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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6448181 times)

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3950 on: 25/03/2009 17:05:19 »
Demo----
Thanks for the support
Jim_B----
I hope my experiment adds a little bit to the discussion

This whole thing seems surrealistic. I have learned quite a bit the last several months, because this forum stimulates the thought process. I would not be thinking if I were not writing. I remember reading about Waldinger a few years back and his autoimmune thesis, but it didn't mean much to me. I always figured there may be a negative response to semen or something else. I had no idea we released histamines at orgasm. This forum forces one to do research. That is good. The unfortunate thing is that we have to experiment on ourselves--ouch! I can't even believe that I once thought POIS was psychological, although I believe there is a psychological component to the symptomatology. For me, I have to wade through POIS, GAD and Allergies. It would be a miracle of miracles if Histamine -along with possibly other unknown culprits- was the source of all my conditions? I'd certainly like to find at least some relief at sixty. So far at 33 hours, no trace of POIS. Claritin seems to have worn off. I will not take another. I will post later this evening around 43 hours.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3951 on: 25/03/2009 18:13:34 »

It would be a miracle of miracles if Histamine -along with possibly other unknown culprits- was the source of all my conditions? I'd certainly like to find at least some relief at sixty.


Very often I think a simple solution is the answer (Occam's Razor). The "miracle of miracles" for me is testosterone + Levitra, hardly a complex regimen! But like you, I'm surprised. And all it took for me was a simple bloodtest and an obvious observation of my ED :)


I will post later this evening around 43 hours.


Looking forward to it!
« Last Edit: 25/03/2009 18:21:10 by demografx »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3952 on: 25/03/2009 18:56:00 »
For inflammation, hs-CRP (high sensitivity CRP) and ESR (erythrocyte sedimentation rate) tests might be best (preferably both tested at the same time).
« Last Edit: 26/03/2009 00:29:58 by Counterpoints »
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3953 on: 26/03/2009 03:28:11 »
It's about 42 hours since "O"--
The day was fine, and I had no POIS symptoms--
The moderate back pain and associated perineum burning dissipated around 30 hrs. This is optimistic because these two problems always stayed with me the longest; at least 5 days. In fact, these two symptoms have always signaled that I'm well into POIS.
It feels like the Claritin is out of my system. And the little research that I've done on free Histamine suggests that it is gone also. It is also possible that my supplements have contributed to the results of this experiment. (If anybody is interested, I'll list them). I also have been drinking significantly more fluids the last 2-3 weeks, along with a lot of frozen cherries and other berries. I also stopped swimming a month ago, replaced with long distance walking. I need to digest what has just happened and continue to focus on improving my anxiety condition. I intend to experiment with SAMe and/or methionine in a day or two to try and help blunt my Histamine production. 
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3954 on: 26/03/2009 03:59:47 »
Congratulations, Underwater!
 

Offline nTonic

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3955 on: 26/03/2009 16:08:16 »
It's so encouraging to see Underwater having progress with Claritin. I might give it a go as well!

I have seen that one of the members here tried DHEA and it worked for him. I wonder if there's anyone else trying it and whether it has any effect?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3956 on: 26/03/2009 16:32:58 »

I have seen that one of the members here tried DHEA and it worked for him. I wonder if there's anyone else trying it and whether it has any effect?


nTonic, here are some forum posts about DHEA:
http://www.google.com/search?hl=en&q=+DHEA+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

After you click on a result you're interested in, use Ctrl + F and type keyword(s) to zero in on the specific post you're looking for.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3957 on: 26/03/2009 17:36:20 »

It's so encouraging to see Underwater having progress with Claritin. I might give it a go as well!


POISitin® kidding aside, I do see now that my nose is stuffed up immediately afterwards. I use Afrin to clear it up. Maybe Claritin will up my cure?
« Last Edit: 26/03/2009 17:49:15 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3958 on: 26/03/2009 18:01:03 »


Dr. Marcel Waldinger, neuropsychiatrist, Primary Investigator and author of classic 2002 POIS Study. He is in communication with our POIS Forum here at The Naked Scientists. For a copy of his POIS study, send a private message to pyropeach with your email address and he will send you a copy.

Marcel D. Waldinger, MD, PhD is neuropsychiatrist and head of the Department of Consultative Psychiatry and the outpatient Department of Neurosexology at Leyenburg Hospital in The Hague in The Netherlands.

He is Associate Professor in Sexual Psychopharmacology at the Faculty of Pharmaceutical Sciences of the University of Utrecht in The Netherlands.

Since 1992 Dr. Waldinger treats and investigates premature ejaculation (ejaculatio praecox) and other ejaculatory problems. In 1997 he received his PhD on this subject.

His renewing ideas and studies have been published in various scientific journals and daily newspapers.

The outpatient Department of Neurosexology of the Leyenburg Hospital in The Hague has been the most specialized outpatient clinic for the treatment of premature ejaculation in the Netherlands and Europe for the last 15 years.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3959 on: 26/03/2009 18:02:20 »


Dr. Dave Schweitzer, co-author of original 2002 POIS Study with Dr. Marcel Waldinger, also in touch with our forum here, since 1994 internist-endocrinologist in Reinier de Graaf Groep, Netherlands. His interest is mainly in hormonal diseases and diseases of the metabolism. He does research on the endocrinology of sexuality and seriously overweight. His work is published in international journals.
« Last Edit: 26/03/2009 23:21:22 by demografx »
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3960 on: 26/03/2009 20:56:06 »
Observations Re: Claritin and POIS
It seemed to significantly interfere with the onset of POIS, especially with symptoms connected to my skin. These would be tingles, needles, sweat, hot/cold sensations etc. Also, I never got a panic/anxiety type of jolt that I usually get. Without those initial sensations, I guess POIS never got started. However a sensation that always shows up in POIS- back and perineum discomfort- did show up. But it was 80% shorter in duration than usual. This is the most important factor for me, as this is an awful feeling. No cognitive issues or fatigue. However, I probably have a mild depression as side effects from the Claritin, as I noticed this the previous two times I took it earlier in the week. I believe this is just one little experiment, but maybe it can help direct my thinking toward a more permanent solution to my POIS and GAD. The symptoms of both, for me, overlap. Again, I thank Demo and this forum for helping me take a little step in this long journey toward a cure for both POIS and GAD.
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3961 on: 26/03/2009 21:01:49 »
I remember trying an anti-allergy medication such as Claritin, although I forget the brand, and it did not help me in my POIS. But hopefully it keeps working for you Underwater.
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3962 on: 26/03/2009 21:53:53 »
John--
I initially bought Claritin for my allergies. I was getting lightheaded when my sinuses swelled. I still have this problem,although it may also be related to anxiety. I tried it and it helped a bit.
Since I have lately considered Histamine a possible POIS culprit, I kept this by my bed "just in case". I figured it was an antihistamine, so why not give it a try if I ever get another NE. Well, lo and behold, a week after I bought it, and three days after I used it for my lightheadedness, I got my NE. I said to myself, "Just do it you chickenshit"; so I did. I did an experiment that confirmed that my H1 receptors were being blocked: I got an itch on my shoulder a couple hours after "O". If I ever get an itch on my shoulder in bed and I scratch it, I'm in big trouble, because it will flare up like crazy and cause me to scratch, and it will get worse, and I will itch like mad. etc. So I scratched real hard. I just got relief!!!! This never happens.
 

Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3963 on: 26/03/2009 21:57:26 »
Congratulations Underwater! You have always explored things beyond the usual on this forum, so that pays of now! I wonder of this also has affected your tinnitus positively? And yes I would be very interested in your supplements as well! So encouraging to see long-time pois-sufferers make breakthru! Good luck, Rocky
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3964 on: 26/03/2009 23:14:58 »
DAY ZERO AGAIN!

My POIS treatment is working,  but now it's changing me into a teenager again. Help! ;D
« Last Edit: 26/03/2009 23:17:01 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3965 on: 26/03/2009 23:27:49 »
Congrats again, Underwater! Go, Anti-POIS team, Go!
 

Offline underwater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3966 on: 26/03/2009 23:35:50 »
Demo--
If you must return to the teenage years, by all means, enjoy them. I'll trade any day of the week. Too bad I didn't make the most of them when I was there. But "wow", do you remember all those fantastic teenager songs of the early 60's? Some great melodies!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3967 on: 27/03/2009 02:28:03 »
Yes, Underwater, they're great,  I play many of them on the piano often.

ps - yes, many of us didn't make the most of those years. Reminds me of the old expression, "Youth is wasted on the young."
« Last Edit: 27/03/2009 02:46:53 by demografx »
 

Offline EDS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3968 on: 27/03/2009 03:15:02 »
WOW!! I have finally found a forum about POIS! I am 51 and have been plagued by this frustrating syndrome since my teens. I was ecstatic about Dr. Waldinger's report that finally described the symptoms I was experiencing - and that I wasn't alone (even though I wouldn't wish this on anyone). I just felt good to know that I wasn't crazy (like some of the doc's insisted I was).

In 2004 I was one of the rare individuals that filled out a questionnaire for Dr. Waldinger and spoke with him on the phone several times. They were even considering a documentary on POIS with me as the test subject. I was willing to travel to the Netherlands if it would help with the interest and research of POIS. Then, without warning, contact with Dr. Waldinger stopped and I did not hear anything else about the documentary. I attempted to contact Dr. W several times afterward, but unfortunately, did not get a reply.

After his communications stopped, I tried for months to find a forum like this to communicate with other unfortunate types like me. The only thing I could find on the subject was a report on Dr. W's article. After a while, I gave up and decided the subject had died without the media attention Dr. W had created. I am so glad you good people have created this forum and have been experimenting and keeping in touch with each other. The only way to make progress is to do what you are doing because most physicians don't believe this is real.

I am excited about all of the posts starting back in '07 to present. Just scanning thru, I can see a lot of good coming out of this. I really appreciate all that you are doing and look forward to reading all of the posts.

Thanks again! I am glad to be on-board!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3969 on: 27/03/2009 17:11:50 »

EDS, welcome to the POIS thread of The Naked Science Forum!



Very interesting, EDS, several of us have had similar communications with Dr Waldinger. Documentary! That would have been fascinating!Thanks for sharing your experiences. We look forward to more of your posts.

The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!
« Last Edit: 27/03/2009 17:15:22 by demografx »
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3970 on: 27/03/2009 18:05:47 »
okay guys am back and i have surprisingly been out of pois for five days straight without NE, lets say Amen to that. last time that happen was a year ago.
The main reason am here. 
while out of pois, i drank a drink that has cafine, after the caffine wore of i got the symptoms of pois where it becomes difficult to recollect information.
the symptoms wore off by the next day.
just wondering has anyone  had simmilar effect.
I know some said they have experienced pois symptoms after strenuous exercises.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3971 on: 27/03/2009 18:07:48 »
DAY ZERO AGAIN!

My POIS treatment is working,  but now it's changing me into a teenager again. Help! ;D

Wow i think you just discovered the the fountain of youth. 
You should become a holy shaman now.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3972 on: 27/03/2009 18:09:27 »
WOW!! I have finally found a forum about POIS! I am 51 and have been plagued by this frustrating syndrome since my teens. I was ecstatic about Dr. Waldinger's report that finally described the symptoms I was experiencing - and that I wasn't alone (even though I wouldn't wish this on anyone). I just felt good to know that I wasn't crazy (like some of the doc's insisted I was).

In 2004 I was one of the rare individuals that filled out a questionnaire for Dr. Waldinger and spoke with him on the phone several times. They were even considering a documentary on POIS with me as the test subject. I was willing to travel to the Netherlands if it would help with the interest and research of POIS. Then, without warning, contact with Dr. Waldinger stopped and I did not hear anything else about the documentary. I attempted to contact Dr. W several times afterward, but unfortunately, did not get a reply.

After his communications stopped, I tried for months to find a forum like this to communicate with other unfortunate types like me. The only thing I could find on the subject was a report on Dr. W's article. After a while, I gave up and decided the subject had died without the media attention Dr. W had created. I am so glad you good people have created this forum and have been experimenting and keeping in touch with each other. The only way to make progress is to do what you are doing because most physicians don't believe this is real.

I am excited about all of the posts starting back in '07 to present. Just scanning thru, I can see a lot of good coming out of this. I really appreciate all that you are doing and look forward to reading all of the posts.

Thanks again! I am glad to be on-board!

interesting you had that much communication with dr.waldinger.
i was just wondering what was did his questonaires contain.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3973 on: 27/03/2009 20:49:25 »
DAY ZERO AGAIN!

My POIS treatment is working,  but now it's changing me into a teenager again. Help! ;D

Wow i think you just discovered the the fountain of youth. 
You should become a holy shaman now.

Thanks, CC!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3974 on: 28/03/2009 00:01:35 »
Hard to believe it's the 2nd Day One in four days. POIS-free.
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #3974 on: 28/03/2009 00:01:35 »

 

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