Author Topic: Post Orgasmic Illness Syndrome (POIS) (Read 2313574 times)

John21 · **Reply #50 on:** 15/09/2007 23:04:38

Here are examples of "Dr" Lin's site:

http://www.actionlove.com/extra/adhd.htm
http://www.actionlove.com/extra/over.htm

As I said, I find his explanatins dubious, and consider that he is trying to sell wonder potions. But at the same time it is interesting to read the stories people relate.

John

demografx · **Reply #51 on:** 16/09/2007 18:06:00

LEVITRA CONTINUED
Yesterday was "Day Zero". Since I started feeling POIS symptoms,and I didn't want to rely on the "maybe" of Cymbalta, I proceeded to take Levitra......AFTERWARDS!

lol. That seems as funny as taking contraceptive-prevention the day after. So........today is "Day #1" and I DO FEEL BETTER!

Stay tuned : - )

demografx · **Reply #52 on:** 16/09/2007 18:32:35

Quote from: demografx on 11/09/2007 20:15:47

Quote from: jplewin on 11/09/2007 02:19:44
Let me invite you all to a community dedicated to POIS.
It's a more interactive place where we can post our feelings and improvements.
Hope you all join in and maybe more people will come over and share their experiences.

The site is:

http://www.orkut.com/Community.aspx?cmm=39047985&refresh=1

(copy and paste)

Please don't be ashamed of joining in... I think it will benefit our comunication a lot.

Hope to see you in.

JP

THANK YOU JP I JUST JOINED THIS GROUP AND RECOMMEND IT TO OTHERS HERE>

JP, AS I MENTIONED IN MY EMAIL TO YOU I WISH TO RETRACT MY RECOMMENDATION TO JOIN http://www.orkut.com/Community.aspx?cmm=39047985&refresh=1
NO FAULT OF YOURS, JP, BUT BY LOGGING ON TO www.orkut.com IT VERY AGGRESSIVELY "FORCES" YOU INTO
A SUBSCRIBER STATUS WITH iGOOGLE.COM AND MAKES IT EXTREMELY DIFFICULT TO UNSUBSCRIBE. SO I CANCELED MY JOINING THE "POIS COMMUNITY", WITH MUCH DIFFICULTY. JP, THANKS, THOUGH, FOR YOUR VERY GOOD INTENTIONS. SINCERELY, demografx

demografx · **Reply #53 on:** 16/09/2007 18:51:29

Quote from: John21 on 15/09/2007 22:52:30

JP,
I didn't want to say too much on your scrapbook, I don't know how private this issue is between you and your friends. I'm glad to hear you could discuss it with your parents, I can't imagine doing that! Your symptoms don't seem to match mine exactly, although reading yours brings back to mind minor aspects of the syndrome I have experienced such as flushing of the face, enhanced bowel movement ease, sore throat, somewhat swollen glands in the neck. At times during intense discomfort I have measured my blood pressure being far above normal, which I was able to demonstrate to my doctor. When I was not experiencing this condition I was otherwise healthy, blood pressure and all.

As you have searched the web you probably have come across the website actionlove.com, as I have. I don't think the author of this site "Dr Lin" is a real doctor, and I find his potions for sexual problems rather dubious. (Actually I tried them once, after reading testimonials) But you might find it interesting to read the accounts of people listed there who have problems post-sex. He will go into some longwinded technical analysis about what is causing the person's problem (which I suspect he truly believes yet is probably gibberish). Anyway you might wish to read it if you haven't already.

You mention you are taking schizophrenia medication, did you have schizophrenia before these post-sex problems developed? Or is this merely an attempt to cure this specific problem?

I'd love to hear more about your situation (and others here as well). Nice to hear from you.

John

John, I spent many years following a "POIS CURE" by the Thailand Taoist Mantak Chia, based on achieving orgasm without ejaculation. It was a useless/worthless experience. But I was desperate.

demografx · **Reply #54 on:** 16/09/2007 19:58:54

Quote from: TracySt on 01/09/2007 02:34:01

Hello.

This is my first post, and I really want to thank you for your existence and your discussion. A 43 year old male, I have suffered from what appears to be POIS for the last 24 years (with the symptoms usually lasting 2 to 4 days). There is definite muscle tremor and weakness, along with fever, mental fog and anguish, exhaustion, heightened susceptibility to colds, and pronounced depression. Though I have been treated for depression for the last 23 years, the post-orgasmic depression is so acute that at times it has left me quite desperate and practically suicidal.

As with others who have posted above, this condition is so debilitating that I avoid sexual activity for the most part. And if I do find myself in the throes, I am painstakingly careful not to climax, for fear of facing the resultant condition. (Obviously, one can see how this can take its toll on a relationship.) This may sound strange, but I've even become vigilant in my sleep, avoiding sexual contact in my dreams if possible, so as to avoid the post-orgasmic condition. Further, I have a history of prostatitis and notice that if there is prostatic spillage, I sense the onset of POIS.

Thanks to your postings. I will copy this page (and others referenced here) and discuss this with my doctors. Though I have been on a variety of antidepressants and adjunct meds, I haven't had any relief.

Interestingly, recently my psychiatrist wanted to use an atypical anti-psychotic (Abilify) as an adjunct antidepressant. Unfortunately and apparently, my dopamine level was reduced which resulted in greatly exacerbating the depression. My motor skills were somewhat impaired and my mood plummeted radically to the point of despair. Actually, these symptoms echoed what I feel during the post-orgasmic period. Thus, I can see how dopamine (and other neurotransmitters) may play a role in all of this.

Again, I can't thank you enough for being here and sharing. Before I attributed the peculiar POIS to the general constellation of maladies that can be associated with clinical depression. I now know that this is a distinct condition, I am not alone, and perhaps there is hope.

Best wishes to everyone!

Tracy

TRACY,
I fully empathize with your condition and history. It is wonderful to have a place to share our feelings and not get blank stares ("Hmm...what are you talking about?") in return.

jplewin · **Reply #55 on:** 18/09/2007 16:53:19

Hi everyone...
How are you doing...

Quote:
"You mention you are taking schizophrenia medication, did you have schizophrenia before these post-sex problems developed? Or is this merely an attempt to cure this specific problem?"

Answering John, I have never had schizofrenia in my life... my doctor gave that medication to me as a link between clonazepam and escitalopram. It worked to stop night eyaculations due to dreams...

Nevermind about Orkut... it's just an option if you want to visit, so it doesn't matter. Jejeje... it will still be open anyway if you want to take a look... maybe other people can join through that community.

Well... yesterday (monday) I started feeling bad out of nowhere. It was a very rough day, very emotional and sad because I was so dissapointed on a girl I was seeing. I don't know, but I was very angry and anxious... I went out at night (it's independence day today in Chile) and started feeling POIS symptoms: extreme cold and dry body. I knew it had come, so I knew today (tuesday) I would feel bad. As I said, today is holiday here, so I just masterbated because I was keen on doing it and it wouldn't affect my state today, because I had already started feeling like sh1t yesterday. As you know my POIS is short in extent compared to other cases, but it seems to be very hard during the day I feel bad. Today I'm feeling bad, but tomorrow I should be Ok.

In my mind I'm not feeling bad... I know that the anxiety that followed the sadness and dissapointment over that girl (if she can be called like that... I'm furious! jajaja) was the cause of the symptoms. The link between anxiety and POIS for me seems to be clear, at least in my case.

I was wondering the other day... what in common do we have otherwise than the symptoms? are we all anxious people? did we masterbated too much in our youth? does masterbation has something to do in us having this? is depression before or after POIS, is it the cause or the effect? What did we do in common after all... that's what I'm wondering.

Sorry if I am being too direct on my post... but I just think it's the way to discuss here, the only place where I really feel understood.

Yours sincerily

JP

B_Jim · **Reply #56 on:** 18/09/2007 19:06:06

That is the question.
According to a doctor, probably at start we had adverse conditions or weakness in our nervous system.
Orgasm have a low effect on CNS and quick regeneration for a normal guy.
But for POIS guy, the neurological/hormonal answer to orgasm is excessive. Too sensible. Our levels of neurotransmitters or hormons shut down and it take some days to go back to the normal state. Extremum of Gaussian distribution -> some rare case don't work like the majority and aren't studied.
Later of course anxiety/depression come because you can't have sex, you can't work... you can't have a normal life.

jplewin · **Reply #57 on:** 18/09/2007 19:40:33

Hi again...

Quote:
"But i think now it's better to block the excessive answer to orgasm."

Of course! Anyone having any progress must post it... but maybe knowing what was the cause of this we can get closer to a solution.

I would be more than happy to be able to block the answer to orgasm... I totally agree with you Jim. I can see know how blind I've been... I've never thought on a neurologist. I will start searching that road.

Hope to hear from you soon...

JP

demografx · **Reply #58 on:** 19/09/2007 01:12:58

POIS DAY ONE
Success! Not perfect, but I feel good today! Never happened before - this early - in the POIS symptom cycle.

Yesterday was POIS DAY ZERO: in all honesty, a very difficult day, all 10 fingertips were dry, hot, and "numb" and for some strange reason, coupled with the exhaustion, this drives me crazy. I went to bed at 7:30 PM, slept shortly thereafter.

I downed a lot of Starbucks double-shots (cans of espresso)today, and took a mid-day nap to regenerate energy.

The "cure" ingredients for me so far (in the order of what I see as important) : (1) Levitra prior to release** (2) Adderall XR, an extended-release amphetamine ADD stimulant treatment (releases dopamine) (3) Cymbalta (an SNRI, not SSRI) N = norepinephrine; similar to Effexor. My psychiatrist says SSRIs and SNRIs work DIFFERENTLY for different people. (4) Testosterone injections every 2 weeks (I will have one tomorrow)(5) Caffeine. Lots of it in intervals. Three doctors advised against excessive caffeine, but too bad for the doctors, they don't have POIS lol and (6) Napping. Taken as directed : - )

I am experimenting with "keeping the sexual energy going" (Levitra seems to allow this), on the theory that "shriveling up" literally and figuratively worsens the POIS symptoms.

Continuing the cautious yet increasing optimism,
demografx

B_Jim · **Reply #59 on:** 19/09/2007 05:58:28

Very good. Thanks for srni/Cymbalta infos.
Interesting strategy.
Taking only caffeine would increase dopamine but adrenaline conversion too (=>nervous).
But the blocking effect of the snri on the noradrenalin and regulation with serotonin probably rebalance all the cycles.
Maybe a tricyclic anti-depressant could work too.

Add:
A detail about POIS : cases studied seems to have "spontaneous ejaculations".
Maybe it could be a sign of low level of inibitors (Gaba and serotonin).

nathan · **Reply #60 on:** 19/09/2007 17:18:33

Hi guys,

I'm a male turing 50. I've had this problem for about 5 years.
At the time of release, I feel extremely high blood pressure in my head and around my neck,
which is kind of scary.
I get muscle pain all over, strange feelings in my fingers.
Slight diarrhea, and sometimes sore throat.
I recover after 2 nights sleep.
Sorry, I have no information to share, but just wanted to let you know there is one more like you.

B_Jim · **Reply #61 on:** 19/09/2007 17:31:36

Welcome Nathan. Considering your age and some symptoms (muscle pain, sore throat...) you are close to original POIS, with a faster recovery time.
I have diarrhea too....

jplewin · **Reply #62 on:** 19/09/2007 20:32:13

Hi Nathan... and welcome to the forum

My POIS seems to last the same time as yours... two nights sleep, not counting naps. Only nights sleep...

First time at 45... for me it has been all my life. I'm 26. I hope you find support here and share with us your experience, medical and personal...

JP

John21 · **Reply #63 on:** 20/09/2007 23:56:15

demografx, if I had to guess which medication was helping you I would suspect the stimulant/dopamine one. But of course thats a rather wild guess. Were you diagnosed with having attention deficit? I have not been, but I don't doubt that some doctors would diagnose my mental makeup as being in the "inattentive" group of ADD, being somewhat of a space cadet. I tried to persue diagnosis once but once the doctor knew that I wanted to experiment with stimulants the diagnosis is harder to achive due to bias, or so it seemed. It is a controlled substance and there has been some negativity towards dolling out stimulants to people who might just want to get high. I don't think the doc was really all that versed in ADD.

John

demografx · **Reply #64 on:** 21/09/2007 03:13:47

Quote from: nathan on 19/09/2007 17:18:33

Hi guys,

I'm a male turing 50. I've had this problem for about 5 years.
At the time of release, I feel extremely high blood pressure in my head and around my neck,
which is kind of scary.
I get muscle pain all over, strange feelings in my fingers.
Slight diarrhea, and sometimes sore throat.
I recover after 2 nights sleep.
Sorry, I have no information to share, but just wanted to let you know there is one more like you.

Hi Nathan and welcome! I was very interested to see that your symptoms include strange feelings in the fingers, like mine. Best wishes, demografx

demografx · **Reply #65 on:** 21/09/2007 03:20:10

Quote from: John21 on 20/09/2007 23:56:15

demografx, if I had to guess which medication was helping you I would suspect the stimulant/dopamine one. But of course thats a rather wild guess. Were you diagnosed with having attention deficit? I have not been, but I don't doubt that some doctors would diagnose my mental makeup as being in the "inattentive" group of ADD, being somewhat of a space cadet. I tried to persue diagnosis once but once the doctor knew that I wanted to experiment with stimulants the diagnosis is harder to achive due to bias, or so it seemed. It is a controlled substance and there has been some negativity towards dolling out stimulants to people who might just want to get high. I don't think the doc was really all that versed in ADD.

Yes, John, I was diagnosed with ADD. Before the testosterone and Levitra, I was on the stimulants and they didn't affect the POIS. But you may be right in that the COMBINATION of meds must include the stimulants. Very interesting point you made. Thanks a lot. demografx

demografx · **Reply #66 on:** 21/09/2007 21:06:55

CIALIS
Hi everyone. As I mentioned previously, Levitra, an ED medication, seems - for unknown reasons - to be a pivotal component in my combat against POIS symptoms. When I mentioned the POIS effect that Levitra has had to my psychiatrist, even though he didn't understand why, he suggested Cialis. Cialis, another ED med, claims to work for about 36 hours. If so, as a longer acting med, it has the potential to work even better than Levitra. He gave me a sample of 3 tablets, and I will try one and report here, so stay tuned : - )

Have a nice weekend, everyone,
demografx

ps - I'd like to propose that we all use the term "POIS" even though we don't all have the exact same symptoms as Dr. Waldinger studied. It just makes it easier for us to communicate. Besides, Dr Waldinger studied very few people and also, all of us here are really dealing with the same general malady, i.e., post....orgasmic....illness.....syndrome/symptoms...I use the term "POIS", even though I don't have myalgia or strictly, flulike symptoms...as Dr Waldinger studied. The main thing is that I suffer from extreme exhaustion, foggy cognition, and an unbearable length of time with symptoms, post-orgasm.

John21 · **Reply #67 on:** 21/09/2007 21:49:16

demografx, I would be more willing to believe that ONE of the medications is helping you vs a combination. You say you have tried stimulants alone and they did not help, okay. Have you tried testosterone alone without any other meds? Perhaps it is pivotal in the syndrome.

John

demografx · **Reply #68 on:** 21/09/2007 22:55:47

Hi John,

Before I tried Levitra, my hope was that testosterone - when I first started it - would do the trick and it didn't (please see my earlier posts) except for the initial placebo effect.

If I had to pick one, and only one, prime contributor I would say Levitra. But I still wonder what Cymbalta is doing.

Thanks, demografx

demografx · **Reply #69 on:** 21/09/2007 22:59:26

TO JP on HIS Orkut POIS COMMUNITY
JP, I'm sorry that in an earlier post I "blamed" Orkut.com for forcing me into iGoogle. It happened again today on another site, so I think Google is simply trying to convert the world over to iGoogle. It doesn't seem to have anything to do with your Orkut site. I'm sorry if this kept anyone away from your POIS site.

jplewin · **Reply #70 on:** 22/09/2007 01:10:30

Hi demografx...

Don't worry man... everything is OK.

I'm following your development with LEVITRA and the other thing. I think I'll try it myself, but I need a medical prescription to buy LEVITRA here in Chile, so I'll have to talk about it with my doctor.

Hoping to hear from you soon

JP

demografx · **Reply #71 on:** 22/09/2007 02:39:18

LEVITRA or CIALIS
JP, I would be very careful at your young age with Levitra or Cialis. In my case, it helps for what it was intended, i.e., erectile dysfunction (ED).

The POIS-help was an "accidental" side benefit of Levitra for me. When you DON'T need it for ED, I'm not sure what happens. A SMALL percent who take it do wind up with erections lasting a very long time and some even wind up in the hospital emergency room. I was afraid of that myself, but my doctor told me not to worry.

I'm not a doctor, so I'm being overcautious, I'm not trying to scare anyone. I just think this should be thoroughly discussed with one's doctor before experimenting.

demografx · **Reply #72 on:** 22/09/2007 19:14:02

Quote from: John21 on 21/09/2007 21:49:16

II would be more willing to believe that ONE of the medications is helping you vs a combination. You say you have tried stimulants alone and they did not help, okay. Have you tried testosterone alone without any other meds? Perhaps it is pivotal in the syndrome.

John

just curious, John, why do you think a single med is more believable than a combination?

John21 · **Reply #73 on:** 23/09/2007 13:43:58

demografx, it just sounds more logical to me. Perhaps I'm wrong, but it seems like the odds of taking the right combination would be much lower than the odds that one of the meds is helping you.

John

demografx · **Reply #74 on:** 23/09/2007 18:52:40

THIS IS WAR!!!

The enemy? POIS symptoms!I just "fully recovered" from POIS symptoms starting several days ago, and guess what? This morning this stupid thing called sexual desire crept up (again! it's just as bad as eating food/drinking water, it's never over ! LOL) So there I go, leaving my poor body and mind and spirit vulnerable to those horrible POIS sysmptoms, which I feel almost immediately.

So........this morning (Sunday) I took CIALIS! But... __AFTERWARDS__ LOL! As I mentioned in a previous post, my psychiatrist suggested CIALIS when I told him Levitra seemed to work on POIS. So he gave me a free sample of 3 tablets. CIALIS claims up to 36 hour effectiveness vs. several hours for Levitra. Perfect for those stupid longlasting POIS symptoms. And since I'm as desperate as you all are in here....since I didn't have the forethought to take it BEFORE...I took it afterwards.

Sorry for the silly emotional rant, but if I don't laugh I'll cry my brains out.

Stay tuned to see how this silly experiment pans out!

All The Best to my fellow POIS sufferers!!!

ps - Oh, forgot to mention, I also just downed 3 strong glasses of Irish Breakfast Tea (highly _caffeinated_ ) to augment the earlier morning regimen of Adderall XR (longlasting amphetamines for ADD). I should apply to become a drugstore................

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Author Topic: Post Orgasmic Illness Syndrome (POIS) (Read 2313574 times)