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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6450822 times)

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4825 on: 10/07/2009 17:44:37 »
Quote
Well I am no doctor or anything, but i guess there is some possibility candida will enter the brain without it becoming a problem in other areas.

Well one of the symptoms is brain fog!

I am going to try THREELAC I think and see what happens....

PS.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4826 on: 10/07/2009 22:00:21 »

Well I am no doctor or anything, but i guess there is some possibility candida will enter the brain without it becoming a problem in other areas.


Whew! I'm glad you qualified that  ;D
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4827 on: 11/07/2009 01:08:45 »
 

Well I am no doctor or anything, but i guess there is some possibility candida will enter the brain without it becoming a problem in other areas.


Whew! I'm glad you qualified that  ;D

yeah i'm trying not to give pois-sufferer a diagnosis  :)
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4828 on: 11/07/2009 02:28:45 »

Well I am no doctor or anything, but i guess there is some possibility candida will enter the brain without it becoming a problem in other areas.


Whew! I'm glad you qualified that  ;D

yeah i'm trying not to give pois-sufferer a diagnosis  :)

:-)

I was at a store that sells all sorts of vitamins and natural remedies and found a few things related to Candida Cleansing.... did not want to get started on any of them without a DR consent.... antifungals etc... I think are not good to play with! if you do not know what your doing.....

However I did get a high quality Probiotic I will use for a bit.

PS.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4829 on: 11/07/2009 03:04:16 »

Well I am no doctor or anything, but i guess there is some possibility candida will enter the brain without it becoming a problem in other areas.


Whew! I'm glad you qualified that  ;D

yeah i'm trying not to give pois-sufferer a diagnosis  :)

:-)

I was at a store that sells all sorts of vitamins and natural remedies and found a few things related to Candida Cleansing.... did not want to get started on any of them without a DR consent.... antifungals etc... I think are not good to play with! if you do not know what your doing.....

However I did get a high quality Probiotic I will use for a bit.

PS.

Yeah, antifungals can have a lot of bad side effects, inc. seizures... etc. That's why I am not taking them.  Make sure you change your diet too.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4830 on: 11/07/2009 04:03:11 »
I can't figure out how you guys make ANY decisions in "Candida World". I looked up THREELAC for example. Many people think it's a scam, many people say it's wonderful, some even say it's dangerous. No mainstream medical endorsement, good or bad...on and on and on...
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4831 on: 11/07/2009 04:13:27 »
I can't figure out how you guys make ANY decisions in "Candida World". I looked up THREELAC for example. Many people think it's a scam, many people say it's wonderful, some even say it's dangerous. No mainstream medical endorsement, good or bad...on and on and on...

"Candida World" is always accepting immigrants... demografx
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4832 on: 11/07/2009 05:09:37 »
My passport expired and I forgot the CW Oath Of Allegiance.
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4833 on: 11/07/2009 16:50:45 »
I can't figure out how you guys make ANY decisions in "Candida World". I looked up THREELAC for example. Many people think it's a scam, many people say it's wonderful, some even say it's dangerous. No mainstream medical endorsement, good or bad...on and on and on...

Not sure why people say its dangerous, its just a mix of needed probiotics, many other probiotics have the same mix and even put in more....

PS.
 

Offline claret88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4834 on: 11/07/2009 21:43:09 »
hello all

i have been suffering from this for 18 years, i am now 40.

i am in the UK Army, and have acheived a good rank and good wage, however my mental capacity is noticeably decreasing.

i have explained my symptoms to many doctors, they smiled at me and suggested that it will pass and sent me to a shrink, as the condition could not possibly exist, as years have passed my condition has worsened, my length of recovery has increased to the point where i have constant mental fog and aching joints, originally it was 5 days from ejaculation.

To my surprise, whilst in Iraq this year i did some google searches and all this came up, so i am not alone and a neurotic timewaster.

I at present have prostatitus, however i do not believe this is the source, i am at present trying fenugreek as boted in this blog.

Trauma i suffer is immediate, and i believe it is chemical/adrenal/pitutary.

i could go on....................

 would love to hear from more UK sufferers, and perhaps meet up, i am completely fed up with this.


philip
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4835 on: 11/07/2009 23:28:09 »

Philip, welcome to the POIS thread of The Naked Science Forum!




Philip, i've had POIS for over 30 years, recently found treatment with dramatic relief, thanks to this forum's recommendation of bloodtesting hormones with an endocrinologist. Is the "88" in your screen name about piano? If so, you have fellow players here, including me.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 300,000 page visits. Not bad for a rare malady!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4836 on: 11/07/2009 23:38:00 »
Philip, this post below might help you find answers easier by tailoring a Google search to this POIS forum:


SEARCH POIS FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 130+ Forum members.

In the Google search box, type
whatever you're interested in finding[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within POIS Forum.

Google even provides you results with the Message# for each result.
« Last Edit: 11/07/2009 23:40:15 by demografx »
 

Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4837 on: 12/07/2009 00:04:02 »
Hi,

Finally, results of my blood test. I made it in the afternoon following one night and one morning orgasme - and with weak pois symptomes. So

glycemie .....0.85 g/l .......4.72 mmol/l
FSH plasmatique ....3.1 UI/l  ......1.1 ug/l
LH plasmatique ...4.7 UI/l .......1.3 ug/l
Prolactine ......154 mUI/l  ........7.2 ng/ ml
Testosterone .....8.49 ng/ml ........29.49 nmol/l
TSH ultra sensible ......0.75 mUI/l

Do you understand anything?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4838 on: 12/07/2009 02:23:23 »
Pronobis, we can give you some opinions, but it would not be based on your medical history, prescription drugs, and other factors. You do need to review these results with your endocrinologist or doctor. None of us here are physicians.

Also, there should be a 3rd data column. The comparison should show a reference range (what a "normal" test result would be for each category as that laboratory define it).

Congratulations on doing the testing!
 

Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4839 on: 12/07/2009 03:26:49 »
Pronobis, we can give you some opinions, but it would not be based on your medical history, prescription drugs, and other factors. You do need to review these results with your endocrinologist or doctor. None of us here are physicians.

Also, there should be a 3rd data column. The comparison should show a reference range (what a "normal" test result would be for each category as that laboratory define it).

Congratulations on doing the testing!

Thanx Demo, I will meet my endocrinologist a little later. So I wanted to know if you had same results.
What about your progress?
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4840 on: 12/07/2009 04:59:39 »
My passport expired and I forgot the CW Oath Of Allegiance.

Well as usual, our oath of allegiance can be found here:  http://www.youtube.com/watch?v=xnsdPBR_otA   , but for the passport issue.. I really can't help you their.  Maybe if you have some candida/candidian within your blood, they may let you in for free.    :)
« Last Edit: 12/07/2009 06:37:07 by goingcrazy »
 

Offline RhythmSpring

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4841 on: 12/07/2009 06:22:31 »
Hey all! I popped in several months ago and then disappeared, and I'm back.

I'm 20 and I'm a POIS-sufferer, so it's hard for me to find the time to deal with it directly; a) people my age need to have fun. b) I'm already dealing with another serious illness (rheumatoid arthritis).

But, I'll have you know that this is the first day 1 for me in nearly 4 months. Over that time I have become very much alive. It was a glorious (though sexually deficient) break from POIS symptoms, and it allowed me to firmly establish some positive character traits of mine, as POIS symptoms for me are almost all mental and emotional, not really physical.

I still feel the effects (mental fog, low emotional energy), but it's not as unbearable as it used to be.

Now, what to do... A relationship is forming fast... Uh oh... Anybody got a quick fix? 5-HTP perhaps?
 

Offline EDS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4842 on: 12/07/2009 16:05:18 »
POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

Hello everyone! Definitely count me in on the study! I was willing to travel to Dr. Walldinger's location to shoot a documentary on this illness from hell - which, of course, fell through - so I will help any way I can.

Thanks for all of the discussion and ideas that everyone contributes.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4843 on: 12/07/2009 16:32:45 »
So far for me, I'm on day 19 of my year of celibacy.  For me "anxiety" seems to be the first symptom that goes away within about 2 days.  Brain fog lasts a long time.  I still have it now.  But the thing is I can feel it slowly lifting and lifting every day into the morning.  I would get severe brain fog in the mornings and now every morning is better than the last one.  I'm waiting for the day I wake up completely alert, healthy, and with no brain fog.  If this year of celibacy/diet change doesn't work...yeah...that would not be good.  ::)
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4844 on: 12/07/2009 16:33:44 »
And I am willing to participate in the study also... but I don't want to orgasm within this year.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4845 on: 12/07/2009 17:37:39 »
I am typing a nursing paper for my dad and in there it talks about symptoms to look for if you have problem with endocrine function.
things:
pain in foot and hand,body part twitching,low energy,bad mood
and memory
the part that really got me is the twitching, because i have noticed a couple to times after intense orgasm my right eye lid twitch uncontrollably not like super fast but enough for me to notice, for about a day.
Has anyone notice pain in feet, hands or any twitiching.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4846 on: 12/07/2009 17:41:51 »
Rhythm springs the quick fix i know use multi vitamins, lots of vitamin c
omega three pills, stimulant and lots of chicken because of tyrosine(it only works for couple of hours).
It helped me one but stoped working, may be it might help for the day. 
I feel you though Am a twenty year old too.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4847 on: 12/07/2009 17:46:46 »
rythm springs dont forget to a good exercise, that helps too.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4848 on: 12/07/2009 18:31:44 »
Hey all! I popped in several months ago and then disappeared, and I'm back.

I'm 20 and I'm a POIS-sufferer, so it's hard for me to find the time to deal with it directly; a) people my age need to have fun. b) I'm already dealing with another serious illness (rheumatoid arthritis).

But, I'll have you know that this is the first day 1 for me in nearly 4 months. Over that time I have become very much alive. It was a glorious (though sexually deficient) break from POIS symptoms, and it allowed me to firmly establish some positive character traits of mine, as POIS symptoms for me are almost all mental and emotional, not really physical.

I still feel the effects (mental fog, low emotional energy), but it's not as unbearable as it used to be.

Now, what to do... A relationship is forming fast... Uh oh... Anybody got a quick fix? 5-HTP perhaps?

Can you tell us what may have contributed to your decrease in POIS symptoms?

I'm not sure about a "quick fix" that will work in general.  I think most of the results we've seen required some dedication.

Glad to hear you've been doing better.
« Last Edit: 12/07/2009 19:07:53 by Counterpoints »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4849 on: 12/07/2009 18:43:10 »
I didn't want to report on this until later, but some things I've read made me think it was important to share this information now. 

For the last 2 weeks, I have been 70% cured of POIS. This is really a breakthrough for me.  I read other stories here, thinking "this will never be me".  It seemed I had a really tough case.  I tried Relora, Fenugreek, antidepressants, ritalin, ativan, beta blockers, and all made very little difference.  There never seemed to be an "easy fix" for me, and the recovery I'm feeling is the result of a lot of dedication.

First, I essentially cut all refined sugars from diet.  I'd say I eat 10% of the refined sugar I did 2 months ago.  If I crave sugar, I'll have some oranges (not orange juice, actual oranges).  This means I do not eat chocolate, candies, cookies, ice cream, etc.  I also reduced my intake of fat and grease, to about 30% of what it was.  And I generally avoid processed foods, now.  I've been eating a lot of sushi.  And I went from eating a couple big meals a day, to decreasing the amount I ate at each meal, and increasing the number of meals (to 3-4/day).

I also eliminated pornography.  My POIS has a component that feels somewhat like a bad addiction.

I also eliminated alcohol.  I have never been a heavy drinker (max. 5-6 beers/week), but I have found alcohol to have at least indirectly aggravated my POIS.

I also started intense exercise for 40 minutes a day, every day (using a rowing machine).  Sometimes it was very difficult, especially in POIS, and for the first week, I did about 15 minutes of exercise.  Every week or so I would take a day off, and just go for a walk, instead of doing this exercise.

After 1-2 months of doing this, I was at least 70% cured from POIS.  It took about a month to notice any difference, and then recovery was gradual from that point.  Keep in mind, I have this "subsequent orgasm" feature, where if I am in POIS, sometimes a subsequent orgasm will alleviate my symptoms.  With this new routine, generally every 3 days, it will take 2 "releases", within a couple hours of one another.

This was not easy.  It took dedication.  But the results are way more than worth it.  If getting in good shape and not eating junk food, means (almost) no POIS, how could I reasonably do otherwise?

I will report on this again in about a month.
« Last Edit: 12/07/2009 19:31:52 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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