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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6449454 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6050 on: 15/11/2009 01:31:12 »

exponent, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus more than 400,000 page visits. Not bad for a rare malady!
« Last Edit: 15/11/2009 01:32:57 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6051 on: 15/11/2009 01:39:11 »



exponent, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6052 on: 15/11/2009 13:01:40 »
Has there been any contact from Dr. Waldinger or Dr Schweitzer lately?

I wonder if they would think differently if they knew we were willing to sponsor POIS research personally.
« Last Edit: 15/11/2009 13:24:44 by Limejuice »
 

Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6053 on: 15/11/2009 14:18:08 »
Remember Curly of the Three Stooges? He used to say: I AM TRYING TO THINK, BUT NOTHING HAPPENS!!!

Now I believe he was suffering from POIS.

Have a nice Sunday!
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6054 on: 15/11/2009 18:36:18 »
Dear all,

I kindly urge all POIS sufferers that are active on this forum...and particularly those of you that are living in the US, to seriously bring up this matter to the MEDIA. We have all been speculating going & back forth and turning in circles and back to spirals into vicious circles. Some of us claim to be cured others not....some believe some don't...all that while unfortunately most of us are not even specialists!!....Well yes brain storming, sharing ideas & experiences, and speaking out are all healthy at times....but I think it's time to call it game over,,,,before our lives are over!!

I was thinking someone who has a decent amount of charisma ( i do not ) might throw up a  respectable POIS Facebook account, and start friend requesting every damn person in Facebook, especially doctors, med students, psychiatrists, media personnel, etc.

But yes, media personnel email addresses can be found everywhere, maybe we could start a post here for the collection of all those email addresses, then once we have a few hundred each and everyone one of us email them a good form letter detailing POIS (short and to the point, demografx came up with a good one), then for the personal touch at the end each of us add a few lines of how POIS has affected our own life personally.
« Last Edit: 15/11/2009 18:43:04 by Defsync »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6055 on: 15/11/2009 20:44:24 »
Has there been any contact from Dr. Waldinger or Dr Schweitzer lately?

I wonder if they would think differently if they knew we were willing to sponsor POIS research personally.

Limejuice, thank you! I was thinking about this, but honestly wonder if they are the best bet for us. They have not been responsive to date. This is not necessarily disparaging because they have other priorities. But we have also come a long way since their 2002 study of two (2) POIS patients. We now have over 300 POIS sufferer's cases reported and summarized by B_Jim.

Perhaps we should all think first what qualifications do we really want? I think we should all decide that quickly so we can agree who to approach.

I am all for approaching Waldinger and Schweitzer if we give that a little thought. Limejuice, if you still think I should send out preliminary feelers right now, let me know, it can't hurt. I'll be glad to tell them we're considering a few candidates. Let me know and again, many thanks for bringing them up!
« Last Edit: 16/11/2009 21:40:53 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6056 on: 15/11/2009 21:12:46 »

...email them a good form letter detailing POIS (short and to the point, demografx came up with a good one)


It was mostly Counterpoints' words. Martin also contributed.
 

Offline Coreman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6057 on: 15/11/2009 21:39:39 »
I'd like to greet all the fellows, and sum up my last 6 months (me, myself, and my POIS  ;D):

My present regime (based on an evening O, 2 times a week):

Right after:
-Relora, 750 mg (Cortisol)
-Valerian (GABA)
-Klonopin (0,25 mg, GABA again) - Benzo...
-Calcium-Magnesium caps (600/300 mg)

In the morning:
-1500 mg Tribulus
-Klonopin (0,25 mg, GABA) - Benzo...
-St John's Wort tea per 2 hrs, during the day
-Chocolate (craving for sugar/choc...)

This is my best practice. It may sound weird, but i don't care, it makes me feel much better.

Which is for what:
-No Tribulus - little motivation
-No Klonopin (or considering the past without that) - strong    anxiety blocks my thinking
-No St'John's or Chocholate: having bad mood, feeling small, being irritable, having strong brain fog..

As you can see, this pile o' drugs are for the GABA, Serotonine and Dopamine systems. My method is experimenting, testing - which helps, what sucks.

Interestingly, in contrast to others, refined sugar helps me (it makes my mind clear) (aware of its "health benefits")
 
More interestingly, if i miss Tribulus, sexually I feel like I was 10 years' old, without any sexual orientation..., feeling completely empty.. (? -Testo imbalance... surely)

Thanks for listening. Nice, isn't it?!

Good night

Coreman
 

P.S: Demografx: happy to hear you feel much better, you really deserve it!
 

Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6058 on: 16/11/2009 13:56:13 »
I just read the POIS research study from 2002 by Waldinger and Schweitzer.

Thank you Demografx for sending it. I appreciate all the great work you do for us.

This "study" really is just a very basic starting point. At least they offer a clear statement: "POIS typically is a postsexual disorder, suggesting that a factor associated with ejaculation or orgasm serves as a trigger for the induction of a cascade of biological reactions." But that's about it! The complaints are just reframed in medical words.

I think the sentence that caught my attention the most just because it resonates so clearly with me is "He remarked that one ejaculation made him more tired and ill than walking that many kilometers." How sadly true! When I am "out-of-POIS" I swim, bicycle, cross-country ski, hike, etc. and it feels just great. But then one single ejaculation makes me drag my body for a week or more as if I had run 2 marathons during the same day. But not even quite like that - it is more like a mental, emotional, life energy emptiness. It is way beyond just tired. Or even beyond exhaustion. It feels more like dying inside. Very creepy in fact. Fortunately, like a mythical phoenix, I come back to life after 7 to 9 days. That is the only positive thing about this disorder.

A quick question: I have noticed that the surface my tongue becomes whitish (not candida like) on POIS day 2-3-4-5 and then it clears up. Do you have the same observation? Although a seemingly small symptom it could actually mean a lot if it is a common observation.
 

Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6059 on: 16/11/2009 16:17:44 »
Thanks Demo.  I trust your intuition.

Defsync, I agree.  I agree with everyone about media publicity.  I also think Craigslist is another avenue.
 

Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6060 on: 16/11/2009 20:21:31 »
Even though most everyone here has either memorized the tinyurl, or has gotten used to searching "post orgasmic illness syndrome" in google when they want to get to the forum, I made another, just because it's easier.

tinyurl . com / poisforum

An one for the website as well:

tinyurl . com / poiswebsite

(take out spaces)
« Last Edit: 16/11/2009 20:24:07 by Dean93 »
 

Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6061 on: 16/11/2009 20:30:33 »
I don't know about you guys....but I am today 30 and POIS has already eaten up 6 years of my life.....the saddest thing however is that with all modesty, I believe that I am a guy with great potential and great natural gifts from God,,,,only out of 100 I am only able to use 20% of my potentials thx to POIS! And Iam sure that many of you guys are like me,,,,
 So I think u got the message my professional life is getting wasted (Currently unemployed, I actually fear employment now), my marital life is getting wasted (No wife, not even a possible prospect), my social life is getting wasted (No friends, don't ask), and even my Dog has been starting to stare at me in weird manners lately (No pets?)...I feel he's trying to tell me sometimes....: WHAT THE HECK IS WRONG WITH YOU MASTER?  I wish I could tell him....but Iam too tired, exhausted and depleted too try translating to him.....well that's the bad news....

The good news is that hope is the oxygen of life.....assuming an individual has a life of 70 years on average,,,,I still have 40 years in front of me if God is willing to make me live that long,,,,,,,,and guess what? There is even more! I have just declared WAR on POIS!!! And I shall not rest and as long as Iam alive till POIS is defeated....and shall do everything within my God giving powers and abilities to defeat it,,,,and I give you my word!

....and never mind the irony...i just thought that posting this message on this forum will perhaps make me feel better by speaking out and mostly making you guys witnesses to my commitment to not give up!,,, Thx again for listening...Peace.

.... & Good night.
« Last Edit: 16/11/2009 20:41:56 by Z_one »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6062 on: 16/11/2009 20:51:38 »
Coreman, thanks for the happy reporting! And for the good wishes!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6063 on: 16/11/2009 20:54:48 »
Pablo, thanks for a teriffic POIS description! "Dying inside" rings so true!!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6064 on: 16/11/2009 20:56:15 »
Thanks for the confidence, Limejuice!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6065 on: 16/11/2009 20:58:02 »
Dean, that's teriffic! Thank you for creating the easy links!
« Last Edit: 16/11/2009 21:38:34 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6066 on: 16/11/2009 21:10:41 »
Z_one, Happy Birthday! And congratulations on declaring War on POIS!!! That alone helped me enormously. I did give up a number of times (30+ years of POIS!), but I always renewed the fight. This is an exciting time. The POIS Beast is now out in the open, we have the forum, and neurochemical advances are here to stay. Keep fighting!

                       
« Last Edit: 16/11/2009 21:37:07 by demografx »
 

Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6067 on: 17/11/2009 01:47:51 »
i have just started to apply for nurse practitioners programs, if i get into grad school i will have many more tools and connections to fight pois with.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6068 on: 17/11/2009 04:00:20 »
Laurac, that's teriffic! Don't forget your struggling friends here : - )
 

Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6069 on: 17/11/2009 05:31:17 »
Thx Demo...Even though it's not my birthday today,,,,I was simply was pointing out at my age as I wrote...but has been noted..... :-)

Anyhow.....we don't know what we would have done without you and this forum ,,,,so thx again for all your efforts..

Kind regards,
« Last Edit: 17/11/2009 05:43:54 by Z_one »
 

Offline pauliebaby61

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6070 on: 17/11/2009 05:33:16 »
Just read a very interesting piece that describes what happens to our bodies when we O. This may be a hugh break in solving POIS:
When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up, so you feel relaxed for a few seconds or minutes, followed by fatigue and exhaustion if the precursors (neurochemicals) of serotonin, acetylcholine and dopamine in the brain are insufficient for the continuous production of acetylcholine, dopamine and serotonin. If you have enough neurochemicals for a continuous boost of acetylcholine, dopamine and serotonin production after ejac, you can re-erect your P for the 2nd round of lovemaking. And therefore, you will last much longer in your 2nd round due to a high-level of serotonin in the brain's hypothalamus. However, if your neurochemicals are insufficient, you will feel exhausted, tired and sleepy minutes after ejaculating due to the rapid post-O/ejac drop of the neurotransmitters. If you repeat ejac before the neurochemicals are synthesized for your brain and nerves, your brain/nerves will lose their abilities to peak the acetylcholine, dopamine and serotonin levels up after each ejac or O. Eventually, you will experience sexual exhaustion in less than a month. The adrenal function goes dim due to a weak acetylcholine and parasympathetic nervous functions. The thyroid and testicular functions are slowed down by a weak dopamine nervous function. You will become depressed and cannot stand stress.
website is: http://www.herballove.com/article.asp?art=171 [nofollow]
This would seem to explain why we feel fatigued, depressed, cannot handle stress and have low testosterone levels.And, why POIS slowly goes away over a period of days or weeks[as these levels slowly reurn to a 'normal range', only to be depleted at the next O.
 The good news, if this is accurate, is that all theses neurotransmitters can be increased by pills or suppliments
I am calling my doctor about this. I would urge all of you to do the same. Maybe, together, we can finally crack this case and end all this misery!
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6071 on: 17/11/2009 05:39:37 »
I have an appointment with a neurologist this wed. for a possible mri, I'm thinking about pre-"O"-ing but I really don't feel like going through that whole cycle again.  Every time Im in POIS my work production is down, so in college I am baasically useless during that time.
A quick question: I have noticed that the surface my tongue becomes whitish (not candida like) on POIS day 2-3-4-5 and then it clears up. Do you have the same observation? Although a seemingly small symptom it could actually mean a lot if it is a common observation.

Especially in the mornings I wake up with this all the time now, It never used to be this bad... Yet again I don't know if it is candida but many people do have it.  I showed my mom and she showed me that she also had it.
I don't know about you guys....but I am today 30 and POIS has already eaten up 6 years of my life.....the saddest thing however is that with all modesty, I believe that I am a guy with great potential and great natural gifts from God,,,,only out of 100 I am only able to use 20% of my potentials thx to POIS! And Iam sure that many of you guys are like me,,,,
 So I think u got the message my professional life is getting wasted (Currently unemployed, I actually fear employment now), my marital life is getting wasted (No wife, not even a possible prospect), my social life is getting wasted (No friends, don't ask), and even my Dog has been starting to stare at me in weird manners lately (No pets?)...I feel he's trying to tell me sometimes....: WHAT THE HECK IS WRONG WITH YOU MASTER?  I wish I could tell him....but Iam too tired, exhausted and depleted too try translating to him.....well that's the bad news....



I feel the same way, like people are looking at me like I have done something wrong, like the world doesn't orgasm and if you do people hate you...( like the world doesnt masturbate :o...) haha sounds crazy but I usually say to myself that once I "O", I will be hated that day and the day after, (maybe something psychological that I am trying to place restrictions on my O, but idk),  this whole POIS thing is turning into a mental battle and sometimes I do feel like I am losing my mind.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6072 on: 17/11/2009 05:43:58 »
Just read a very interesting piece that describes what happens to our bodies when we O. This may be a hugh break in solving POIS:
When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up, so you feel relaxed for a few seconds or minutes, followed by fatigue and exhaustion if the precursors (neurochemicals) of serotonin, acetylcholine and dopamine in the brain are insufficient for the continuous production of acetylcholine, dopamine and serotonin. If you have enough neurochemicals for a continuous boost of acetylcholine, dopamine and serotonin production after ejac, you can re-erect your P for the 2nd round of lovemaking. And therefore, you will last much longer in your 2nd round due to a high-level of serotonin in the brain's hypothalamus. However, if your neurochemicals are insufficient, you will feel exhausted, tired and sleepy minutes after ejaculating due to the rapid post-O/ejac drop of the neurotransmitters. If you repeat ejac before the neurochemicals are synthesized for your brain and nerves, your brain/nerves will lose their abilities to peak the acetylcholine, dopamine and serotonin levels up after each ejac or O. Eventually, you will experience sexual exhaustion in less than a month. The adrenal function goes dim due to a weak acetylcholine and parasympathetic nervous functions. The thyroid and testicular functions are slowed down by a weak dopamine nervous function. You will become depressed and cannot stand stress.
website is: http://www.herballove.com/article.asp?art=171
This would seem to explain why we feel fatigued, depressed, cannot handle stress and have low testosterone levels.And, why POIS slowly goes away over a period of days or weeks[as these levels slowly reurn to a 'normal range', only to be depleted at the next O.
 The good news, if this is accurate, is that all theses neurotransmitters can be increased by pills or suppliments
I am calling my doctor about this. I would urge all of you to do the same. Maybe, together, we can finally crack this case and end all this misery!
I definitely think POIS has something to do with neurotransmitters...My parents ordered LUCIDAL for me, and it is yet to get here.  I will post back once it does get here and I test it out.
 

Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6073 on: 17/11/2009 06:38:39 »
Just read a very interesting piece that describes what happens to our bodies when we O. This may be a hugh break in solving POIS:
When you ejac with O, the serotonin level in your brain (hypothalamus) temporarily shoots up, so you feel relaxed for a few seconds or minutes, followed by fatigue and exhaustion if the precursors (neurochemicals) of serotonin, acetylcholine and dopamine in the brain are insufficient for the continuous production of acetylcholine, dopamine and serotonin. If you have enough neurochemicals for a continuous boost of acetylcholine, dopamine and serotonin production after ejac, you can re-erect your P for the 2nd round of lovemaking. And therefore, you will last much longer in your 2nd round due to a high-level of serotonin in the brain's hypothalamus. However, if your neurochemicals are insufficient, you will feel exhausted, tired and sleepy minutes after ejaculating due to the rapid post-O/ejac drop of the neurotransmitters. If you repeat ejac before the neurochemicals are synthesized for your brain and nerves, your brain/nerves will lose their abilities to peak the acetylcholine, dopamine and serotonin levels up after each ejac or O. Eventually, you will experience sexual exhaustion in less than a month. The adrenal function goes dim due to a weak acetylcholine and parasympathetic nervous functions. The thyroid and testicular functions are slowed down by a weak dopamine nervous function. You will become depressed and cannot stand stress.
website is: http://www.herballove.com/article.asp?art=171
This would seem to explain why we feel fatigued, depressed, cannot handle stress and have low testosterone levels.And, why POIS slowly goes away over a period of days or weeks[as these levels slowly reurn to a 'normal range', only to be depleted at the next O.
 The good news, if this is accurate, is that all theses neurotransmitters can be increased by pills or suppliments
I am calling my doctor about this. I would urge all of you to do the same. Maybe, together, we can finally crack this case and end all this misery!

Interesting article....by the way...has anyone tried any of the Herbalove products ?
I haven't to date, even though the brand has become very popular around the world.,,,though I am still skeptical in what regards their safety.....I'll re-check their website as to check the kind of ingredients and blends they use....also most of their products are designed for sexual exhaustion....and one thing is sure...POIS definitely encompasses sexual exhaustion ! As such I believe it would be worth it to carefully examine their theories....

I definitely think POIS has something to do with neurotransmitters...My parents ordered LUCIDAL for me, and it is yet to get here.  I will post back once it does get here and I test it out.

I agree.
« Last Edit: 17/11/2009 06:41:04 by Z_one »
 

Offline pauliebaby61

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6074 on: 17/11/2009 16:17:56 »
I am seeing my doctor on thursday, hopefully to talk him into giving me whatever is needed to raise the neurotransmitter levels. I will keep you guys posted as to his opinion/remedy.
I cant speak for all pois sufferers, but the article i posted previously describes exactly what i deal with, everytime I O. This has to be the problem, for me anyway.It makes so much sense now. I finally understand what is happening and why. Now lets see if my doc can reverse it. Keep me in your prayers guys!
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6074 on: 17/11/2009 16:17:56 »

 

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