear, at least in my case.

I was wondering the other day... what in common do we have otherwise than the symptoms? are we all anxious people? did we masterbated too much in our youth? does masterbation has something to do in us having this? is depression before or after POIS, is it the cause or the effect? What did we do in common after all... that's what I'm wondering.

Sorry if I am being too direct on my post... but I just think it's the way to discuss here, the only place where I really feel understood.

Yours sincerily

JP

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #48 on: 18/09/2007 19:40:33 »
Hi again...

Quote:
"But i think now it's better to block the excessive answer to orgasm."

Of course! Anyone having any progress must post it... but maybe knowing what was the cause of this we can get closer to a solution.

I would be more than happy to be able to block the answer to orgasm... I totally agree with you Jim. I can see know how blind I've been... I've never thought on a neurologist. I will start searching that road.

Hope to hear from you soon...

JP

demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #49 on: 19/09/2007 01:12:58 »
POIS DAY ONE
Success! Not perfect, but I feel good today! Never happened before - this early - in the POIS symptom cycle.

Yesterday was POIS DAY ZERO: in all honesty, a very difficult day, all 10 fingertips were dry, hot, and "numb" and for some strange reason, coupled with the exhaustion, this drives me crazy. I went to bed at 7:30 PM, slept shortly thereafter.


I downed a lot of Starbucks double-shots (cans of espresso)today, and took a mid-day nap to regenerate energy.

The "cure" ingredients for me so far (in the order of what I see as important) : (1) Levitra prior to release** (2) Adderall XR, an extended-release amphetamine ADD stimulant treatment (releases dopamine) (3) Cymbalta (an SNRI, not SSRI) N = norepinephrine; similar to Effexor. My psychiatrist says SSRIs and SNRIs work DIFFERENTLY for different people. (4) Testosterone injections every 2 weeks (I will have one tomorrow)(5) Caffeine. Lots of it in intervals. Three doctors advised against excessive caffeine, but too bad for the doctors, they don't have POIS lol and (6) Napping. Taken as directed : - )

I am experimenting with "keeping the sexual energy going"  (Levitra seems to allow this), on the theory that "shriveling up" literally and figuratively worsens the POIS symptoms.

Continuing the cautious yet increasing optimism,
demografx
« Last Edit: 20/05/2012 03:42:47 by demografx »

 

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