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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6451596 times)

Offline mat780

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5150 on: 02/08/2009 04:08:26 »
Dear Pronobis,

Of course it's possible. But bear in mind that, to do that, we need people with knowledge in languages as well as science and medicine. If you can translate it to any other language, your help will be much welcomed!  :)

I already offered myself to do the Spanish translation... but I think it will be on a second stage. Lets finish first with the first part of the English website, then we will add more options.

Is it possible to build this site in different languages?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5151 on: 02/08/2009 07:06:02 »

Thanks Demo,

I just wanted to know if it's same with you (or some of you).

I don't think that my endoc is well informed about pois )))


Pronobis, at this point in POIS history, it's not realistic to expect that an endo or other health practitioner will be "well informed about POIS". Unfortunately, it's up to us to educate endo's and other physicians and healthcare workers about POIS! We can't expect them to know much; just the opposite, sometimes they will simply dismiss us and send us to psychiatrists! We need to explain POIS, the Forum, Dr Waldinger's study, show them the website and the Compendium, etc.

It's not easy, but it is most certainly achievable!
« Last Edit: 02/08/2009 07:09:02 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5152 on: 02/08/2009 07:13:59 »

I think the translation will be more like a "copy" and "paste" thing.  Getting this forum professionally translated would cost over our heads.  Good luck to anyone who wants to try.


This is unnecessarily pessimistic! We have friends right here who will help out, including Mat in Spanish. B_Jim, Pronobis, and Martin know French, etc. and many people who have simply expressed a desire to help us. Known as friends of friends.
 

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5153 on: 02/08/2009 16:26:08 »
Hi,
I've completed the survey questions offline and just tried to paste in my answers to the online form. However I was then greeted with a message in french apparently detailing an interuption to the service (the survey form was working the day after I last posted that it wasn't working. The new message is different to the last one I got). Again I'll try again later.

Because I can't always get online and have a lot of catching up to do, I've saved and converted the entire contents of the forum to a pdf document and also to a word document (up to and including page 218). Even in small font size the pdf is 1056 pages long! If anyone else feels it would be useful to have a copy of the forum contents in this format (the Word format document is the most useful I think), please send me a private message with an email address I can use. The pdf is 4.9 megabytes and the Word document is 26Mb! These are too large to send via normal email so I'd have to use a service such as yousendit.com or transferbigfiles.com. Perhaps in future on the website we could have a word or pdf  version of the naked scientists forum that is downloadable. Any downloadable copy would have to be updated periodically to keep up with new content being added to the NS forum.
 

Offline mat780

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5154 on: 02/08/2009 16:57:10 »
Hi,
I've completed the survey questions offline and just tried to paste in my answers to the online form. However I was then greeted with a message in french apparently detailing an interuption to the service (the survey form was working the day after I last posted that it wasn't working. The new message is different to the last one I got). Again I'll try again later.

Because I can't always get online and have a lot of catching up to do, I've saved and converted the entire contents of the forum to a pdf document and also to a word document (up to and including page 218). Even in small font size the pdf is 1056 pages long! If anyone else feels it would be useful to have a copy of the forum contents in this format (the Word format document is the most useful I think), please send me a private message with an email address I can use. The pdf is 4.9 megabytes and the Word document is 26Mb! These are too large to send via normal email so I'd have to use a service such as yousendit.com or transferbigfiles.com. Perhaps in future on the website we could have a word or pdf  version of the naked scientists forum that is downloadable. Any downloadable copy would have to be updated periodically to keep up with new content being added to the NS forum.

Dear Mellivora,

Good idea!
This could be some kind of backup. We should see how we implement it, one possibility could be to separate the content in semesters (e.g. 2007_1, 2007_2, 2008_1, 2008_2, etc) this way files won’t be so big. And we could update just the last part.


 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5155 on: 02/08/2009 18:36:29 »
B_Jim, the herb Shilajit sounds interesting.

There was a Romanian news story about this I found in Google News, but when I tried to translate it, I received an antiphihishing warning about it,  so I stopped.
 

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5156 on: 02/08/2009 18:43:04 »
Slowly catching up with some previous posts... Demo I see you were asking for a show of hands for who would take part in a research study. I'd definitely be willing to do that, so count me in. Thanks.
 

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5157 on: 02/08/2009 18:57:18 »
The website is coming together nicely - well done Mat and everyone else involved.
Pyropeach the compendium looks excellent - well done and thanks!
I understand that both of the above are still evolving so I'll read through more thoroughly and chip in ideas that I have.
Great stuff.
 

Offline El Stonio

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5158 on: 02/08/2009 19:39:26 »
Hello All,
It's been a while since I've been here.  In the past I've had some moderate success with going to a mostly vegan diet etc.  Buy recently I had a sleep study done and found I had sleep apnea.  Last week I started wearing a TAP, an oral appliance that prevents your tongue from closing off air to your lungs.  Guess what?  My symptoms of POIS are gone, no exaggerating.  (I've been testing, haha.  I had sex Friday and Saturday nite and this Sunday morning jogged/hiked 10 miles.)  In the past I'd be flat on my back craving carbs, feeling depressed and sick.  This may not be everybody's solution but I urge anyone who hasnt had a sleep study to DO IT!  I tried the CPAP but that was so intrusive I laughed it off.  The TAP is aggreeable with me.  Good luck everyone.  Keep searching. Your bodies if they get the right stuff, will work correctly.  I just may get to start dating again  ::) 
El Stonio
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5159 on: 02/08/2009 20:22:14 »
Dear martin88,

I urge you to find some real information on hormones (preferably at http://forums.realthyroidhelp.com/viewforum.php?f=5). If your doctor tells you, that you are fine because you´re "in the norm" and you trust him/her, you are making a mistake. There is a difference between normal and healthy ranges. Let me tell you, how "normal" is being constructed. You take, say, 150 people, take their blood, measure their hormones and design the range so that X% of those 150 people lie in that range. Obviously, this works fine, when the those sample people are healthy. When they are not and their hormonal levels are out of whack, you get a much wider range than you would get with healthy people. This is how it can happen, that 25 years ago a man was considered infertile when he had less than 100M spermia per ml of juice. Today, since the fertility rates are going down and the above described method is flawed, anybody having more  than 25M spermia per ml of juice is considered FERTILE! People suffering from thyroid disease are often told, that a TSH of, say, 2 is good, since the normal range is 0.XX - 4 (roughly). However, thyroid sufferers only feel good, when their TSH gets under 1.5 or so! When TSH is larger than that, they feel miserable independently on the type or quantity of medication. So, to sum this long article up..all of your testo is LOW! I didn´t see your thyroid labs, but FT4 should be in the upper third/quarter of the range to be healthy, TSH should be as low as possible (anything under 1 is superb). If you are from US, you are a lucky guy:) Contact Dr. John Crisler (http://www.allthingsmale.com/index.htm). He knows the difference between normal and healthy and has helped many men fighting testosterone deficiency.

For informational completeness´ sake, I should add my personal experience with dieting. Low sugar, high protein, high fat diet is what keeps me going and strong. When I eat high carbo, not to mention vegetarian, diet, I get weak, tired, sleepy and depressed. Maybe, it all has something to do with high insulin (again don´t confuse normal and healthy), which is driven down by aerobic excercise that helps many folks here, including me.

I have read some discussions here on B vitamins. If you have homocystein above 6, you are probably low on B6 and or B12 and or folic acid. When it comes to good mood, which many people are fighting here to get, nothing helped me more, than the metabolized form of B6, namely P5P. A three month supply from Swanson´s costs $5. This is making me a very positive, funny and social type of person. Got me rid of depression in a week, when nothing helped (L-Thryptophan, 5-HTP..you name it).

I was wondering, what might have predetermined me to suffer from POIS and I would like to ask you guys, when you were babies, were you breastfed? I was prematurely born and I didn´t receive a single breast-feeding my entire life. BF makes the immune system strong (catching un on Coreman´s success with Alpha 20C for immunity), so maybe it is somehow involved in our problem. To test whether immunity has any effect on POIS, I will try two immune support products (EPICOR and Immunity essentials from Swanson´s) soon and report back with results.

All of you take care,
D.
Danny, thanks for all your suggestions. I was only reporting what my doc said, I have no opinion made yet on my tests results. I'll check this. It's very possible that it's because I'm not taking enough iodine (because it's too aphrodisiac for me and cause a more severe POIS, I feel that all the energy given by this is wasted in orgasm.) So I'll now take the right amount of iodine and I'll see. I think it's a big decision to start hormonal therapy with thyroid, specially in my case. About ranges, they should take only healthy people or it doesn't make sense.. If you take a lot of b6, in a book I have it's said that b6 should always be taken with the same amount of b2 (called the energy vitamin)..don't know if it's true.
I don't know if I was breastfed for enough time but I was.
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5160 on: 03/08/2009 03:38:35 »
El Stonio, what prompted you to do a sleep study?

Did you snore?
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5161 on: 03/08/2009 04:58:20 »

I think the translation will be more like a "copy" and "paste" thing.  Getting this forum professionally translated would cost over our heads.  Good luck to anyone who wants to try.


This is unnecessarily pessimistic! We have friends right here who will help out, including Mat in Spanish. B_Jim, Pronobis, and Martin know French, etc. and many people who have simply expressed a desire to help us. Known as friends of friends.

Lol, I'm just saying that 220 pages may take some time
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5162 on: 03/08/2009 05:03:16 »
Hello All,
It's been a while since I've been here.  In the past I've had some moderate success with going to a mostly vegan diet etc.  Buy recently I had a sleep study done and found I had sleep apnea.  Last week I started wearing a TAP, an oral appliance that prevents your tongue from closing off air to your lungs.  Guess what?  My symptoms of POIS are gone, no exaggerating.  (I've been testing, haha.  I had sex Friday and Saturday nite and this Sunday morning jogged/hiked 10 miles.)  In the past I'd be flat on my back craving carbs, feeling depressed and sick.  This may not be everybody's solution but I urge anyone who hasnt had a sleep study to DO IT!  I tried the CPAP but that was so intrusive I laughed it off.  The TAP is aggreeable with me.  Good luck everyone.  Keep searching. Your bodies if they get the right stuff, will work correctly.  I just may get to start dating again  ::) 
El Stonio

I sort of notice the same thing Stonio.  I rarely go to sleep before 12am.  Maybe I should start giving that a try for my overall mood
 

Offline thoufklg5

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5163 on: 03/08/2009 06:13:10 »
I have suffering from hormone problem. I have a question about a medicine its Levitra. My friend has suggest me this for treatment. He has tried this and he has got it by online from newbielink:http://www.levitrabliss.com/ [nonactive] Is it effective medicine or can be side effects by using this medicine. Should i use it?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5164 on: 03/08/2009 09:19:24 »

Slowly catching up with some previous posts... Demo I see you were asking for a show of hands for who would take part in a research study. I'd definitely be willing to do that, so count me in. Thanks.


Thanks, mellivora. Hey, you ARE catching up on the posts!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5165 on: 03/08/2009 09:30:59 »

I have suffering from hormone problem. I have a question about a medicine its Levitra. My friend has suggest me this for treatment. He has tried this and he has got it by online from http://www.levitrabliss.com/ Is it effective medicine or can be side effects by using this medicine. Should i use it?


Some people have reported good results. There are side effects, and some people (although rarely) have reported some serious ones, for example, side effects involving vision, arthritis, and diarrhea. I wouldn't recommend taking it without a doctor's supervision and after a discussion of the risks and your specific medical condition, including possible interaction with other prescription drugs.

thoufklg5, do you have POIS?
« Last Edit: 03/08/2009 09:50:40 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5166 on: 03/08/2009 09:36:19 »

Hello All,
It's been a while since I've been here.  In the past I've had some moderate success with going to a mostly vegan diet etc.  Buy recently I had a sleep study done and found I had sleep apnea.  Last week I started wearing a TAP, an oral appliance that prevents your tongue from closing off air to your lungs.  Guess what?  My symptoms of POIS are gone, no exaggerating.  (I've been testing, haha.  I had sex Friday and Saturday nite and this Sunday morning jogged/hiked 10 miles.)  In the past I'd be flat on my back craving carbs, feeling depressed and sick.  This may not be everybody's solution but I urge anyone who hasnt had a sleep study to DO IT!  I tried the CPAP but that was so intrusive I laughed it off.  The TAP is aggreeable with me.  Good luck everyone.  Keep searching. Your bodies if they get the right stuff, will work correctly.  I just may get to start dating again  ::) 
El Stonio


Welcome back, El Stonio, and congratulations!! I really hope it sticks! Will you please come back and report to us again?
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5167 on: 03/08/2009 12:43:45 »
Hello All,
It's been a while since I've been here.  In the past I've had some moderate success with going to a mostly vegan diet etc.  Buy recently I had a sleep study done and found I had sleep apnea.  Last week I started wearing a TAP, an oral appliance that prevents your tongue from closing off air to your lungs.  Guess what?  My symptoms of POIS are gone, no exaggerating.  (I've been testing, haha.  I had sex Friday and Saturday nite and this Sunday morning jogged/hiked 10 miles.)  In the past I'd be flat on my back craving carbs, feeling depressed and sick.  This may not be everybody's solution but I urge anyone who hasnt had a sleep study to DO IT!  I tried the CPAP but that was so intrusive I laughed it off.  The TAP is aggreeable with me.  Good luck everyone.  Keep searching. Your bodies if they get the right stuff, will work correctly.  I just may get to start dating again  ::) 
El Stonio

(Nice to see you Girlwind, Mellivora, El Stonio old POIS sufferers!!)

Sleep is necessary to produce sexual hormones so maybe it's why. I thought you were already cured in the past with other treatments (If I remember well you're in B_Jim's highlights.) It's regrettable that it's temporary each time.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5168 on: 03/08/2009 23:37:14 »

GC, my ex-psychiatrist (retired) who is a friend, said to me that, "You're a good candidate for probiotics like Align". Not for my POIS, but I think you also wrote positively about probiotics.
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5169 on: 04/08/2009 01:37:09 »
With regards to the new website, whom is involved in its creation?

I am sure I can be of some help.... I know guys who (for a small fee) could write a script that could "suck" this whole forum our of here and put it in say a phpBB type environment so we could carry on.... each user would have to have an account on the new system them we could send it over.....

I do not know anyone with time to do it for free at this point.... so its just a thought.... I know its hard for everyone to agree to these type things and I am sure there will be lots of people who like the new site and others will not.... :-( can't please em all!

Is there a place to peek at the new site :-)

Let me know, will help when I can, but I am busy too with my work....

PS.
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5170 on: 04/08/2009 01:50:33 »
OK now a post with regard to my current POIS....

I was able to stay O'free for 10 days.... longest time ever! I find it very very hard! At day 7 I felt great, no brain fog, no anxiety.... wow... amazing... Then I got a little over excited, no O yet... but it brought on the POIS symptoms maybe 40-50%! And it did that within 30-60 minutes!

Also I just started seeing a homeopathic Dr. and she explained to me that this POIS thing which she has heard about, but not called POIS, she called it something else which I need her to remind me the name of... but it was with regards to Kidney Chi in Chinese medicine.... and she says its related to Adrenal exhaustion.... I am now having an ASI (Adrenal Stress Index) test done and she said she will know more when the results are in... and thats not till approx. Aug 14th! (bummer)

If nothing shows on it, her next step was hormones.

BTW any Canadians out there? Can you explain more how to get things covered under OHIP? Like test etc...?

PS.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5171 on: 04/08/2009 02:46:19 »


With regards to the new website, whom is involved in its creation?

I am sure I can be of some help.... I know guys who (for a small fee) could write a script that could "suck" this whole forum our of here and put it in say a phpBB type environment so we could carry on.... each user would have to have an account on the new system them we could send it over.....

I do not know anyone with time to do it for free at this point.... so its just a thought.... I know its hard for everyone to agree to these type things and I am sure there will be lots of people who like the new site and others will not.... :-( can't please em all!

Is there a place to peek at the new site :-)

Let me know, will help when I can, but I am busy too with my work....

PS.


Mat and I are working on the site. The budget is shoestring (i.e., zero).
http://sites.google.com/site/poiswebsite/
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5172 on: 04/08/2009 02:54:44 »

HI, POIS-SUFFERER, glad to hear of your testing progress.

I'm not Canadian, but maybe this will help: my health plan covers a goodly portion of the endocrinologist fees and the labwork (including a pituitary/brain scan). Since I'm not using the approved list of health care providers it covers less. I'm following someone's advice that a University medical facility would work better for POIS diagnosis and treatment. And so far, he was right. My hospital diagnosis is hypogonadism.
« Last Edit: 04/08/2009 02:56:20 by demografx »
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5173 on: 04/08/2009 06:19:22 »
Demo, I deleted my last post because I really do not want to argue over a post I made that I disagree on too.  Yes I realized I've misunderstood.  I just think you might over-exaggerate on it a little bit.
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5174 on: 04/08/2009 13:45:40 »
This is just a reminder for the email list:
Please follow this link :  http://pois.vndv.com
(You'll see some new emails with some links.)
If we contact a list of organizations we should get between 1 and 10% response so it's good to have as many email addresses as possible..
If everyone would be willing to enter at least one, the process will go faster..
To reduce the cost of a study we can benefit from governement funds for research, or from directors of large hospitals/universities and famous researchers who may have an influence on the financial aspect..
We can look for
-articles/studies about sexuality
-big hospitals/universities involved in research
-organizations for rare or sexual disorders
-(national) institutes for research
-heath organizations from government
-...
Teamwork can really pay off here!
Thank you for your cooperation!
http://pois.vndv.com
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5174 on: 04/08/2009 13:45:40 »

 

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