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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6446567 times)

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #850 on: 11/07/2008 03:02:18 »

imre1: I would use cyproterone only as a very last resort.  PLEASE try pretty much every SSRI and dopamine reuptake inhibitor (for a period of at least 3 months) before moving onto cyproterone.


I tried many SSRI's and SNRI with no POIS impact at all. Also, each separate drug takes 4 to 6 weeks before effects can be determined. But I'm not enthusiastic about cyproterone.
« Last Edit: 11/07/2008 03:08:29 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #851 on: 11/07/2008 03:14:54 »
MEDICAL ADVICE

Everyone: Unless you are a doctor and the person here is your patient, I really feel it could be dangerous giving any medical advice, especially with POIS. It's a condition that can get desperate and lead to an attitude of "what the heck, I'll try anything". Anyway, there is absolutely no way to safely make an accurate individual diagnosis here just from a person's posting! Even by a physician.
« Last Edit: 11/07/2008 03:18:34 by demografx »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #852 on: 11/07/2008 03:43:33 »
Demo,

It is good sense to consult the doctor; I also worry that people could try potentially harmful medications out of desperation. But it is useful to suggest medications as possible relief, and to share with others what has or hasn't worked.  It's just also worth adding a disclaimer.

cyproterone is pretty drastic.  Someone mentioned that Zoloft worked for them.  I know people tend to be reluctant to take an anti-depressant because of
1) side effects
2) a reluctance to acknowledge the possibility that their condition may be in part psychological or related to a chemical imbalance

There are many things worth trying in order to treat POIS, and SSRIs and Dopamine Reuptake Inhibitors, honestly, are near the top of the list in my opinion. I think it is definitely worth taking the time (notice I suggested 3 months in my previous post) to go through several of these before deciding to change your sexuality.

« Last Edit: 11/07/2008 03:46:33 by Counterpoints »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #853 on: 11/07/2008 06:21:31 »
Imre1  i won't follow you on this one (cyproterone). Here is a common side effect of this drug in men : http://images.google.com/images?hl=en&q=gynecomastia&gbv=2
Perhaps it doesn't bother you after all. I don't know if it's reversible.
« Last Edit: 11/07/2008 08:13:04 by martin88 »
 

Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #854 on: 11/07/2008 13:32:49 »
MEDICAL ADVICE

Everyone: Unless you are a doctor and the person here is your patient, I really feel it could be dangerous giving any medical advice, especially with POIS. It's a condition that can get desperate and lead to an attitude of "what the heck, I'll try anything". Anyway, there is absolutely no way to safely make an accurate individual diagnosis here just from a person's posting! Even by a physician.

Demografx is absolutely right. Any suggestions/recommendations for treatments must first be  talked about with your GP. Please note that any referrals to treatments are down to peoples own personal opinions and that everybody's bio-chemistry is different...plus, you must consider the reactions with existing medications that you may be on and the possibility of allergic reactions too.

Please note that whilst we hope you find the info here interesting and informative, it really is just for general information purposes and does not constitute bona-fide authoritative advice and thus no assurances regarding the accuracy or applicability in relation to your own specific situation is given. PLEASE SEE YOUR DOCTOR before commencing a new treatment.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #855 on: 11/07/2008 16:37:03 »

It is good sense to consult the doctor; I also worry that people could try potentially harmful medications out of desperation. But it is useful to suggest medications as possible relief, and to share with others what has or hasn't worked.  It's just also worth adding a disclaimer.


YES, I HOPE THESE MESSAGES RE MEDICAL ADVICE DON'T STOP FOLKS HERE FROM SHARING THEIR EXPERIENCE OF WHAT WORKS FOR THEM! WE'RE JUST TRYING TO BE CAUTIOUS ABOUT MAKING SPECIFIC RECOMMENDATIONS TO ANOTHER PERSON. THANKS.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #856 on: 11/07/2008 16:57:16 »
I think we should all be free to share both our positive and negative experiences with treatments of all kinds. Some of
the best recommendations I've received regarding health issues have come from friends who have been through the same
health problems and found the answer on their own. (Most of these were NON-drug solutions.)

Consider the following when taking any "medical advice" from anyone, (whether they are licensed to kill or not):

"The JOURNAL of the AMERICAN MEDICAL ASSOCIATION (JAMA) Vol 284, No 4, July 26th 2000 article written by Dr Barbara
Starfield, MD, MPH, of the Johns Hopkins School of Hygiene and Public Health, shows that medical errors may be the third
leading cause of death in the United States.


The report apparently shows there are 2,000 deaths/year from unnecessary surgery; 7000 deaths/year from medication
errors in hospitals; 20,000 deaths/year from other errors in hospitals; 80,000 deaths/year from infections in hospitals;
106,000 deaths/year from non-error, adverse effects of medications - these total up to 225,000 deaths per year in
the US from iatrogenic causes which ranks these deaths as the # 3 killer."
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #857 on: 11/07/2008 17:44:57 »
WOW, GIRLWIND, WHAT AN EYE-OPENER!
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #858 on: 12/07/2008 00:44:57 »
I was symptom free at the beginning of this current episode, but 3-5 days later I have experienced symptoms: mentally wiped, dull pain in lower back, a barely perceivable ache in groin area. My current thoughts: my problem (and possibly ours) is due to chronic prostatis. I have been tested for this years ago when I was relentlessly going to doctors looking for a cure. I had my PSA checked, secretion analyzed, semen ananlyzed, had more than one physical and had a camera jammed up my urethra for a look-see. Everything was "normal". But what I'm feeling now is telling me the tests were imperfect. Perhaps it is easier on a swollen prostate when you eat soluble fiber, less pressure against it. This of course would not explain girlwind's situation, but at the moment I am convinced. 
« Last Edit: 12/07/2008 11:23:33 by John21 »
 

Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #859 on: 12/07/2008 02:45:39 »
Hi John, i feel this has to be checked.
Also you can read on this page :
The fluid that emerges during female ejaculation has a composition similar to the fluid generated in males by the prostate gland
http://en.wikipedia.org/wiki/Skene's_glands
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #860 on: 12/07/2008 11:18:11 »
Martin88, how interesting:
.... they are increasingly perceived as merely different versions of the same gland
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #861 on: 12/07/2008 15:49:47 »
Holy M-F Jesus! I had no idea I had Skene's glands and was possibly ejaculating!  There's definitely A LOT of information
that went missing in my Catholic sex education classes with Sister Marguerite.  :o

Thank you, martin88, for enlightening me about this. Who would have thunk it!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #862 on: 12/07/2008 18:13:55 »
I was symptom free at the beginning of this current episode, but 3-5 days later I have experienced symptoms: mentally wiped, dull pain in lower back, a barely perceivable ache in groin area. My current thoughts: my problem (and possibly ours) is due to chronic prostatis. I have been tested for this years ago when I was relentlessly going to doctors looking for a cure. I had my PSA checked, secretion analyzed, semen ananlyzed, had more than one physical and had a camera jammed up my urethra for a look-see. Everything was "normal". But what I'm feeling now is telling me the tests were imperfect. Perhaps it is easier on a swollen prostate when you eat soluble fiber, less pressure against it. This of course would not explain girlwind's situation, but at the moment I am convinced. 

I was just diagnosed with mild prostatitis and I'm on my 3rd round of antibiotics. It seems to come and go when it pleases. POIS is starting to almost get too complicated for my shrinking brain.....
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #863 on: 12/07/2008 18:18:43 »
Holy M-F Jesus! I had no idea I had Skene's glands and was possibly ejaculating!  There's definitely A LOT of information
that went missing in my Catholic sex education classes with Sister Marguerite.  :o

Thank you, martin88, for enlightening me about this. Who would have thunk it!

Holy Monday thru Friday???  ;D Hey, I had sex ed 101 with Sister Marguerite too! You were in the all girls class! I was the one who could never stand up unless I had my books in front of me... :o
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #864 on: 12/07/2008 18:28:02 »
Demografx,
Were you diagnosed by complaining about POIS symptoms? What test determined it to be prostaitis? What type of antibiotics are you taking? Is it possible that the 75% cure is somewhat due to this vs Levitra?
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #865 on: 12/07/2008 19:10:08 »
Yes, demografx, I figured you were the geek with books piled in front of you... Please explain WHY you couldn't stand up?

All this POIS info has become more complex than I could have ever imagined. I've been having a thought... that maybe I
could make a little film about it to post on YouTube. It could be predominantly a written description of the many symptoms
associated with POIS, and could include some of more notable ideas, theories, and questions we've come up with on this
forum. (Oddly enough I'm hearing it set to the music from an old western...)  The clip could finish with a WANTED poster
reading: If you know the whereabouts of the answer to the riddle of this condition known as POIS, please let us have it.
I see some dramatic piece of old western footage to finish it off with.   

What do you think? If we appeal to the mainstream, we might get more attention about POIS, more people who have it could
come forward, and maybe some health professionals who have a clue about how to diagnose it would get involved....   [?]

It's a thought.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #866 on: 12/07/2008 21:22:40 »
Demografx,
Were you diagnosed by complaining about POIS symptoms? What test determined it to be prostaitis? What type of antibiotics are you taking? Is it possible that the 75% cure is somewhat due to this vs Levitra?

Physical exam. Antibiotics are irrelevant, they're not working.

POIS related? No, John, absolutely not, the 75% cure is totally credited to Levitra. I have no doubt about that.

The prostatitis is a very recent development and I think is caused by my irritable bowel syndrome acting up heavily these last few months. I know this is TMI, but false-alarm bowel movements are putting pressure on the prostate.

I may have confused things by bringing up the prostatitis. I simply reacted when I saw it was mentioned, and that I recently was diagnosed with it.
« Last Edit: 12/07/2008 21:49:08 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #867 on: 12/07/2008 21:25:52 »

Yes, demografx, I figured you were the geek with books piled in front of you... Please explain WHY you couldn't stand up?


Er, gulp, why I....ummm....hmmmm...stand....UP....er, uh, you know........
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #868 on: 12/07/2008 21:27:51 »

All this POIS info has become more complex than I could have ever imagined. I've been having a thought... that maybe I
could make a little film about it to post on YouTube. It could be predominantly a written description of the many symptoms
associated with POIS, and could include some of more notable ideas, theories, and questions we've come up with on this
forum. (Oddly enough I'm hearing it set to the music from an old western...)  The clip could finish with a WANTED poster
reading: If you know the whereabouts of the answer to the riddle of this condition known as POIS, please let us have it.
I see some dramatic piece of old western footage to finish it off with.  

What do you think? If we appeal to the mainstream, we might get more attention about POIS, more people who have it could
come forward, and maybe some health professionals who have a clue about how to diagnose it would get involved....   [?]

It's a thought.

WOW, GIRLWIND! Absolutely Brilliant idea!!!!! (I'm so glad I thought of it ;D )
« Last Edit: 12/07/2008 21:29:35 by demografx »
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #869 on: 12/07/2008 22:10:09 »
I think youtube might be dangerous.  The community is generally very immature; you're more likely to get ridicule than help.   It could also be a big turn off to many stuffed-shirt physicians who could help.  I like the spirit of your idea, but I think it would do more harm than good.

Edit: To elaborate, I think it might work on some levels, but it would need to be extremely carefully put together.  Many would laugh or think it was a joke if there were a youtube video connecting orgasm to these symptoms (with western music) and then asking for feedback.  Others would be even less kind.

« Last Edit: 12/07/2008 22:37:08 by Counterpoints »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #870 on: 12/07/2008 23:12:06 »
Demografx: not TMI at all, thanks for sharing.

Theory: POIS is caused by lower pelvic inflammation.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #871 on: 12/07/2008 23:37:32 »
I think youtube might be dangerous.  The community is generally very immature; you're more likely to get ridicule than help.   It could also be a big turn off to many stuffed-shirt physicians who could help.  I like the spirit of your idea, but I think it would do more harm than good.

Edit: To elaborate, I think it might work on some levels, but it would need to be extremely carefully put together.  Many would laugh or think it was a joke if there were a youtube video connecting orgasm to these symptoms (with western music) and then asking for feedback.  Others would be even less kind.


I expected that too, but I posted 4 YouTubes of my pianoplaying and, out of dozens and dozens of comments, got only one immature post, and that was from someone who followed me from a Forum and didn't like what I, along with the majority of the listmembers,  had to say about him there.

The tags also need to be carefully thought out to attract the kind of people girlwind wants to attract. I think "post orgasmic illness syndrome" for example will not attract the immature; "masturbating" might.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #872 on: 12/07/2008 23:40:29 »
Demografx: not TMI at all, thanks for sharing.

Theory: POIS is caused by lower pelvic inflammation.

Thanks, John.

And very interesting theory. It took multiple visits, with multiple exams (at my insistence) to find that my current problems are associated with prostate inflammation. So not easily identified.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #873 on: 13/07/2008 00:10:52 »
Okay--So I have one enthusiastic yes and one semi-enthusiastic no. Does anyone else have any feedback about my idea to
do a short youtube movie about POIS? And I do mean short--hopefully not longer than 5-7 minutes. Which, at my rate of
editing plus obsessive perfectionism equals about 10-15 hours per minute of finished product to complete. (That doesn't
include getting the facts lined up in a cohesive flowing way and finding some music to go with it all.)

And, Counterpoints, I'm not attached to using western music, if that's a problem. I'm just trying to figure out an interesting and
artistic way to make a point about this debilitating condition. My intention is to attract the people who have POIS and are looking
for a forum like ours to be included in, and hopefully, to join with us in researching this and finding answers. And of course to
reel in some health prof's who can help us.

Also, demografx, I agree that we would need to title the posting in a way that attracts people with health issues, and not just the
bored and boring, looking for someone to ridicule. But I'm not sure if POIS is the right title. How many of US even knew what this
was called before we found this forum--I didn't.  So that's something to think about.

 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #874 on: 13/07/2008 00:42:40 »
Girlwind, I think that just a straightforward talk about it might spread the word a little. For me public speaking is nerveracking enough, I can't imagine broadcasting such a personal story, heck even my name here is a pseudonym. But if you are up to it, it would be a wonderful caring thing to do. I think that anyone with the condition is already using a search engine, and such a video could only increase their chances of finding us. Thats better for us as we have more brainpower working, and better for those out there who are searching and finding nothing as we all probably did for years and years. I say go for it!
« Last Edit: 13/07/2008 00:44:55 by John21 »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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