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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6436825 times)

Offline mister_z

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6925 on: 04/03/2010 17:20:42 »
John, I can confirm to sugar free diet reduce my Pois symptoms and duration and less flu-like symptoms ("fever"), much less hypoglycemic episodes out of Pois (stress is the 2nd factor), and huge intestine improvement in-Pois and out-of- Pois (no more diarheas).
Could it be candidiasis?
 

Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6926 on: 04/03/2010 18:21:31 »
Mister z
I tried claritin liquid, during pois but did not help.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6927 on: 04/03/2010 19:32:47 »
daveyboy,
What were your symptoms of POIS?
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6928 on: 04/03/2010 20:12:04 »
after an orgasm for me meant worse back ache, shoulder ache/hand, hot wrists and finger tips, blocked nose, cold nose, ichy eyes, sweaty type skin, ichy back, painful toes, severe red tip on tongue, depression, ED. lasted probably around 6-7 days, 2nd day generally worse but many times Id get a migraine on 3rd day requiring 24hrs to recover from. Although I had the signs of it in my teenage years (in denial for years) it grew into a real problem from the ages of 20-28.
oo forgot to mention the foul smelling excess wind, 'loose' bowels(diahorrea), constant passing of urination, bubble-like swelling of thyroid (upper right side).



« Last Edit: 04/03/2010 20:34:12 by daveyboy »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6929 on: 04/03/2010 22:33:50 »

emanmern, welcome to the POIS thread of The Naked Science Forum!





I have POIS it usually lasts for 24 hours after sex


missr, POIS usually lasts 3-4 days+, so you might want to start with the NY Times article below.


Here are some POIS resources which may be helpful to you:

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for 3 years, which has attracted over 150 POIS sufferers worldwide who have posted here, plus well over 500,000 page visits. Not bad for a rare malady!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6930 on: 04/03/2010 22:36:33 »

emanmern, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: 3 years' worth of posts (over 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6931 on: 04/03/2010 22:42:06 »


I dont suffer from POIS anymore


Then why are you here?


lol, charming.

Its obviously a subject close to my heart. I find it compelling reading about people with the same issues as me & my life.


daveyboy, I apologize. That was a poor choice of words in my question to you. I've been asked the same thing. And my reply and sentiments are very close to yours! (note to self: never reply while in a hurry!)

I deleted my original question. Feel free to do so on your replies as well. Up to you.
« Last Edit: 04/03/2010 22:55:55 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6932 on: 04/03/2010 22:46:25 »

Demo : I keep the chat open, but sometimes away from keyboard :)


Me, too : - )

I'll be at the chat room now, it's 2:45 PM Pacific Standard Time, USA...if anyone wants to stop in and say hello!

C'mon over! (Or try it with another member(s) anytime)
http://forums.delphiforums.com/POIS/chat

I paid for a 3-month trial. If there's very little use, I'll shut it down after that.
« Last Edit: 04/03/2010 22:49:25 by demografx »
 

Offline prism

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6933 on: 04/03/2010 23:51:02 »
daveyboy, I apologize.

no worries forget it,

Going back to this trauma/operations issue, Ive just finished watching this amazing documentary on Sky TV about this 7 year old girl whos literally never eaten or drunk anything in her life. Shes been fed through a tube which is fitted to her stomach. When she was born needed an operation on her stomach and was fitted instantly with the tube. Her parents tried everything to get her to eat but she refused.
Experts in UK had no answer for why this was. They couldnt tell if it was psychological or physical.
The documentary revolved her going to the top specialists in Austria which deal with children that dont eat. They said, at 7,  she was the oldest they had ever had, normally 2/3 year olds etc. They did lots of tests and xrays and they realised it was purely psychological. The main tactic to get her eat really revolved around monitoring her whilst they starved her until she gave in. But the trauma/fear was so deep rooted she never did, she did by the end start to drink though and at least taste the food. The gave her special drinks to give her the nutritents needed. So kind of a happy ending.
During the show they had a 'Cranial Sacral therapist' work on her. The voice-over for documentary explained how by putting pressure on her body in the right spots made old memorys become remembered even as deep rooted as from an operation on the first day of her life. and she started crying heavily as the therapist said she would.
The specialists talked about the toll it was playing on her physically- bad posture,  jaw protuding, grinding teeth, red raw tongue, poor social skills, poor sense of cold and hot etc.
They said it will make things hard later in life and her health will suffer.

All this from the fear caused from an operation on the first day of her life.
(She had healed physically).

Now the reason Im writing this is because Ive talked about how I believe (really 'I know') my POIS was caused by the 'fear of pain' from an operation to have an undescended testicle lowered at the age of 6.

Some people with POIS have said they had this procedure done but in the first few days of their life.
I questioned to myself whether something so early could cause POIS.
Its my opinion that after seeing this programme an operation to have an undescended testicle lowered at any age can cause POIS later in life.
 
 
 
« Last Edit: 05/03/2010 00:23:28 by daveyboy »
 

Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6934 on: 05/03/2010 03:33:58 »
In absolute seriousness, I think there may be some promise in consuming all of one's ejaculate.

You definitely hit the spot with that statement, lol.  I think that's one experiment that I'll pass on and maybe let you try it first.  Tell me how it goes.  I'm not doubting that statement, please don't criticize me I actually want to know the outcome and think that the experiment is reasonable if you believe the nutrient loss- semen thing.

Anyways, update on my POIS is that I haven't ejaculated in about 4 weeks, I am waiting for the big daddy to come during the night time.  I haven't ejaculated in such a long time that I can feel no more brain fog.  I'm hoping that this fog doesn't come back after NE.

I'm also exercising vigorously, I try to run a 5K 3 times a week on a treadmill.  It's weird how I feel afterwards though, not bad, not good, just in lingo, like theirs nothing in my head.

I also am noticing that my symptoms are actually at its worst now during my sleep.  It is like i am depressed in my sleep now and normal (well... shaky) upon awakening which I thought was unusual.  I'm not sure anybody else is like this, but this is what my POIS currently evolved into... Well, time to go through another night of sleep, wish me luck.  [8]
« Last Edit: 05/03/2010 03:41:02 by goingcrazy »
 

Offline silverandcol

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6935 on: 05/03/2010 06:14:11 »
ya i also switched deodorant like emanmern, but i noticed nothing.  i seem kinda allergic to regular deodorant though, made me feel uncomfortable at times.  i use an all natural aluminum free deodorants now.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6936 on: 05/03/2010 07:20:47 »

Its my opinion that...an operation to have an undescended testicle lowered at any age can cause POIS later in life.
 

daveyboy, as I mentioned, I had this procedure done. If your theory is correct in my case, do you have any thought as to why testosterone patches work well for my POIS?
« Last Edit: 05/03/2010 07:25:40 by demografx »
 

Offline RhythmSpring

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6937 on: 05/03/2010 17:46:24 »


I dont suffer from POIS anymore


Then why are you here?

Are you SERIOUS, demographx??? We all know this forum will work best if there are people who have cured themselves, so they can help the ones who haven't yet.

Why are YOU here, demo?
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6938 on: 05/03/2010 23:24:08 »
I'd like to point out, since there is no test yet to determine POIS in a person, when someone says something about their POIS, they are saying something about a "condition" that they think may be "POIS", that may or may not be the same condition as what you have. Granted we may have a ton of posts by ppl here with similar symptoms, there still is no scientific proof or guarantee that what YOU have is what *I* have. And on top of that, what causes my severe cognitive deficit after orgasm, could still be different from what causes YOUR deficit.

Just like cancer is caused by many different things, ranging from genetics to environment toxins.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6939 on: 06/03/2010 00:20:42 »

Are you SERIOUS, demographx [sic]???.........................



in fairness, he appologised, just forget it.


Many thanks, daveyboy, and....RS: If you would have read my reply, I also explained that 1) I've been asked the same question and 2) that my sentiments of being here are the exact same as daveyboy's, and 3) that my choice of words was poor, due to a too hasty reply, which I need to monitor.

Thanks again to daveyboy for understanding that.

RS...in the future I would suggest reading more than just 1/2 or less of the complete dialogue before jumping the gun.

Thanks!  :)
« Last Edit: 06/03/2010 04:45:18 by demografx »
 

Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6940 on: 06/03/2010 00:34:04 »
RE: John21 and H pylori
John I might have missed some of your posts, but why are you focusing on 'H pylori' in particular?

I have made a comment in the past that I am sure a number of people here could very easily be suffering from a gut microbiology disorder given some of the comments I have read about improvement resulting from less carbs, less sugar, or taking garlic or probiotics.
I have suffered from IBS and food + chemical intolerances for years. The problems started around the same time pois symptoms first started. I used to suffer from bad stomach pains. I saw a gastro doc had  few tests and was told there was no problem (focus was on celiac disease. I then saw an enviro doc who picked up on Candida overgrowth and I was treated for that and that was a big factor in my being able to return to work.

I had a faecal microbiology test done a few years ago. It came back as having overgrowth problems with enterococcus + streptococcus + klebsiella. These bacteria effect fatty acids + intestinal permeability + cognitive function. My doctor while great in some respects, does not look outside pharmaceuticals when it comes to treatment. I had to go on laxatives for months and then a couple of antibiotic cycles. (no mention of diet or probiotics). I had a subsequent test and I still had overgrowth of the same bacteria just slightly lower readings. I then visited a naturopath and took some herbs which definitely helped and tried to stick to a special diet. My pois is not as bad, but its still there. I have not had a subsequent faecal test as they aren't cheap. I still have problems, though I don't always stick to my diet. When I take a herbal laxative (senna, liquorice, psyllium, etc) I feel much better cognitively for the next 5 days, which definitely helps to offset pois. Also these faecal tests don't focus on non bacterial parasites which could be a problem.

Intestinal problems will definitely aggravate pois symptoms, but I don't know if its a cause, because not everyone here seems to have gut problems
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6941 on: 06/03/2010 04:21:19 »

daveyboy, there is no doubt in my mind that there's a little bit of controversy here (with the exception of your opinion ;D), but one thing is fascinating (to me): the possibility that the correction of an undescended testis (again, just in my case, and in my opinion) could have created physiological damage that would 1) hamper the speed of sperm regeneration, and 2) lower the optimal quantity of testosterone. These 2 factors have long played a strong role in POIS development, in my case and in my opinion.

I know this wasn't your intent, and I hope you're not offended with my interpretation, but I thank you very much for bringing me to this possibility. It gives me another potential way to explain and make some sense out of my own POIS development. But I am not ruling out your complete theory at all.
« Last Edit: 06/03/2010 04:48:33 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6942 on: 06/03/2010 05:40:11 »

there is no test yet to determine POIS in a person


Just wait, Defsync! I bet that The POIS Overview Instrumentation System (ironically called POIS) will be ready for medical use by 2035!!!

                  
« Last Edit: 06/03/2010 05:51:44 by demografx »
 

Offline sick

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6943 on: 06/03/2010 08:23:13 »
I have been severally POISned for about 5 years now, I am 27 years old and have been following the forum since about a year trying to make sense of it all. and I have to agree with acronym last post about the gastric problem connection.
I was also diagnosed with IBS at exactly the same time I started suffering from POIS, and even after following the doctors advise I still suffer from stomach aches and I am always bloated and having diarrhea.
So I think its about time I check whats going on in there. 
 

Offline mister_z

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6944 on: 06/03/2010 16:05:01 »
Ok, so being definitely fed up of it I have directly emailed 2 neurology professors and 1 endocrinology professor, describing my case.
I am waiting for replies.

Any suggestions of what sort of specialists I could email as well?

One thing for sure cardiology doesn't think its their problem.

On a purely speculative basis, what effect do you think POIS would have on the immune system ?
 

Offline mister_z

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6945 on: 06/03/2010 16:12:23 »
RE: John21 and H pylori
John I might have missed some of your posts, but why are you focusing on 'H pylori' in particular?

I have made a comment in the past that I am sure a number of people here could very easily be suffering from a gut microbiology disorder given some of the comments I have read about improvement resulting from less carbs, less sugar, or taking garlic or probiotics.
I have suffered from IBS and food + chemical intolerances for years. The problems started around the same time pois symptoms first started. I used to suffer from bad stomach pains. I saw a gastro doc had  few tests and was told there was no problem (focus was on celiac disease. I then saw an enviro doc who picked up on Candida overgrowth and I was treated for that and that was a big factor in my being able to return to work.

I had a faecal microbiology test done a few years ago. It came back as having overgrowth problems with enterococcus + streptococcus + klebsiella. These bacteria effect fatty acids + intestinal permeability + cognitive function. My doctor while great in some respects, does not look outside pharmaceuticals when it comes to treatment. I had to go on laxatives for months and then a couple of antibiotic cycles. (no mention of diet or probiotics). I had a subsequent test and I still had overgrowth of the same bacteria just slightly lower readings. I then visited a naturopath and took some herbs which definitely helped and tried to stick to a special diet. My pois is not as bad, but its still there. I have not had a subsequent faecal test as they aren't cheap. I still have problems, though I don't always stick to my diet. When I take a herbal laxative (senna, liquorice, psyllium, etc) I feel much better cognitively for the next 5 days, which definitely helps to offset pois. Also these faecal tests don't focus on non bacterial parasites which could be a problem.

Intestinal problems will definitely aggravate pois symptoms, but I don't know if its a cause, because not everyone here seems to have gut problems
Now thats interesting...
I saw gastro too (for diarrhea and constipation cycles, lots of bloating), with biopsies taken from sigmoid. Nothing abnormal was revealed. However she gave me fiber supplements and antispasmodics.
Bloating still goes on (probiotics make it worse I think) and now it is mostly diarrhea.
I have been on antibiotics alot in the past (for sinusitis) but the POIS things started before this.
Fecal analysis revealed some overgrowth of Staph Aureus, not treated since apparently normal (funny because staph aureus also comes up in throat swabs when I have bouts of sinusitis) and a general "dense and diverse" flora...

 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6946 on: 06/03/2010 16:59:29 »

Acronym,
RE: John21 and H pylori
John I might have missed some of your posts, but why are you focusing on 'H pylori' in particular?

I have made a comment in the past that I am sure a number of people here could very easily be suffering from a gut microbiology disorder given some of the comments I have read about improvement resulting from less carbs, less sugar, or taking garlic or probiotics.
I have suffered from IBS and food + chemical intolerances for years. The problems started around the same time pois symptoms first started. I used to suffer from bad stomach pains. I saw a gastro doc had  few tests and was told there was no problem (focus was on celiac disease. I then saw an enviro doc who picked up on Candida overgrowth and I was treated for that and that was a big factor in my being able to return to work.

I had a faecal microbiology test done a few years ago. It came back as having overgrowth problems with enterococcus + streptococcus + klebsiella. These bacteria effect fatty acids + intestinal permeability + cognitive function. My doctor while great in some respects, does not look outside pharmaceuticals when it comes to treatment. I had to go on laxatives for months and then a couple of antibiotic cycles. (no mention of diet or probiotics). I had a subsequent test and I still had overgrowth of the same bacteria just slightly lower readings. I then visited a naturopath and took some herbs which definitely helped and tried to stick to a special diet. My pois is not as bad, but its still there. I have not had a subsequent faecal test as they aren't cheap. I still have problems, though I don't always stick to my diet. When I take a herbal laxative (senna, liquorice, psyllium, etc) I feel much better cognitively for the next 5 days, which definitely helps to offset pois. Also these faecal tests don't focus on non bacterial parasites which could be a problem.

Intestinal problems will definitely aggravate pois symptoms, but I don't know if its a cause, because not everyone here seems to have gut problems

I almost missed your question. I have recently changed my diet, whereby I eliminated bread and replaced it with salads. In doing so I have felt much better in general (non-POIS), and when I return to breads, cookies, popcorn etc I feel very tired. I am speculating that there might be an underlying problem that explains this discovery and my POIS problem. H pylori seems to fit in terms of what foods have helped me in the past, garlic, cranberries, spinach, in that these foods are included in recommended diets for people fighting H pylori. So I am wondering if something in the digestive tract is responsible, be it yeast or bacteria. H pylori is a place to start in terms of what supplements to try.
 

Offline mister_z

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6947 on: 06/03/2010 17:31:43 »
In light of this should I consider asking my gastro about it, again?

What would there be in the foods you mention that would make things worse?
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6948 on: 06/03/2010 19:11:36 »
In light of this should I consider asking my gastro about it, again?

What would there be in the foods you mention that would make things worse?

I don't know anything for certain, this is just an idea I am persuing. I don't know enough to give advice on it, other than experimenting in your diet with things that seem to have worked for others.
« Last Edit: 06/03/2010 19:19:16 by John21 »
 

Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6949 on: 06/03/2010 19:44:11 »
on February 15th, researchers discovered that higher levels of LH has been found to impair memory

http://insciences.org/article.php?article_id=8347

In a world first, researchers at the Western Australian Centre for Health and Ageing have discovered that a hormone controlling the release of testosterone is linked to poor memory in older men.

According to a study published in this month's issue of the Journal of Alzheimer's Disease, men with high levels of luteinising hormone (LH) had worse memory than those with lower levels.

I know LH has been mentioned on this board before. I wonder if those with POIS mental impairment symptoms either 1) have far elevated LH levels than normal after O or 2) are far more sensitive to otherwise normal levels of LH
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #6949 on: 06/03/2010 19:44:11 »

 

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