The Naked Scientists

The Naked Scientists Forum

Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6425906 times)

Offline martin88

  • Sr. Member
  • ****
  • Posts: 453
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4300 on: 15/05/2009 14:50:06 »
This is interesting that testosterone regulates tyrosine hydroxylase activity.(TH is an enzyme necessary for the production of dopamine with the amino acid L-tyrosine)

http://www.ncbi.nlm.nih.gov/pubmed/1353856

http://www.ncbi.nlm.nih.gov/pubmed/6145495?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=2&log$=relatedarticles&logdbfrom=pubmed
« Last Edit: 17/05/2009 02:31:36 by demografx »
 

Offline Guthrie

  • Sr. Member
  • ****
  • Posts: 189
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4301 on: 15/05/2009 16:05:35 »
I did, though, have some leftover garlic. About 20 minutes after my NE I went and chopped two cloves of garlic and put it in the microwave (on high, I presume) for 11 seconds. I added some ketchup and crushed it with a spoon, mentally prepared and ate it. My brother and sister, who haven't been within 10 feet of me are complaining of the smell, so I'm going to jog up to a local convenience store, to work the garlic out of my system (good idea?) and buy some mints and gum.

I hope this works, and I also hope I can find a way to deal with the smell.

Dean93,

It might be that microwaving the garlic destroys some of its chemical properties.  In general, most people seem to recommend raw garlic.

Also, regarding the smell, this site had a suggestion: http://www.geocities.com/allergylifeline/008.html
Quote
Garlic and Bad Breath

The main objection to garlic is the lingering aroma on the breath. I am happy to be able to share with you a method of ingesting this aromatic herb which makes it unnoticeable to even your closest friends.

For many years, a Winnipeg radio station broadcast an afternoon phone-in program called "Problem Corner," hosted by the most beloved odd couple on the city's broadcast scene, journalist George McCloy and home economist Hedy Lewis. It was, without question, the most listened-to radio program in the history of Manitoba. There I learned how to take garlic without annoying my family members with the smell.

The trick is simple. The garlic should not come into contact with your teeth or tongue or any other part of the mouth for longer than is absolutely necessary.

      Chop or mash a clove of raw garlic. Place on a spoon and swallow with a whole glass of water. That's it.

Taken on an empty stomach, garlic may cause a burning sensation, but a couple of bites of protein solve the problem for me. Either cheese or chicken works fine.

GarlicI followed this method of taking garlic daily for a week without anyone in my family being aware of it. I finally got curious and asked. No, they had not noticed any unusual odor coming from my mouth. My son, like me, is blessed with an unusually keen sense of smell. If he did not notice anything, then the method is foolproof.

When garlic is ingested repeatedly over a short period of time, though, the odor will start emanating from the skin, not from the mouth.
 

Offline Dean93

  • Full Member
  • ***
  • Posts: 84
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4302 on: 15/05/2009 17:02:54 »
Thanks Guthrie, I'll stop microwaving it, it can't be good. Would swallowing the water and not chewing the garlic work? I read that chewing it released the allin, or allicin, in the garlic. If I only crush it with a spoon, and not chew it, do you think it will release the chemicals? Does it happen internally?

Any answers are appreciated.
 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4303 on: 15/05/2009 20:32:28 »
Dean93, think of a garlic clove as being hundreds of two-part epoxy containers, when the two chemicals are mixed together other chemicals are formed. You can crush it with whatever works, but I wouldn't do it with my teeth, that would only exacerbate it's intensity.  When I tried microwaving it (very lightly) I crushing it and let it sit for minuits beforehand, but indeed raw might be better. Do a Google search for "garlic" and "crush" and you'll find lots of additional info.
 

Offline Pronobis

  • Jr. Member
  • **
  • Posts: 43
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4304 on: 15/05/2009 20:45:41 »
Hello,

I have just discovered your site. I am in France and my english might not be fluent. I am 25 yrs old boy. My life has become a catastrophe with all these after orgasme sufferings. I didn't know that it is relative to a sex. I have just noticed that. Doctors don't know anything in this subject and they invite me to abandon this belief. However my stuation is little different than yours. I have flu like symptomes too, but very little, when I ejaculate many times it is evident. Some other things bother me much - my skin irritates, itching and I have dandruff , I have backache and anus itching after every sex. More I do, more I have. I'd like to know if you have same problems. Hope to hear you very soon.
 

Offline rock27

  • Full Member
  • ***
  • Posts: 80
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4305 on: 15/05/2009 22:59:26 »
my skin irritates, itching and I have dandruff , I have backache and anus itching after every sex.

Same here. Anus itching after orgasm, red color. 7 years ago a dermatologist researched it to be a candida, this year a dermatologist said it was psoriasis. Had a cortisone cure. it was gone in just a few days. Same on the head: itching and my dermatologist said it was psoriasis. Also gone in just a few days with a special shampoo.
Taking Relora after orgasm definitely helps greatly against these skin problems I just found out. I don't have backache, but stomach irritations.
 

Offline rock27

  • Full Member
  • ***
  • Posts: 80
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4306 on: 15/05/2009 23:06:41 »
I can't speak for Rocky, but before T-treatment, my vitality was low out-of-POIS.

My vitality is definitely lower than people my age. Also libido lower. However I do get morning wood, even the same day as when I did the testing. Weightlifting does make me feel awesome.

PS: Demo, I can't believe I'm still registered as a Newbie. I registered almost a year ago!
« Last Edit: 15/05/2009 23:11:51 by rock27 »
 

Offline Pronobis

  • Jr. Member
  • **
  • Posts: 43
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4307 on: 16/05/2009 00:08:46 »
Same here. Anus itching after orgasm, red color. 7 years ago a dermatologist researched it to be a candida, this year a dermatologist said it was psoriasis. Had a cortisone cure. it was gone in just a few days. Same on the head: itching and my dermatologist said it was psoriasis. Also gone in just a few days with a special shampoo.
Taking Relora after orgasm definitely helps greatly against these skin problems I just found out. I don't have backache, but stomach irritations.

Yes, they are not eternal, they go if I avoid sex (they appear also after stress and fatigue). Ejaculation anew, and hop I have them again.
What is Relora?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4308 on: 16/05/2009 06:37:17 »

Demo, I can't believe I'm still registered as a Newbie. I registered almost a year ago!


Rocky, don't take it seriously. It's just an arbitrary designation based on the number of times we post something, not how long we've been here. You are a highly valuable contributor!
« Last Edit: 16/05/2009 06:41:35 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4309 on: 16/05/2009 07:03:33 »

Pronobis, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.
 
Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4310 on: 16/05/2009 07:20:34 »
 

Offline Coreman

  • Jr. Member
  • **
  • Posts: 22
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4311 on: 16/05/2009 17:13:48 »
Hi folks,

I've found another good stuff:


A supplement containing
Flavonoids and resveratrol
   - I've been using it after an "action", and well my friends, it really kicks in!

The supplement contains the ground skin of different seeds (of red grape and of different berries).

These improve my mood a LOT, help breathing a lot, and I also feel stronger.  Backed with Vitamin C, I found it even more effective.   

Wikipedia on resveratrol:

http://en.wikipedia.org/wiki/Resveratrol [nofollow]

Another lousy argument for the "immune theory". 






 
 

Offline Pronobis

  • Jr. Member
  • **
  • Posts: 43
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4312 on: 16/05/2009 18:20:06 »
Thanx Demografx,

Finally a place where someone believes me and don't think that it's only in my mind.It is an important day for me. Imagine, i am looking for answer to my questions for about 5 years.  It is very sad to find them in such way and to know that some other people suffer of it. It is a trouble without any advantages  [V]
Here is my observations.
- I begun to have troubles about 5 years ago. Backache and itching in anus.
- Then I went to army and passed a year without sex and in pretty form - I had no trouble
- Just after the army I made sex (many times a week) and my backache was back in aggravated form
- Then I took a treatment against backache, itching, skin dryness - no result (fatigue etc I considered as a result of poor food)
- Last summer I begun seriously to have dandruff and blotch in my ears(after frequently sex). Then I saw that it is aggravating with other troubles. I said it to many doctors, they all definitely denied the link between the sex and these kind of problems.

Nowadays my problems remain without hindsight. I have a girlfriend, we do sex and I am always tired, itching, weak, eyes tired, backached etc.

There must be a solution. If we are numerous, we can do something. Why not to send a letter to World Health Organisation, that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.

Good luck for everybody.


 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4313 on: 17/05/2009 01:46:02 »

Hi folks,

I've found another good stuff:


A supplement containing
Flavonoids and resveratrol
   - I've been using it after an "action", and well my friends, it really kicks in!

The supplement contains the ground skin of different seeds (of red grape and of different berries).

These improve my mood a LOT, help breathing a lot, and I also feel stronger.  Backed with Vitamin C, I found it even more effective.   

Wikipedia on resveratrol:

http://en.wikipedia.org/wiki/Resveratrol

Another lousy argument for the "immune theory". 
 

Coreman, thanks for posting your experiment! Can you say which supplement you used?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4314 on: 17/05/2009 03:37:25 »

Why not to send a letter to World Health Organisation [WHO], that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.


Good idea. But we need a medical facility that will conduct the research and submit to WHO (http://www.who.int/en/)or others for funding. I tried to develop a relationship with a local major university medical ressearch center that is treating me successfully for POIS, but they declined. I, Counterpoints and others here have also approached other facilities and medical specialists, such as Dr Waldinger, the "founder of POIS" - and so far, no luck. Funding to move us forward at a more rapid pace is, unfortunately, lacking.

One problem we have is that POIS is rare.  And it's just as expensive to research a rare disorder as it is one that affects many more people. Pharmaceutical companies, for example, will fund research, but for many millions of sufferers, not for the hundreds or thousands that we may represent. Also, the science of orgasm, its biochemistry, etc. is not yet well understood. It's very much in its infancy stage of development.

Since you wrote your post about WHO, I checked another organization, National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/. I just noticed that a deadline for submission to one of their programs is May 15, which was yesterday...too bad!

A biophysicist friend who pioneered HIV/AIDS research and is a Harvard lecturer also suggested that we look into a Government (NIH) division which investigates rare disorders,
http://rarediseases.info.nih.gov/

But we don't really have much in the way of research resources ourselves, or the partnerships necessary to do the work. So...we continue on our own! However, we have come a long way from just 2 years ago, when John21 posted his solo message on this site...and now we are the central repository of POIS information worldwide!
« Last Edit: 17/05/2009 22:16:33 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4315 on: 17/05/2009 04:31:32 »
Pronobis, how long (hours, days) after sex do your symptoms remain?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4316 on: 17/05/2009 04:35:32 »
Day Zero symptoms for me, although mild, curiously can last many hours. Sometimess fewer, sometimes more. Levitra (not needed as much now since testosterone treatment has improved ED as well as POIS!) - might have an effect. I will pay closer attention to this.
« Last Edit: 17/05/2009 22:18:30 by demografx »
 

Offline Pronobis

  • Jr. Member
  • **
  • Posts: 43
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4317 on: 17/05/2009 15:21:01 »
Demografx,

Flu-like symptomes last one day. Others up to a week. It depends on the number of ejaculations - usually I don't have more than one (I am deadly tired after first). If I do more than one time it may last long.
The interesting is that I have approximately same troubles after some kind of stress and fatigue (like, when I don't sleep enough, after having drunk a lot, after a boring voyage, when I am not in regime etc.). Even my dermatologist says that my dandruff problems are relative to a stress.  What is the link between sex and stress, I don't know.

M
 

Offline Pronobis

  • Jr. Member
  • **
  • Posts: 43
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4318 on: 17/05/2009 17:10:30 »
My blood tests show that I am absolutly healthy. I was allergic since my borth, but now I'm ok, only in the case of dust and heat I have an itching nose and eyes.

My friend, I'm sure that thousands of men with the same problem are looking for answer to their quetions. Your forum is in English and it's hard to understand for an ordinary citizen. So, may be many people ignore this site. For example, there is nothing about that neither in french, nor russian, nor turkish etc. websites that I have been searching for a long time. This forum is very good, it's evident that one can not read all af 185 pages of complicated english. There must be a solid systematic reference, I think. I don't want to say that you should do all this. You have already done a great thing.

 

Offline Counterpoints

  • Hero Member
  • *****
  • Posts: 592
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4319 on: 17/05/2009 20:18:45 »
Research Funding

I think it's reasonable to expect serious POIS research.  Lots of rare conditions have been seriously researched -- and when I say rare, I mean with fewer than 100 reported cases in history.  We just need a researcher who is willing to step up and really do something. 

I think we're getting to the point where some physicians have realized this is real and serious; for instance, I've noticed the ISSM discussions about POIS are slowly moving away from psychological considerations, towards a majority consensus that this is "real" and significant.

However, no-one has yet been willing to risk a serious investigation.  I think it's a matter of finding a researcher who is secure enough to take some risks.  After that, others will quickly jump on board.  It's as though you have a bunch of friends at the beach, wearing bathing-suits, looking at the cold ocean.  No-one wants to dive in alone, but once one of them jumps in, the others will follow.

One way of making this "jump" a little easier, is to see whether POIS connects to conditions that are already the focus of rigorous investigations.  For example, my high cortisol levels, combined with the pituitary adenoma, (and the pituitary abnormalities found in others here), connects my case with cyclical Cushings.  Therefore Cushings researchers may be interested.
 

Offline Counterpoints

  • Hero Member
  • *****
  • Posts: 592
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4320 on: 17/05/2009 20:20:29 »
My blood tests show that I am absolutly healthy. I was allergic since my borth, but now I'm ok, only in the case of dust and heat I have an itching nose and eyes.

But which blood tests did you have, and how were you feeling when you took them?

As far as organized information -- we have B_Jim's summaries, found on the first page of this discussion, and we also have the questionnaire (http://pois.olympe-network.com), and there is a wikipedia article (http://en.wikipedia.org/wiki/Post_Orgasmic_Illness_Syndrome).
 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4321 on: 17/05/2009 20:57:00 »
Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4322 on: 17/05/2009 22:02:51 »

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?


Wow, John, terrific idea! Let's try it. I think the key to people finding us is also related to the volume and repetition of key concepts repeated in different words, so perhaps a lengthy description would work best, and one that includes many of the POIS sufferer's search terms we would anticipate, e.g., fatigue, "after sex", brain fog, exhaustion, orgasm, etc.

Allons!

 :)

« Last Edit: 17/05/2009 22:40:52 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4323 on: 17/05/2009 22:25:36 »

My blood tests show that I am absolutly healthy.


I agree with Counterpoints' question as to which tests were done? Most of us believe that hormone tests are essential. Here are some previous forum posts, so that you can see what we tested:
http://www.google.com/search?hl=en&q=hormone+test+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4324 on: 17/05/2009 22:30:59 »

What is the link between sex and stress, I don't know.


"Underwater", a forum member, has written extensively about his experiences with stress and POIS:
http://www.google.com/search?hl=en&q=underwater+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com
 

The Naked Scientists Forum

Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4324 on: 17/05/2009 22:30:59 »

 

SMF 2.0.10 | SMF © 2015, Simple Machines
SMFAds for Free Forums