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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6452971 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5225 on: 08/08/2009 21:39:56 »

After doing lots of research I found the supplements from this site 'http://www.actionlove.com/' to be really helpful and they relieved my symptoms specially the lower body pains/weakness...I would suggest that you guys do your own research on this site and do a lot of reading and maybe try out the supplements..
 

tazdas, I get concerned about any first-time poster coming here after 5,000 posts to this forum and recommending products, especially ones we've looked at and not very favorably (as John indicated). It's considered spam, and the poster is subject to banning, so I am deleting that reference. Here's a couple hundred Google results on actionlove.com you may want to read first from this forum. If you have comments about the previous posts, please let us know:
http://www.google.com/search?hl=en&q=actionlove.com+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&oq=&aqi=

If you'd like to know more about us first, let me know and I'd be happy to start you off with some references about this forum and our website.
« Last Edit: 09/08/2009 05:57:09 by demografx »
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5226 on: 09/08/2009 01:22:54 »
btw people, if you click the PRINT icon at the top or bottom of this thread, it displays the ENTIRE thread (every post) on one page in a general text format. I've been doing this periodically then saving it to my hard drive as backup/up-to-date reference.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5227 on: 09/08/2009 04:47:18 »
Goingcrazy, was that your first period of celibacy? Longest?

Definitely my longest for about 4 weeks.  But prior to that I would be off an on for a week, than a week 1/2, than a week of abstinence, etc.  Most times, not even reaching a week.

How did you manage not to have any NE's?

I'd be celibate for as long as I had to if I could avoid those.

         Well, I can only say I experienced an NE once during the 4 week period of abstinence, and that was possibly, not really sure I had it.  I don't take any measures to avoid it.  But the first one I had during abstinence led me feeling very calm afterwards, non-POIS like. 
         Say now if I had an NE I doubt it would lead me into POIS because I believe my orgasms now to have a say, 1/3 chance of causing POIS.  As I said I had about 5 orgasms and the last one spiraled me into POIS and bad moods, etc.
 

Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5228 on: 09/08/2009 05:34:24 »
Thanks Goingcrazy.

Was anyone here not breastfed as an infant? I wasn't.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5229 on: 09/08/2009 05:40:22 »
Disappointed, but also encouraged

Martin was the only forum member who responded to my request for feedback on GARD. I don't recall about NORD and the Email List for outreach, but my sense is that response is very, very light.

As GARD and NORD have both pointed out, the difference between success and failure for groups like us - in finding funding and researchers for curing POIS - is to become a strong advocacy group.

How do we do that?

However, I'm very strongly encouraged by the 3 forum members who have stepped forward and committed hard, cold cash towards researching our cure!

Very exciting news!



 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5230 on: 09/08/2009 05:46:45 »

btw people, if you click the PRINT icon at the top or bottom of this thread, it displays the ENTIRE thread (every post) on one page in a general text format. I've been doing this periodically then saving it to my hard drive as backup/up-to-date reference.


Thank you, Defsync. That is very useful info. I didn't realize it was so easy to backup this whole thread!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5231 on: 09/08/2009 05:50:42 »

1) taking Desmopressin (the synthetic form of Vasopressin), to see if POIS symptoms result. It can be ordered here:


I've been toying with the idea of taking this for years for my nocturia, with my urologist's approval, but I've been afraid of the side effects.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5232 on: 09/08/2009 06:01:55 »
This adrenal fatigue seems very plausible. It kinda touches on everyone symptoms and things noticed about pois.
It connects immunity, fatigue, brain fog, sleep ( deep sleep and inability to sleep at night even though tired) It also explains why carbhydrate worsens symptoms and why lots of protein helps symptoms.
The adrenal might connect all our symptoms.
What do you guys think.

After my blood test result come where i tested 13 hormones i think i am going to do adrenal streess index.


 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5233 on: 09/08/2009 08:09:07 »

This adrenal fatigue seems very plausible. It kinda touches on everyone symptoms and things noticed about pois.
It connects immunity, fatigue, brain fog, sleep ( deep sleep and inability to sleep at night even though tired) It also explains why carbhydrate worsens symptoms and why lots of protein helps symptoms.
The adrenal might connect all our symptoms.
What do you guys think.

After my blood test result come where i tested 13 hormones i think i am going to do adrenal streess index.


POIS gives me carb cravings, then indulging the carbs helps. Especially lasagna.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5234 on: 09/08/2009 19:39:21 »

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5235 on: 09/08/2009 20:53:51 »

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?

only craving I get from POIS is for a week to pass by as quickly as possible =)
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5236 on: 09/08/2009 21:58:02 »
During pois i get craving for anything but when i eat lots of carbs i feel the pain.

Bjim, why do you say the pancreas too.
 

Offline JonJen99

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5237 on: 09/08/2009 22:02:19 »
Herbs and supplements I've tried

ZMA: (Zinc, Magnesium, b vitamin): made it worst (no longer take)

Ashwaghanda: helped a little at first but later caused difficulty sleeping (no longer take)

Rhodiola Rosea: slight increase in energy, but caused difficulty sleeping (no longer take)


Like another poster above me, I have actually had BETTER sleep with Rhodiola rosea. My experience is that if you take it no later than 5 PM or so, there's no issue even for the sensitive person. I can take it at 10 PM and go to sleep an hour later, with the most incredible dreams! The brand I take has no additives (it's called Mind Body & Spirit) while some of them have caffeine in them. That might be what bothered you! Try some of the better brands, the high end ones (that work) include Verde Botanica and the one I mentioned. Good luck!
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5238 on: 10/08/2009 02:16:59 »

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?

It's not like I crave carbs, it's just that I am hungry all the time.  When I eat carbs, especially pasta, I usually get really tired at least for an hour afterwards.
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5239 on: 10/08/2009 02:35:19 »
Sclover49


--  For my personal experiences, I was in college all last year and I would say I got about 12 hours of sleep each night for half of a year.  What I didn't do was go to bed before 12.  My sleep hours would honestly be from 2 am to about 2 pm, because I took night classes.  I honestly feel better sleeping before 12, and waking up as the sun wakes me up.  I try not to "sleep in" as I did in college because it didn't help me.  But what I did not do in college was combine a lot of sleep with celibacy.

--  I think sleeping before 12 pm is the serotonin/dopamine/melatonin  <-- I really don't know but--- something with chemicals in your head.  In POIS I never get tired.  Out of POIS I can actually feel my body getting tired... Maybe a buildup of some kind of chemical depleted after orgasm?

--  As for being weaker than my friends... it all depends on who to compare it too.  I believe POIS has no affect on your size, but definitely your strength and ability to perform.  <-- POIS mental affects.  I experience about double the brain fog I normally do after a long workout for some reason.  I had that thought in my head too, I think it's more of a depressed POIS thing, thinking I am worse than others around me.

--  Even now with sleep I would have to say I wake up about 3-4 times each night, and I also sleep with a fan blowing in my face which helps me fall asleep, but maybe that's not such a good idea for deep sleep.

Does anybody experience a bad reaction after viewing porn, not after masturbating.. just viewing porn?  Maybe it is a guilt thing.

I have quit sexual stimulation "non-orgasmic" sex, masturbation and viewing porn...a complete laissez-faire "hands off" type of personality      :P



As I am learning from my Homeopath Dr. it seems my POIS could all be related to a burned out adrenals, your adrenals has a cycle in 4 phases.... it needs you to go to sleep by around 10PM! and wake around 8AM, this is its normal rythum, this is why you may feel this way..... If it is a burned out adrenal causing your issues, you will probably feel most alert and active in the later evening also! and have a hard time waking....

Also the sleepy with carbs she said was also related and I have that too! Not just sleepy but sever fatigue!

PS.

(I am not a DR, I am only relaying info)
 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5240 on: 10/08/2009 02:38:45 »

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?

I usually take Ativan right now to make me feel better, and when it kicks in I just get the good old munchies! :-)

PS
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5241 on: 10/08/2009 05:04:33 »
POIS-SUFFERER

Burnt out adrenals was at first what I thought it was also.  I always felt like coffee somehow caused all of this.  It is still a pretty good theory if you ask me.  When I used to drink coffee it used to prevent me from dreaming at night, hence no deep sleep.  The previous night I went to bed before 12 and felt kind of "POIS" in my dream, and then felt very calm in an instant afterwards.  Maybe some neurotransmitter release, but that rarely happens to me.  I think it was because I went to bed before 12.  Gave my body a full deep rest.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5242 on: 10/08/2009 06:08:47 »

I think it is the opposite for most people. Does anyone else have POIS carbo-crave?

only craving I get from POIS is for a week to pass by as quickly as possible =)


Haha! Best answer yet!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5243 on: 10/08/2009 06:16:43 »


JonJen99, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS forum resources which may be helpful to you:

Our new POIS Information Website is here:
http://sites.google.com/site/poiswebsite/

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 350,000 page visits. Not bad for a rare malady!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5244 on: 10/08/2009 06:21:13 »

JonJen99, this post might help you find information about POIS that we have already discussed, by tailoring a Google search to this POIS forum:


SEARCH POIS FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within POIS Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline JonJen99

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5245 on: 10/08/2009 17:02:14 »
JonJen99 : Welcome, thanks for rodiola rosea.
Are you a Pois sufferer :) ?
Can you give more details ?

Jim, I've lurked here for some time. I don't feel comfortable discussing my condition, but yes -- I've had pois since college, and that was MANY years ago. I've had some relief from pharma, but mostly from herbs.
 

Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5246 on: 10/08/2009 20:03:27 »
has anyone looked into "neurosteroids", they are converted in the brain from regular steroids such as testosterone, fsh, and lh, ect.  neurosteroids naturaly cause sedation and are synthesized now for the purposes of surgical sedation.  "17-Phenylandrostenol" - is an antagonist that blocks the effects of neuroactive steroids
 

Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5247 on: 10/08/2009 23:33:28 »
anyone with medical background go to wickipedia and read about "neurosteroids" and then ("GABA a" receptors ).  neurosteroids that bind to "GABA a" receptors release cholride, causing hyperpolarization, which stops an action potential or signal from moving down the axons of a neuron.
 

Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5248 on: 11/08/2009 00:01:59 »
on a similar note to posible problems with ions; a book i read about fibro myaglia, the doctor claimed that it was caused by a problem with sodium/potassium pumps in cells.  some how active transport of na/k in cells becomes inbalanced, causeing inproper difusion gradiant between inside and outside of cell.  the result would cause endless problems in the body of all kinds, responsible for the many signs and symtoms packaged together in the syndrom of fibro myalgia.  the easyist to detect were the cause of the painfull areas on the back that became chronically inflamed.  the theory being that the difusion imblanced caused the inside of the cell to become hypertonic, pulling in as much fluid as posible to equalize tonicity.  with active transport working improperly, compounds and ions continue to build in cell causeing more swelling fromm water entering cell from osmosis.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5249 on: 11/08/2009 05:24:01 »


has anyone looked into "neurosteroids"


lauracostis, I'm not sure how you're relating that to POIS? And also your last 2 posts...
« Last Edit: 11/08/2009 05:57:31 by demografx »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #5249 on: 11/08/2009 05:24:01 »

 

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