The Naked Scientists

The Naked Scientists Forum

Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6448170 times)

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6700 on: 09/02/2010 00:12:23 »
Cconfucius,
Quote
Insert Quote
John did you take 1000mg b12 or 1000mcg, i was looking for b12 supplements online and did not find b12 supplement as high as 1000mg.

Sorry my mistake, I said 1000mg but I meant 1000mcg. It is available at this dosage but I bought it at 100mcg and took 10. I think I also saw it was available at 500mg. I corrected the error on the original post.

you ten all at once or little by little, if you took all at once you were pretty determined.
 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6701 on: 09/02/2010 00:58:12 »
CConfucius,
Quote
you ten all at once or little by little, if you took all at once you were pretty determined.

All 10 at once, I wanted a strong initial dose to test any effect on my insomnia. I figured it wasn't too much as it is sold in that dosage, and I believe it is hard to get too much, being water soluble. It certainly didn't "feel" like too much, I am often sensitive to supplements, but I had no side-effect reaction to it. I haven't taken much more since them, but I plan on further testing at some point.
« Last Edit: 09/02/2010 09:48:32 by John21 »
 

Offline georgesteve

  • First timers
  • *
  • Posts: 3
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6702 on: 09/02/2010 01:03:02 »
Does anyone know an estimate on how many people have pois?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6703 on: 09/02/2010 02:22:08 »

I was 6 which was quite old (discovered [undescended testicle] late).

Old enough to recall the raw pain this procedure gives you.


Although I can't relate to your specific pain, even though I had a U.T. at birth, I do recall my youthful tonsillectomy with trepidation. It was terrifying and my memory serves up a most improbable childhood image of a doctor sticking eating utensils, i.e., stainless steel knives and forks...down my throat!

The literature seems filled with adult psychological disturbance stemming from childhood trauma such as yours and mine.
« Last Edit: 09/02/2010 04:29:14 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6704 on: 09/02/2010 03:06:54 »

Does anyone know an estimate on how many people have pois?


No known numbers, but it does appear to be rare.

Most doctors - consulted by the majority of forum members posting their experiences here - "have never heard of it."
« Last Edit: 09/02/2010 03:12:07 by demografx »
 

Offline acronym

  • Sr. Member
  • ****
  • Posts: 154
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6705 on: 09/02/2010 11:25:27 »
Has anyone had their homocysteine or B12 levels checked in POIS? Sunday night I took 1000mg of B12 to see if it would help my insomnia. That night I had an NE, and the following morning I felt fine (plus I did sleep better). I took another 1000mcg that morning, and didn't have any POIS at all during the day. Earlier I had reported that I thought spinach helped my POIS. I am wondering if maybe it's folic acid assisted in B12 absorption. The only other significant change that might have had influence is that I have been eliminating bread from my diet, replacing it with veggies.

Hi john21 - regarding your post on homocysteine. I had my levels tested about 6 yrs ago for the first time and scored quite high readings. I was put on B12 injections + folic acid. I took them for 2 yrs but only noticed just a slight improvement in energy levels but my homocysteine levels still remained high. I then read up on methylated B12 and pushed my doc for a script for that. I feel this form is definitely better for me, in respect of brain fog + physical energy + stress levels. Its no wonder treatment and certainly no cure for POIS or CFS but it does help with the symptoms in my respect anyway. I take 1 10mg refridgerated IM injection a week (made by compounding pharmacy). Sorry but I cant correlate my past homocysteine readings to POIS/non POIS days. Its been a while since I had the test so I am not sure what it is now, but I know my readings were still on the high side. Some doctors get good results with improved behaviour in autistic children through using the methylated form of B12.
 

Offline prism

  • Full Member
  • ***
  • Posts: 88
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6706 on: 09/02/2010 14:35:32 »

I was 6 which was quite old (discovered [undescended testicle] late).

Old enough to recall the raw pain this procedure gives you.


Although I can't relate to your specific pain, even though I had a U.T. at birth, I do recall my youthful tonsillectomy with trepidation. It was terrifying and my memory serves up a most improbable childhood image of a doctor sticking eating utensils, i.e., stainless steel knives and forks...down my throat!

The literature seems filled with adult psychological disturbance stemming from childhood trauma such as yours and mine.


That's interesting because I had my tonsils out as a child too (not sure why maybe Tonsillitis).
But, for me, cant recall any pain or fear from that operation, or even bad experince.

I do feel it is ALL interlinked with POIS now, I'll try and explain.
The function and development of the senses (i.e facial- smell taste) and sexual organs seem to have gone wrong in a pois sufferer somewhere down the line. They say the first 8 years of your life is most important.
Im sure you notice the sinus problem now during POIS.


The third operation I had when I was young was for CONSTANT nose bleeds-
Again, 'senses' related.
Probably started 8years - 14yr old (?).
I had my nose "quarterised" (i believe is the term.) twice at around the ages of 9-10.
They should ban this procedure because this one is traumatic + it never worked. It involved being awake and having doctor literally pushing up your nose with as much force as he could a metal rod with something on the end. It was very painful but I still went back for another but it didnt work.
I grew out of them eventually.

I believe even all the nose bleeds, tonsils, testicle operation (even eczema as a baby I had shows something going wrong) is to do with the overall 'story' of how i got to suffer from POIS.

Maybe people could list their childhood operations/problems??

I would also love to hear peoples description of their posture throughout their lives-
As a kid I has skinny arms and a protruding gut. I grew up tall (shot up in height at puberty 14-15 years old to 6ft 3in) with an 'S' shape spine.
I know now that, again, it is all related to the development in earlier life.
« Last Edit: 09/02/2010 14:46:10 by daveyboy »
 

Offline prism

  • Full Member
  • ***
  • Posts: 88
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6707 on: 09/02/2010 14:41:49 »
sweeden, on page 10 bjim has a post on every thing that has been tried so you can used that list to determine what next. 

personally am going to try .
testosterone - hopefully urologist am going to see lets me try it.
olive extract
vitamin b12
nigella sativa
fenugreek - i already tried didnt seem to work i will try again.
vitamins metioned in forum that are said to have work
Low dose naltroxene
Cerebrolysin, if i can get my hands on it.

I am going to try each one by themselves. One has to help.




Please tell me you are going to consult a doctor before self injecting an Alzheimer drug you heard about on a forum, brought off the internet which isnt available in USA??
(there maybe good reason why it isnt available)
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6708 on: 09/02/2010 18:03:49 »
sweeden, on page 10 bjim has a post on every thing that has been tried so you can used that list to determine what next. 

personally am going to try .
testosterone - hopefully urologist am going to see lets me try it.
olive extract
vitamin b12
nigella sativa
fenugreek - i already tried didnt seem to work i will try again.
vitamins metioned in forum that are said to have work
Low dose naltroxene
Cerebrolysin, if i can get my hands on it.

I am going to try each one by themselves. One has to help.




Please tell me you are going to consult a doctor before self injecting an Alzheimer drug you heard about on a forum, brought off the internet which isnt available in USA??
(there maybe good reason why it isnt available)

i am willing to try it, but definately not off the internet, just to risky. i will rather go to europe to consult a doctor who knows about it, get precription and do some more reading about it.
 

Offline pedro05

  • First timers
  • *
  • Posts: 8
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6709 on: 09/02/2010 18:06:15 »
lauracostis:

you have a good review of cerebrolysin here
newbielink:http://wiseyoung.wordpress.com/2009/02/10/271/ [nonactive] (the same site i posted before)
it's a very good all around drug for brain/neurological problems

it's an injectable solution. if you want information on how to inject yourself i can give you,
or you can go to nursing center pay for a shot, everyday.
i took cerebrolysin for 15 days at 5ml then i increased it to 10ml for a week. Then i did the withdrawal.
5ml is enough for a healthy person. For us, i recommend begin with 10ml.
A 15/20 days cycle will be enough. It wont cure you but it will definitely improve
your condition.
I'm so satisfied with cerebrolysin that i'm going for another round!
i simply dont want to wait the de-habituation period.
i have habituation to the drug so im going to increase the dosage and kill my POIS right now once and forever.
i will post my results here.
By the way, cerebrolysin also gives you an overall increase in your brain capability, intelligence if you want to call it, nice side effect ;)

Best regards everyone


thanks pedro,
i already read that article, and have done my research. you cant get it in the usa so, drugspro is a pharmacy out of eastern europe, but i want to get a prepaid visa card first to use there. i also may never know if the injections are legitimate cerebrolysin or fake pirated medication.

Lauracostis:

i don't feel comfortable with you ordering meds from online farmacies.
that's possible dangerous. :(
i have prescriptions. And they don't have date limit.
So, theoretically i have a ilimited supply of cerebrolysin.
i don't feel confortable in passing you some boxes either. :S
That's against the law or something?
Do you have the change of coming to europe?
You can have a consult with my psychiatrist and she will prescribe you
cerebrolysin.
She prescribed it to me, no problem.
By the way, when i talked to her about POIS, she already knew the disease.
How can this be possible? i thought dr waldinger was the only one to study POIS.
She said i wasn't the only one with this problem. and she asked me what were my symptoms.
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6710 on: 09/02/2010 18:09:42 »
pedro

dr waldinger is a psychiatirist also, and he has published a case study on it, that might be where she knows it from. Did she tell where she heard from it and how many people she has met with it.
 

Offline pedro05

  • First timers
  • *
  • Posts: 8
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6711 on: 09/02/2010 18:43:38 »
sweeden, on page 10 bjim has a post on every thing that has been tried so you can used that list to determine what next. 

personally am going to try .
testosterone - hopefully urologist am going to see lets me try it.
olive extract
vitamin b12
nigella sativa
fenugreek - i already tried didnt seem to work i will try again.
vitamins metioned in forum that are said to have work
Low dose naltroxene
Cerebrolysin, if i can get my hands on it.

I am going to try each one by themselves. One has to help.




Please tell me you are going to consult a doctor before self injecting an Alzheimer drug you heard about on a forum, brought off the internet which isnt available in USA??
(there maybe good reason why it isnt available)

i am willing to try it, but definately not off the internet, just to risky. i will rather go to europe to consult a doctor who knows about it, get precription and do some more reading about it.


CCconfucius:

i had just posted when i read your post. I read it before i posted mine.
like i said before to laucostis i don't feel comfortable with her buying online.
You can come to lisbon, and talk with her.
i'll give you the information on the consults!

I don't believe she knew it from dr waldinger. She only said i wasn't the only one with it.
and she wanted to know more about it. She also gave me her email, and asked me to send her everything i got about
it. I went to the consult with my laptop to show her this forum proving that i wasn't the only one and that it wasnt anything in my head. i got surprised ... i asked, do you know a disease called pois, post orgasmic illness syndrome?
and she nodded slightly, she knew the disease but probably not by this name ( pois, in english)
i showed her the forum anyway, she seemed interested. there's more one thing. i don't want to disappoint you, but, she also
said that if cerebrolysin worked on me, it doesn't necessarily means that it will work on you all.
(there's a good chance, i think)
She said that would be good to see how other people responded to it. She was implying that i should spread the word, that i did!
I send her the forum address, etc... There's a good change she's reading this! Hello Dr™ !! :)
She a "catedratica",i dont know to say it in english, it is the top degree a professor in a university can achieve.
that gives you a certain level of quality, you are being treated by someone with, supposedly, outstanding abilities.
 

Offline pedro05

  • First timers
  • *
  • Posts: 8
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6712 on: 09/02/2010 18:44:58 »
she already knew the disease.

It's not a disease.

what do you think it is? a condition?
 

Offline pedro05

  • First timers
  • *
  • Posts: 8
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6713 on: 09/02/2010 18:46:51 »
By the way, when i talked to her about POIS, she already knew the disease.
How can this be possible? i thought dr waldinger was the only one to study POIS.

Because studying it and knowing about it are two completely different things.

Hmm... so you're saying that she knew it because it was a theoretical disease?
Theoretically possible but she never met anyone with it?
 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6714 on: 09/02/2010 22:48:52 »
acronym,
Quote
Hi john21 - regarding your post on homocysteine. I had my levels tested about 6 yrs ago for the first time and scored quite high readings. I was put on B12 injections + folic acid. I took them for 2 yrs but only noticed just a slight improvement in energy levels but my homocysteine levels still remained high. I then read up on methylated B12 and pushed my doc for a script for that. I feel this form is definitely better for me, in respect of brain fog + physical energy + stress levels. Its no wonder treatment and certainly no cure for POIS or CFS but it does help with the symptoms in my respect anyway. I take 1 10mg refridgerated IM injection a week (made by compounding pharmacy). Sorry but I cant correlate my past homocysteine readings to POIS/non POIS days. Its been a while since I had the test so I am not sure what it is now, but I know my readings were still on the high side. Some doctors get good results with improved behaviour in autistic children through using the methylated form of B12.

Is there some other method you could use to get the homocystine levels down? I suppose maybe not, as you would have been advised. Are you sure it is 10 mg injection and not 10 mcg?
« Last Edit: 09/02/2010 22:55:15 by John21 »
 

Offline silverandcol

  • Jr. Member
  • **
  • Posts: 49
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6715 on: 10/02/2010 00:19:38 »
hmm well in my childhood, i once hurt myself masturbating i think.  i got bruised i think? or popped a vein or something, well what happened was the vein raised up a little.  I remember it hurt for a while, but i let it pass through the years.  Now I can still see the dark bruise on my penis.  It's not raised anymore and doesn't hurt though.  I don't think it has anything to do with pois , but who knows?  And i also have minor kyphosis and asthma if that could effect anything.
 

Offline prism

  • Full Member
  • ***
  • Posts: 88
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6716 on: 10/02/2010 01:11:37 »
hmm well in my childhood, i once hurt myself masturbating i think.  i got bruised i think? or popped a vein or something, well what happened was the vein raised up a little.  I remember it hurt for a while, but i let it pass through the years.  Now I can still see the dark bruise on my penis.  It's not raised anymore and doesn't hurt though.  I don't think it has anything to do with pois , but who knows?  And i also have minor kyphosis and asthma if that could effect anything.

in MY opinion (im not a doctor i might add)-
bruise on penis, nah probably irrelevant, get it checked out though.
'kyphosis' yes definitely related.
asthma and pois are probably symptoms from having kyphosis.
but its a chicken and egg situation.
kyphosis you can do something about.
asthma and pois are more difficult to do something about, in a direct manner anyway.
 

Offline Green

  • Sr. Member
  • ****
  • Posts: 175
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6717 on: 10/02/2010 12:00:58 »
I have both Kyphosis and Lordosis and I also have POIS in it's full blown form, immediately prior to orgasm. Recently I have been going to a specialist massage therapist which helps "release" the muscles in my back due to kyphosis in addition to this I have focused on concentrating building muscles in my back to help maintain the best possible posture.

I find that when in POIS my posture is very difficult to upkeep and retain with good form, although I am fully conscience of this, there is little that can be done, as my muscles become incredibly weakened.

As a result of focusing on posture, by doing pilates and general exercise my POIS has reduced in intensity, but all symptoms still remain.
 

Offline thisisme

  • First timers
  • *
  • Posts: 3
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6718 on: 10/02/2010 14:47:38 »
Hello,

This article was published just 2 days ago and reveals an incredible story of a patient who suffered from typical POIS symptoms (referred to here as Benign Coital headache) for 27 years. His syndrome miraculously disappeared when his partner fell pregnant, and reappeared following the birth. Long term his POIS was effectively cured with Norethisterone 5mg (a progestogen).
 
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

newbielink:http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short [nonactive]

I hope this helps.

 

Offline Mr_Canadian

  • Jr. Member
  • **
  • Posts: 15
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6719 on: 10/02/2010 18:16:13 »
John21 - would you say that your symptoms have disappeared with the elimination of grains, milk products and sugars in your diet? And did you say that you had temporary relief with spinach, but that went away?

Has anyone here suddenly felt better after taking antibiotics?
 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6720 on: 10/02/2010 22:30:37 »
Mr Canadian,

Quote
John21 - would you say that your symptoms have disappeared with the elimination of grains, milk products and sugars in your diet? And did you say that you had temporary relief with spinach, but that went away?

I currently do not drink milk but I do eat yogurt. I have not eliminated sugars from my diet. For a few weeks now I have stopped eating bread, and I am avoiding gluten altogether, just for a trail. My last NEs were non-symptomatic, and the reason is yet to be determined. The spinach loading did coorelate with non-symptomatic episodes, but how this relates I am not yet sure. There are so many factors to consider! It is a slow process but I believe that one of the tracks I am on is the right one. I also took the B12 before the non-symptomatic NEs, so that may be a factor as well. I'm feeling like I will have a firmer idea of what exactly is helping me... eventually.

Quote
Has anyone here suddenly felt better after taking antibiotics?

I once had my doctor put me on antibiotics, doxycycline or something, and my symptoms did improve. After going off symptoms returned, but then I realized I discontinued drinking milk while on the medication. So I went off milk again and my symptoms improved again. I thought I had it licked, but then symptoms came back, although not as intense as they were before. I never made sense of this, but it is another possible hint that the digestive process might be involved in some way.
« Last Edit: 10/02/2010 23:25:38 by John21 »
 

Offline Guthrie

  • Sr. Member
  • ****
  • Posts: 189
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6721 on: 11/02/2010 01:36:10 »
Wow!! That's wild!  (I only read the abstract--what's a good way to get access to the full article?)

Hello,

This article was published just 2 days ago and reveals an incredible story of a patient who suffered from typical POIS symptoms (referred to here as Benign Coital headache) for 27 years. His syndrome miraculously disappeared when his partner fell pregnant, and reappeared following the birth. Long term his POIS was effectively cured with Norethisterone 5mg (a progestogen).
 
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short

I hope this helps.


 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6722 on: 11/02/2010 03:16:41 »
Is anybody else like me?

At night, I always can feel this "disease" go up in the front of my head, it's either that I'm going to be in a bad mood (when I can feel it in the center of my head) or that I can't focus (brain fog, feeling of it in the front of my head).  It is like something is constantly moving back and forth throughout my head to get what it wants.  If I eat something sugary, I can always feel it going to the center of my head.  When I sleep it always goes towards my frontal lobes??  Am I just imagining this? or does somebody else notice the same thing.

Also when I get physical exercise, I can feel it going to my frontal lobes causing this fog. ( I am constantly rubbing my eyes because it feels like a whole "patch" of something behind my eyes ) But right back there out of reach of my finger.  Am I goingcrazy?
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6723 on: 11/02/2010 03:53:39 »
my head right after pois feels weird, but i really dont know how to explain it.
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6724 on: 11/02/2010 03:54:41 »
do you guys think there is a difference between capsules and oil suplements. Why is oil supplements more expensive than capsule supplements.
 

The Naked Scientists Forum

Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6724 on: 11/02/2010 03:54:41 »

 

SMF 2.0.10 | SMF © 2015, Simple Machines
SMFAds for Free Forums