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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6457388 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2825 on: 13/01/2009 18:02:49 »
Why keep the POIS name, even for now?

One compelling reason: many, many sufferers have found us here at The POIS Forum, by Googling keywords from Dr. Waldinger's POIS paper - which garnered significant worldwide publicity: not just the regular posters here, but also the people representing the nearly 200,000 page views of this forum.
« Last Edit: 13/01/2009 18:30:20 by demografx »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2826 on: 13/01/2009 18:55:45 »
LEVITRA

At one time, this represented a 75% cure for me, cause for much joyful celebration and glee.

Some of us thought that perhaps the major impact on POIS is due to Levitra's effect in stimulating nitric oxide?

It's now over a year later since first discovering Levitra's effect on POIS accidentally, and I'm not so sure how well it's still working.

Perhaps the cognitive symptoms have lessened. But the exhaustion is still there, and it's debilitating, even though the symptomatic length of time has been cut down.

I believe you once mentioned you tried increasing the dose.  Does this affect the relief you feel from Levitra?


 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2827 on: 13/01/2009 18:56:29 »
Girlwind--
I read entire article you recommended. Perhaps man/woman has known about these qualitative and quantitative aspects to sex [and perhaps even orgasm] for eons, and expressed these differences in their art, music, dance, trance and any variety of rituals. Maybe these rituals are/were a way to bridge the gap, so to speak, between the metaphors you used of "desperately driven" and "sleepy cuddly", the former causing tribal problems, the latter more conducive to peaceful coexistence. However, in today's world, Freud observed that sublimating the "desperately driven" may result in an uncertain reaction (reaction formation). It's interesting that psychoanalysis is still very popular in Europe, but Pavlov/Skinner rule here in the U.S.. However, both I think are slowly being replaced by the pharmaceutical industry. With respect to POIS, the fact that some people in this forum ESCAPE symptoms every once in a while, and that the symptoms can vary in intensity and duration, lead me to believe that there may be  larger, underlying bodily rhythms  and  that behavioural elements may be significant also. And of course, we may just be missing the right combination of essential nutrients/chemicals. Perhaps we can be healed from POIS, slowly, perhaps in a few surprising stages, just when things may appear to be too complex. This I believe in completely. I am optimistic. "Sleepy plus Cuddly plus Orgasm" will eventually = Relaxed Bliss--------------I am in a very rare and happy mood today as my wife and I will have both our children visiting here together for a few days.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2828 on: 13/01/2009 19:12:46 »
Why keep the POIS name, even for now?

One compelling reason: many, many sufferers have found us here at The POIS Forum, by Googling keywords from Dr. Waldinger's POIS paper - which garnered significant worldwide publicity: not just the regular posters here, but also the people representing the nearly 200,000 page views of this forum.

I absolutely agree.  Changing the name from "POIS" would be an incredible setback; I don't think any single action could damage our cause more.  Under the current label, this condition is gaining recognition in the scientific research community.  It is also becoming more known amongst the general population; now, in other forums, when someone complains of symptoms associated with orgasm, I have seen references made to POIS.  And when the patient types this into a search engine, they are brought to the resources found here and elsewhere.

Besides, the problem described by people here, and written about in the literature, is absolutely overwhelmingly an unusual response to orgasm. There are peripheral stimuli (e.g. sometimes excessive amounts of sugar, etc.) but these vary from person to person and are never the main concern.  Any change which would make this less clear, would not only upset a majority of sufferers who would then be misrepresented, but would give researchers a mixed signal about the main problem -- again, stalling progress.

Finally, Steve, this is a debilitating condition.  I think most of us want to learn about the physiological problems that could cause our symptoms.  And to discuss supplements and medications which have had an effect.  And to attract productive and rigorous research efforts.  In this context, it's somewhat frivolous to consider whether Post-Orgasmic Illness Syndrome makes one think of a linoleum floor.  This is a serious problem, and it's not something I want to have, or want to embrace in any way.  I just want to learn about it, have it taken seriously, have productive research take place, and either manage it effectively, or preferably, free myself of it completely.
« Last Edit: 13/01/2009 19:19:35 by Counterpoints »
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2829 on: 13/01/2009 21:52:45 »
With respect to minor differences that may crop up from time to time on this forum, I'd like to comment. First of all, this is a fabulous forum, the best I've ever seen, with the best participants. POIS is probably the most delicate issue that could ever be discussed. And I submit, that delicate is the correct word when it comes to both subject matter and the mode of communication. With respect to the widely accepted term POIS, everybody is correct. I don't see a controvery or even differences.
Let me explain:
              All would probably agree that disorder can be a component of inquiry that may ultimately find its value through digression, reformulation and spontaneous ejaculation (please note the 2nd denotation in Websters). Merleau-Ponty observes,"...everyhing is linked by references to a center of interest...which no guidelines mark out in advance." On the other hand, as Vygotsky notes, "...words and other signs are those means that direct our mental operations...and channel them toward the solution of the problem confronting us."
              Thus, all the recent viewpoints are dialogically proper with respect to POIS, whether there be a spontaneous, prosaic observation or a response to it. All are constructive in their entirety. All seek to add to the discussion of POIS.
              Whether one describes their response to the term POIS with words like inadequacy or dishonest, and another asserts that such a response is frivolous ispart of a constructive discourse. As a philosopher and lawyer, I see no basis for the existence of opposition here. POIS is POIS and serves as a universally accepted term for this forum. It is its identity. However, if a post begins with a vivid, literary introduction that is clearly spontaneous, and ends with a thesis statement that supports the body of the post and urges us to consider POIS as an illness of stages and uses the term POIS twice, then I submit there is no basis of disagreement. This is part of a constructive, multi-perspective dialogue.
 

Offline SteveD

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2830 on: 13/01/2009 21:55:54 »
Why keep the POIS name, even for now?
I absolutely agree.  Changing the name from "POIS" would be an incredible setback;

This is a serious problem, and it's not something I want to have, or want to embrace in any way.  I just want to learn about it, have it taken seriously, or preferably, free myself of it completely.


Hold on guys, I didn't suggest changing the name! I, too, believe that would be minimally politically and financially foolish.
What I am suggesting is that there may be stages of this illness, where it can be arrested earlier and have less devastating consequences like cancer, diabetes or coronary heart disease. But to say that a heart attack should be looked at only at the point of infarction would be recklessly irresponsible, on my part, if I want wellness.

I want very much to talk about Girlwind's point , but like Underwater, I'm headed out the door.


Counterpoints,

As an aside, can you list the 10 mental symptoms you have found in your sample of 60% of the respondents?
 

Offline SteveD

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2831 on: 13/01/2009 21:57:23 »
With respect to minor differences that may crop up from time to time on this forum, I'd like to comment. First of all, this is a fabulous forum, the best I've ever seen, with the best participants. POIS is probably the most delicate issue that could ever be discussed. And I submit, that delicate is the correct word when it comes to both subject matter and the mode of communication. With respect to the widely accepted term POIS, everybody is correct. I don't see a controvery or even differences.
Let me explain:
              All would probably agree that disorder can be a component of inquiry that may ultimately find its value through digression, reformulation and spontaneous ejaculation (please note the 2nd denotation in Websters). Merleau-Ponty observes,"...everyhing is linked by references to a center of interest...which no guidelines mark out in advance." On the other hand, as Vygotsky notes, "...words and other signs are those means that direct our mental operations...and channel them toward the solution of the problem confronting us."
              Thus, all the recent viewpoints are dialogically proper with respect to POIS, whether there be a spontaneous, prosaic observation or a response to it. All are constructive in their entirety. All seek to add to the discussion of POIS.
              Whether one describes their response to the term POIS with words like inadequacy or dishonest, and another asserts that such a response is frivolous ispart of a constructive discourse. As a philosopher and lawyer, I see no basis for the existence of opposition here. POIS is POIS and serves as a universally accepted term for this forum. It is its identity. However, if a post begins with a vivid, literary introduction that is clearly spontaneous, and ends with a thesis statement that supports the body of the post and urges us to consider POIS as an illness of stages and uses the term POIS twice, then I submit there is no basis of disagreement. This is part of a constructive, multi-perspective dialogue.

Yeah, that!
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2832 on: 13/01/2009 22:20:41 »
urges us to consider POIS as an illness of stages and uses the term POIS twice, then I submit there is no basis of disagreement.

I'm not sure what the punchline of your post is.  Is it the above sentence in bold?  (No offense intended, honestly!) but you seem to be expressing, in a rather verbose fashion, that Steve's post is essentially sacrosanct, and that while criticisms are part of constructive discourse, my specific criticism has no place.  Of course, I disagree with that sentiment -- whether or not this is what you intended to get across.

I wasn't responding to the "stages" idea.  I was addressing this:
"Post Orgasmic Illness Syndrome. The name has a chilling feel to it, like walking down a waxed linoleum floored, olive drably-painted hospital hallway…There is a sense of on-ness, off-ness that, for me, feels inadequate, bordering on dishonest."

Yes, it may be a rhetorical flourish, and lead-in to his point, but it is also a very plain criticism of the name "POIS".  I felt it important to re-inforce Demografx' point that we would do well to stick with the same name.  I also think getting too "vivid and literary" can be dangerous, and frivolous at best.  It leads to misunderstandings, as evidenced by recent posts, it can be counter-productive (rather than comparing symptoms or medications, we are comparing metaphors), and it certainly wouldn't be entertained by physicians (it comes off as obsessive and dramatic... and this behaviour can cause us to become pre-occupied with something we are, in fact, trying to minimize in our lives).  If Demografx had talked to his endocrinologist in the style of the above quote ("the name has a chilling feel to it... olive drably-painted hospital hallway.."), I doubt he would have had his MRI, which revealed a real problem.  You're free to disagree, and you may have some good points to make in disagreement.  But I feel my concerns are important enough to express.  I think it's safe to say most of us don't want to have this problem.  And we don't want to risk having it romanticized.  And we don't want to lose focus.  This isn't an insult.  This is a concern from someone who is familiar with serious scientific research and wants it to be directed towards this condition.

« Last Edit: 13/01/2009 22:46:18 by Counterpoints »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2833 on: 13/01/2009 22:39:39 »
Counterpoints,
As an aside, can you list the 10 mental symptoms you have found in your sample of 60% of the respondents?

Hi Steve,
Sure.  As I said earlier, these are "very approximate" figures.  I made a post about this earlier, where I listed group 1, 2, 3 symptoms.  It's based on what I've seen in this thread, what has been sent to me through private message, what I've seen in the questionnaire responses, what I've read in papers, etc.  I don't have time to find the post right now, but I can repost it.  It was a list I made when I was about to consult with a neurologist researcher.  At the time, I welcomed additions and comments, and I still do.
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2834 on: 13/01/2009 23:58:30 »
ALPHA 20 C:
I've been away for a while. I know it is VERY EXPENSIVE, that's why I've stopped taking it.

Coreman--did the alpha 20c continue to be effective for POIS while you were taking it?  Did you repeat the experience of taking it in the middle of POIS and having your brain fog disappear within 10 minutes?


CCconfucius, you had said that you also purchased alpha20c:

I got sunrider product alpha 20c what a reap of but i need to find out whether it works or not. the ingredients according to box are;
nandina flower(chinese white flower), paris polyphylia(paris herb)root, scutellaria baicalensis (scutellaria herb)root; dandelion root; imperata root

Have you had a chance to test it yet?
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2835 on: 14/01/2009 00:15:23 »
Counterpoints--
It is very interesting that we can have such different "takes" on the same post.
I certainly did not intend to give the impression that one view was sacrosanct and immune from criticism. My intentions all along were to respond to the "give and take" of dialogue in a positive, two sided manner which has been one of my interests for many years. My apologies. I might have been verbose, but I enjoyed writing it. I just never read into  that post the idea of name change. I enjoyed the stylistic introduction, recognized a spontaneous utterance (felt the anguish that only spontaneity can generate)and read down to get to the main idea/s. The contributor is always painfully honest and revealing.
 

Offline SteveD

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2836 on: 14/01/2009 01:27:41 »
Counterpoints,
As an aside, can you list the 10 mental symptoms you have found in your sample of 60% of the respondents?

Hi Steve,
Sure.  As I said earlier, these are "very approximate" figures.  I made a post about this earlier, where I listed group 1, 2, 3 symptoms.  It's based on what I've seen in this thread, what has been sent to me through private message, what I've seen in the questionnaire responses, what I've read in papers, etc.  I don't have time to find the post right now, but I can repost it.  It was a list I made when I was about to consult with a neurologist researcher.  At the time, I welcomed additions and comments, and I still do.


I'd be grateful for the repost.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2837 on: 14/01/2009 03:04:53 »
UPDATE: MY ENDOCRINOLOGIST AND I PARTNERING A CURE FOR POIS

Visited with my University endo + did more bloodwork today.
Interestingly, Sidney Poitier, the famous actor, author, Ambassador and corporate chieftain, was visiting in the same office. I was told that many celebrities hang out here.

Quick recap, today's visit was after initial visit plus bloodwork and much email correspondence (email alone being unusual for extensive doctor/patient correspondence in my experience). Incredibly high prolactin levels plus low testosterone levels were found, leading to his recommended MRI of the brain, which found no major pathology.

If you'll notice above, I use the word "partnering". I firmly believe that after the visits, the labwork, the brain MRI and the emails, that the doctor and I have established a very good, mutually respectful bond. He even welcomed data from my biophysics friend about prolactin that I emailed to him. No ego problem here.

And Counterpoints is right in saying that I might not have gotten this far without Dr. Waldinger's POIS paper; in fact it was on his desk today. And as I mentioned in my previous post, the very existence of this POIS Forum added much medical credibility. Even to the point of almost getting our group here funded as part of a major study. The first round was rejected, but it's still possible. The main thing is that the doctor stuck his neck out for me and this forum. He took a chance and introduced me to the key grant/funding rainmaker and Chief Scientist of their illness-studies at the university. The excitement is that he is firmly committed to researching and curing my POIS! Something that I never experienced in my 30+ years of this despicable malady. Despicable? Sorry, emotions come creeping in when I think of how much of my life - and yours - has been wasted by POIS.

Frankly, in this process here at the University, I became afraid of tumors, dangerous drugs, horrendous procedures, including surgery, and more that seemed to be part of the path here. Thankfully, none of that is true so far.

The doctor's POIS theory, which he wants to test, yet is perfectly willing to abandon in favor of evidence elsewhere, is that my low testosterone may be creating abnormally high prolactin levels.

I protested: I tried testosterone for many, many months; it helped my libido (too much?) but did nothing for my POIS. His reply was that I tried DEPOtestosterone, which is erratic. Today, he prescribed 2 Androderm daily testosterone patches, which he said should stabilize my testosterone and, hopefully, bring down my prolactin. And hopefully treat POIS successfully. If not, onward and forward.........

I went to the lab after the meeting to test prolactin and testosterone again, and I have a lab visit scheduled for March for the same, plus Cortisol testing.

Anyway, that's it. I wanted to share that with you all. Thanks.
« Last Edit: 14/01/2009 16:22:29 by demografx »
 

Offline OmBass

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2838 on: 14/01/2009 03:26:02 »
Hi all,
I'd like to share my input and experience here.

First off, I have had a couple bouts with POIS. Cool to have found the forum here. And honestly, I think I understand the mechanism behind the illness. Basically it all comes down to this: ADRENAL EXHAUSTION.

I have been suffering from varying degrees of adrenal problems for many years. I have made great improvements. There was a time when I couldn't have an orgasm without becoming extremely depressed for minimum 24hrs afterwards. This was a time when I was going through a great amount of stress, and my body's energy reserves were very low. This is also a time when I was drinking a lot of coffee to balance the energy lows. And this my friends, I believe is truly the source of our problems. Let me explain:

First off, I overcame that bout of POIS through rest (8+ hours a night if possible), cutting out coffee and all stimulants, and eliminating as much stress in my life as possible.

I was just in Thailand and met a wonderful girl there. We spent almost a month together. We had sex daily, sometimes more than once a day. And I never got and POIS. However, I did notice that if i really pushed it. Like 3x in one day, i could get a bit of POIS. But only for half a day or so. So essentially, I was having sex with no problems and no POIS. Sure, I would have liked to been boinking 5x a day like a porno stud, but considering i could barely have sex months prior, I was having the time of my life.

Now, fast forward 2 months. The only thing I have changed in 2 months is... I have started drinking COFFEE. And a decent amount of it. Before that it was green tea in the morning and that was it for caffeine. Started with one (strong) double latte in the morning, and then upped it to one in the afternoon too. This continued for a couple of months. And now I am finding myself just starting to be sexually active with a new GF. And guess what? The WORST case of POIS ever!! Horrible depression, anxiety, lethargy, irritability for 2 days now since orgasm. Horrendously debilitating, to the point where I cant even do my job. I have actually been pretty freaked out about it, as I just feel AWFUL. 

And keep this in mind: The ONLY thing i have changed since my previous POIS-free sexual romps is the addition of a lot of coffee. And this affects the dopamine system, as well as the adrenals, both of which I believe are major factor in all this POIS stuff. LIke it or dont, ejaculation expends energy. Chi, qi, lifeforce, dopamine, whatever you'd like to call it. And so does coffee, stimilants, etc. They all are affecting the same reserves. My acupuncturist refers to adrenals as a sorta shock absorbers. They can take a bit, but only so much. They can take an orgasm or two, but that on top of too much coffee, amphetamines, stress, etc=POIS.

Remember: POIS is not normal! the majority of people have orgasms without consequence. So what is wrong? Our bodies are overworked, and overtaxed. And its not purely coffee alone. But coffee is a MAJOR stimulant which you may be underestimating in regards to its effects on your body. Its very glorified and praised by many, and I more than understand the lure and draw and all out yumminess and satisfaction that is a proper cup of coffee. I was just drawn into its seductive web myself after over a year of being off of it. However, the cost is just too great! What would you rather have? Coffee or sex? For me the choice is clear :)

The all out HORRIBLE POIS symptoms I have been experiencing for the last 48 hours prompted me to trace back my steps, be scientific about it and do some research, which led me to this forum. I am no Dr, but I am very experienced with adrenal exhaustion/fatigue, and its symptoms and treatment. And the one thing I can say for certain is this:

THE DRUGS APPROACH IS THE WRONG ONE AND WILL JUST MAKE YOU WORSE IN THE LONG RUN!!!!!!

Its not about finding the "right" drug. its about getting off the stimulants in particular, and just letting your body heal and function normally. Any sort of detox would be wonderful for your system, and I would recommend it heartily. The reason why you get the POIS is that your bodies energy/dopamine reserves are essentially at zero due to overuse of stimulants! Caffiene and amphetamines = NOT GOOD and will just make you much worse off.

Here's a great article and overview for Adrenal Fatigue:

newbielink:http://www.drlam.com/articles/adrenal_fatigue.asp [nonactive]

Or Just google it. Understanding it is the key to getting better!

There's also the best book I've seen about called "Adrenal Fatigue: The 21st Century Stress Syndrome." Its available at Amazon or adrenalfatigue.org

Hope this helps! I for one am absolutely certain that the elimination of coffee (cut it out completely today), the addition of more sleep, along with just treating my body right and following the basic principles for adrenal health and recovery, will bring about my own recovery and restoration of well being. I speak from experience! I was there, and was able to reverse all progress and end up worse than i started by just adding a bunch of coffee to my life.

COFFEE=BAD!!! Cut it out along with the stimulants, and get on the rd to feeling better :-) Yes, I know, you're tired. But its because your whole system REALLY is tired. Your body is freaking EXHAUSTED, and all the coffee is just making it worse! You dont have to live with this! You can get better! Just give your body a break. Read up on all this and take it to heart. The more drugs approach is just burying you deeper...

Good luck and a speedy recovery to everyone!
« Last Edit: 14/01/2009 03:31:17 by OmBass »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2839 on: 14/01/2009 03:29:19 »
But I just renewed my subscription to Drugs 'R' Us....
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2840 on: 14/01/2009 03:47:15 »
Thanks for the report Demo--
Testosterone Prolactin balance, very interesting--
Congratulations on your relationship with this physician, sounds hopeful--
Is the assumption that a patch will stabilize the testosterone at a lower level, or just stabilize it generally?
In a previous post, I recall there being some consideration with Prolactin/Dopamine balance. Is this still a consideration?
Thanks for the update---
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2841 on: 14/01/2009 03:50:21 »
SEXUAL/ORGASMIC REPRESSION
Some researchers have found that sexual/orgasmic repression can eventually lead to hostility and rage. In my personal experience, I find that movement in that direction can be true for me. That doesn't mean I necessarily become hostile or angry, but I can feel the tension building. For me, the building intensity is felt clearly after about 6 weeks.

To counter this tension, for decades, I have experimented seriously, tried various forms of meditation, spirituality, etc. to no avail. I can suppress sexuality, but not with a very positive outcome in social interaction, self-esteem, and confidence. Even my pianoplaying deteriorates! :)

Demo, about occasional hostility, rage and even blind fanaticism when sexually abstinent, here is the best I can say that has been helpful:
-Reducing/suppressing : salt, zinc, sugar, coffee, food additives, multivitamin (my experience was with supplements containing only vitamins (no minerals) in RDA doses). 
-Doing more (and finish!) pleasant manual and mental work, long physical exercise (so eventually it's possible to eat more easily what was suppressed above)
-Taking more water, lettuce, can help.
-Having meals in full silence, mastication is important.

Even if this is happening only when sexually abstinent, I think it's definitely not the unique cause. There is certainly something else abnormal and more profound causing that. It's not everybody who reacts like that

It is said that low serotonin or low or excessive testosterone can cause hostility. Maybe pois itself is responsible, it's a way for this awful thing to appear again as a long term side effect when we think it's over !

I'd add that a minimum of rage is absolutely necessary to achieve some difficult tasks, and can often be very positive specially when you can fight and win over the frustration.


 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2842 on: 14/01/2009 04:02:07 »
I've just read your last post Demo, this sounds extremely encouraging. (Please correct the error high testosterone in your last post :)). I'll search about this new treatment he gave you.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2843 on: 14/01/2009 04:29:21 »
Thanks for the report Demo--
Testosterone Prolactin balance, very interesting--
Congratulations on your relationship with this physician, sounds hopeful--
Is the assumption that a patch will stabilize the testosterone at a lower level, or just stabilize it generally?
In a previous post, I recall there being some consideration with Prolactin/Dopamine balance. Is this still a consideration?
Thanks for the update---

Thanks, Underwater. The idea is to stabilize the testosterone level to a higher level, and not erratically as I did before with depotestosterone. Prolactin/dopamine? No, must've been someone else. Thanks again.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2844 on: 14/01/2009 04:33:38 »
I've just read your last post Demo, this sounds extremely encouraging. (Please correct the error high testosterone in your last post :)). I'll search about this new treatment he gave you.

Martin, thanks for catching that error! (I fixed it). I have to be careful around Martin! :) And thank you for the positive feedback about today's POIS cure-search-in-progress!
« Last Edit: 14/01/2009 04:37:25 by demografx »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2845 on: 14/01/2009 05:07:31 »
Demo, before you took the first DEPOtestosterone were you low in testosterone ? If elevated prolactin is linked with low testosterone perhaps DEPOtestosterone blocked your own T production thus increasing PRL (?)

Also a nice thing would be to test for estrogen while taking testosterone to check for possible aromatization as it was mentionned by other forum members. I read that a possible side effect from your new treatment is gynecomastia (caused by aromatization), but probably you don't take a big dose, and your endo know what he's doing.
PSA should be tested too.
« Last Edit: 14/01/2009 05:24:32 by martin88 »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2846 on: 14/01/2009 05:20:42 »
Demo, about occasional hostility, rage and even blind fanaticism when sexually abstinent, here is the best I can say that has been helpful:.........

Martin, perhaps you missed my point: I simply believe that sexual/orgasmic repression is unhealthy at some point. It is different for everyone. I don't wish to "fix" that, I simply will respect it. For me, that means to not be chaste beyond 6 weeks or so. I also don't believe that is abnormal; just the opposite: it proves that we are sexually expressive beings! Suppresssion of natural desires can make one become ill (e.g., hostile, aggressive, depressed, etc.). For example, and I know this is very controversial, but I believe that the problem shows very clearly in some (but not all!) celibate clergy. I'm absolutely sure not everyone agrees with me. :)
« Last Edit: 14/01/2009 05:48:49 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2847 on: 14/01/2009 05:32:33 »
Demo, before you took the first DEPOtestosterone were you low in testosterone?
Maybe, but the test may have been faulty, it was standard urological testing, but the current tests were more comprehensive. My prime objective was to follow a Czechoslovakian sex therapist's theory that POIS can be cured with testosterone.
If elevated prolactin is linked with low testosterone perhaps DEPOtestosterone blocked your own T production thus increasing PRL (?)
Yes, it's possible. The doctor admits he is trying the best experiments with the data at hand. If wrong, we will switch course.
Also a nice thing would be to test for estrogen while taking testosterone to check for possible aromatization as it was mentioned by other forum members before. I read that a possible side effect from your new treatment is gynecomastia (caused by aromatization), but probably you don't take a big dose, and your endo know what he's doing.PSA should be tested too.
"Your endo knows what he's doing" is my motto. One could go crazy trying to "play doctor" when one is not a doctor. My philosophy is find the best doctor that I can as a limited non-medico human being and to then give him full creative expression and promote his absolute best thinking. My input to him will be extremely selective. I will only change that when I see or suspect something drastically wrong. I have been moderately successful in my life doing that. Could I die following that philosophy? Yes. :)

PSA is tested regularly with urologist.
« Last Edit: 14/01/2009 05:46:33 by demografx »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2848 on: 14/01/2009 05:52:20 »
Underwater, I might have confused you with high vs. low testosterone. Martin caught the error in my lengthy post and I fixed it.
 

Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2849 on: 14/01/2009 06:03:49 »
UPDATE: MY ENDOCRINOLOGIST AND I PARTNERING A SEARCH FOR POIS

Thanks for the update Demo.  I wish I could get more tests myself, but the doctors here have abandoned me long ago.  Just want to say if someday there is some research study, and they need test subjects, just tell me when and where and I'M THERE.

Btw - does any notice heavy palpitations during POIS?  This usually happens after a meal, execpt during POIS, its amplyfied to the point I can feel my pulse in my hands and head...drives me nutts!
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2849 on: 14/01/2009 06:03:49 »

 

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