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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6432941 times)

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3825 on: 11/03/2009 04:14:33 »
A small adenoma was found on my pituitary.

My regards.
 

Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3826 on: 11/03/2009 13:17:56 »
Counterpoints, I am very sorry to hear about your condition.

I suppose the only thing that can be derived from this news is that you may have found the source of your symptoms.

My condolensces are with you.
 

Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3827 on: 11/03/2009 13:24:17 »
I intended to give my Day 3 report of my Tyrosine experiment, however in light of Counterpoint's news, i'm not sure i would feel right delivering the update to you all.

However, if people are okay with it, then i will provide the Day 3 update.

Thanks

Ambient
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3828 on: 11/03/2009 15:36:10 »
Counterpoints--
Best wishes to you. With this discovery, I hope and am confident that the right medications will provide the necessary therapy to control this condition and also provide relief for POIS. The news might sound disappointing, but I bet it opens the door to a lot better health in the future.
Sincerely,
Underwater
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3829 on: 11/03/2009 16:08:20 »
I intended to give my Day 3 report of my Tyrosine experiment, however in light of Counterpoint's news, i'm not sure i would feel right delivering the update to you all.

However, if people are okay with it, then i will provide the Day 3 update.

Thanks

Ambient

Ambient, thank you. I deleted my Day 1/ + endo post yesterday for that reason. I'll post Day 2 soon.

Counterpoints has contributed a lot to my success with his urging for testing and his upgrading of our forum.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3830 on: 11/03/2009 16:59:47 »
A small adenoma was found on my pituitary.
sorry to hear the bad news.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3831 on: 11/03/2009 17:46:23 »
Thanks everyone.  I'm not sure if this is the cause of any problems, or not.  Apparently up to 10% of the adult population have an 'incidentaloma' on the pituitary (e.g. a tumor that does not affect anything).  However, from my cortisol levels, and my symptoms, I was already suspicious about a pituitary problem.  I don't think it's cancerous, Demo, so it should be contained.  It could be causing endocrine imbalances, though, and interfering with my physiological response to orgasm (which, like most here, is quite severely abnormal).

Ambient, and everyone else, please keep on with the updates: I would certainly rather you did that didn't!

I'll stay in touch.  I think the next step might be getting an ACTH level check near the pituitary, through sinus sampling.  I have yet to have a scan of the abdomen, which I think is important.  I think I should also get a scan of my prostate.  In my case, orgasm does not always cause symptoms.  It usually does.  And when it does, I've noticed a burning sensation in my prostate area, plus persistent pressure.  When it doesn't, I don't experience this. The burning usually sets in before symptoms, so usually I have some idea about whether or not I'll be symptomatic before I actually feel any symptoms.

Also, cortisol may not be solely responsible for my POIS symptoms.  The pituitary both regulates sexual response and cortisol levels... so something affecting the pituitary could affect both, and both could be somewhat independent. It's hard to say with certainty though.

Best,
CP

PS.  I remember pyropeach mentioning something (possibly?) similar on his pituitary?  Maybe if he reads this, he could provide some more info.
« Last Edit: 12/03/2009 01:10:57 by Counterpoints »
 

Offline nsf

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3832 on: 11/03/2009 18:29:43 »
Counterpoints, I wish you quick, complete and painless recovery.

I have been following up my body responses post "O" and have been looking out for symptoms. I do have brain fog, worsened anxiety problems and high stress for few days after. I also have good amount of physical exhaustion and problems. The cortisol theory looks logical. Interestingly, I had come across an article that talks about "dormant virus" in the nerve endings that could wake up when immunity levels are low and cause various problems to the body. This seemed aligned to the physical symptoms I have had on POIS (Except that I could not see an explicit Shingles as in the article, but have had psoriasis attack few months ago). The attached link is: newbielink:http://www.painfoundation.org/ManageYourPain/Shingles/PhysicalMental.pdf [nonactive]
 

Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3833 on: 11/03/2009 19:22:26 »
Counterpoints, since you insist that we carry on, i would be delighted to provide my Day 3 report on the Tyrosine Experiment:

TYROSINE EXPERIMENT

DAY 3

It is the third day of my Tyrosine experiment, in which i take 1g of Tyrosine every morning and note its effect on my POIS symptoms, which ususally peak at around day 2 and last until around day 5 or 6.

Update: Since the usual Day 2 peak occurred with fewer symptoms, I am glad to report that today, much like yesterday, has passed with fewer POIS symptoms.

Symptoms avoided on Day 3:  No depression
                            No suicidal thoughts
                            Brain haze (experienced on day 2) is clearing.
                            No social withdrawal
                            Improved self-confidence
                            No (or hardly any) fatigue.
                            Sense of humour restored

Symptoms which remain are:  Slight inability to concentrate
                            Focus seems somewhat low.
                           

However, it is possible that these symptoms are consequences of the consistently high tyrosine in my system. Does anybody concur?

To summarise, improvements on Day 2 continue on Day 3. I feel that tomorrow i may possibly be entirely rid of POIS symptoms, in which case the span of my symptoms would have decreased from 5-6 days, to 3-4 days.

As i previously mentioned, i feel that more could be done to improve symptoms more quickly.

Also, it is my suspicion that my remaining symptoms could be related to high levels of Tyrosine. What are your thoughts on this?

Thank you

Ambient
« Last Edit: 11/03/2009 19:24:39 by Ambient123 »
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3834 on: 11/03/2009 20:04:53 »
Counterpoints, I wish you quick, complete and painless recovery.

I have been following up my body responses post "O" and have been looking out for symptoms. I do have brain fog, worsened anxiety problems and high stress for few days after. I also have good amount of physical exhaustion and problems. The cortisol theory looks logical. Interestingly, I had come across an article that talks about "dormant virus" in the nerve endings that could wake up when immunity levels are low and cause various problems to the body. This seemed aligned to the physical symptoms I have had on POIS (Except that I could not see an explicit Shingles as in the article, but have had psoriasis attack few months ago). The attached link is: http://www.painfoundation.org/ManageYourPain/Shingles/PhysicalMental.pdf


NSF---
Very interesting. I've always wondered if there was such a thing as a "dormant virus" that may be triggered by orgasm. My symptoms "are allergy like", and I hate the burning in groin area and sore lower back. It feels like a direct autoimmune response. My anxiety also spikes with sweating and paresthesia. Do you have any burning or irritation in groin or lower back? Do you have any other allergic type response? You mentioned Psoriasis. This is interesting. How do you sleep? Have you tried any antibiotics?
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3835 on: 11/03/2009 20:33:05 »
Counterpoints--
You too mention a burning sensation in prostate. I definitely have this. It drives me crazy. It comes on post orgasm AND during stress!! In 2007 I had it on and off all year; also well into 2008. I suspect that arousal and orgasm cause inflammation. I've watched it happen many times. This is why I lean to theories like autoimmune and dormant virus etc.
My thinking has undergone a complete shift since Dec last yr. I no longer think about neurotransmitters, but instead inflammatory response. In my case, I think the inflammatory response triggers hormone issues etc. But to tell any of my doctors this idea? How could I even experiment with this? Take Advil? I'm nearly allergic to everything. Load myself with blackberries, blueberries and onions? I may have to remain abstinent the rest of my life, which- thank god-probably isn't all that long anymore. Still, I can't imagine finishing my 60's and 70's with no sex at all. Eighties, Okay--------Misery needs some humor I think---
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3836 on: 11/03/2009 21:15:11 »

I remember pyropeach mentioning something (possibly?) similar on his pituitary?  Maybe if he reads this, he could provide some more info.


I found the following and, hope you don't mind, I PM'd pyro to see if he can add anything to this:


I found this on wikipedia.org  - interesting: if oxytocin and prolactin are responsible for the refractory period maybe these chemicals are related to our symptoms....



Interesting idea tarkington as my own prolactin levels are slightly elevated due to a small (4mm) growth on my pituitary.   

« Last Edit: 11/03/2009 21:19:08 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3837 on: 11/03/2009 22:04:43 »
Underwater,

You speak the agony language of POIS all too well! Keep the faith. I'm glad I did, though I don't know how, decade after decade!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3838 on: 11/03/2009 22:07:31 »
Ambient, congratulations on the sustained improvement!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3839 on: 11/03/2009 22:25:11 »
DAY 2: STILL A 'MIRACLE'!

After 30+ years' POIS agony, it's hard to believe that it's probably...finally over! According to my endocrinologist visit yesterday, I have little reason to believe otherwise.

Today is Day 2, and I feel terrific. No burning fingertips. No exhaustion. No severe brain fog. Just my silly old self.

Today, I rushed over to the piano to play. Got somewhat creative. That would NEVER, ever happen before.

The endocrinologist confirmed that my testosterone level increased, which I could "feel". It went from 166 to 255, a "low normal". If that doesn't go up by June, he might switch me to a "pump gel" to increase the dosage. Meanwhile I'm happy with it.

My endo is medically content with my testosterone + Levitra "cocktail" method of combatting POIS.

I wish everyone this same level of success! And you will find it if you don't give up. With this forum, we have all advanced phenomenally the state of understanding and possible cures for POIS. And they will continue progressing rapidly. Best wishes.

This is not medical advice. See your physician for the course of treatment that is right for you.
« Last Edit: 12/03/2009 17:53:58 by demografx »
 

Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3840 on: 12/03/2009 01:11:03 »
Demografx

Congratulations on your POIS success. We can all look to you for inspiration in the face of POIS. I intend to make an appointment with a doctor and suggest an Endocrinologist appointment to see if any hormones are out of balance as it were.

While the Tyrosine has somewhat improved my symptoms, i still feel that Fatigue and brain haze into Day 2 and part of 3. Do you think it could it be possible that my Testosterone levels are somewhat below normal? Just a thought, because i notice that POIS reduces my ability to interact physically. For example, i work in a kitchen part time, and POIS affects my efficiency in the job, eg i will be slower and less energetic when preparing dishes.

What do you think personally? As a POIS sufferer whose symptoms seemed to originate largely from Testosterone, you will understand this more than i do.

Thanks

Ambient
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3841 on: 12/03/2009 01:13:01 »

I remember pyropeach mentioning something (possibly?) similar on his pituitary?  Maybe if he reads this, he could provide some more info.


I found the following and, hope you don't mind, I PM'd pyro to see if he can add anything to this:


I found this on wikipedia.org  - interesting: if oxytocin and prolactin are responsible for the refractory period maybe these chemicals are related to our symptoms....



Interesting idea tarkington as my own prolactin levels are slightly elevated due to a small (4mm) growth on my pituitary.   


Thanks Demo. And congratulations!

 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3842 on: 12/03/2009 01:14:33 »
Underwater,

Advil only acts as anti-inflammatory for certain things.  You could try a drug like prednisone, just as a test.  It's not something you'd want to get in a habit of taking.....  but if you found out that a small dose every couple weeks, just before orgasm, cured your POIS, it's probably worth it!
 

Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3843 on: 12/03/2009 01:40:32 »

I remember pyropeach mentioning something (possibly?) similar on his pituitary?  Maybe if he reads this, he could provide some more info.


I found the following and, hope you don't mind, I PM'd pyro to see if he can add anything to this:


I found this on wikipedia.org  - interesting: if oxytocin and prolactin are responsible for the refractory period maybe these chemicals are related to our symptoms....



Interesting idea tarkington as my own prolactin levels are slightly elevated due to a small (4mm) growth on my pituitary.   


I got the PM and I'm afraid there isn't much more I can say about the growth on my pituitary than what I've already said. 

I've just started using phosphatidyl serine and it seems to be working so far...better than Relora.  The symptoms are down to around 10% now.  But I've just started using it, and will see how long it'll last.

Demo - That's freakin awesome, congratulations!!  On my next visit to my doctor, which is next week, I will definitely try to get another test for testosterone. 
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3844 on: 12/03/2009 02:54:44 »

Demo - That's freakin awesome, congratulations!!  On my next visit to my doctor, which is next week, I will definitely try to get another test for testosterone. 


Thanks, Pyro! Get as many breakdowns as you can, e.g., free T, bioavailable T, FSH, LH, SHGB.

Congrats on  your trials and reportage of Relora and PS!
« Last Edit: 12/03/2009 06:36:26 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3845 on: 12/03/2009 06:20:13 »
Ambient, only a blood test of your testosterone levels, preferably done by an endocrinologist, can determine your status. At the same time, you might as well check your other key hormones. There have been many posts here with discussions of what to test.
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3846 on: 12/03/2009 13:41:52 »
Web site update :
For a lot of reasons I decided I won't do the web site with Aaron. I think he will. Maybe he'll explain what he wants to do in details. Even if I had already done the work on the links it was not the biggest part.

For the poll I wanted to do I'll make it myself separately if I see you'll use it. I don't want to work for nothing :).  Maybe some of you can PM me so I'll know if you'll answer the questions in the poll (you'll only have to choose between different answers, and you'll be able to enter your own question/answers). What I have already done was useful to see the amount of work needed. Thanks to all who will give their input!
« Last Edit: 18/03/2009 02:31:23 by martin88 »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3847 on: 12/03/2009 14:02:50 »
3 months ago I had an appointment for yesterday with a new doctor. I went there and I said I'm only here to have these tests and I gave my list. It was a 45-50 y old woman, she told me "no problem I'll give you all" !
I have a blood and a urine test for cortisol but I realize now it's not written 24h.., does anyone know if a urine test is always 24h ? otherwise I must go back. Then she started to investigate my case and concluded it's psychological, it's a depression . I had a NE two days ago and she saw me morally down. I said her I won't be like that in two weeks and she talked about bipolar disorder. I gave her the paper from Dr Waldinger and she started to read the begining and put it under other papers saying "I'm late I don't have time, I'll read it later" In fact I didn't really want to give her this paper  I wanted the tests only and I have them. So I think when you see a doctor, the first thing you say is very important.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3848 on: 12/03/2009 17:37:23 »
3 months ago I had an appointment for yesterday with a new doctor. I went there and I said I'm only here to have these tests and I gave my list. It was a 45-50 y old woman, she told me "no problem I'll give you all" !
I have a blood and a urine test for cortisol but I realize now it's not written 24h.., does anyone know if a urine test is always 24h ? otherwise I must go back. Then she started to investigate my case and concluded it's psychological, it's a depression . I had a NE two days ago and she saw me morally down. I said her I won't be like that in two weeks and she talked about bipolar disorder. I gave her the paper from Dr Waldinger and she started to read the begining and put it under other papers saying "I'm late I don't have time, I'll read it later" In fact I didn't really want to give her this paper  I wanted the tests only and I have them. So I think when you see a doctor, the first thing you say is very important.

That is very true.  Am thinking when i eventually get to see doctor, i am not going to mention pois, i will just mention the symptoms and see how the doctor reacts and what he or she says.  Whenever the orgasm is mentioned it seems as if that is when they want to start talking about that  uncle that gave you one to many gifts
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3849 on: 12/03/2009 17:43:09 »
First i want to show a "funny" study i found :
http://www.sciencedaily.com/releases/2009/01/090126082343.htm
http://www.livescience.com/health/090126-masturbation-prostate.html

I do no matter of this study but i only find this funny to see how one of famous argument used by anti-Pois people is seriously damaged now.  ;D
The reality is scientific knowledge about orgasm is at its begining .
So deying Pois is absolutely stupid.
---
Yesterday i had another orgasm (NE). Dispite I had few symptoms compared to my state 6 months ago(no sugar :) ) I realized how orgasm affects my immune system. I caught an intestinal flu so quickly and so easily... Of course I will never know I would have it without the 2 orgasms... So, I think it and I would like to give a chance to plants and why not Alpha20C. I don't know if it is available in my area.
It's not easy to find what is the starting point of Pois. Immune systeme is linked to hormones too (testo/cortisol <=> immune system for example). That's a complex mechanism...
Improve my immune system is my priority and sugar my favorite suspect.
---
Hi, Pyro. Thanks for PS report and congratulations. I add it to database.
Thanks to all solutions testers. You can send me updates by PM if you want.
This could be the advantage of creating a new website to have an easy tool to follow all  suferers diary.





These scientist are truly confused on the same science daily page there is article that sexual activity reduces the posibility of prostate cancer.
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3849 on: 12/03/2009 17:43:09 »

 

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