The Naked Scientists

The Naked Scientists Forum

Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6449782 times)

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7325 on: 14/04/2010 18:08:23 »
I have doing some searching on possible people who can help forward reasearch on pois, i found couple.  I say since it seems like we are coming to the end of wits with these problem because we don't have the means to do some serious reasearch, we should decide as a group a date when we are going to work together to look for more help.

American Federation for Medical Research
Research!America
American Society for Clinical Investigation (ASCI

Association for Patient-Oriented Research (APOR) - they seem interesting so i am to going to contact them first.

Central Society for Clinical Research (CSCR)
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7326 on: 14/04/2010 19:06:10 »

Because we have an ailment which is caused by an unatural balance, perhaps it's a little like Demo says, that he finds it is better to be on the high side with his testosterone.


daveman, funny coincidence you said that! I woke up this morning feeling much better than average. Then I noticed a little later that I accidentally had left on my skin SEVEN patches, instead of the normal THREE! ;D

But I won't push it further!:)
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7327 on: 14/04/2010 19:08:57 »


I have doing some searching on possible people who can help forward reasearch on pois, i found couple.  I say since it seems like we are coming to the end of wits with these problem because we don't have the means to do some serious reasearch, we should decide as a group a date when we are going to work together to look for more help.

American Federation for Medical Research

American Society for Clinical Investigation (ASCI)

Association for Patient-Oriented Research (APOR) - they seem interesting so i am to going to contact them first.

Central Society for Clinical Research (CSCR)


THANK YOU, CC! This is terrific! If you happen to have any email/contact info, that would be great. Otherwise, I'll look them up for Martin88's database!
« Last Edit: 14/04/2010 19:30:40 by demografx »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7328 on: 14/04/2010 19:11:37 »

...they seem interesting so i am to going to contact them first.


I just re-read and noticed this, feel free to use/modify our letter to NORD and other researchers. If you don't know where to find it, lemme know and I'll PM it to ya. THANKS AGAIN, CC!!
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7329 on: 14/04/2010 19:28:12 »
Does this also qualify for Scientific Experimentation? (I hope ;D) Whoops, my doctors told me to cut that out!! Dang!!  >:(



         
 

Offline Dave23

  • Jr. Member
  • **
  • Posts: 36
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7330 on: 14/04/2010 22:56:15 »
Hi everyone,

I've been following this forum for a long time. I'm 25 and also suffer from POIS. Following ejaculation my mind goes blank for several days, I become badly fatigued, my body feels like it's completely drained of all nervous energy. I turn into a zombie and it usually takes me 7-8 days to recover. 

I suspect this was caused by excessive masturbation starting at 13 and done excessively for 10 years. Looking back, I probably started to develop POIS around 14 or 15, I started losing my mental concentration around this time and I went from being active and extroverted to becoming anxious, nervous, and absentminded all the time. I also ate lots of junk and processed food, spent most of my time sitting and studying, exercised very little and never slept regularly. Also sat in front of the computer studying for long hours.

I have generally stopped ejaculating for two years now in order to heal my body but have seen very little improvement. I've also improved my diet and avoid eating anything unhealthy. Right now I'm taking royal jelly powder and olive leaf extract to treat my condition but haven't seen any effects so far.

These days, even when I don't have full blown POIS, I'm still constantly fatigued, especially in the mornings, with daily brain fog, stiff joints, low energy/drive, and a slow mind. When I try to exercise I get fatigued very quickly.

Other problems that I have include indigestion/low appetite, constant thirst/urination, chest pains, weakened heart function, hair loss, and other problems. I don't know if they could be related to some thyroid or adrenal disorder that causes POIS.

I took some blood tests last year and discovered I had low total testosterone, 407 ng/dl on a scale of 400-1080 ng/dl. Results from two later tests were even lower, 9.056 nmol/L and 9.682 nmol/L (on a scale of 6.07-27.1 nmol/L). Doctors said these levels were all "within normal range" but they look very low to me. Also low were SHBG (19 nmol/L scale 11-80 nmol/L), E2 (68.00 pmol/L scale 73.40-275.25 pmol/L), and my white blood cell count (4.5 x10^3/uL on a scale of 4.8-10.0 x10^3/uL). Prolactin was high (261.59 mIU/L scale 55.97-278.36 mIU/L). TSH was 2.5 uIU/ML (scale 0.35-6.00 uIU/ML) and later 1.780 uIU/ML (scale 0.27-4.2 uIU/ML).

This condition has been debilitating, I've wasted a good part of my life because of it, but I'm hoping I can find some answers to cure it. I hope a solution eventually comes to us.

Hey Robb,

After seeing your hormone results I couldnt help but chime in.

I too started suffering from POIS from a young age
which would last a week or more and also started waxing the carrot excessively at 12 mixed with overtraining over partying boozing certain drugs with little sleep did me in.

I managed to get rid of POIS for a period of time with help of a hormone specialist+homeopathic doctor but once healed made  silly mistakes of overtraining  and then some POIS started to come back but also more chronic fatigue especially in the mornings.

Found out later from saliva cortisol tests I had adrenal fatigue from very low cortisol levels.Was also around this time I had my thyroid checked and it was in the lower range so Doc started me on some Armour for thryoid and Cortef for adrenals.

Now onto your blood tests .. your testicles are producing
hardly any testosterone and your level is dangerous LOW for your age which would explain your symptoms.

 A good doctor will found it if its your HPTA(HypoThalamus) by testing LH+FSH to see if your primary or secondary or if its through estrgen, prolactin, dietary+lifestyle habits.

I had the same except my reading was in the 300's just slightly lower than yours not much difference as healthy folks in their early 20s should be producing very high levels of testosterone at least 700 and usually at the very top of the range NOT the bottom.

I had my total testosterone levels tested at age 17 and it was through the roof higher than the top range.

Anyways you should try get a consultation with a hormone specialist to see if they can

A. Try restart your natural testosterone production through many directions.

I'll list a few that Doc had me try before going on testosterone
injections in early 20s since naturally I couldnt produce any more than a total level of 550 scale 400-1200 and still felt the same symptoms POIS inc.

1. Clomid : Boosts LH+FSH signals to produce more Test+Sperm
2. Hcg : Boosts LH to produce more TEST only
3. Arimidex : Lowers estradiol/estrogen if high which in turn
increases total test numbers
4. Cabergoline/Dostinex: Reduce prolactin levels if high which in turn increases total testosterone
5. Check SHBG level (Yours is very low, low SHBG levels could be
early signs of Insulin Resistance/Diabetics
6.Check Adrenal producing hormones Cortisol,Dhea, Pregnenolone .. this is what triggers general/social anxiety and ability to handle stress.
7.Check Thyroid Free T3 Free T4 Total T3 Total T4 as well as TSH
Your TSH is over 2 at 2.5 meaning your thyroid is working overtime basically trying to increase the T3 and T4 levels but we do not know as you havent tested them .. i would test these ASAP as you may be HypoThyroid!

Ive did all those above and tweaking diets going out laying in Sun for 45mins a day getting heavy metal and vitamin+mineral tests done to make sure I could not restart natural production of testosterone before going on TRT.

Your doctor saying the levels are normal is very wrong and not paying enough attention to your health and symptoms. I had to go through 5 different doctors + 2 top rated Endocrinologists which were supposely hormone specialists but in time found out Endos were more Diabete experts.

If you cant find a good enough hormone specialist near you which i had the same problem with then try Dr John Crisler his forum is here http://www.musclechatroom.com/forum/forumdisplay.php?s=&daysprune=&f=2 [nofollow]

Hes the main guy in the whole US for testosterone restarting or replacement. You can do phone consultation and you do the blood tests over here and send results to him and he recommends a protocol for you if needed. I know a ton of guys all over the world doing it this way and finally starting to feel a whole better plus you can post your results there and see what others advise on who are on the similar boat as you :)

So basically you have just from a small blood test :

Low Testoterone
Low Estradiol(E2)
Low Shbg(This can be raised with more fibre or if Thyroid is low then Thyroid meds)
High Prolactin

Low E2 usually means you have low adrenal hormones such as Dhea, Pregnenolone etc responsible for anxiety if you experience any. Low E2 can produces sore joints, bones, back etc muscles as well. Low E2 can affect erection quality.

Low testosterone I think we know what this can cause .. affects just about everything from drive, libido, general energy, focus, strength , brain fog etcetc

High prolactin lowers dopamine which affects concentration, mood, focus, level of wellbeing, long refractory period after ejaculation, sex drive/libido.

How do I know all this I experienced all of this, lived through all the suffering, pain depression whatever call it for years.. and I was one of the first to post on this forum from PAGE 4 onwards and also one of first to cure POIS once and for all.


 

Offline John21

  • Hero Member
  • *****
  • Posts: 518
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7331 on: 14/04/2010 23:07:58 »
John, since you said garlic can kill bacteria (H pylori) I'm wondering if it can kill good bacterias as well.. I think it's good to take some breaks for all foods.

Martin, I don't think that garlic can harm good bacteria. My understanding is that good and bad bacteria are quite different physically (different families), and therefore it is conceivable that something can harm the bad kind, and not harm the good ones.

I once wondered H Pylori was maybe responsible for POIS, but now I am in doubt of that. Now I am adrift without a theory, but I feel like something in my diet is helping me. I am suspecting the bilberry supplement, or maybe even the daily sweet potatoes. Time will tell.
 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7332 on: 15/04/2010 04:50:13 »
I "O'd" twice yesterday.  Usually I can't fall asleep after sex because I feel like my mind is racing and everything.  I fell asleep fine last night.
 The only symptoms I did feel today was a headache where the POIS feeling should be.  That's it.  No anxiety, no feeling like I'm losing my mind - no going to die feeling. 

Just a plain old headache in the back of my head.

Usually in POIS today would be accompanied by terrible mood, irritability, just want to lay down all day...but no

I also am on zinc and ester c also and sometimes do supplement with acidophilus whenever I get the chance

A couple of nights ago I went bowling and when I usually experience social anxiety in this POIS long-term mood, it was totally gone and I felt like myself.

But I do hear you I will update for a few months on this whole strawberry thing I don't want to have it end up like the cranberries did.
 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7333 on: 15/04/2010 04:52:28 »
After reading GC post, I make some search about strawberries.
It seems strawberries are the richest in polyphenols, except some exotic fruit. (polyphenols is a particular form of antioxydant).
But the amount of polyphenols is not significative (I eat a lot of apple without effect on pois...).

A study showed the protective effects of strawberries and blueberries on brain rats after radiation exposure.

The protective effect is confirmed on different brain aeras.
"Strawberries may primarily affect the hippocampus"
http://jn.nutrition.org/cgi/content/abstract/139/9/1813S
or a ..pdf
There is a interesting argument on inflammation.
We don't care about radiations but strawberries may have anti-aging proprieties. It was just to see if there are some active enzymes in strawberries.

--
Goingcrazy, you should continue the epxerience at least 3 or 4 months and give the evolution of symptoms. It's very important for us to have a clear list of symptoms improvement.
GC test :Strawberries => 4 lbs (=1.9kg) of organic strawberries ?
- improvement on anxiety (GC usually have anxiety starting 10 min after )
- depresion ?
- brain fog
- brain pain = hedaches ?

Yes, the brain fog is gone the past few days (physical fog feeling in front of head)  .  Just the headache now. 

Big boost of confidence also

HOPEFULLY NO PLACEBO AFFECT
« Last Edit: 15/04/2010 04:55:15 by goingcrazy »
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7334 on: 15/04/2010 05:51:43 »

[to robb23]
...Your doctor saying the levels are normal is very wrong and not paying enough attention to your health and symptoms... I had to go through 5 different doctors + 2 top rated Endocrinologists which were supposely hormone specialists but in time found out Endos were more Diabete experts.

If you cant find a good enough hormone specialist near you which i had the same problem with then try Dr John Crisler his forum is here http://www.musclechatroom.com/forum/forumdisplay.php?s=&daysprune=&f=2

Hes the main guy in the whole US for testosterone restarting or replacement. You can do phone consultation


Not sure if doc is "wrong", but he's probably conservative. And when POIS is in the picture I agree it's "wrong" from personal experience but if robb's doc is open (to POIS) vs. rigid - to me that's key. It might be worth trying to keep the relationship. I've stated repeatedly here that we, as POIS sufferers with a malady that's not yet fully researched, need to take charge with docs.

I have gotten great POIS treatment results and understanding with my top-rated endo. Yes, his division at a major university medical center is diabetes-oriented, but the key here is, again, that he's open to POIS (most docs, as we all know, are not).

I know bodybuilders often use alternate medicine, but I would be very concerned with telephone consults. The focus on the patient is missing, in my opinion. It smacks of "factory treatment". And POIS is not a run-of-the-mill malady.

Originally I, and many others here, were convinced that hormones and neurotransmitters were the Holy Grail Of POIS. I'm not so sure anymore. TRT is a big part of my cure, but so are low-dose stimulants. And I know the latter gets the "adrenal fatigue" crowd riled. Which is understandable. But it works for me. And I don't recommend it to others, especially if they're having success exploring different avenues, e.g., bilberry extract, which is what this forum is all about.

My prolactin was sky-high. My endo did a pituitary MRI, found nothing and moved on. I decided not to follow any "traditional" formula, bodybuiilders' or otherwise, and instead found a simple straightforward answer in....wikipedia, of all places. My sky-high prolactin was caused by Reglan, a nausea medication. I had my endo's blessing, and I went from a count of 90 to 9 (normal!).

The idea of neurotransmitters is great, but the tests don't seem all that reliable.

Anyway, until we have a clearer understanding of POIS, I'm all for a provable methodology that doesn't necessarily involve hormones and neurotransmitters. But hormone bloodtesting was critical in my case. Other POIS sufferers have done so and have not found the same, which means the answer(s) lie elsewhere.

Thank much, Dave, for coming back to report!
« Last Edit: 15/04/2010 06:14:50 by demografx »
 

Offline martin88

  • Sr. Member
  • ****
  • Posts: 453
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7335 on: 15/04/2010 14:04:54 »
I talked about gluten few weeks ago. Gluten is not the cause of my digestive problems at night because it occurs after eating oats without wheat or gluten (written on the box). Also a small quantity of wheat doesn't cause the problem. That said I'm not against the fact I can have gluten sensitivity causing other problems.

I'm very intolerant (I feel depressed, OCD, fatigue) to refined cereals which contain a lot less thiamine (and others) than unrefined. Sometimes when I want to avoid NEs I eat refined cereals and it works, with side effects.
What happens with boxed breakfast type cereals? Those have tons of additives, including the good, thiamine and the bad, sugars, preservatives etc. Do you avoid those cereals? Also, how do vitamin complexes and or combinations work for you? For instance could you not eat regular refined cereals and take vitamin supplements to boost the lack?
Daveman, what helps me the best is to avoid refined foods (except during sexual abstinence sometimes). I don't eat these boxed cereals, usually I don't eat sugar or additives. But yes I have improvement for mood with thiamine supplements. I think basically pills can't replace real food. Besides good things, supplements always have side effects on me. For example I have more energy with multivitamins (doesn't work for the first 4 days after orgasm) but I know I can't take them before stressful events to avoid tremors. Or I can have initially better nerves on B-complex but also loss of libido and insomnia.
One thing I verified many times, after eating regularly (for months) 50% unrefined grains, sexual frequency is decreased and I keep more energy.  Then if after orgasm I switch to 100% unrefined my POIS will be mild.
The same experience but taking 100% unrefined before orgasm for a few days, orgasm will be good but POIS will be really devastating, and very long to recover from (1 to 2 months).
 

Offline Dave23

  • Jr. Member
  • **
  • Posts: 36
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7336 on: 15/04/2010 14:13:42 »

[to robb23]
...Your doctor saying the levels are normal is very wrong and not paying enough attention to your health and symptoms... I had to go through 5 different doctors + 2 top rated Endocrinologists which were supposely hormone specialists but in time found out Endos were more Diabete experts.

If you cant find a good enough hormone specialist near you which i had the same problem with then try Dr John Crisler his forum is here http://www.musclechatroom.com/forum/forumdisplay.php?s=&daysprune=&f=2 [nofollow]

Hes the main guy in the whole US for testosterone restarting or replacement. You can do phone consultation


Not sure if doc is "wrong", but he's probably conservative. And when POIS is in the picture I agree it's "wrong" from personal experience but if robb's doc is open (to POIS) vs. rigid - to me that's key. It might be worth trying to keep the relationship. I've stated repeatedly here that we, as POIS sufferers with a malady that's not yet fully researched, need to take charge with docs.

I have gotten great POIS treatment results and understanding with my top-rated endo. Yes, his division at a major university medical center is diabetes-oriented, but the key here is, again, that he's open to POIS (most docs, as we all know, are not).

I know bodybuilders often use alternate medicine, but I would be very concerned with telephone consults. The focus on the patient is missing, in my opinion. It smacks of "factory treatment". And POIS is not a run-of-the-mill malady.

Originally I, and many others here, were convinced that hormones and neurotransmitters were the Holy Grail Of POIS. I'm not so sure anymore. TRT is a big part of my cure, but so are low-dose stimulants. And I know the latter gets the "adrenal fatigue" crowd riled. Which is understandable. But it works for me. And I don't recommend it to others, especially if they're having success exploring different avenues, e.g., bilberry extract, which is what this forum is all about.

My prolactin was sky-high. My endo did a pituitary MRI, found nothing and moved on. I decided not to follow any "traditional" formula, bodybuiilders' or otherwise, and instead found a simple straightforward answer in....wikipedia, of all places. My sky-high prolactin was caused by Reglan, a nausea medication. I had my endo's blessing, and I went from a count of 90 to 9 (normal!).

The idea of neurotransmitters is great, but the tests don't seem all that reliable.

Anyway, until we have a clearer understanding of POIS, I'm all for a provable methodology that doesn't necessarily involve hormones and neurotransmitters. But hormone bloodtesting was critical in my case. Other POIS sufferers have done so and have not found the same, which means the answer(s) lie elsewhere.

Thank much, Dave, for coming back to report!

Hey demo,

Np anytime thought I would give this forum a browse after just that short period away;)

I remember sharing Pms with you back in 2007 and you started TRT back then
and Im very happy to have read your POIS is just about cured! Thats great success and hope for the rest.

Are you still on the Levitra ?

Definitely agree that we have got to take charge with our docs .. i mean a level of 400ish on a scale of 400-1050 for a 25yr old is proof theres something causing his testosterone to be this low and yet the Doc hasnt bothered to test or find the cause of this .. I shared this fustration with my docs who wouldnt bother checking other pathways or the cause.

If your "kinda" lucky the doc might use the band aid method meaning stick you on TRT without even trying to find out if your primary or secondary and also without  trying to restart you naturally through diet/lifestyle maybe bit of help from clomid/hcg or lowering E2 if E2 is high.

Exactly thats the whole thing we dont know what exactly helps/cures POIS
but we know that its best to have hormones/amino acid/vitamin/minerals checked before going on trt/drugs/vitamins to know the baseline level and incase of furthur stress to the body due to already high levels present causing chain reaction.

Thats awesome your prolactin level went from 90-9. I had high levels ar one point but not that high! With TRT as a dopamine agonist that helps to lower prolactin gradually and consistently as well.

Your right, neurotransmitter urine tests have not been proven to be accurate BUT you can do urine amino acid tests which are precursors to neurotransmitters eg

Non existant Serotonin, Dopamine and gaba levels from
my Neuro urine test

From the amino acids urine test L tryptophan, Tyrosine and Glutamine
were all extremely low. It makes sense as

L tryptophan makes Serotonin
Tyrosine makes Dopamine
Glutamine makes Gaba
« Last Edit: 16/04/2010 20:13:12 by demografx »
 

Offline Dave23

  • Jr. Member
  • **
  • Posts: 36
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7337 on: 15/04/2010 14:19:23 »
So it seems hormone bloodtesting was critical in your case and mine
and also many others on different forums but not everyone ...
havent had the time to go over this massive thread!

For the ones that did hormone testing and didnt find anything
unusual ... what tests were done and what levels were produced?


Did they do a full panel of hormone testing inc

Total Testosterone
Free Testosterone/Bioavailable testosterone
SHBG
Estradiol
DHT
Dhea-s
Cortisol x4 saliva
IGF-1/HGH
Pregnenolone
Progesterone
Prolactin
Thyroid inc Free T3+Free T4 Total T3+T4 TSH & Reverse T3 for wilsons syndrome
Insulin
Fasting glucose
Vit D

Also how about Urine hormone 24/hr panel from Rheins to see how one is metabolizing their hormones?

One could have mid range hormone blood levels but have high urine levels which means their metabolizing too fast and using it up too quickly leaving them spent.

Also how about a Vitamin & Mineral test? This is important if your
adding in any of the above supplements as you dont want to add something to the body that their is already high levels present which would cause even more problems.

Just one eg taking Zinc when levels are already high which can be checked through hair/urine test
depletes Copper leading to fatigue, paleness, skin sores, edema, slowed growth, hair loss, anorexia,
diarrhea etc

Also an Amino acid urine test ... most of these can be done at home, just take the sample and send back and results back in 1-2 weeks.

Alot of people complain of brain fog which high prolactin can cuase or low dopamine
goes hand in hand as well as low testosterone but check both TOTAL and FREE/BIO
as you can have normal total testostorone numbers but low FREE/BIO due to shbg hogging it up,

Others complain of fatigue and anxiety .. check adrenal hormones as well as amino acid for Glutamine responsible for GABA production and tryptophan responsible for serotonin production.

Hot and cold shivers up spine after ejaculation? Check ALL Thyroid plus Iodine VERY
important so Thyroid can be used properly. Also check adrenal hormones.

Suffer from fatigue after orgasm? Check first Testosterone, thyroid adrenals.

All i know is that from my experience and many others overmasturbation/sex, mixed
with intense training, boozing, drugs, partying, not enough sleep, mixed with junk food diets
not enough nutrition for years on end will deplete hormones, amino acids, vitamin+mineral etc

Get these all checked and if ALL your levels are healthy and not low then at least you know for a fact it is not related to any of this otherwise this could be causing you these symptoms overall and even more so after orgasm.
 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7338 on: 15/04/2010 17:28:45 »
current symptoms... perfect, not tired, energetic, no headache or anxiety, feel normal!
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7339 on: 15/04/2010 18:25:13 »
I went to allergist/immunologist and got a list of test done recommend by doctor. They are
cd4 count, ebv titer, serum immunoglobins, sed rate, ana and a test for foods allergy. I am excited about this test seems very comprehensive and the nurses had to draw like five tubes of blood and they said i was testing alot.
Need that bad news lol.


Results; immune good, inflammation good, no allergies(still gonna do my personal test on wheat) but i have been exposed to Epstein barr virus in the past. The moment you get the virus it stays the person till death, but the problem is 90-95% of american adults have the same virus(they are not complaining about pois) and suppossedly there is no antivirus that can get rid of the virus so there is no way to tell if it is the problem.


Connecting the virus to possible casue; 
In multiple sclerosis  people, dr munz reasearch is leading towards ms people react differently to ebv virus. There is reasearch from london that disagress with her reasearch.
In the case of pois may be when orgasm is achieved either the immune system is activated and causes body to go haywire or the immune system is deactivated and the virus does damage.   

If the virus is the problem, i fear it has goten into the central nervous system and it is causing body to react;this happens but it is rare. It might explain why there is a wierd burning sensation in my lower back after orgasm. Or why matsoda recovers greatly from using olive leaf extract which is an antivirus.  It also makes me wonder what other viruses are dormant within the body and if they are adding to the problem.

I am totally confused and dont know how to go with info. 
« Last Edit: 15/04/2010 18:30:08 by CCconfucius »
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7340 on: 15/04/2010 18:34:30 »
Do you guys think it is worth it to go to neurologist, i dont wanna go do all these scans and there be nothing and  i have to pay money i  will never be willing to spend unless i am desperate. I know several have been with normalresults.   
I wonder if there is a way to check for mild inflammation in the brain after orgasm.                                       
 

Offline Counterpoints

  • Hero Member
  • *****
  • Posts: 592
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7341 on: 15/04/2010 21:07:38 »
B_Jim:  the adrenaline could be a side effect, but probably not a cause, in my case anyways.  I have a severe peanut allergy, and have had shots of adrenaline to treat reactions.  The adrenaline certainly does not give me POIS symptoms. (My symptoms are mostly cognitive).
 
 

Offline CertainlyPOIS

  • Hero Member
  • *****
  • Posts: 727
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7342 on: 15/04/2010 21:21:02 »
B_Jim:  the adrenaline could be a side effect, but probably not a cause, in my case anyways.  I have a severe peanut allergy, and have had shots of adrenaline to treat reactions.  The adrenaline certainly does not give me POIS symptoms. (My symptoms are mostly cognitive).
 

i was always curious if a shot of adrenaline will help reduce pois because of the hyper feeling during recovery, so adrenanline does not help reduce your symptoms at all, and those the shot get you hyper
 

Offline bm303

  • First timers
  • *
  • Posts: 3
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7343 on: 16/04/2010 00:04:25 »
I am a 17 year old male who seems to be suffering from POIS. It seems that after orgasm I have these symptoms:
mental confusion
lack of awareness
brain fog
uselessness
zombie-like

The few times I have gone a week without orgasm I feel great... I guess I'll just have to stop masturbating.. but it's hard.
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7344 on: 16/04/2010 01:02:31 »

bm303, welcome! How long do your symptoms last?
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7345 on: 16/04/2010 01:06:32 »

bm303, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:


Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat

Our new POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only formal medical investigation on POIS by Dr. Marcel Waldinger,MD and Dr. Dave Schweitzer, MD.

There are 2 ways to get it: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF. Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For for over 3 years, our POIS forum has attracted over 150 POIS sufferers worldwide who have posted here, plus over 600,000 page visits. Not bad for a rare malady!
 

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • Posts: 8196
  • Thanked: 3 times
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7346 on: 16/04/2010 01:11:20 »

bm303, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: 3 years' worth of posts (over 7,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
demografx POIS site:http://thenakedscientists.com/

and 1,000+ results came up for "demografx" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
 

Offline bm303

  • First timers
  • *
  • Posts: 3
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7347 on: 16/04/2010 05:31:24 »

bm303, welcome! How long do your symptoms last?
Typically 1 day at a severe level then it progressively gets better. I am not sure that POIS is the cause though considering I do have chronic EBV which causes similar symptoms, but it seems like they are heightened after reaching orgasm.
 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7348 on: 16/04/2010 06:15:04 »
Day 0 for me. 3 cups of strawberries last days and harpagophytum supplement didn't help a lot compared to the severity of flulike symptoms (I ate a lot of fast carbs, so it's not a surprise). According to pediatrics.org, high glycemic index food increases blood adrenaline from 3 to 6 hours at least.  The two episodes was after activity (walk) and after lunch. So, I think Demo's argument is good.
Active = adrenaline
I think we may have abnormally high adrenaline after orgasm and we have problem to come back to normal level.

I didn't sleep much and a think to Pois a lot.
Definitly, I feel nervous after orgasm and have muscle tremors.
The cathecolamine rush with have after orgasm is probably too long and too high. Catecholamine release, glycemia and inflammation must be cofactors.
--

Goingcrazy : It seems you have a good frequency :)
How about the hangover felling you described before cure ?




Actually yes, the night following eating 1 pack of strawberries, the brain fog was definitely a lot worse (this would have been my anxiety/depression crappy feeling if I O'd recently, but as time passes for me it ends up being this physical fog in my head), and in the following morning. 
Than I ate another box and that following night is when I had my breakthrough, I felt like some pathway was cleared, followed by that morning the brain fog was gone.  i just want this feeling to stay, or maybe I'll just eat strawberries the rest of my life lol. 
Sorry about not explaining about this because I actually really wanted to I just kept going on about the strawberries.
 

Offline GoingCrazy

  • Hero Member
  • *****
  • Posts: 554
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7349 on: 16/04/2010 06:17:01 »
B_Jim:  the adrenaline could be a side effect, but probably not a cause, in my case anyways.  I have a severe peanut allergy, and have had shots of adrenaline to treat reactions.  The adrenaline certainly does not give me POIS symptoms. (My symptoms are mostly cognitive).
 

i was always curious if a shot of adrenaline will help reduce pois because of the hyper feeling during recovery, so adrenanline does not help reduce your symptoms at all, and those the shot get you hyper

Thanks for that post on adrenaline, i thought that WAS giving me symptoms when I was symptomatic
 

The Naked Scientists Forum

Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #7349 on: 16/04/2010 06:17:01 »

 

SMF 2.0.10 | SMF © 2015, Simple Machines
SMFAds for Free Forums
 
Login
Login with username, password and session length