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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6424839 times)

Offline greg44

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6175 on: 25/11/2009 19:41:57 »
hi, i'm new here. Found this site searching google. Wondering if my symptoms sound like POIS?

After orgasm my entire nervous system goes to chit. It takes 2 weeks of no sex for me to recover from these symptoms.

Feel very cold a couple min after orgasm, later on I feel strange fluctiating hot & cold spots all over.
Body feels heavy & legs feel weak, get muscle spasm in hamstring, pins & needles in feet
Neck gets very tight & has lots of muscle spasms
Lower back very sore, feel constant vibrating spasm very rapid but not forceful
My throat restricts and find it more difficult to breathe
get random sharp pains a couple times a day feels like sudden shock of electricity
Hyper sensitive to sound, & touch. For example if I bump into something unexpectedly my body jolts very severely.
Get horrible sinking feeling in chest which feels like the start of a panic attack
Can't think properly, brain fog, mind racing ect
Emotionally I feel very depressed and regret having orgasm
All of the above symptoms start out mild in the morning and get worse towards the evening
When I first started experiencing symptoms I experienced my first panic attack which then spiraled out of control into more panic attacks. Only when I accepted I was screwed and gave up doing anything was I able to recover.
 
Basically, I've given up on sex now. It's not worth it, the cost is to great.


 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6176 on: 25/11/2009 19:52:12 »



I've had some great results using a US-brand of Rhodiola (Mind Body & Spirit). I combine it with an adaptogens blend called ENERGY RESERVES, which works great to supplement the Rhodiola.


JonJen, congrats!

Can you please tell us more about how Rhodiola affected your POIS? (Before and after would be nice)

Before: my POIS actually made me afraid to have sex. I didn't want what would happen afterwards. I became an expert in the intercourse part, and always faked (yes, I am sure others do this) the orgasm part and put it away without actually having the joy of it. I tried Rhodiola and some other herbs before, with no result. Then, I changed brands and bought something more expensive that I had read about. Ten days or two weeks later I went "all the way" and found that I wasn't getting the same POIS reactions afterwards. I was actually recovering in an hour or two. While I still have some very big issues to work out, I am more confident now as well. And I believe that the herb has also increased my desire. I thought that was a bad side effect at first, but with diminished POIS, desire is not a bad thing.

what is the name of the company you switched and what is list of herb you use. The you use any particular adaptogen.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6177 on: 25/11/2009 19:56:35 »
Hi,
I mentioned a while back that I had an appointment with an endocrionologist. What I really went there hoping to do was to establish a working relationship with the endo so that we could do a series of tests including before and after orgasm and try to detect anything unusual. At first the consultant seemed like he was up for helping in this way but unfortunately, after conversing with a senior consultant, the verdict was that, at least on state-funded healthcare as this was, there wasn’t much they could do. Infact, the senior consultant came in and told me quite bluntly she thought its just something I have to live with. (I was a little riled by her manner on this but stuck to polite conversation!) She didn’t believe before and after tests would help saying there are too many things we don’t know about what goes on. I can see some sense in that perhaps but still believe the tests are worth doing if only to rule out detectable abnormalities. I have a respect for medical doctors but one should remember that in most cases they are not scientists in the sense of proposing a hypothesis and then testing it experimentally.

However, they did in the end give me some tests even if they are not before/after tests. I don’t know the details of all of them (the doctor’s writing on the lab form was too illegible!) but I know they included another batch of more comprehensive thyroid tests, sugar levels and urine tests for catecholamines amongst other things. I’ll pass on the details of anything significant.

In my last lot of tests that I mentioned on the forum, everything was normal except my LH was “slightly low”. I’ve now seen the actual measurements (normal ranges in brackets). These tests were done whilst feeling well (non-POIS).

FSH 2.2 IU/L (<6.0)
LH 1.8 IU/L (2-12)
PL 79 mIU/L (<700)
SHBG 42 nmol/L (10-71)
T 20.9 nmol/L (10-35)
Cortisol 687 nmol/L (138-690)

My endo said cortisol was normal. Well if you ask me its pretty close to being a bit high. An increase in my cortisol of less than half of 1 per cent would have put me out of range which  leads me to believe it might be worth retesting. Having said that I’ve had a slightly stressful time lately workwise and otherwise so that might have pushed it up a bit.There’s been a bit of discussion on the forum about the practical usefulness of the normal ranges when readings are near their extremes. I’ve read some of the normal ranges seem to be based on a sample size of around 200 people.
I did ask about the possibility of pituitary adenoma - counterpoints and others here found they have one - but the consultant wouldn't entertain the possibility saying I'd be ill all the time if I had one - not sure about that...
I’ve come away from my endocrinologist visit thinking that I really need to put more effort into helping to get some research funded. I think it is our best chance of narrowing down the cause of our illness and linking together our shared experiences. I hope to put more time into finding suitable researchers. In the meantime I wait for my latest results and go from there.
Happy thanksgiving to all those who are celebrating it.


I think you should try doing testosterone too when you in pois, my lh is not as low as yours but in lower bracket. In pois my testosterone is way lower than recovery stage.
 

Offline PRZ

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6178 on: 25/11/2009 21:40:12 »
Hey Pablo445

Thanks for your post! Maybe it will convince anyone just to try it since you admit that orgasming without ejaculation it's not some bizarre fantasy. Thanks for bringing the information about retrograde ejaculation. I totally forgot it was covered by the book. I went through it and there is an explanation what is going on with the sperm when you do it right!

"WHERE DOES THE SEMEN GO WHEN I DON'T EJACULATE? The semen is broken down and reabsorbed by the body, just as the sperm are reabsorbed in a man who has had a vasectomy. However, the effects of the Taoist techniques on the body are very different from those of a vasectomy. With a vasectomy, the vas deferens is cut just above the testicles and the sperm have nowhere to go. They are eventually reabsorbed, but many men complain about feeling congestion in the testicles and pelvis. If you have had a vasectomy, it is additionally important for you to practice the Testicle Massage exercise (see chapter 8) and to circulate your sexual energy. Both of these techniques help the body absorb the sperm and reduce any feeling of fullness or congestion. The involuntary contractions of the contractile-phase orgasms that you will learn to experience without ejaculation also massage the prostate, which helps to relieve congestion and keep the prostate healthy."

Still I don't know what does it really mean "reabsorbed by the body" but I tell you one thing. It's exactly how it feels like. Like there is some kind of overwhelming pleasent flow in the body.

Also, information about retrograde ejaculation gives an answer to demografx and why he still had POIS symptoms. I think we are really getting into something now

Pablo, I encourage you to practice this thing again. It's exactly how you described. During the process you will probably lose a lot of semen and suffer all this symptoms again. That's why I said it's really tough. Since you could do it before, learning it again can be easier. If you stay on your course and practice persistently, you will achieve desired results. In the end it's really worth it.

I'm finishing my guide. I will probably post it today.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6179 on: 25/11/2009 23:55:29 »

I really need to put more effort into helping to get some research funded. I think it is our best chance of narrowing down the cause of our illness and linking together our shared experiences. I hope to put more time into finding suitable researchers.


Sorry to hear about the difficult experiences. This makes your statement above imperative, I agree!

I've asked before, I'll ask again: everyone, who would you recommend as a researcher for us to hire independently? Doesn't even have to be a specific person, just an idea, e.g., endocrinology researcher, major university. Please respond and prove me wrong that we're not working together as a group here! ;D
« Last Edit: 25/11/2009 23:57:48 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6180 on: 26/11/2009 00:00:17 »

greg44, welcome to the POIS thread of The Naked Science Forum.




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus nearly 500,000 page visits. Not bad for a rare malady!
« Last Edit: 26/11/2009 04:53:29 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6181 on: 26/11/2009 00:02:13 »


greg44, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6182 on: 26/11/2009 00:14:19 »


That was the promise, and it certainly looked like one without the other (it was "dry"), but it turned out to simply be a fluid diversion to the bladder. I used Mantak Chia's method on Page 120:
http://www.scribd.com/doc/2656200/Mantak-Chia-Taoist-Secrets-Of-Love-Cultivating-the-Male-Sexual-Energy


retrograde ejaculation (ejaculating backward in the bladder) is discussed on page 24 / 25 of "The Multi Orgasmic Man". Basically it explains that if this happens you are not doing it properly


Pablo, ,you stirred my old memory of this. You're probably right about my not doing it correctly. But if that's true, I worked very, very hard at it, tremendously motivated, and still got it wrong!

That tells me that these results, according to my experience at least, are extraordinarily difficult to achieve.

But maybe PRZ will show that these techniques today are not as difficult as they were back in the 1980's?
 

Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6183 on: 26/11/2009 00:40:40 »


That was the promise, and it certainly looked like one without the other (it was "dry"), but it turned out to simply be a fluid diversion to the bladder. I used Mantak Chia's method on Page 120:
http://www.scribd.com/doc/2656200/Mantak-Chia-Taoist-Secrets-Of-Love-Cultivating-the-Male-Sexual-Energy


retrograde ejaculation (ejaculating backward in the bladder) is discussed on page 24 / 25 of "The Multi Orgasmic Man". Basically it explains that if this happens you are not doing it properly


Pablo, ,you stirred my old memory of this. You're probably right about my not doing it correctly. But if that's true, I worked very, very hard at it, tremendously motivated, and still got it wrong!

That tells me that these results, according to my experience at least, are extraordinarily difficult to achieve.

But maybe PRZ will show that these techniques today are not as difficult as they were back in the 1980's?

Ha! To be young and healthy again! I started this in my 20s and stopped in my 30s. Remember I was in good health when I started that. I had been studying oriental medicine for 4 years and one of the ideas that were common to my group of friends was this Tao of Sex thing. So we were several couples investigating this and practicing with a lot of passion. It was a natural exploration for us, a practical extension of our studying. It is easier to do it if you have a regular partner too. It wasn't very difficult really but as I mentioned it takes a lot of dedication and failures  - a fun event if you are healthy but something a POIS sufferer just cannot handle in my opinion if one's POIS problem is rather severe as it seems to be for many here on this board. Although you could be in a better situation now that you are 90% better. But you know this is not for everyone, it is almost a spiritual practice and not everyone wants that kind of dedication to sexuality. We'll see what PRZ brings up. It could lead to a whole new set of questions about orgasm and ejaculation and will maybe bring a new understanding and new ideas to heal from this. It is good to remain in brainstorming mode I think at this point.
 

Offline PRZ

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6184 on: 26/11/2009 12:55:34 »
MASTURBATION AND ORGASMING WITHOUT EJACULATION


General approach

First of all, if you're thinking about trying it once to see if it works, I can already tell you it's useless. I don't think there's a possibility that you can achieve orgasm without ejaculation after first session. Even if you could do it before. It's because our bodies have a strong programming of achieving satisfaction only through ejaculation. If you're new to the subject, probably few times won't be enough also. If you read my previous posts you know that it took me 3 months of almost every day practice to reach level where I don't have to think about ejaculation no more. However I achieved first orgasm without ejaculation after a week. After that it was just struggling to do it every time without stressing over accidental ejaculation. Little by little, I reprogrammed my body. But moments when I lost it and unintentionally ejaculated were simply terrible. POIS symptoms again, discouragement, thinking about putting it off. The biggest trap is that depression connected with POIS suddenly make you think that you won't be able to achieve desired result. You just have to be prepared for that and don't give up.

I advise you to put off not only sceptical thoughts, but also excitement. You need to commit yourself to at least one month of practice (or about 30 sessions). It probably won't be enough to reach a level of a pro, but enough to see it's possible and worth practicing more.

Be humble, patient and persistent.


Few important rules


During the session I think the most important thing is being VERY CAREFUL. It's not as easy as it seems to be. We have a tendency to rather not being careful during masturbation or even sex. We just want to achieve pleasure. Especially during masturbation we don't worry about finishing fast. Here it's all about having control.

There are things that especially in the beginning of practice can deprive us of control.

First one is PORN. I advise to put it off unless you reach a certain level. I remember that in the beginning most of my failures were connected with porn movies and pics. I was used to this kind of stimulation and it's very easy to lose control when you are looking at your favorite porn. You forget about practice and the urge to ejaculate is incredible. If after some time of practice you didn't orgasm but also didn't ejaculate you are going to be very horny and watching porn or any kind of visual stimulation is like 100% FAILURE.

Use your imagination. Sexual fantasies that turns you on. This way you have control because you are the cause of stimulation. You decide. Not a sexy girl on the screen. That's why I said it's also more difficult while having real sex especially when girl takes initiative.

There can be times where sexual fantasy won't turn you on enough and you lose erection. Then you can look for a moment at some favorite pictures to get hard again, but as soon as erection is back return to your fantasy and try to stimulate yourself this way only.

If you really love porn, don't worry. I can watch it now and have total control. It will come with practice.

Second thing is HOW YOU FEEL before masturbation. Don't disregard this. If you want to have control, you can't be distracted or stressed. If you feel this way put off the session until next day.

Because it is very important to be RELAXED, you can't practice while you are sick or simply feeling bad. Avoid practicing during bad weather conditions and when you're in a rush. And until you reach few non-ejaculatory orgasms or at least ability to fight the urge to ejaculate even if not satisfied, I advise TO PRACTICE ONLY IN THE MORNING. Before or after breakfast. Why? Because in the morning you have very high level of testosterone. You're much more relaxed and focused. I remember that for some time I could only have non-ejaculatory orgasm in the morning. Even today it's much more powerful after I get up. You will just need a little more practice to achieve the same level in the evening.

Also, if you ejaculate and suffer from POIS symptoms, successful practice next day can put you in a better mood and therefore reduce the symptoms faster. But you have to decide by yourself if you can handle the urge when you won't get satisfaction, despite all the anxiousness and terrible feeling. Sometimes it's probably better to wait a day or two to regain just a little balance.  

OK, so after a lot of practice you will be able to do it while watching porn, in the evening, and while being not so relaxed. In the end, you won't have to be so careful because you will be programmed to have control. You will just enjoy regular masturbation without ejaculation. But there is one rule that you will have to obey no matter what. I still have to obey it even though I feel like mastered the skill.

It's simple

ALWAYS START SLOWLY

Never hurry at the beginning of stimulation. NEVER. I feel like semen is then "going up" very fast and it's harder to stop it. Don't touch yourself until you reach erection and then stimulate slowly. You will have to deal with horniness and if you lose erection for a moment sometimes you will like to get it back quickly but it's a straight way to failure. My last failure happened when I was too confident with my skill and while being horny I start masturbating quickly. After a minute there was a massive leak of sperm and lesson had to be learned again.

OK. So forgetting about any of these rules especially in the beginning will cause a failure. And it will happen. Because you have to learn the lesson by youself. Just remember about it next time, be careful and don't give up.

Now finally the practice itself

How to do it?

Everyone has probably his own way of masturbation. That's cool unless it's not much different from this:

You reach erection. Start to stimulate yourself by rubbing. You are more and more horny. Rubbing yourself faster. You reach orgasm.

So you can do it like this but you will have to add few elements which change everything.

You can do it any position you want. The more comfortable, more laid back the better. So you will probably do it in the same position you have been doing it whole life since I assume you always wanted to be laid back in this moment. Also I advise to change the position for minute or two during the session. For example most of the time I like to do it while sitting on my bed with my back on the big pillow. But after some time I like to stand up and stimulate myself while walking in my apartment. Then somehow if I sit on the bed again it's easier for me to reach pleasure. I think that MOVEMENT IS HELPFUL. It's just engaging whole body in the sensation, so that pleasure is not only connected to penis, which is typical for ejaculatory orgasm.

Now when it comes to elements you have to add. It's crucial.

As I wrote in previous posts, it's all about balancing on the edge of ejaculation

So you do everything in a typical way unless you are getting close to the edge. Some of you can probably recognize the moment just before ejaculation. Others will have to learn it. It's when erection is very strong and your testicles are moving up a little bit. For some of you there will be a small leak of pre-ejaculatory fluid, which is natural lubricant for some necessary to achieve orgasm. But I think it's not the same for everyone. I have a lot of leaks of this fluid during masturbation and it's not a sign for me that ejaculation is close. And it is necessary for me to achieve orgasm. If I don't have anymore leaks of it and my penis goes dry, I use lubricant or salivate my hand to make it wet and more sensitive. It seems logical since real sex orgasm happens in wet conditions.

You will have to experiment with it by yourself.

I almost forgot about very important thing. Before the session always EMPTY YOUR BLADDER, because it's easy to mistake urge to ejaculation with urge to piss. When you empty the bladder you will be sure that you are close to the real edge.

So you're close to the edge. Imagine as if the flow of semen came close to the dam and there is a pressure to break it.
What you want to do is withdraw semen to a place where it came from, so it can flow again this time with a "bigger wave" that will give you a lot of pleasure. This is how I always imagine it and it works for me.

Now there are three things that make semen withdraw. They are all connected with stopping from ejaculation.

First one is CONTRACTING YOUR PC MUSCLES. These are the muscles between testicles and anus. You use them to stop pissing for example.

Most of resources you can find on the web about ejaculation control will contain some exercises of PC muscles. I don't think it's necessary unless you don't have any problem with stopping yourself from pissing for a few seconds. Of course if you want to you can practice contracting it. It will be helpful for sure.

Anyway, I still have better and worse sessions when it comes to ability of contracting my PC muscles. Usually the better I can do it, the more pleasure I can expect later.

What help me contracting these muscles is clenching my teeth and contracting my feet and legs muscles in the same time. It's also much easier when erection is really hard that's why you aim at coming as close to the edge as possible but not ejaculate.

So I contract the muscles for about 10-15 seconds. Not more. While contracting I also do a "scrotal tug" (that's how they call it in the book). It's about pulling your testicles away from the body which is one of the techniques to delay ejaculation. It looks like this:

newbielink:http://img502.imageshack.us/img502/5724/scortaltug.png [nonactive]
(I only use the hand that pull away testicles)

Both techniques put the pressure on semen to withdraw. Imagine contracting PC muscles as strengthening the dam.

That's not all. After that you have to draw away sexual energy form penis by relaxing and heavy breathing for some time. Especially LONG AND SLOW EXHALING. It's good to focus on your senses while doing that rather than thinking about sex. Think of it as circulating the sexual tension through whole body.

I read statements of people who practice it and some of them like to go outside to breathe the fresh air. I don't do it since I'm always naked while masturbating and it's often cold weather in my country. I just lay on the pillow, relax, and do the slow exhaling.

All 3 techniques (contracting, scrotal tug, breathing) takes no more than 1-2 minutes. After that there's a big chance that semen is withdrawn. You will know if it's true after you start stimulation again. If there's immediate urge to ejaculate then you didn't withdraw the semen and you have to repeat the 3 techniques.

What can happen after heavy breathing is that you can lose erection. It's normal. I lose it every time. You just have to remember to START THE NEXT STIMULATION SLOWLY. As I wrote earlier, it's better not to touch yourself until you get really hard again. Use your imagination or look at some sexy pic for a few seconds. If you have to touch yourself then do it very slowly. And be very careful because this is the moment where you can fail easily.

The whole session is just repeating these cycles:

1)Getting very hard
2)Bringing yourself as close as you can to the edge of ejaculation
3)Withdrawing semen by contracting PC muscle and doing scrotal tug (10-15 seconds)
4)Relaxing your body by heavy exhaling (about 1 minute)
5)Stimulating yourself again slowly

If you are doing first 4 steps the right way, you shouldn't feel immediate urge to ejaculate in step 5.

After repeating these cycles a couple of times you should finally be able to experience great pleasure in step 2. It's like every time "a stronger wave of semen" is coming back during stimulation. And this flow gives great pleasure, great release of dopamine and the greatest feeling I've ever had. It's called MULTIPLE WHOLE-BODY ORGASMS. And it's definitely worth practicing

Because it feels like you have to LET YOURSELF feel this, you can even scream or moan during stimulation (especially step 2). It helps me achieving the final pleasure. Whole practice requires an open mind since you aim at embracing your sexuality to the fullest.

At first, achieving this pleasure may not give you total satisfaction. The need to ejaculate can still be there because of the way our bodies are programmed. That's why it's good to repeat the cycles as many times as you can to change it for good. I tell you, even if I'm satisfied after first one, I always want more because it's an amazing feeling and unlike ejaculatory orgasm, leaves me energised and with healthy appetite for sex. That's why I think it can be quite similar to the way that woman achieve orgasm.

So start practicing tomorrow morning if you see any sense in this.

Try to have at least an hour for practice. The more the better. I was lucky to practice it during my summer break so I had as much time as I wanted. Usually I did it for about 2 hours. My record is 4 hours. Now I can achieve orgasm quickly, after 10-15 minutes and it seems like I successfully reprogrammed my body to separate orgasm and ejaculation, so I don't have to worry about release of sperm and POIS symptoms.

As you see, the main difficulty are all the rules to obey. But in the end it is quite easy. Just be persistent and you will get there.

Also, Pablo445 wrote about spiritual side of this. The book contains a lot of spiritual topics connected with yoga. Personally, my approach is not spiritual at all. However it definitely requires observing your body and trusting your intuition.

Anyway, I hope it's clear now. If you have any questions, I'm willing to answer.

If you have any progress with this, don't hesitate to share it.

Good luck!   
 
 

 
« Last Edit: 26/11/2009 13:06:48 by PRZ »
 

Offline greg44

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6185 on: 26/11/2009 13:30:07 »
hi, i'm new here. Found this site searching google. Wondering if my symptoms sound like POIS?

After orgasm my entire nervous system goes to chit. It takes 2 weeks of no sex for me to recover from these symptoms.

Feel very cold a couple min after orgasm, later on I feel strange fluctiating hot & cold spots all over.
Body feels heavy & legs feel weak, get muscle spasm in hamstring, pins & needles in feet
Neck gets very tight & has lots of muscle spasms
Lower back very sore, feel constant vibrating spasm very rapid but not forceful
My throat restricts and find it more difficult to breathe
get random sharp pains a couple times a day feels like sudden shock of electricity
Hyper sensitive to sound, & touch. For example if I bump into something unexpectedly my body jolts very severely.
Get horrible sinking feeling in chest which feels like the start of a panic attack
Can't think properly, brain fog, mind racing ect
Emotionally I feel very depressed and regret having orgasm
All of the above symptoms start out mild in the morning and get worse towards the evening
When I first started experiencing symptoms I experienced my first panic attack which then spiraled out of control into more panic attacks. Only when I accepted I was screwed and gave up doing anything was I able to recover.
 
Basically, I've given up on sex now. It's not worth it, the cost is to great.



As I research more it seems what I'm experiencing is different from flu like symptoms & pain.
My reaction post orgasm is mainly neurological. I don't have a fever or feel like I'm going to throw up or diarrhea.
Even after I rest for a few weeks the symptoms don't go away they just are very much reduced.
It's just orgasm is by far the greatest trigger over everything else.
in a general sense muscle rigidity & tightness & spasms are ongoing problems which orgasm greatly increases the severity.
Whatever the physiological processes that go on days after orgasm causes something to spike into critical territory.
Absent of orgasm it is much better but by no means out of the territory where I can notice something not right.
If I don't get 8-9 hours of sleep, say only 5-6 hours, the symptoms start out bad right of the bat instead of only being mild in the morning.
I've tried supplements to test for magnesium & B12 deficiency but notice no significant difference from not taking them.
I've tried gabapentin which helps some what to tone down the neurological symptoms & protect from panic attacks, which enables me to sleep better.
I've tried regular pain medication like Tylenol & Advil and notice no difference
I've had basic blood work, ECG which all comes back normal so my GP doesn't know what to do.

What specialists do you guys recommend I see and what should I ask them to test for?
« Last Edit: 26/11/2009 13:54:45 by greg44 »
 

Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6186 on: 26/11/2009 15:57:05 »
MASTURBATION AND ORGASMING WITHOUT EJACULATION

OK, so after a lot of practice you will be able to do it while watching porn...

Just for the record this is very remote from the spiritual relationship enhancing approach I learned and used to practice. The old Taoist masters had a very different vision in learning these skills. I guess we live at a different time and with a different focus! There is much to say about pornographic material and its psychological and social cost compared to experiencing sexuality with full presence being in the moment with or without a partner but this would be way off POIS topic.  But let me emphasize that porn was not on the great Taoist Masters' minds when these techniques were developed - it works well without any external stimuli too.

MASTURBATION AND ORGASMING WITHOUT EJACULATION

The whole session is just repeating these cycles:

1)Getting very hard
2)Bringing yourself as close as you can to the edge of ejaculation
3)Withdrawing semen by contracting PC muscle and doing scrotal tug (10-15 seconds)
4)Relaxing your body by heavy exhaling (about 1 minute)
5)Stimulating yourself again slowly


I would like to add a little note from my past experience. This works great for solo practice but it is more difficult with intercourse as PRZ mentioned earlier. I found that to be successful during intercourse when the peak is attained it is important to push the tongue on the palate, look up and breathe through the nose as if the air was filling the brain rather than the lungs. In other words you try to direct the energy up away from your genitals. After the orgasm has passed but without the ejaculation you can resume your sexual activity. It only takes few minutes focusing on your tongue-eyes-breath. It is imperative to not be tongue kissing with your partner while you are at the peak. That is almost guaranteed to fail. I have know a person who could do it but most of us (including me) would immediately fail and ejaculate.

Good luck with your practice!

PS: By the way what I wrote above about porn does not negate or contradict at all the excellent and clear technical explanation from PRZ.
« Last Edit: 26/11/2009 22:08:25 by Pablo445 »
 

Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6187 on: 26/11/2009 16:04:58 »
A question from the left field...

Has anyone ever considered POIS could be a Lyme disease manifestation?

I know several people who have been suffering from Lyme disease and many of their symptoms are similar. I know I will get tested myself soon. Has anyone else? That would bring a totally new perspective. One of my friend was diagnosed as late stage Lyme disease recently (after 7 years of wrong diagnosis) and it suddenly explained all of his symptoms. He is now being treated appropriately. Many of his symptoms have actually to do with the endocrine system being affected by Lyme.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6188 on: 26/11/2009 21:30:41 »

Supersize Orgasms?

Our discussions to date involve low dopamine and orgasm. But what if we could achieve orgasm at will? Here is an interesting take on that from our forum friend Marnia Robinson, author of the book Cupid's Poisoned Arrow
http://www.psychologytoday.com/blog/cupids-poisoned-arrow/200911/supersize-orgasms
« Last Edit: 26/11/2009 22:30:41 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6189 on: 26/11/2009 22:35:44 »

MASTURBATION AND ORGASMING WITHOUT EJACULATION


PRZ, thank you very much for posting this. It's a fascinating idea and we can all learn from this even though we might pursue different avenues.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6190 on: 27/11/2009 06:10:37 »
A question from the left field...

Has anyone ever considered POIS could be a Lyme disease manifestation?

I know several people who have been suffering from Lyme disease and many of their symptoms are similar. I know I will get tested myself soon. Has anyone else? That would bring a totally new perspective. One of my friend was diagnosed as late stage Lyme disease recently (after 7 years of wrong diagnosis) and it suddenly explained all of his symptoms. He is now being treated appropriately. Many of his symptoms have actually to do with the endocrine system being affected by Lyme.

I've been tested for lyme about four years ago when I was just tired but had no clue that sex caused my symptoms.  I tested negative for lyme's disease but I would like to get tested again.  Someone else on this forum said that he had tested positive for lyme disease and they treated it, but his POIS never went away.  That not saying that you shoudn't get tested it may work out differently for you/anybody.

The test on the Circle of Willis required an MRA scan.  I got that and an MRI taken and have a meeting on the 1st with my doc.
 

Offline mental

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6191 on: 27/11/2009 15:32:05 »
Hi, this is my first post. I am 27 years old and I have been having this condition for about 5 years now. most of the symptoms mentioned in the countless pages apply to me.
I am out of ideas and without a clue as to what the cause is, I feel like my whole life is being wasted in front of my eyes, and no body in my family knows how much I suffer because of this.
please tell me there is a cure I am very desperate and I need your help urgently?
and please excuse my bad english         
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6192 on: 27/11/2009 20:48:43 »

mental, welcome to the POIS thread of The Naked Science Forum.




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus nearly 500,000 page visits. Not bad for a rare malady!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6193 on: 27/11/2009 20:50:16 »


mental, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: over 2 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6194 on: 27/11/2009 20:50:54 »



                      

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6195 on: 27/11/2009 22:04:38 »

Has anyone ever considered POIS could be a Lyme disease manifestation?


Hi, Pablo, we've had a number of discussions about Lyme for you to look at. Hope there's something here of interest:
http://www.google.com/search?hl=en&q=Lyme+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&oq=&aqi=
 

Offline Pablo445

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6196 on: 27/11/2009 22:36:32 »

Has anyone ever considered POIS could be a Lyme disease manifestation?


Hi, Pablo, we've had a number of discussions about Lyme for you to look at. Hope there's something here of interest:
http://www.google.com/search?hl=en&q=Lyme+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com&aq=f&oq=&aqi=

Thanks Demografx - so it looks like I am not the first one to notice the many similar symptoms. I never saw the bull's eye rash on my body but I have removed many ticks from my skin though. One time 7 of them! But that was before I knew anything about Lyme disease so I just forgot about it. I do not remember having a fever or flu like symptoms either. I just received my testing kit today from Igenex - now I need to find a doctor who will want to sign the documents... It is probably not part the of the answer but I want to eliminate this possibility. And what if?...  That would change the therapeutic approach for sure.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6197 on: 28/11/2009 05:02:38 »
Pablo, there seems to be a little controversy about the accuracy of home testing.

There even seems to be controversy amongst the Lyme testing results from different laboratories.
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6198 on: 28/11/2009 07:40:54 »
.....what a relief.....just took a capsule of Gotu Kola...no more brain fog and much improved mental focus.....apparently Gotu Kola boosts the brain's neurotransmitters....no more need for "Adderall" to relief ADD.....Love U mother nature!

Z_One, how has taking that influenced your post orgasmic response?
 

Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6199 on: 28/11/2009 13:05:06 »
.....what a relief.....just took a capsule of Gotu Kola...no more brain fog and much improved mental focus.....apparently Gotu Kola boosts the brain's neurotransmitters....no more need for "Adderall" to relief ADD.....Love U mother nature!

Z_One, how has taking that influenced your post orgasmic response?


Besides improving ADD....nothing much.....

Guys Iam currently in a very bad shape ...so plz excuse me if I delay in responses..... it seems like my POIS symptoms are worsening with time,,,,,my only weapon to fight right now is complete abstinence and full rest....while I have a couple of appointments for next week with Endos & Immunos....will keep you posted for anything that might be relevant......

« Last Edit: 28/11/2009 13:10:11 by Z_one »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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