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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6435948 times)

Offline jplewin

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #75 on: 28/09/2007 01:40:08 »
Frustrated...

Does anybody know someone who has recovered from this???

JP
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #76 on: 28/09/2007 17:06:23 »
Frustrated...

Does anybody know someone who has recovered from this???

JP

JP, I think B_Jim mentioned someone who was "cured" with Zoloft.

B_JIM: is what I just said correct?

Thanks,
demografx
« Last Edit: 19/10/2008 02:47:36 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #77 on: 28/09/2007 17:18:25 »
TO JP

JP, I feel just like you do, very frustrated. I have had this for at least 25 years (!) and I STILL have a difficult time believing this is happening to me. In fact for many years, I REFUSED to believe this was happening to me, I was in such great denial - especially since one doctor/psychiatrist/psychologist/urologist after another had absolutely nothing to offer to alleviate the POIS suffering.

JP, the pain is somehow compounded I think when no one understands what you have!!!

The only thing we can do is be hopeful and not give up.

Although I am in shock over this last POIS episode (I just don't know why it was so BAD!, maybe it was the letdown after I had such great hopes for Cialis to work) I will go back to testing Levitra, which seemed to improve the condition.

Let's stay in touch, you have my address.

Best wishes,
demografx
« Last Edit: 19/10/2008 02:48:19 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #78 on: 28/09/2007 20:41:43 »
Yes that's what i said but maybe "cured" is not the correct word. Zoloft has removed all his post orgasm symptoms.

Sorry, B_Jim, but I'm still just a little bit confused...can you please clarify: what is the difference between "cured" and "removed all his POIS symptoms"? To me, they both mean the same thing, i.e., with Zoloft, he no longer has post-orgasmic difficulties/problems.... Is that accurate?

Thanks again,
demografx
« Last Edit: 19/10/2008 02:48:59 by demografx »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #79 on: 28/09/2007 23:17:03 »
Listen guys I don't think that I am totally "cured" because at times I can still feel some of the effects in a minor way, but the severity has diminished from a 9.99 to a .9 on a scale from 1-10, and sometimes I experience no effect. As I repeat, I am convinced that milk is linked somehow. I'll let you all know how I arrived at this conclusion.

For many years I tried many things, every day of my life was focused around either coping with this problem (suffering, hiding it, trying to appear normal) and trying to find a solution. I went from doctor to doctor to doctor, test to test to test. One idea I had was that my horrible experience was due to a prostate infection. This idea had merit as PE can be caused by infection. So my doctor put me on antibiotics for months to experiment. And... it worked, so I thought for sure I had found the problem. Then, later I went off the medication and my symptoms came back. Honestly I can't remember what my thoughts were at that point, whether I wanted to go back on antibiotics, but I was aware that the only other thing that I had changed was that I quit drinking milk during the time I was taking the medication because milk would have reduced the amount of antibiotics absorbed. So, I did a trial of just quitting milk, and voila.

But still I can't understand it. As if my original problem wasn't strange enough, the "solution" was even stranger. I don't think that the problem is "gone", but just greatly diminished. When I started this thread I must have been going through a minor episode, I don't recall. As I said I am chaste now, but occasionally have NEs. I rarely have NEs if I keep my mind away from anything that would lead me to think of erotic images, not even prime time television dramas that would make me excited. This week I had one, and I have been feeling quite well. I definitely notice the change in my mind, but I suspect it to be what "normal" people experience, feeling more relaxed in the days following sex. I get the sense that my mind perhaps relaxes too much, but it is tolerable. I just makes me a little less quick on the draw mentally, which in turn causes anxiety. So I end up with a relaxed mind getting anxious, and a relaxed mind has more power somehow, so the anxiety can approach panic sometimes when I start to worry. Due to this having a good work environment is crucial to my well being.

John
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #80 on: 29/09/2007 00:52:08 »
Many thanks, John, you're a hero in this forum! (i'm on Day 2 No Dairy!)
« Last Edit: 19/10/2008 02:49:49 by demografx »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #81 on: 29/09/2007 11:51:34 »
Jim, sorry it didn't work for you. Heck, maybe it didn't even work for me, perhaps it was something else entirely totally unrelated to diet that coincided. But I'm not going to test it, I'm staying far away from milk, I'll get my calcium elsewhere. Thanks for mentioning this as it might temper any false hope others put in the idea.

Also, did you go completely off dairy? milk, cheese, ice cream, butter... A lot of grocery store packaged foods have milk components as well. Just curious.

John
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #82 on: 29/09/2007 18:16:35 »
B_Jim, is the "cured" (with Zoloft) POIS individual here in this Forum? Or someone you know or read about? Can you tell us more about this individual? Thank you, demografx
« Last Edit: 19/10/2008 02:51:03 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #83 on: 29/09/2007 18:20:22 »
If someone credibly suggested wild poison berries at this stage I might try it  ;D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #84 on: 01/10/2007 04:48:28 »
it would still help to know _something_ (anything) about this Zoloft "cure"...this is MAJOR, it would be the ONLY one ever successful that we know about! Can you tell us anything at all about him? Thank you, demografx
« Last Edit: 19/10/2008 02:52:07 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #85 on: 01/10/2007 15:57:59 »
well, B_Jim, if you can't say any more about The Zoloft Cure, I can't help but wonder where your strong opinion of dopamine and/or serotonin comes from.
« Last Edit: 01/10/2007 16:07:42 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #86 on: 01/10/2007 18:49:16 »
so why can't you say something about the guy who was cured with Zoloft?
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #87 on: 01/10/2007 21:10:07 »
B_Jim, thank you very much for sending me a great list of symptoms for dopamine and for serotonin. Can you post that here? Others may be interested! Many thanks again, demografx :)

ps - B_Jim, I'm very sorry if I was too anxious in finding out more. POIS is so frustrating as you know, it just makes me want to scream sometimes! So 100 years from now, people will be laughing at all of us saying something like "Don't those silly people know that they just need to eat more carrots for POIS?" ;D
« Last Edit: 19/10/2008 02:53:26 by demografx »
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #88 on: 01/10/2007 21:25:15 »
LOL...wouldn't that be great about the carrots !!...try it !!


I just wanted to pop in and say hi peeps !..I wonder if there is something that you all have in common that might lead to a train of thought about it.....apart form the fact that you share the condition !

There may be a difference between a cure and the alleviation of symptoms. A cure would imply that the condition is gone and that no more meds is needed....whereas, alleviation may just suppress the condition but not cure it.

Anyway, It's nice to see everyone getting along so well and I can tell the passion for at least some way to control this horrible debilitating condition is strong. I truly wish you all well and hope that you are deriving some consolation from each other and also from the fact that others are reading in silence and are being helped by your openness and sharing.

hugs you all....

Neil
« Last Edit: 01/10/2007 21:27:11 by neilep »
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #89 on: 01/10/2007 21:33:05 »
B_Jim..may I ask you ?...are you saying that this person you know was 100% cured ?...with Zoloft ? !!......and now needs no further treatment and is enjoying an active sex life ?.......
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #90 on: 01/10/2007 22:37:26 »

LOL...wouldn't that be great about the carrots !!...try it !!Neil


Neil, beware the deadly carrot correlation! Several very eminent researchers did a study long ago on 200 carrot eaters, and to everyone's shock, in the follow up, they discovered that they were all dead 150 years later! (I believe in sound scientific methodology such as this  ;D )
« Last Edit: 19/10/2008 02:54:33 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #91 on: 01/10/2007 22:41:43 »
Neil, many thanks for your words of encouragement! We'll lick this thing yet! Who can stop this group????
« Last Edit: 19/10/2008 02:55:20 by demografx »
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #92 on: 02/10/2007 16:18:01 »
Neil, many thanks for your words of encouragement! We'll lick this thing yet! Who can stop this group????


LOL !!..Love the carrot expiremnt ...it's just the kind of empirical research that I would conduct !!

demografx..I am just happy that in the thread, you and the others have found a place to discuss and debate about this unsusual and rare condition.

The more you talk abut it here the more others will find out about it..in fact just googling "post orgasmic illness " brings this site to the top of the pile !!....let's hope a solution is found...soon !!
« Last Edit: 19/10/2008 02:55:58 by demografx »
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #93 on: 02/10/2007 16:21:13 »
What really upsets me is the fact that the only course of action is to be chaste !!...this is no solution at all !!...and must severely have relationship implications too !
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #94 on: 02/10/2007 16:42:40 »
What really upsets me is the fact that the only course of action is to be chaste !!...this is no solution at all !!...and must severely have relationship implications too !

Right you are, Neil, this last round of POIS suffering threw me for such a loop I'm trying hard as heck to stay away from the S-word for now. But LEVITRA holds promise!!! Perhaps someone here more gifted than I am in pharmacology can contribute why Levitra might work, then maybe we'll be on to something!

Multiple brains are better than one!!
Best regards,
demografx
« Last Edit: 19/10/2008 02:56:53 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #95 on: 03/10/2007 16:02:31 »
What really upsets me is the fact that the only course of action is to be chaste !!...this is no solution at all !!...and must severely have relationship implications too !

It's ok, Neil, we all have the matter firmly in hand! ;D
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #96 on: 03/10/2007 16:06:39 »
What really upsets me is the fact that the only course of action is to be chaste !!...this is no solution at all !!...and must severely have relationship implications too !

It's ok, Neil, we all have the matter firmly in hand! ;D

 :o :o ;D ;D

 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #97 on: 03/10/2007 16:50:52 »
TO B_JIM

B_Jim, Do you know if there is anything about Levitra that makes it potentially workable? Does it affect dopamine or serotonin?

Thanks,
demografx
« Last Edit: 19/10/2008 02:58:08 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #98 on: 08/10/2007 05:05:07 »
CHASTITY

Hi all, well, I'm following the well-worn chaste route for just a little while. Perhaps part of my problem was too many experiments lately  ;)

C'mon folks, step right up and post a little more of your experience. We can all relate to that.

And it's therapeutic!

Best regards,
demografx
« Last Edit: 19/10/2008 02:58:48 by demografx »
 

Offline nathan

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #99 on: 10/10/2007 19:04:20 »
Some time ago I thought to myself, the cause of all this might be
drinking alcohol (almost) everyday for several years.
I had been drinking about 1000 CC beer everyday for 8 years before
POIS got me. Anyone else who drinks too much or too often?
 

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #99 on: 10/10/2007 19:04:20 »

 

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