The Naked Scientists

The Naked Scientists Forum

Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 3522881 times)

nathan

  • Newbie
  • *
  • Posts: 2
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #50 on: 19/09/2007 17:18:33 »
Hi guys,

I'm a male turing 50. I've had this problem for about 5 years.
At the time of release, I feel extremely high blood pressure in my head and around my neck,
which is kind of scary.
I get muscle pain all over, strange feelings in my fingers.
Slight diarrhea, and sometimes sore throat.
I recover after 2 nights sleep.
Sorry, I have no information to share, but just wanted to let you know there is one more like you.

jplewin

  • Newbie
  • *
  • Posts: 15
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #51 on: 19/09/2007 20:32:13 »
Hi Nathan... and welcome to the forum

My POIS seems to last the same time as yours... two nights sleep, not counting naps. Only nights sleep...

First time at 45... for me it has been all my life. I'm 26. I hope you find support here and share with us your experience, medical and personal...

JP

John21

  • Hero Member
  • *****
  • Posts: 500
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #52 on: 20/09/2007 23:56:15 »
demografx, if I had to guess which medication was helping you I would suspect the stimulant/dopamine one. But of course thats a rather wild guess. Were you diagnosed with having attention deficit? I have not been, but I don't doubt that some doctors would diagnose my mental makeup as being in the "inattentive" group of ADD, being somewhat of a space cadet. I tried to persue diagnosis once but once the doctor knew that I wanted to experiment with stimulants the diagnosis is harder to achive due to bias, or so it seemed. It is a controlled substance and there has been some negativity towards dolling out stimulants to people who might just want to get high. I don't think the doc was really all that versed in ADD.


John
« Last Edit: 19/10/2008 01:20:49 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #53 on: 21/09/2007 03:13:47 »
Hi guys,

I'm a male turing 50. I've had this problem for about 5 years.
At the time of release, I feel extremely high blood pressure in my head and around my neck,
which is kind of scary.
I get muscle pain all over, strange feelings in my fingers.
Slight diarrhea, and sometimes sore throat.
I recover after 2 nights sleep.
Sorry, I have no information to share, but just wanted to let you know there is one more like you.


Hi Nathan and welcome! I was very interested to see that your symptoms include strange feelings in the fingers, like mine. Best wishes, demografx
« Last Edit: 19/10/2008 01:21:30 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #54 on: 21/09/2007 03:20:10 »
demografx, if I had to guess which medication was helping you I would suspect the stimulant/dopamine one. But of course thats a rather wild guess. Were you diagnosed with having attention deficit? I have not been, but I don't doubt that some doctors would diagnose my mental makeup as being in the "inattentive" group of ADD, being somewhat of a space cadet. I tried to persue diagnosis once but once the doctor knew that I wanted to experiment with stimulants the diagnosis is harder to achive due to bias, or so it seemed. It is a controlled substance and there has been some negativity towards dolling out stimulants to people who might just want to get high. I don't think the doc was really all that versed in ADD.


Yes, John, I was diagnosed with ADD. Before the testosterone and Levitra, I was on the stimulants and they didn't affect the POIS. But you may be right in that the COMBINATION of meds must include the stimulants. Very interesting point you made. Thanks a lot. demografx
« Last Edit: 19/10/2008 01:24:24 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #55 on: 21/09/2007 21:06:55 »
CIALIS
Hi everyone. As I mentioned previously, Levitra, an ED medication, seems - for unknown reasons - to be a pivotal component in my combat against POIS symptoms. When I mentioned the POIS effect that Levitra has had to my psychiatrist, even though he didn't understand why, he suggested Cialis. Cialis, another ED med, claims to work for about 36 hours. If so, as a longer acting med, it has the potential to work even better than Levitra. He gave me a sample of 3 tablets, and I will try one and report here, so stay tuned  : - )   

Have a nice weekend, everyone,
demografx

ps - I'd like to propose that we all use the term "POIS" even though we don't all have the exact same symptoms as Dr. Waldinger studied. It just makes it easier for us to communicate. Besides, Dr Waldinger studied very few people and also, all of us here are really dealing with the same general malady, i.e., post....orgasmic....illness.....syndrome/symptoms...I use the term "POIS", even though I don't have myalgia or strictly, flulike symptoms...as Dr Waldinger studied. The main thing is that I suffer from extreme exhaustion, foggy cognition, and an unbearable length of time with symptoms, post-orgasm.
« Last Edit: 19/10/2008 01:25:28 by demografx »

John21

  • Hero Member
  • *****
  • Posts: 500
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #56 on: 21/09/2007 21:49:16 »
demografx, I would be more willing to believe that ONE of the medications is helping you vs a combination. You say you have tried stimulants alone and they did not help, okay. Have you tried testosterone alone without any other meds? Perhaps it is pivotal in the syndrome.

John
« Last Edit: 19/10/2008 01:26:17 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #57 on: 21/09/2007 22:55:47 »
Hi John,

Before I tried Levitra, my hope was that testosterone - when I first started it -  would do the trick and it didn't (please see my earlier posts) except for the initial placebo effect.

If I had to pick one, and only one, prime contributor I would say Levitra. But I still wonder what Cymbalta is doing.

Thanks, demografx
« Last Edit: 19/10/2008 01:27:11 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #58 on: 21/09/2007 22:59:26 »
TO JP on HIS Orkut POIS COMMUNITY
JP, I'm sorry that in an earlier post I "blamed" Orkut.com for forcing me into iGoogle. It happened again today on another site, so I think Google is simply trying to convert the world over to iGoogle. It doesn't seem to have anything to do with your Orkut site. I'm sorry if this kept anyone away from your POIS site.

« Last Edit: 19/10/2008 01:27:51 by demografx »

jplewin

  • Newbie
  • *
  • Posts: 15
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #59 on: 22/09/2007 01:10:30 »
Hi demografx...

Don't worry man... everything is OK.

I'm following your development with LEVITRA and the other thing. I think I'll try it myself, but I need a medical prescription to buy LEVITRA here in Chile, so I'll have to talk about it with my doctor.

Hoping to hear from you soon

JP
« Last Edit: 19/10/2008 01:28:26 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #60 on: 22/09/2007 02:39:18 »
LEVITRA or CIALIS
JP, I would be very careful at your young age with Levitra or Cialis. In my case, it helps for what it was intended, i.e., erectile dysfunction (ED).

The POIS-help was an "accidental" side benefit of Levitra for me. When you DON'T need it for ED, I'm not sure what happens. A SMALL percent who take it do wind up with erections lasting a very long time and some even wind up in the hospital emergency room. I was afraid of that myself, but my doctor told me not to worry.

I'm not a doctor, so I'm being overcautious, I'm not trying to scare anyone. I just think this should be thoroughly discussed with one's doctor before experimenting.
« Last Edit: 19/10/2008 01:29:05 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #61 on: 22/09/2007 19:14:02 »
II would be more willing to believe that ONE of the medications is helping you vs a combination. You say you have tried stimulants alone and they did not help, okay. Have you tried testosterone alone without any other meds? Perhaps it is pivotal in the syndrome.

John

just curious, John, why do you think a single med is more believable than a combination?
« Last Edit: 06/04/2009 01:25:16 by demografx »

John21

  • Hero Member
  • *****
  • Posts: 500
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #62 on: 23/09/2007 13:43:58 »
demografx, it just sounds more logical to me. Perhaps I'm wrong, but it seems like the odds of taking the right combination would be much lower than the odds that one of the meds is helping you.

John
« Last Edit: 19/10/2008 01:40:04 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #63 on: 23/09/2007 18:52:40 »
THIS IS WAR!!!

The enemy? POIS symptoms!I just "fully recovered" from POIS symptoms starting several days ago, and guess what? This morning this stupid thing called sexual desire crept up (again! it's just as bad as eating food/drinking water, it's never over ! LOL) So there I go, leaving my poor body and mind and spirit vulnerable to those horrible POIS sysmptoms, which I feel almost immediately.

So........this morning (Sunday) I took CIALIS! But... __AFTERWARDS__ LOL! As I mentioned in a previous post, my psychiatrist suggested CIALIS when I told him Levitra seemed to work on POIS. So he gave me a free sample of 3 tablets. CIALIS claims up to 36 hour effectiveness vs. several hours for Levitra. Perfect for those stupid longlasting POIS symptoms. And since I'm as desperate as you all are in here....since I didn't have the forethought to take it BEFORE...I took it afterwards. ;D

Sorry for the silly emotional rant, but if I don't laugh I'll cry my brains out.

Stay tuned to see how this silly experiment pans out!

All The Best to my fellow POIS sufferers!!!


ps - Oh, forgot to mention, I also just downed 3 strong glasses of Irish Breakfast Tea (highly _caffeinated_ ) to augment the earlier morning regimen of Adderall XR (longlasting amphetamines for ADD). I should apply to become a drugstore................
« Last Edit: 20/05/2012 03:46:58 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #64 on: 23/09/2007 20:00:26 »
JP's PROFILE QUESTION

I agree with JP that if we learn more about each others' shared traits and similarities, we may learn more about POIS contributing factors.

I won't lay out my life story here, but I'll try to check in time to time with tidbits that may be relevant.

I suffer terrible jet lag, almost like POIS. The most disturbing part is an incredibly intense feeling of disorientation, particularly after the return home. Like the proverbial fish out of water. It can last a week on both sides.

Depression and ADD have periodically been problems as I noted earlier.

POIS has ruined a good chunk of my life, either beause of active symptoms or "hanging over my head" like a curse.

Enough for now, thanks
« Last Edit: 19/10/2008 01:41:46 by demografx »

Dave23

  • Newbie
  • *
  • Posts: 36
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #65 on: 24/09/2007 21:11:28 »
Hi,

Thank you all for this very helpful thread.

What is the most effective dose amount you have experienced on Levitra for treating POIS ?

Also does anyone know what was the effective dose
of taking Zoloft that cured the mans POIS ?

I have had POIS since around 19 and also P.D since 15-16.

At its worst the POIS
symptoms would last a week. Now not so bad, 1-3 days
post ejaculation.

Started TRT 7 weeks ago plus HCG and an AI in Aromasin to help balance my hormone levels.

Iam on :

Testosterone cypionate at 32mg E2D schedule and 250ius of HCG E2D.

Dostinex at 125mcg ED and on ejaculation days at 500mcg. I have high prolactin levels. Side effects for 2 weeks of brain fog.

Im also on Isocort for low morning cortisol levels and Armour for low T3+T4 levels. Have been on for 8 weeks.

Before :

Energy for physical exercises : 1-2x a week

Ejaculation frequenzy : Once every week/2

POIS period : 4-7 days

Now :

Energy for physical exercises : 3-4x a week

Ejaculation frequenzy : Once every 4-5 days.

POIS period : 1-3  days

Have already ordered Levitra and Zoloft. Will experiment with these and post results and side effects.




« Last Edit: 06/04/2009 01:27:21 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #66 on: 25/09/2007 15:50:00 »
DISAPPOINTED

Yesterday was POIS Day 1. I took Cialis (after ejac.) on Day Zero. Cialis has a longer lasting effect than Levitra. My fervent hope was that Cialis would be "the silver bullet," the cure (for me and perhaps others) for this nasty POIS business.

Boy, was I wrong! It was a day of severe exhaustion. And moderate depression. I was at a coffee shop for most of the day with my computer, on and off socializing with patrons. I would've been better off in bed! Tons of coffee succeeded only in making me hyper and nauseous.

My wife suggested exercising. She just doesn't understand that I simply have no energy when I'm like this. Has anyone had positive results excercising during POIS symptoms?

I'm not giving up. I emailed my psychiatrist to ask if it's possible that Levitra has a basically different chemical makeup than Cialis that would make it less effective for POIS(he hasn't responded yet). I will see him day after tomorrow, Thursday.

Maybe Levitra is still the key, I don't know. I am typing this right now from bed - conserving energy - on Day Two. I do feel better than yesterday, though.

Sorry to post my setback. Hope to have better news next time.
« Last Edit: 20/05/2012 04:02:01 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #67 on: 25/09/2007 15:55:18 »
Hi,

Thank you all for this very helpful thread.

demo, what is the most effective dose amount you have experienced on Levitra for treating POIS ?............

....I have had...P.D since 15-16.

....Started TRT 7 weeks ago plus HCG and an AI in Aromasin to help balance my hormone levels.......................

....Have already ordered Levitra and Zoloft. Will experiment with these and post results and side effects.


Hi DAVE, thank you for posting and welcome! I was prescribed Levitra 10 mg for ED. It wasn't prescribed for POIS. It just turned out to be an "accidental" side-benefit.

Would you kindly explain what "P.D....TRT 7...HCG...AI" mean?

Re. Levitra and Zoloft, I hope you will do that under doctor supervision. As I mentioned to JP, I have no idea if Levitra can be potentially harmful at a young age where ED is not an issue.

Thanks again,
demografx
« Last Edit: 27/06/2010 18:53:17 by demografx »

jplewin

  • Newbie
  • *
  • Posts: 15
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #68 on: 25/09/2007 17:02:07 »
Hi all... welcome Dave

Yesterday, fell asleep without taking my medication. Result, wet dream and POIS for today. What an idiot... another day of trash.
... I've tried working out in a gym. My mom used to insist, as your wife does, that I should do exercise. I can assure you it does not help in any way, only to distract your mind. At the best you will feel more tired and will sleep earlier so the day ends fast.
Hope that today goes fast so tomorrow I'd be Ok... hope so.

JP
« Last Edit: 27/06/2010 18:53:53 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #69 on: 25/09/2007 21:26:20 »
JP

BEST WISHES FOR A SPEEDY POIS RECOVERY!!

« Last Edit: 19/10/2008 01:43:50 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #70 on: 25/09/2007 21:32:27 »
EXPECT LESS OF YOURSELF DURING POIS

My psychiatrist suggested this and it's been helpful so I thought I'd pass it on to you all.
« Last Edit: 19/10/2008 01:44:17 by demografx »

John21

  • Hero Member
  • *****
  • Posts: 500
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #71 on: 25/09/2007 22:46:56 »
Day 0 today (had a nocturnal this morning before waking). I can definitely feel the difference, being blank minded, but it isn't too problematic. In my POIS I find it quite difficult to work alongside someone during the day, as the extra work of communication puts a huge load on my mind, I have to mentally work hard to try to keep up. Today I was able to work on my own so anxiety was kept low. I find it very important to keep anxiety low in this POIS state. I think it is the anxiety of dealing with it (working hard to appear mentally "there") that causes the second phase of my syndrome, the burnout phase.

My POIS is still present, but I am adamant that my experience is not nearly as severe as it used to be, before I stopped consuming milk. I have absolutely no explanation for this, just another weird piece of this puzzle that somehow goes together. Any ideas of what might cause this anyone? It may be an important clue to what is going on with all of us. I would suggest that anyone with POIS try going off dairy for a month or two. 

Hopefully tomorrow will go easy on me :o)

John

Dave23

  • Newbie
  • *
  • Posts: 36
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #72 on: 25/09/2007 23:04:55 »

[/quote]

Hi demografx, thank you for your welcome!

Would you kindly explain what "P.D....TRT 7...HCG...AI" mean?

P.D = Peyronies Disease

Penile Scarring, curvature, ED, Leakage, inflammation pain, penile dents all mixed in one.

TRT = Testosterone Replacement Therapy

Iam on 32mg (E2D) Every 2 days schedule to maintain consistant testosterone levels and to keep side effects(Mainly Aromatasing) low or non existant.

HCG = Human chorionic gonadotropin

250iu E2D.

Signals the brains LH hormone gland to keep naturally producing testosterone and sperm
so I dont become infertile and also to
prevent the boys from shrinking.


AI = Aromatase Inhibitor

Aromasin 10mg ED.

To Lower estrogen levels.

Have started 5htp (150mg) and Gaba (400mg) 3 times a week. Will post results if any.

Thanks again,
Dave
[/quote]
« Last Edit: 19/10/2008 01:45:19 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #73 on: 26/09/2007 01:53:07 »

Personally I am chaste now and avoid the problem altogether.

I tried to be chaste many many times. It "works" but it is just too hard to STOP completely. Even though it relieves POIS, it creates another form of anxiety/depression as someone else pointed out here. Isn't this a kick in the head??? We can't "win" either way !!!!!
« Last Edit: 20/05/2012 04:04:52 by demografx »

demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8014
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #74 on: 26/09/2007 01:59:51 »
Day 0 today

I would suggest that anyone with POIS try going off dairy for a month or two. 

Hopefully tomorrow will go easy on me :o)

John

Best wishes for tomorrow, John!! (I'm also starting to "come back" from the dead myself LOL!)

My wife suggested cutting out milk, I hate to admit she's right!  :)  But you, John, have credibility so I have to find a way to try it!(wife or no wife haha)
« Last Edit: 19/10/2008 01:46:13 by demografx »

 

SMF 2.0 | SMF © 2011, Simple Machines