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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6431575 times)

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4000 on: 03/04/2009 08:28:02 »
I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta?

I'm extremely sensative as if I'm diabetic.

Limejuice, I definitely have a similar reaction after eating carbs.  I become spacey and unresponsive.  In fact, it has happened so frequently that it has become almost a routine for me to have to say to my girlfriend, "Sorry, I'm digesting" in order to apologize for my spacing out!

What do the rest of you think could be causing this sort of digestive response?
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4001 on: 03/04/2009 11:33:14 »
Quote
Quote from: Limejuice on 02/04/2009 20:23:37
I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta?

I'm extremely sensative as if I'm diabetic.


Limejuice, I definitely have a similar reaction after eating carbs.  I become spacey and unresponsive.  In fact, it has happened so frequently that it has become almost a routine for me to have to say to my girlfriend, "Sorry, I'm digesting" in order to apologize for my spacing out!

What do the rest of you think could be causing this sort of digestive response?

I have this response as well after eating refined carbs such as a box of KD, it slows me down big time. My blood sugar has been tested and found to be normal. I also had a glucose tolerance test which was normal. I don't know why I have this reaction, I simply avoid this type of food entirely.
 

Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4002 on: 03/04/2009 18:32:23 »
Limejuice, you make an interesting point.

My blood sugar levels and certainly my cognitive abilities are implicated in what we would call "Bad Carbs" such as white carbohydrates (Bread, Flour etc.)

I would say in my case that yes, i am affected. Again, this holds up my theory of Adrenal Exhaustion, i think.

P.S

I phoned the medical centre today.

My results are in, though the doctor hasnt been able to look at them yet, so i have to wait until monday now. So close! :D
 

Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4003 on: 03/04/2009 19:08:16 »
Rock, Ambient - I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta? I'm extremely sensative as if I'm diabetic.

I recognise it, but it is not extreme to me. And sometimes I crave carbs. I did a test in-POIS for diabetes - it was negative.
 

Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4004 on: 03/04/2009 19:27:16 »
I took a blood test to measure testosterone and here are the results:

Test                                 Result              Reference Range
Testosterone, Serum           447 NG/DL         241 - 827
Free Testosterone (Direct)   10.6 PG/ML        9.3 - 26.5

What are your thoughts?

Your Free T looks pretty low to me (not an expert). Maybe after release your Free T drops even further, causing the symptoms. I would definitely like to see your in-pois values, so we can compare.
 

Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4005 on: 03/04/2009 19:32:40 »
Today is Day Zero. Testosterone patches alone - no Levitra - seem to be the main reason for my 90% cure. Never thought I'd see the day. So DON'T EVER GIVE UP! GET MAD AT POIS and do something!

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4006 on: 03/04/2009 20:20:41 »
Today is Day Zero. Testosterone patches alone - no Levitra - seem to be the main reason for my 90% cure. Never thought I'd see the day. So DON'T EVER GIVE UP! GET MAD AT POIS and do something!

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!

Funny how this is all coming together.  I believe it is just all related to low testosterone.  With the testosterone patches giving you a "cure" and the relora a cure also, it is just all related to testosterone.  Because relora lowers cortisol which inversely affects the amount of testosterone in your body.  Low testosterone causes depression, mood changes, sleep difficulties, difficulty concentration... all of which I have.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4007 on: 03/04/2009 21:15:01 »
Yes, GC and the crazy thing for me is that around 2003 I was calling every expert on the planet, including a sex therapist in the Czech Republic who had no doubt in his mind that testosterone was the problem and cure for my POIS. It took me 7 years to finally see that he was right! The biggest impediment for me was that I relied on periodic injections which cause erratic results. When I finally saw my current endocrinologist he pointed that out to me and put me on T-patches which deliver a steady T flow, mimicking the body's natural delivery system. T-gels do the same. I use Androderm patches, 10 mg daily.

Also, I was slowed down by semi-accurate testing and semi-accurate interpretation. Testosterone testing can be tricky!
« Last Edit: 03/04/2009 21:57:39 by demografx »
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4008 on: 03/04/2009 21:21:04 »
The doctors opinion about the low free T was that "the other T tests seemed normal so I don't see anything wrong with your T".

Perhaps I'll seek a second opinion and test again in POIS (if I can force myself to).

My worst symptoms are still sensativity to carbs and terrible sleep.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4009 on: 03/04/2009 21:25:01 »
Yes, GC and the crazy thing for me is that around 2003 I was calling every expert on the planet, including a sex therapist in the Czech Republic who had no doubt in his mind that testosterone was the problem and cure for my POIS. It took me 7 years to finally see that he was right! The biggest impediment for me was that I relied on periodic injections which cause erratic results. When I finally saw my current endocrinologist he pointed that out to me and put me on T-patches which deliver a steady T flow, mimicking the body's natural delivery system.

Also, I was slowed down by semi-accurate testing and semi-accurate interpretation. Testosterone testing can be tricky!


Are you always going to have to rely on these patches?  Maybe after a while you should take them off and maybe your body would adjust somehow?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4010 on: 03/04/2009 22:09:12 »
As the endo suggests, I'm not going to worry about that for now. I'm just going to enjoy laughing in Mr Pois' ugly face for now. Eventually, I will try to remove patches to see if the body can manufacture more T on it's own. Right now it's simply not manufacturing enough T.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4011 on: 03/04/2009 22:11:30 »
LIMEJUICE, I got 2nd and 3rd opinion. First 2 docs were dead wrong.
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4012 on: 03/04/2009 22:29:49 »
GC,
Quote
Funny how this is all coming together.  I believe it is just all related to low testosterone.  With the testosterone patches giving you a "cure" and the relora a cure also, it is just all related to testosterone.  Because relora lowers cortisol which inversely affects the amount of testosterone in your body.  Low testosterone causes depression, mood changes, sleep difficulties, difficulty concentration... all of which I have.

Yes, and there are claims that both fenugreek and garlic can increase testosterone.  Others on this forum have benefited from fenugreek (I tried it but couldn't tolerate it), and I have noticed a possible benefit from eating raw garlic. So maybe low T is it.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4013 on: 03/04/2009 22:48:40 »
John, I think it is. But perhaps I could be somehow biased? ;D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4014 on: 03/04/2009 22:59:38 »
LIMEJUICE, I tested out-of-POIS out of the same fear as you, but it worked out well because it revealed my chronic deficiency.

I recommend to everyone to read up (google it) on testosterone testing. Also see what Harvard's health letter has to say.

Wishing and hoping we ALL heal. Sooner than later!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4015 on: 04/04/2009 03:38:21 »

I took a blood test to measure testosterone and here are the results:

Test                                 Result              Reference Range
Testosterone, Serum           447 NG/DL         241 - 827
Free Testosterone (Direct)   10.6 PG/ML        9.3 - 26.5

What are your thoughts?


Limejuice, since my first bloodtest December '08 my T-patches raised my T-levels - similar to where yours are today - that is, to the low end of normal, as of March 2.

My endocrinologist said that my treatment should continue to increase my T-levels even moreso, by June, my next re-test. If my T doesn't go up further by June, he will switch me to a "pump gel" to increase the quantity of testosterone.

In other words, my endocrinologist is not happy with my being "just" at the low end of normal. Maybe that's where you need to be, too? (somewhere in the middle). But I'm not a medical pro, so please don't take this as medical advice. It's just my own personal POIS experience.
« Last Edit: 04/04/2009 03:53:24 by demografx »
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4016 on: 04/04/2009 05:53:42 »
I thinks theres lots of merit to testing multiple times, Demo - thanks.  Thats how my bummed thyriod was detected...it kept fluctuating with different tests.
 

Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4017 on: 04/04/2009 12:41:51 »
One question i had for everyone:

Will my results for the cortisol test include any of my other hormone levels, or will cortisol indicate that all of the hormones in my adrenals are low without having to test them?

Thanks

Ambient
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4018 on: 04/04/2009 19:54:31 »
Today is Day Zero. Testosterone patches alone - no Levitra - seem to be the main reason for my 90% cure. Never thought I'd see the day. So DON'T EVER GIVE UP! GET MAD AT POIS and do something!

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!

Funny how this is all coming together.  I believe it is just all related to low testosterone.  With the testosterone patches giving you a "cure" and the relora a cure also, it is just all related to testosterone.  Because relora lowers cortisol which inversely affects the amount of testosterone in your body.  Low testosterone causes depression, mood changes, sleep difficulties, difficulty concentration... all of which I have.

I strongly disagree.  First of all, Demo, weren't you going almost a year without any added testosterone, believing that Levitra was a 50-75% cure?

Secondly, I don't have low testosterone, free or total.  In fact, it's on the verge of high.  And my cortisol is high. (Which relora supposedly lowers).  Also, most of the other testosterone readings I see here are not extremely low.  Some of them are low-ish.  But if that were the (sole) cause of POIS, wouldn't about 5-10% of the planet complain of these symptoms?

I think it's WAY more complicated than "it is all related to testosterone".  It is possible, that in some cases, a testosterone deficiency is affecting some other abnormality (e.g. prolactin levels?) mostly unique to POIS sufferers. 

Also, I think these tests should be done when you are feeling your worst.  Then we don't have to hypothesize about what levels might be going to, when you are symptomatic.

We are definitely seeing some sex-hormone adrenal connections that might relate to POIS. And I think testosterone could be extremely important in a lot of cases. But let's not jump to conclusions or generalize. There's also the question of 'adrenal fatigue' vs 'adrenal hyperactivity'. We aren't all in the same boat.
« Last Edit: 04/04/2009 20:04:12 by Counterpoints »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4019 on: 04/04/2009 20:10:19 »
I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta?

I'm extremely sensative as if I'm diabetic.

Limejuice, I definitely have a similar reaction after eating carbs.  I become spacey and unresponsive.  In fact, it has happened so frequently that it has become almost a routine for me to have to say to my girlfriend, "Sorry, I'm digesting" in order to apologize for my spacing out!

What do the rest of you think could be causing this sort of digestive response?

Cortisol can affect sugar-handling.  I have noticed some strange sugar handling symptoms also.  I feel best when I eat meat, cheese, vegetables, etc.  Things like pancakes make me feel pretty unusual.  (Same with coffee and hot chocolate too).

I don't think this has always been the case though.  I remember, say, when I was 12, that diet did not significantly affect how I felt.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4020 on: 04/04/2009 20:31:21 »

Demo, weren't you going almost a year without any added testosterone, believing that Levitra was a 50-75% cure?


CP, I think testosterone injections were always in the background, but I don't recall when I stopped. And even after stopping it was in my system. I assumed erroneously that the Levitra was the cure! I can't tell you exactly when, but I do know that I was POIS-miserable before re-starting T. And I was way below 50%, which I wrote in one of my posts. Whatever improvement it was could have been from previous testosterone injections that re-adjusted my system positively. Either that, or a prolonged placebo effect! Levitra was clearly (in retrospect) a downhill slide.

Regardless of the "mystery", I have tested myself without Levitra, and now have no doubt that testosterone is my cure. I will make the change on wikipedia.


But if that [testosterone] were the (sole) cause of POIS, wouldn't about 5-10% of the planet complain of these symptoms?


I agree it's going overboard to assume POIS = testosterone for everybody, but I wouldn't be surprised if hypogonadism - which is my diagnosis "on the record" - and POIS are highly correlated. So yes, I wouldn't be surprised if 5 - 10% of the planet had a high incidence of POIS. Retrospectively, I was one of those people on the planet, but who could I complain to? It took me MANY years to get the courage to open my mouth to a physician. And you know what happened when I did! (Because it happened to most of us: Zero response or dismissive attitude!)


Also, I think these tests should be done when you are feeling your worst.  Then we don't have to hypothesize about what levels might be going to, when you are symptomatic.


I disagree. In my case, out-of-POIS revealed a chronic deficiency, justifying 24/7 treatment. It's reasonable to assume that my testosterone would only be worse in-POIS.


I think testosterone could be extremely important in a lot of cases. But let's not jump to conclusions or generalize. There's also the question of 'adrenal fatigue' vs 'adrenal hyperactivity'. We aren't all in the same boat.


I agree.
« Last Edit: 04/04/2009 20:43:41 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4021 on: 04/04/2009 21:08:28 »

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!


Counterpoints, you quoted Rocky above as part of the testosterone-only discussion. I think what he meant by "a one-thing solution" was not just testosterone, but Relora, Fenugreek, Claritin, etc., i.e., a POIS treatment not requiring a complicated mix of ingredients. And different solutions for different people.
« Last Edit: 04/04/2009 21:09:59 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4022 on: 04/04/2009 21:51:15 »
B_Jim, thanks for that. Would you mind repeating your current regimen/treatment for POIS? And is it about 65% effective?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4023 on: 04/04/2009 22:18:40 »

TESTOSTERONE

Demo's experiment proves ejaculation affects testosterone levels. Dispite general studies (ejaculation don't affect steroids levels). It's another form of Pois or Pos. I read a lot of Pois testimonies. Each time i see case talking about "mood change after ejaculation" , "not motivated after orgasm", I think they are close to Demo's case.


I've wondered for a long time if testosterone could help even those POIS sufferers with normal testosterone levels?

To me, that is where in-POIS testing could possibly be useful. If there is a dramatic drop of T at ejaculation and that causes POIS in some people, then short-acting T, e.g., injection could prevent the POIS damage? Just a thought.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4024 on: 04/04/2009 22:52:21 »
Also, I think these tests should be done when you are feeling your worst.  Then we don't have to hypothesize about what levels might be going to, when you are symptomatic.

I disagree. In my case, out-of-POIS revealed a chronic deficiency, justifying 24/7 treatment. It's reasonable to assume that my testosterone would only be worse in-POIS.

If there is a chronic deficiency, it will likely be picked up during in-POIS testing or out-of-POIS testing.  If there is an acute problem that surfaces while symptomatic, it is more likely to be picked up during in-POIS testing, than during out-of-POIS testing.

Therefore in-POIS testing is more likely to reveal a problem.

Also, if a hormone is found to be somewhat low during out-of-POIS testing, I think it is much better to have it then tested in-POIS, than to speculate on what is happening with that hormone while symptomatic.  Then we know, with almost 100% certainty what is happening, and we don't have to speculate.

Ideally, it would be good to have in-POIS and out-of-POIS tests.  But in-POIS seems like a more reasonable starting point.  If you take the tests out-of-POIS, and you do have an acute problem, or a problem that gets much worse in POIS (and would be notable on an in-POIS test), there is a chance the test results will look somewhat normal, and neither you nor your physician will see any urgency for a re-test.
« Last Edit: 04/04/2009 22:53:55 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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