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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6454149 times)

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6300 on: 05/12/2009 15:57:42 »
I have always said the NHS is great if you fall out of a tree or something but inept when it comes to dealing with chronic issues.

But to answer the question fully; i'd rather have an alexander session in the emergency room than take a batch of drugs for being ill (of course unlikely). this would give me more easier breathing, more bloodflow to the head, more natural movement to my neck, waking of my senses and sineses etc. etc

last year if had a migraine, i got it instantly sorted via an alexander lesson, as drugs never seemed to work at all. drugs never get to the true cause, at best they only temporarily dampen the symptoms, for me dont seem to even do that.

Contrary to popular belief, people dont get randomly ill anyway, it takes years and years of bad use, which they havent properly dealt with because they are probably unaware of it, most likely unaware how to.

« Last Edit: 05/12/2009 19:52:54 by daveyboy »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6301 on: 05/12/2009 16:05:16 »

Chronic issues like cancer? Kidding aside, I do agree that there is vast ineptness on many issues. But I'm not so sure that the alternative world can reliably point to huge, replicatable successes either.
« Last Edit: 05/12/2009 16:08:28 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6302 on: 05/12/2009 16:09:38 »


@DemoGrafx - do you realise that testosterone also boosts dopamine in the brain. Something I have read on a few occasions. Just throwing it out there as a possible 2ndary effect.


Very interesting. If you run across a reference again, please post a link!
« Last Edit: 06/12/2009 22:27:48 by demografx »
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6303 on: 05/12/2009 17:35:40 »
Daveyboy,
[I didn't know that it had a name, Paruresis.

Hey!,
since we're listing embarrassing problems we've all got/had, here's an interesting one.
for all the years ive had pois, since teenager, i've also had something known as 'ppp's - perily penile papules'. They are little white spots on the head on the penis, under the foreskin, on the sort of back edge (feel free to google it!). luckily they have never been that bad but still something that lingers on the mind. To my surprise, i know now, they are linked with the pois because they have dramatically reduced in recent months during my recovery period, virtually unnoticable now.
Just curious!

Another thing also, my penis, although totally straight once totally erect and never crooked, when in the process of getting arused or going back down, in the past would 'want' to lean, sometimes quite forceably, towards one side- towards the tight/operation side of my body- this too is correcting itself (believe it or not)! It doesnt do this anymore, now I have finally released the muscles/nerves on the tight side of body causing the pois, it has straightened things there too!
« Last Edit: 05/12/2009 17:41:35 by daveyboy »
 

Offline EDS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6304 on: 05/12/2009 18:41:14 »

EDS, with your new POIS treatment, do you find that some episodes are inexplicably...not so good?

This one right now is that way for me. And it's inexplicable because I thought if I did this...did that...well, this time, I thought I allowed enough time to lapse between episodes. But it's now Day 2 and it's lingering. Most of the time, it's 90% - 95% POIS-free, but now and then....

Mood-and-events might be an explanation. I might have to go back to the ol' diary.

Strange!

During my relatively short time of using T patches, I have noticed one episode that was worse than others. I didn't know what to think of it, though, because of my lack of experience. Makes you wonder if we still need an additional treatment of some sort.

I am still thankful for this partial remedy!
 

Offline greg44

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6305 on: 05/12/2009 21:21:12 »
neurologist I saw said I have stiff person syndrome. He said my GABA levels are low in my brain because immune system attacks them. GABA supposed to inhibit muscles and allow rest but if it is very low then muscles will be unable to rest in a constant state of activation that results in severe tightness, muscle knots, muscle spasms.

After I orgasm it releases a ton of tension that built up in all my muscles. However, I start to experience a huge spike in the amount of muscle spasms, random shocks, random pains. My brain seems to go out of control trying to tighten the muscles back up. Same thing happens if I try to stretch any the tight muscles. Symptoms are at their best when I just leave the muscles be and let them be super tight.

He recommends that I take high dose of valium(Diazepam) to enhance GABA.
« Last Edit: 05/12/2009 21:24:29 by greg44 »
 

Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6306 on: 06/12/2009 00:18:58 »
I am looking into boosting dopamine again. The whole, low dopamine, high prolactin makes sense to me. I am going to try some Mucuna first, but I dont have any faith in the herbal/natural products. I am checking out parkinson related meds - which specifically boost dopamine. Not for long term use, but only the day after maybe. Something like Deprenyl, or Sinemet.
[/quote]

Porke
I think the path you are going down is well worth trying. I have made a post in the past regarding Kaunch. This is the Ayurveda (indian medicine) name for Mucuna. I have mixed feelings regarding this herb. I took it a number of years back for precisely the same reason you are going to try it and I had mixed results. I did not think it did much for the first few months I took it, but then I had a good spell of health during winter (I always feel better in winter for my chronic fatigue syndrome) and I noticed my POIS symptoms were better than normal + I had stronger erections, stronger orgasms, more horny, was more motivated, did better in the gym, and was more positive mentally. It seemed to wear off after a while but I also ran out of Kaunch around the same time. The supplier I used was not selling it anymore. I found another local source and took it again the following year but was disappointed. I then ordered some more a year later direct from India and tried it at varying doses but again was disappointed. If you read about its supposed benefits in Ayurvedic medicine it sounds like a very promising herb for us to try, so it was such a shame I did not get consistent results. Earlier this year I read a Parkinsons forum that discussed Mucuna where a number of people critisised it for its variable quality. Nearly all supplies come from India, where there is no standardization in terms of quality. The herb is sourced from many different farmers in different regions at different times of the year and who knows how long it sits on the shelf or in bags. Just be mindful of this. Can you please post your results, even if they disappoint. Deprenyl could be worth trying as well. I took the smart drug Hydergine (for blood flow not dopamine) and I found it did help with cognition but nothing to get really excited about. Good Luck.
 

Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6307 on: 06/12/2009 00:24:42 »
Greg44
I don't really experience stiff muscles to the degree you described. I do however get tender (to touch) muscles. If you are not crazy about taking valium, especially at high dose, you might want to suggest muscle relaxants to your doc. A drug like Baclofen I believe helps with GABA and would not make you so drowsey like valium. Just a thought.
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6308 on: 06/12/2009 00:54:32 »
Greg44 - I totally relate to your description of your muscles.
 

Offline RhythmSpring

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6309 on: 06/12/2009 01:10:25 »
Once again, has anyone tried cabergoline? It's made for people with hyperprolactinemia. It reduces prolactin and increases dopamine. Seriously, it sounds worth a try.
 

Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6310 on: 06/12/2009 09:05:57 »

Z_one, if you want to see more testing data from my pre-and-post-POIS-treatment results, just let me know. I got lazy on my last post, but I now have more energy since this is Day 2 ;D

Demo,
 
Heard you loud and clear.....by the way having trouble on more than one occasion sending more than two PMs or more....I'll try again for what concerns inquiries and replies....Meanwhile your tests results are more than enough for me as posted.....

Many thx. 
 

Offline sweden

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6311 on: 06/12/2009 22:17:27 »
Hi,
(I'm no native English writer, there might be some spelling/gramtic errors below)

This is my first post and I found this thread when searching for anything that could explain the symptoms I have.
The description of POIS is not a 100% match of my symptoms, but the closest I have found.
I have had problems with chronic headache and tiredness for 10+ years and have tried countless of drugs and talk to several doctors, physicans, sexual advisers, etc. and done every test/examination they could think of. No one has been able to find what's wrong with me or find any relief from my symptoms.

The thing that has confused me (and the doctors I have talked to most) is that my symptoms get's A LOT worse by having orgasms. It takes about 14-18 hours after orgasms before I get quite bad headache, problems concentrating, tiredness, and basically just want to sleep. This (worse) condition usually last for up to 8 hours, but the chronic headache is quite permanent. This is so problematic for me that it's hard to work and I really try to minimize orgasms.
Having sugar makes my headache/tiredness worse and this (worse state) last for a couple of hours.
Mornings are also problematic with increased headache (and extreme tiredness/sleepiness).

Is it possible that someone with POIS actually get a lot worse not directly after orgasm, but after 12+ hours?

ANY help/input on my condition would be of HUGE value for me. My condition is pretty much destroying my life.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6312 on: 06/12/2009 22:30:31 »

EDS, with your new POIS treatment, do you find that some episodes are inexplicably...not so good?

This one right now is that way for me. And it's inexplicable because I thought if I did this...did that...well, this time, I thought I allowed enough time to lapse between episodes. But it's now Day 2 and it's lingering. Most of the time, it's 90% - 95% POIS-free, but now and then....

Mood-and-events might be an explanation. I might have to go back to the ol' diary.

Strange!

During my relatively short time of using T patches, I have noticed one episode that was worse than others. I didn't know what to think of it, though, because of my lack of experience. Makes you wonder if we still need an additional treatment of some sort.

I am still thankful for this partial remedy!

Me, too!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6313 on: 06/12/2009 22:48:20 »

Once again, has anyone tried cabergoline? It's made for people with hyperprolactinemia. It reduces prolactin and increases dopamine. Seriously, it sounds worth a try.


RhythmSpring, someone here on the forum is about to try it for POIS (told me via confidential Private Message).

I wrote to a friend who is a pharmacologist/attorney for a major State health agency. Here's what he said about cabergoline:

" [Demo], the drug has a side effect of increased libido and hypersexuality [see below]. But it also has some potentially dangerous cardiac and pulmonary [side effects] as well. Here's info from the FDA:

'Physicians should use the lowest effective dose of Cabergoline for the treatment of hyperprolactinemia

[Hyperprolactinemia is the most common endocrine disorder of the hypothalamic-pituitary axis]

and should periodically reassess the need for continuing therapy with Cabergoline. In addition, patients receiving long term treatment with Cabergoline should undergo periodic reassessment of their cardiac status, and echocardiography should be considered. Any patient who develops signs or symptoms of cardiac disease, including dyspnea, edema, congestive heart failure, or a new cardiac murmur, while being treated with Cabergoline should be evaluated for possible valvulopathy

As with other ergot derivatives, pleural effusion or pulmonary fibrosis have been reported following long-term administration of Cabergoline.

Some reports were in patients previously treated with ergotinic dopamine agonists. Cabergoline should not be used in patients
with a history of, or current signs and or clinical symptoms of, respiratory or cardiac disorders linked to fibrotic tissue.

Pathological gambling, increased libido, and hypersexuality have been reported in patients treated with dopamine agonists including Cabergoline. This has been generally reversible upon reduction of the dose or treatment discontinuation.' "
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6314 on: 06/12/2009 22:59:34 »

Is it possible that someone with POIS actually get a lot worse not directly after orgasm, but after 12+ hours?


Yes, sweden, this is a VERY common pattern with POIS.

sweden, welcome to the POIS thread of The Naked Science Forum.




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus nearly 500,000 page visits. Not bad for a rare malady!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6315 on: 06/12/2009 23:02:12 »
sweden, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: almost 3 years' worth of posts from 150+ Forum members, and an additional 150 POIS sufferers found on the Internet, but not on this forum.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://www.thenakedscientists.com/

for example, I tried
demografx POIS site:http://www.thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6316 on: 06/12/2009 23:07:51 »

having trouble on more than one occasion sending more than two PMs or more....I'll try again for what concerns inquiries and replies.


Z_one, thanks for reporting that. Please let me know if it continues, we've been having some tech difficulties. That way I can report it to tech admin. Thanks!
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6317 on: 07/12/2009 04:19:30 »
I've been sick the past few days and i find it really weird that I no longer wake up with brain fog and derealization, which usually fades later in the day.  I've been excreting tons of yellow mucus indicating an infection of some kind.  Can this all be some sort of infection or sinus inflammation causing weird mental symptoms?  I don't know but I have been feeling 100% the past few days besides the coughing and stuffy nose.
 

Offline Z_one

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6318 on: 07/12/2009 11:52:34 »
Dear fellow members,

This is to report that Iam thx God 100% cured.



Iam currently down from 14 days to 1.....using Rhodiola, Damiana and Sasparilla & Nigella sativa (SEPARATELY)

Main properties of the herbs are the anti-depressant effects of both Rhodiola & Damiana (Increase in Dopamine & Serotinin thx to MAOI properties as well as general tonics)

Natural corticosteroid benefits of Sasparilla....while Nigella sativa boosts both the endo & immuno systems....


Plz read carefully side effects of the herbs & contradictions if u wanna try... special precautions & warnings with regard to using MAOIs

Though everyone is different.....Wishing success to all....


Special thx to Demografx that has really contributed alot & initiators of this forum that really assisted me alot in pinpointing down a cure for myself....Will surely remain an active member as a mean to deepen my knowledge and assist other sufferers...


After years and years of agony and misery....today is hopefully a new dawn for me....a fresh breath...a new life....


P:S Will certainly report the consistency of my formula as well as post any additional helpful info.... 

....though now is time for me to get back to the gym... ;) [8D]



Kind regards.



« Last Edit: 07/12/2009 11:58:39 by Z_one »
 

Offline sweden

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6319 on: 08/12/2009 00:31:33 »
Thanks a lot for feedback!!!  :)  :)
 I have just ordered a package of Relora and will try this since this seems to be what has helped most people. Unfortunally I have not yet found a place in Sweden that sells fenugreek, but I will continue to look.
I'm very sure that I will get back with updates and questions. Right now I have a lot of information to digest and in my personal life I have a new girlfriend that make life in general great, but my condition a lot worse  :(

Best Regards from Sweden.
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6320 on: 08/12/2009 01:11:09 »
congratulation z one on your success.   
I have question about your regime.

what do  you mean by you used the products separately. Also what brand did you use and how much you used in a day.
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6321 on: 08/12/2009 19:18:49 »
thats great z one,
Although Im always trying and taking Holland and Barratts-type natural herbs, they never have any effect on me. Now i guess you'll be hoping that you experience 0 days of pois instead of 1, that i might bring/require a large physical/muscular and psychological change.
good luck
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6322 on: 08/12/2009 19:42:38 »
I was just wondering what you guys know of symbrax, psychiatrist told me to try that. I am only going to try just to prove it dont work. HOpefully it reduces nocturnal emission.
 

Offline Pantaloon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6323 on: 08/12/2009 20:09:48 »
I've been mulling over a theory for what I think might cause pois and a suggestion for a possible solution (see next post)

I suggest that the symptoms that people experience with pois are caused by an imbalance between the sympathetic and para-sympathetic parts of the autonomic nervous system - see newbielink:http://en.wikipedia.org/wiki/Autonomic_nervous_system [nonactive].

The sympathetic nervous system is the 'fight or flight' response.
Among its many effects:-
 - stimulates orgasm.
 - directs blood away from the gastro-intestinal tract and skin
 - increases blood flow to lungs and muscles
 - causes pupils to dilate
 - stimulates sweat glands


The parasympathetic nervous system on the other hand is the 'rest and digest' response.
Among its effects are:-
 - it is involved in erection (but not orgasm!!)
 - transfers energy resources to the gut for digestion
 - diminishes the need for oxygen
 - mediates digestion of food and indirectly, the absorption of nutrients.

Normally, the two sides work against each other harmoniously.
I think that pois may be explained by the parasympathetic nervous system not kicking in as it should.

Here's some symptoms/ other things related to pois (either that I suffer or I've read about here)
 that I think may be attributed to this:-

- PE
- tiredness - fight or flight mode for too long.
- lack of emotion - clearly an unnecessary luxury in this state. 
- Fuzzy brain - blood directed to muscles
- bodily warmth - blood directed to muscles
- Dry eyes (constantly dilated for period of time)
- Poor digestion (including desiring easily digestible carbohydrates) following orgasm.
- Skin symptoms - blood directed away from skin.
- Generalized anxiety - not good to be in the fligh or flight mode for long.
- inability to 'come down' after exercise
- blood sugar imbalances

On a personal experience not, this description of what might me going on makes a lot of sense - I just can't get out of the heightened state and back to a normal relaxed state following orgasm.

Well, that's a broad outline of the theory. Any comments?

One more thing, slightly tongue in cheek. For a scientific theory to be valid, it must have predictive power. One of the bodily functions that is triggered by the sympathetic nervous system is secretion from the sebaceous glands. So, I'd guess that maybe pois sufferers tend to have slightly oily noses/a propensity to blocked pores. Any takers? :)

 

 

Offline Pantaloon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6324 on: 08/12/2009 20:31:56 »
The potential solution hinted at in my previous post is Autogenic Training - see newbielink:http://en.wikipedia.org/wiki/Autogenic_training [nonactive].
Autogenic Training (AT) is a way of teaching yourself to control parts of your autonomic nervous system.

The idea being that by performing the exercises you restore a balance between the sympathetic and parasympathetic parts of the autonomic nervous system.

The good news is that's it's potentially free (maybe the cost of a book or possibly even a training course).
The better news is it does't involve drugs.
The bad news is it takes quite a lot of time and even more discipline to learn the technique.

A quick look around the internet suggests that it's offered by a number of dubious sources as a kind of guided meditation/hypnotherapy/new age short cut - 'just listen to the tape and the world is yours' kind of thing.

However, I think this is not the road to go down.
If done properly, it's a serious theraputic tool a lot of sound research behind it.

Right now, I'm feeling quite motivated about this so I'm gonna give it a go.
Obviously I'll report back to the forum.

I'd be really interested in hearing from anybody else on the forum that
might have tried AT either for POIS or any other problems.
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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