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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6425251 times)

Offline thisisme

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6725 on: 11/02/2010 11:06:44 »
If the article is chosen to become an "Editor's Choice" article then the full text version is published online for free. Otherwise -- and unfortunately at the moment -- you have to pay online to access it.

Perhaps some sufferers here would like to point their Doctors to the article (maybe they have access already through annual subscription?) and consider trying norethisterone and report back their experiences?

For that patient though, the discovery was particularly serendipitous and oral norethisterone 5mg was most definitely the miracle cure. 

Wow!! That's wild!  (I only read the abstract--what's a good way to get access to the full article?)

Hello,

This article was published just 2 days ago and reveals an incredible story of a patient who suffered from typical POIS symptoms (referred to here as Benign Coital headache) for 27 years. His syndrome miraculously disappeared when his partner fell pregnant, and reappeared following the birth. Long term his POIS was effectively cured with Norethisterone 5mg (a progestogen).
 
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

newbielink:http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short [nonactive]

I hope this helps.


 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6726 on: 11/02/2010 16:06:56 »

Thank you very much,
Ms. Marnia Robinson
(Author, the book, "Cupid's Poisoned Arrow",



for including our POIS Forum and video in your "Psychology Today" Blog!

Ms. Robinson, a  Member/Friend of this Forum, wrote today: "As promised, here's the "Psychology Today" post that mentions POIS" :
 
The Right Masturbation Advice
http://www.psychologytoday.com/blog/cupids-poisoned-arrow/201002/the-right-masturbation-advice


Thank you again, Marnia!
From:
Demo and All Of Us At The Forum!
« Last Edit: 11/02/2010 19:43:48 by demografx »
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6727 on: 11/02/2010 17:34:25 »
Excellent article. So true.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6728 on: 11/02/2010 18:45:46 »
Another post by Ms. Marnia Robinson at SEXNET Digest
 
"Relevant to the issue of mysterious symptoms after orgasm, SEXNETTES may want to consider Post-Orgasmic Illness Syndrome. The man who started a POIS forum for sufferers a few years back recently told me that it has had over half a million visitors, and that they are hoping health-care professionals will give their plight more serious attention. http://www.thenakedscientists.com/forum/index.php?topic=6576.0
 
Here's a short YouTube presentation that describes the symptoms in more  detail:
 
Apparently guilt is not the only potential source of such feelings. See  'Sex and Depression: In the Brain, if Not the Mind'
http://www.nytimes.com/2009/01/20/health/views/20mind.html
 
Incidentally, in his case it turned out that the forum's founder's symptoms were exacerbated by a drug called Reglan, which had increased his prolactin levels to ten times normal, thus suppressing dopamine and making recovery after orgasm last for  weeks. He had to uncover the problem himself. His very learned, otherwise competent, academic endocrinologist hadn't bothered researching his symptoms because his patient's symptoms  "were no doubt just due to earlier sexual repression."
« Last Edit: 11/02/2010 19:07:30 by demografx »
 

Offline hazey

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6729 on: 11/02/2010 23:40:12 »
this forum/topic is all over the palce. Is there not a new forum were we should start using so we can organise discussions in topics
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6730 on: 11/02/2010 23:49:49 »
I think the article is pretty good overall, but I was not so sure about her statement about us saying that "Its founder also mentioned that a common denominator of nearly all the sufferers is very frequent masturbation earlier in life."

I realize that 'very frequent masturbation earlier in life' could be the case with a number of the people on our forum, but I think that saying "nearly all of the sufferers" is a misrepresentation.  Perhaps saying "many" could be accurate, but not "nearly all."  I think that there may be a number of different causes for POIS, and to point almost univocally in the direction of over-masturbation can distort the overall picture and make research into the base causes more difficult. 

It makes it sound like POIS results primarily from unwise sexual choices (which I realize is Ms. Robinson's specialty and focus), rather than from neurochemical imbalance or hormone/vitamin deficiency (i.e. factors which may be completely unrelated to chosen sexual practices).  At the very least, speaking in terms of myself, I can say that over-masturbation was not part of my own experience earlier in life, and so I don't think that it would the source of my POIS. 

Demografx, I realize that she attributes the "nearly all" statement to you, but perhaps she misquoted or misunderstood you.




Thank you very much,
Ms. Marnia Robinson
for including our POIS Forum and video in your "Psychology Today" Blog!

Ms. Robinson, a  Member/Friend of this Forum, wrote today: "As promised, here's the "Psychology Today" post that mentions POIS" :
 
The Right Masturbation Advice
http://www.psychologytoday.com/blog/cupids-poisoned-arrow/201002/the-right-masturbation-advice
« Last Edit: 11/02/2010 23:59:59 by Guthrie »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6731 on: 12/02/2010 05:57:56 »

this forum/topic is all over the palce [sic]. Is there not a new forum were we should start using so we can organise discussions in topics  [<<mod edit - question or statement?]


Have you reviewed the discussions on this topic amongst us, that tells you where we stand on the subject? Your welcome letter includes an easy Google search method that would tell you where we stand so far.

A Grand Total of 7 forum posts' participation, with your first post starting January 14, 2010, less than a month ago, at a Forum that has been active (and successful) for three (3) years, with 150+ members and over 500,000 visitors... and you already know exactly what this forum needs?

How much time are you willing to put in to study this forum, its history, its' needs and to help plan, implement, organize and control its future needs?

I appreciate your concerns and look forward to your studied input.
« Last Edit: 12/02/2010 06:30:22 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6732 on: 12/02/2010 06:02:14 »

I think the article is pretty good overall, but I was not so sure about her statement about us saying that "Its founder also mentioned that a common denominator of nearly all the sufferers is very frequent masturbation earlier in life."

I realize that 'very frequent masturbation earlier in life' could be the case with a number of the people on our forum, but I think that saying "nearly all of the sufferers" is a misrepresentation.  Perhaps saying "many" could be accurate, but not "nearly all."  I think that there may be a number of different causes for POIS, and to point almost univocally in the direction of over-masturbation can distort the overall picture and make research into the base causes more difficult. 

It makes it sound like POIS results primarily from unwise sexual choices (which I realize is Ms. Robinson's specialty and focus), rather than from neurochemical imbalance or hormone/vitamin deficiency (i.e. factors which may be completely unrelated to chosen sexual practices).  At the very least, speaking in terms of myself, I can say that over-masturbation was not part of my own experience earlier in life, and so I don't think that it would the source of my POIS. 

Demografx, I realize that she attributes the "nearly all" statement to you, but perhaps she misquoted or misunderstood you.




Thank you very much,
Ms. Marnia Robinson
for including our POIS Forum and video in your "Psychology Today" Blog!

Ms. Robinson, a  Member/Friend of this Forum, wrote today: "As promised, here's the "Psychology Today" post that mentions POIS" :
 
The Right Masturbation Advice
http://www.psychologytoday.com/blog/cupids-poisoned-arrow/201002/the-right-masturbation-advice



Guthrie, you're absolutely right. We discussed it earlier before your post and she is willing to make changes.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6733 on: 12/02/2010 06:16:51 »

thisisme, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for nearly 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus well over 500,000 page visits. Not bad for a rare malady!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6734 on: 12/02/2010 06:18:59 »


thisisme, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: almost 3 years' worth of posts (nearly 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6735 on: 12/02/2010 17:33:32 »

I think the article is pretty good overall, but I was not so sure about her statement about us saying that "Its founder also mentioned that a common denominator of nearly all the sufferers is very frequent masturbation earlier in life."

I realize that 'very frequent masturbation earlier in life' could be the case with a number of the people on our forum, but I think that saying "nearly all of the sufferers" is a misrepresentation.  Perhaps saying "many" could be accurate, but not "nearly all."  I think that there may be a number of different causes for POIS, and to point almost univocally in the direction of over-masturbation can distort the overall picture and make research into the base causes more difficult. 

It makes it sound like POIS results primarily from unwise sexual choices (which I realize is Ms. Robinson's specialty and focus), rather than from neurochemical imbalance or hormone/vitamin deficiency (i.e. factors which may be completely unrelated to chosen sexual practices).  At the very least, speaking in terms of myself, I can say that over-masturbation was not part of my own experience earlier in life, and so I don't think that it would the source of my POIS. 

Demografx, I realize that she attributes the "nearly all" statement to you, but perhaps she misquoted or misunderstood you.


Thank you very much,
Ms. Marnia Robinson
for including our POIS Forum and video in your "Psychology Today" Blog!

Ms. Robinson, a  Member/Friend of this Forum, wrote today: "As promised, here's the "Psychology Today" post that mentions POIS" :
 
The Right Masturbation Advice
http://www.psychologytoday.com/blog/cupids-poisoned-arrow/201002/the-right-masturbation-advice


Guthrie, I've asked Ms. Marnia Robinson to briefly post here and explain the confusion and possible misunderstanding.

Thank you for your patience.
 

Offline reuniting

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6736 on: 12/02/2010 18:19:17 »
Thanks for the heads-up, Guthrie. I have revised the language in my post to reflect your concerns. That article, remember, was about re-thinking what we tell kids. Right now the message is "the more the better," which will be very bad advice for those with particularly sensitive brains.

The thing we think researchers need to address is over-stimulation of the reward circuitry of the brain vis a vis orgasm. That can occur in various ways. One is frequent orgasm (especially to today's extreme porn), one is infrequent orgasm that is fraught with strong feelings of guilt or shame, and one is simply having a really sensitive brain in this regard. (Mind you, POIS may have other causes, too. I'm just particularly interested in this one.)

As some of you know, my husband and I believe that  orgasm is the start of a neurochemical cycle (of hormonal and neurotransmitter events) that continues for up to two weeks (on average). We think it is common to everyone, but hidden to most of us because the effects are usually subtle. POIS sufferers are at one end of the spectrum. But even in its more subtle forms, this cycle can alter mood and perception, and promote habituation between partners, especially after the two-year (maximum) honeymoon neurochemistry wears off. This hidden mating program serves our genes, by increasing the genetic variety of our offspring (when we move on to/add novel mates).
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6737 on: 12/02/2010 20:39:22 »
Many thanks, Ms Robinson! I consider you and your husband as POIS pioneers for many of us who are struggling to understand the connection between orgasmic-neurochemistry- gone- haywire and POIS!

It took many of us YEARS to finally connect the dots and see POIS symptoms connected to the immediately preceding orgasm/ejaculation.

Thank you!
« Last Edit: 12/02/2010 20:42:42 by demografx »
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6738 on: 12/02/2010 22:16:00 »
Ms. Robinson,

Thanks very much for the revision.  I thought your article was good overall, and that specific part was the one concern that I had.

I also agree that there may be significant overlap between your project and the spectrum of POIS; I only wanted to emphasize that there does not seem to be total overlap, and that there may be aspects of POIS that need addressing in other ways. 

In other words, while I agree with your point that both too-frequent and too-infrequent orgasms can potentially be harmful to the neurochemical cycle, the problem with POIS is that it makes ANY amount of orgasms into a major problem.  And this seems different from most 'normal' people, who are able to have at least a moderate amount of orgasms without harmful effects--and indeed often with positive effects on overall well-being.

Thanks for the heads-up, Guthrie. I have revised the language in my post to reflect your concerns. That article, remember, was about re-thinking what we tell kids. Right now the message is "the more the better," which will be very bad advice for those with particularly sensitive brains.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6739 on: 13/02/2010 02:07:16 »
Thanks for bringing this article to our attention!!!!!

Wow!! That's wild!  (I only read the abstract--what's a good way to get access to the full article?)

Hello,

This article was published just 2 days ago and reveals an incredible story of a patient who suffered from typical POIS symptoms (referred to here as Benign Coital headache) for 27 years. His syndrome miraculously disappeared when his partner fell pregnant, and reappeared following the birth. Long term his POIS was effectively cured with Norethisterone 5mg (a progestogen).
 
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short

I hope this helps.


 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6740 on: 13/02/2010 20:27:52 »
okay so im listening to an NPR interview about a brain scientist who had a storke, and because of the nature of her profession she was able to look at the onset of the stroke and the facilities she began to lose as it was occurring. the stroke occurred in the left half of her brain, which cut out her communication and reasoning skills, leaving her with her right half (creativity and sense of bliss.) Considering my POIS is so severe it cuts my communication and cognitive abilities at least in half, i was wondering if the mental part of POIS targets perhaps one side of the brain, ie the left half?

i was also toying with the idea of uploading my complete brain MRI to Rapidshare so it could be d/l by any interested researchers. i'm hesitant tho because each freakin slide shows my full name =( how useful do you think it could be?
« Last Edit: 13/02/2010 20:30:02 by Defsync »
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6741 on: 13/02/2010 21:20:13 »
you know what else, we should take this whole forum and shop around a bit with publishers and see if we can get it officially published as a "journal" type med book, with some catchy title "Love that Poisons the Mind" or "Hidden from Medicine: The Struggle for Rare Conditions to be Recognized"

ill be honest, i just dont have the motivation anymore to send emails or copies or do this kind of work. My POIS has led me to a majority of my adulthood spent in self-destructive behavior that has caused great suffering for me and sometimes others, like an incurable madness that no one believes exists. i doubt by my own actions that i will even live to see 40 (currently in my early 30's) just from the amount of damage i've already done. i dont know how severe some of your POISes are, i just know that mine is like having my brain, my personality, my everything that makes me human raped without my permission, and i have been unable to deal with it most of my life.

my faith in the intelligence of mankind is little comforted by the fact this kind of condition, which i am sure has existed for the time that man has walked the earth, has still remained undocumented and recognized by the medical community. like people with epilepsy, against your will you are struck down with a debilitating mental condition without notice, that can threaten every portion of your life, from relationships to your job. and here we are, congregated in a forum, the ONLY and i mean ONLY place on this entire freaking planet, where we can group together and trying to find an answer.
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6742 on: 13/02/2010 21:50:51 »
Defsync, you've expressed the POIS-condition very eloquently--hang in there, even though it isn't easy!

I also think you've brought up an important point, by comparing POIS to epilepsy.  I don't think I've seen that comparison on the forum previously.  It could be a very helpful comparison for describing our situation to others: i.e. some days we might be fine and great, and then--BOOM!--suddenly we're completely debilitated.

The suddenness and periodic nature of POIS is important, because, although in some ways our symptoms can be similar to those of Chronic Fatigue Syndrome, our symptoms are not 'chronic' in the same sense--they come on suddenly, in response to a specific trigger.

Are there other ailments, in addition to epilepsy, that also fit this description?



i dont know how severe some of your POISes are, i just know that mine is like having my brain, my personality, my everything that makes me human raped without my permission, and i have been unable to deal with it most of my life.

my faith in the intelligence of mankind is little comforted by the fact this kind of condition, which i am sure has existed for the time that man has walked the earth, has still remained undocumented and recognized by the medical community. like people with epilepsy, against your will you are struck down with a debilitating mental condition without notice, that can threaten every portion of your life, from relationships to your job. and here we are, congregated in a forum, the ONLY and i mean ONLY place on this entire freaking planet, where we can group together and trying to find an answer.

 

Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6743 on: 14/02/2010 00:01:28 »
I had for years the same reaction to anyone touching the back of my head after I had fallen from quite high and split my head open to get 10 stitches at age 7.... it took years to let any touch back there and even today it give me an odd feeling when someone does, but its not that bad :-)

My UT was dealt with at a few days old....

PS.

Yep me too, testicle was stuck in the up position at birth, was lowered.... somehow.....

Maybe this is just a common occurance for males? We need to look at the #'s....

PS.



How old were you?
I was 6 which was quite old (discovered late).
Old enough to recall the raw pain this procedure gives you.
If you were younger then the this fear could be more imbedded????

'common' no, i think its 1 in 100 - maybe wrong.

I definitely blocked out this pain growing up- I couldnt even touch the scarring or testicle without wincing (on scrotum - didnt even know until I was 27 that is what it was!!!)
but thought feeling uneasy touching that area was normal.
My POIS was 100% definitely caused by this fear.
I started to release this fear. - touching the problem area (left testicle & scrotum)
without trying to flinch would leave me shaking and a pool of sweat.
It would feel cold to touch, I would lock my neck.
But I slowly got over it - NO muscle rigidity now when touching my testicle!!
There should be no pain or fear of pain around the testicle area for anyone.


Id be really interested if people do or dont relate to this, either way.
[/quote]
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6744 on: 14/02/2010 01:38:46 »
but its not that bad :-)

What i noticed it doesnt need to be 'that' bad to still cause POIS, which is why i needed so much body therapy to release this 'uneasy' feeling/fear, (it will change your life beyond words when you do trust me).

interestingly, when my posture and muscles was analysied she said, "you seem tighten the muscles in the middle of the back of your head always before you move, like a button" was how she described it.

I think psychologically i linked that region of my head with the tightness in my groin, hard to explain over a forum post really without me writing for pages and pages on the subject. but basically as i tightened my groin area muscles too much (for every movement i was doing), the muscles in the middle of the back of head would tighten too much at the same time to conpensate for the balance.

Pois-Sufferer, where on your head exactly is it? do you think this uneasy feeling is more psychological or physical? or both? I mean do you feel uneasy at the THOUGHT of touching it? or AFTER you actually touch it?
Can you notice any fearful type muscular tightening at the THOUGHT of touching the scar or area?  it maybe very slight but it is important.
« Last Edit: 14/02/2010 23:28:47 by daveyboy »
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6745 on: 14/02/2010 16:24:56 »
Could somebody who does have access to the full article post about what the man's specific symptoms were?  Was it just 'benign coital headache' or were there also other symptoms common to those of us on the POIS forum?

Quote
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short
 

Offline Green

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6746 on: 14/02/2010 20:26:10 »
I'd thought I'd give a quick update on my POIS situation.

I have recently been experimenting with supplements, and changing my diet to support a healthier living, and I'm reporting back with great changes to my situation, outside of pois.

Today is day 21 and I feel euphoric the total opposite of I look and feel when I am in POIS, it has been 21 days of no stimulation, no viewing of any explicit, no wasting time on the internet, endlessly trying to research POIS and getting nowhere fast, and balancing this with being far more social and liberating my thoughts away from POIS.

The supplements I am currently taking are; (in true food form) Zinc, Magnesium, garlic extracts, a very potent multi vitamin, DHA fish oil, Rhodiola herb extracts, L-tyrosine and Glutamine.

Current medication I am on is esomeprazole 40mg

Normally when I abstain for long periods of time after the month mark I immediately hit a brick wall in terms of any real progression of health, both physically and mentally and I do not normally supplement.

All I can comment how I am feeling outsite of POIS, which even after extensive bouts have only yielded satisfactory results, where I still mostly feel absent minded and groggy, this is a gigantic step for me after almost 8 years of constant hell.
 

Offline thisisme

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6747 on: 14/02/2010 21:31:23 »
The symptoms described in the article are very similar to those described by others in this forum: the patient's attack started approx. 20 minutes after orgasm and lasted for 3 days. Symptoms described included headache (brain fog?), lethargy, impaired thinking, difficulty concentrating, tension, irritability, social avoidance and so on, all of which stopped after 3 days. The article emphasises the headache as a central component, I guess because there is an existing literature on coital headache to relate this patient's syndrome to.

I believe that this article, and especially the discovery of a cure in progesterone, raises a real hope for sufferers here. The fact that his syndrome completely disappeared only during his partner's pregnancies and was subsequently linked to her progesterone output is quite amazing. He had presumably absorbed it in some way and this stopped the cascade of deleterious physiological and central nervous system events that occurred and lasted for several days following orgasm.

I have read most of the forum posts now and I have not stumbled across any posts that discuss the possibility of progesterone playing a role, so this seems to be an unexplored area in this forum. 

Could somebody who does have access to the full article post about what the man's specific symptoms were?  Was it just 'benign coital headache' or were there also other symptoms common to those of us on the POIS forum?

Quote
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

newbielink:http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short [nonactive]
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6748 on: 15/02/2010 01:57:04 »
Yes, those symptoms do sound very similar to POIS!  And I think you're right that the article might focus on the 'headache' element because that is something that people already know about.  I suppose the author of the article hadn't seen Marcel Waldinger's article, since if he had, you'd think he'd have drawn the link to POIS.

I wonder if it would be possible to get in touch with Dr. Dexter--he might be quite interested in this forum himself, given his experience with the one patient.

The symptoms described in the article are very similar to those described by others in this forum: the patient's attack started approx. 20 minutes after orgasm and lasted for 3 days. Symptoms described included headache (brain fog?), lethargy, impaired thinking, difficulty concentrating, tension, irritability, social avoidance and so on, all of which stopped after 3 days. The article emphasises the headache as a central component, I guess because there is an existing literature on coital headache to relate this patient's syndrome to.

I believe that this article, and especially the discovery of a cure in progesterone, raises a real hope for sufferers here. The fact that his syndrome completely disappeared only during his partner's pregnancies and was subsequently linked to her progesterone output is quite amazing. He had presumably absorbed it in some way and this stopped the cascade of deleterious physiological and central nervous system events that occurred and lasted for several days following orgasm.

I have read most of the forum posts now and I have not stumbled across any posts that discuss the possibility of progesterone playing a role, so this seems to be an unexplored area in this forum. 

Could somebody who does have access to the full article post about what the man's specific symptoms were?  Was it just 'benign coital headache' or were there also other symptoms common to those of us on the POIS forum?

Quote
Here is the link to the article:

Dexter, S (2010), Benign coital headache relieved by partnerís pregnancies with implications for future treatment, British medical Journal Case Reports 2010; doi:10.1136/bcr.10.2009.2359

http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6749 on: 15/02/2010 02:00:29 »
Also, the article's summary (viewable without a subscription) points to the fact that this case is different from most cases of typical 'benign coital headache'--in this case, the patient is described as suffering from "severe benign coital headache and associated symptoms".  The "associated symptoms" part is already a clue.  But, in addition, "severe benign" sounds like something of an oxymoron--so this could indicate that it is a different thing entirely, i.e. POIS!
« Last Edit: 15/02/2010 02:02:30 by Guthrie »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6749 on: 15/02/2010 02:00:29 »

 

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