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Author Topic: Post Orgasmic Illness Syndrome (POIS)  (Read 6430292 times)

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #950 on: 27/07/2008 12:21:05 »
I received a reply from a member of the International Society for Sexual Medicine. I would have preferred to have emailed you all the reply rather than post it here in public but I don't see a way to easily email all members of a particular forum. Do you know if this is possible? In the meantime, here is the reply which I hope the author doesn't mind me posting on the forum.

"Thank you for your e-mail. I have seen men with this bothersome problem and I certainly acknowledge the considerable distress that the condition can cause. I will be seeing Marcel next week and will speak with him about his knowledge of current research and clinical practice in this field. As you probably know, his main focus is currently on premature ejaculation, but he should still know who is currently interested.

I will have a look at your forum, too."

It's good to have some interest from ISSM. I think its important to bare in mind that these are all busy folk with full-time jobs without putting in extra time into researching pois. I think our best bet at the moment is to keep reaching out to as many people as possible to raise awareness of the syndrome - the more people are talking about it and the more cases of pois that are found, the more likely it is that someone will be able to secure funding and time to research it.
 

Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #951 on: 27/07/2008 12:33:58 »
Quote from Girlwind:
Quote
I've been working on the text for my youtube PSA/film this weekend and borrowed a few phrases from you.
(I trust that you don't mind.)

Hi Girlwind - of course I don't mind you quoting from my letter - glad it helps. And I totally understand you wanting to focus on the film by yourself - I often prefer to work alone creating such things. Unfortunately I don't know any internet sources of free, public domain music off the top of my head but googling things like 'public domain music' seems to raise a few possibilities. I'll ask some friends who might know more about this.

Garlic and candida :
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=180587
Great link B_Jim, thanks

Welcome bola bola, glad you found us.

Just a reminder: I'll be away from home most of the next couple of weeks with only limited internet access but will post when I can.
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #952 on: 27/07/2008 23:26:25 »
Girlwind,
Quote
What percentage of vegetables to protein did you use with this diet?  And what percentage of the veggies are cooked
vs. raw? And is there any other animal food, as in meat, allowed? Or is it only dairy?

I'm not sure. I think my daily supper is typical: potatoes or rice + veggies + meat of some kind. I always cook my veggies, only now am I adding uncooked garlic and onions, and not really a lot of them, a clove of garlic, and a slice of onion. For meat I usually eat a soy/ground beef mixture, or sometimes fish, but that part of my diet is not new and could not explain my lack of symptoms this time. By the way, if anyone finds the raw garlic a little strong it can be chopped up fine and put on a cracker with Cheese Whiz, this seems to take some of the "bite" out of it, I actually like the taste of this.

I'm not sure which of these items is helping me, I know that "Budwig" stuff sounds a little dubious when you read the wild claims about it, and perhaps any benefit from it is not coming from whatever mechanism is purported to occur. Perhaps it is entirely the garlic and onion that is making the difference, at this point I have no idea.


Hopefully I am not premature in claiming my "success". I definitely had no symptoms this time and I am thrilled to report that, but in science nothing is proven with one positive result, there has to be repeated success. I dread the thought of getting someone's hopes up only to have them come crashing down, but I'm sure you'd all want me to speak up as soon as possible. Cross your fingers people.

 

Offline solution

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #953 on: 30/07/2008 02:47:16 »
Me too I have started to add 1 clove of garlic (raw) a day to my diet. Greetings for John21.
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #954 on: 30/07/2008 03:40:13 »
John 21--It sounds like it's not exactly the Budwig diet you're doing, as they are very strict about not using animal fats, meats,
processed foods (like Cheese Whiz) and sugar. So it must be that the garlic and onion that is the key for you. I have eaten a lot
of raw garlic over the years (to stave off chronic infections), but it hasn't made a difference with the POIS symptoms. I'll be curious
to hear how this onion  and garlic addition works for you in the long run.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #955 on: 30/07/2008 06:59:07 »
Does this mean that I now have to go looking for smelly Levitra? ;D 


[:-'(]  <<<<===== crying from onions


John21, kidding aside this is exciting. Fingers AND toes crossed that this replicates!
« Last Edit: 30/07/2008 07:03:32 by demografx »
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #956 on: 30/07/2008 07:21:12 »
Googling onion and garlic and sex drive, a number of casual sources suggest a positive correlation. Could onion and garlic be a natural equivalent for the Levitra elements that help POIS?
 

Offline sparx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #957 on: 31/07/2008 01:17:11 »
thanks demografx for being such a good moderator. I feel like you help to keep us all feeling included and appreciated.
Awww  <blush>   thank you!  ;D 
Does this mean that I now have to go looking for smelly Levitra? ;D 


[:-'(]  <<<<===== crying from onions

yes demografx, great to know you are taking care of us! I'd offer to give you a big wet hairy kiss [:X] , (but only on the cheek since you've eaten that smelly stuff  :P ...  I hope no one else will be discouraged from helping out by the thought of a similar offer ... I'm not at all 'easy'[:I] you know)

Never heard of using garlic as an anti-inflamatory before but it appears many others on the net have (and do!). I've taken odourless garlic supplements for months at a time in the past too, but never really noticed an effect on POIS.

Isn't it some sulphur compound that gives raw, fresh garlic its odour? Maybe that's the active element; sulphur? Are we looking at an infection of some type? Bacteria (yeast has been mentioned, but a broad-spectrum antibiotic treatment for yeast might also wipe out another unsuspected infection).

What about toxoplasmosis; do GPs ever check for signs of chronic infection unless they are asked? As far as I know my blood screens have never included tests for infectons.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #958 on: 31/07/2008 18:18:30 »
SPARX, thanks for the affection!

This onion/garlic route is such an unexpected twist to our mad search here for the RIGHT witches' brew! Why oh why couldn't I have found this Forum 20 years ago, when I was less burned out? Oh well, thankfully the next generation of POIS sufferers will have a much easier road, if not a 100% cure! History will look back at us like we look back at the days before aspirin-for-headaches!
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #959 on: 31/07/2008 21:42:06 »
Sparx:  toxoplasmosis

Interesting, I have never heard of this. I wonder if somehow a reaction post sexually allows something like Toxoplasma to take a foothold...
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #960 on: 31/07/2008 23:49:16 »
How did toxoplasmosis get into this discussion?  It's a parasite that you get from exposure to cat feces.
What connection does it have to POIS?
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #961 on: 01/08/2008 00:35:22 »
Girlwind,
We're just brainstorming... if raw garlic or onion are eliminating my symptoms what could be the reason? It is believed by some that garlic can kill various types of invaders:
 http://medherb.com/Materia_Medica/Allium_sativum_-_Antibiotic_and_Immune_Properties.htm

 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #962 on: 01/08/2008 02:07:29 »
So this brings us back to the idea that there is an immune correlation to this condition, for some of us. If anti-pathogenic
herbs like garlic help relieve your symptoms (John 21), then one would assume that the core of the POIS problem in your case
has to do with restoring healthy immunity. This would definitely give the endocrine system a break from having to be on
guard and fighting whatever yeast, bacteria, microbe is on your case, and enable it to restore itself. (That's one theory.)

But the Cheese Whiz---I can't quite squeeze my mind around that. Is it really a food substance...  ;) :D :D
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #963 on: 01/08/2008 05:21:52 »
I once went into Theory-Land like this when I thought that a testosterone injection worked. It turned out to be a placebo effect. 2nd time it didn't work.  :( 

But I wish John21 the best that this turns out well!
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #964 on: 01/08/2008 05:32:03 »
INTERESTING FACTOID

Does everyone realize that John21 was the VERY FIRST PERSON TO POST AT THIS POIS FORUM?

February 18, 2007. A famous date for the history/medical books! (More interesting to me than the first moon landing date!)
« Last Edit: 01/08/2008 05:41:39 by demografx »
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #965 on: 01/08/2008 11:15:50 »
Demografx, it was one of those moments of pure despair...I was so embarrassed to post about it.

Girlwind, I feel the same about processed foods, but I'll make exceptions if it helps me out of the POIS box.  :)
« Last Edit: 01/08/2008 11:18:17 by John21 »
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #966 on: 01/08/2008 14:39:53 »
John21, a quick question for you--how many days had you been eating the raw garlic prior to your POIS-free NE?
 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #967 on: 01/08/2008 23:24:51 »
Jim, yes I eat bread everyday.

Guthrie, good question…if I recall correctly I was eating the raw clove of garlic and cooked onions daily for three days prior, and then added the onion on day 2 after the NE. 
 

Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #968 on: 01/08/2008 23:29:23 »
John21--
So, if I understand you correctly, if it was the garlic that was the active agent, it was able to prevent POIS after only 3 days of building up in your system.  That's pretty quick--again, let us know if it continues to work.
 

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #969 on: 02/08/2008 09:09:15 »

But the Cheese Whiz---I can't quite squeeze my mind around that. Is it really a food substance...  ;) :D :D


Girlwind, maybe John21 just eats the packaging?????
 

Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #970 on: 02/08/2008 18:17:25 »
This is going to be my last post.

It might be benificial to have your hart rythm checked. My rythm seems to have been seriously disturbed following orgasm. Maybe then i wasn't suffering from a migraine, but of some sort of hart attack, which is a well documented occurence during sexual activity.

I am now on emconcor (beta blockers) and this has mostly solved all my problems.

 

Offline ollecrev

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #971 on: 02/08/2008 18:27:54 »
Hi all,

I was happy to see this thread (even if a year late to it), as I've had very similar symptoms for a few years (I'm 32) and it's been very difficult.   After orgasm (which is most often from wet dreams at this point), I'll feel really unpleasant for several days, greatly fatigued, a weaker (I can't lift nearly as much in the gym, and have much lower endurance for cardiovascular activity), I often feel a non-localized "pain" like in my head and body that's really hard to describe - it feels like something's collapsing energetically inside.   I also have trouble focusing on work and generally engaging with people for any period of time (and I'm normally very social).   I've started to go to great lengths to avoid this, such as practicing techniques to avoid orgasms during sex (which makes my wife happy as well), avoiding masturbating, etc.  I've found doing that has other benefits to my well being, such as greatly improved strength, etc., except when I have an orgasm. After about a month or two of not having one though, I start to get a little out of balance and an orgasm is inevitable.

Now for me, I'm beginning to suspect it might be thyroid related (I think someone else here mentioned that they noticed it after treatment for high thyroid) - other folks in my family have low thyroid which began around my age, and initial bloodwork indicated high TSH levels - 5.3 (I don't know the units), which usually means the body's asking for more thyroid than it's getting.  My doctor said 5.5 is the usual level where you've got "low thyroid", but other doctors say 4.5 is a better threshold and that you need to take into account a lot more factors than just TSH level.     I've had depression off and on in my life, but that's also a symptom of low thyroid, FWIW.   When I described my symptoms after sex he didn't really take it very seriously - "oh yeah, men get tired".   Trying another doctor this week.

For my own remedies, I've found taking men's multivitamins helps the next day, and sometimes a big dose of vitamins followed by vigorous workout seems to "kick-start" my body out of it.   Seems counterintuitive, since the natural tendency is to be tired, but it's worked well for me.  I've wondered if I might be compensating for low thyroid by boosting my testosterone levels (which BTW the blood tests said were higher than average, which surprised me, since I expected them to be low).   I've also found eating eggs seems like it accelerates the recovery time by a day or two, though probably not so good for the cholesterol.   I'm going to try out the zinc suggestion today and see if I notice anything.

Anyway, I'm still reading through the forty-something pages of this thread, but it's been helpful.   I'm wondering if someone might turn the thread into a condensed digest form?

Thanks everyone for sharing.

Cheers,
ollec

 

Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #972 on: 02/08/2008 19:18:09 »
Ollec,
Quote
I've also found eating eggs seems like it accelerates the recovery time by a day or two, though probably not so good for the cholesterol.

I believe that our blood cholesterol levels depend mostly on our saturated/trans fat intake, and less on our ingested cholesterol. I have heard firsthand of a man eating three eggs for breakfast for many years and having a cholesterol reading the best the doctor had ever seen.

http://www.hsph.harvard.edu/nutritionsource/what-should-you-eat/fats-full-story/index.html#cholesterol
 

Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #973 on: 02/08/2008 22:24:40 »
Cholesterol is what all the steroid hormones in the body are made of. If one's cholesterol is too low, that will affect
the functioning of all the glands in the body. I know a bit about this, because my father was a pathologist whom I
use to have many discussions about health and diet with. He performed over 3000 autopsies in his life, and it was his
experience that those who lived to a ripe old age had a chunk of fat reserves in the area of the adrenal glands.  He
believed that healthy cholesterol rich body fat reserve is what nourished the entire glandular system and helped to
prolong these elders lives. (And no--that's not the same as  having rolls of fat around the middle section of the body,
which has often been associated with a higher risk of heart attacks, strokes and diabetes.)

Ten years ago I had severe malabsorbtion, due to a HCl deficiency. At that point my cholesterol was only 107, my
thyroid was pathetically low, my protein was in the red, my DHEA and testosterone was that of a 70 year old, and I
had ZERO energy. Once I started digesting and absorbing my food, it changed dramatically in less than a year. Un-
fortunately I went through a similar ordeal attempting to find the answer to my digestive problems, as we are going
through with the POIS problem on this forum. I actually had one doctor tell me I needed "to chew my food 100 times
and pray before eating." The answer I needed eventually came from a friend who gave me a few tablets of her digestive
aids to try--they had HCl in them, and the rest is now history. My cholesterol is now 168.
 

Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #974 on: 02/08/2008 22:41:04 »
For my own remedies, I've found taking men's multivitamins helps the next day, and sometimes a big dose of vitamins followed by vigorous workout seems to "kick-start" my body out of it.   Seems counterintuitive, since the natural tendency is to be tired, but it's worked well for me. 

Ollecrev, this is not counter intuitive.  Exercise can cause a release in endorphins, which may make you feel better.

I am starting to wonder whether Naltrexone or particularly Low Dose Naltrexone (LDN) might help us.  There is a parallel between how opiates and orgasm affect the pleasure centre.  Naltrexone can also have sexual side effects similar to Levitra.  There may be a connection here.  (As far as I can tell, not much is known about why Naltrexone can have this stimulating effect).

Naltrexone would block the opiate receptors (for up to 24 hours), perhaps preventing an opiod overdose during orgasm which could cause these symptoms.  Low Dose Naltrexone works in almost the opposite way.  Because the dose is so small, the receptors are blocked for only about 3 hours, and the body compensates by generating more endorphins.  This is being used as an experimental treatment for people with a huge variety of nervous system disorders.

However, there are risks associated with the long term use of these medications, and I think a physician is unlikely to prescribe it for you unless you make a good case.  Naltrexone would usually be prescribed to people with serious alcohol or opiod dependencies.  Low dose (about 1 tenth the dose) is more experimental, and would have to be specially produced by a pharmacy (or you would have to make the dosage small enough yourself).

Please read here: http://en.wikipedia.org/wiki/Naltrexone
and here: http://en.wikipedia.org/wiki/Low_dose_naltrexone

And let me know what you think.
« Last Edit: 03/08/2008 00:59:15 by Counterpoints »
 

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Re: Post Orgasmic Illness Syndrome (POIS)
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